Search
Search
About
Log in
Join
Experiences with
Liver transplant
Posts
Communities
10,173 public posts
Filter results
Future Treatments
hi all, I promise I won’t talk about me or my fears cos I know you have all done so much to reassure me and must feel like you are bashing your head against a brick wall, … I really do thank you all from the bottom of my heart, however I have gone into a bit of panic and upset mode and could really do
hi all, I promise I won’t talk about me or my fears cos I know you have all done so much to reassure me and must feel like you are bashing your head against a brick wall, … I really do thank you all from the bottom of my heart, however I have gone into a bit of panic and upset mode and could really do
Sophia1968
in
British Liver Trust
1 year ago
elevated bloods
hi I’ve had near perfect liver test results for the past 12-13 years My last test recorded a significant jump in my readings and it was three days before I was contacted by my dr to say wait a month and Wewill redo. I’d had covid and taken antivirals. I did new ones two days ago and normally I see
hi I’ve had near perfect liver test results for the past 12-13 years My last test recorded a significant jump in my readings and it was three days before I was contacted by my dr to say wait a month and Wewill redo. I’d had covid and taken antivirals. I did new ones two days ago and normally I see
boneytoys
in
PBC Foundation
1 year ago
Norweigen Crusted
I was put in St Micheals Hospita;l from a infection of my coplon. stayed 5 days then sent to St Micheals rehab and was there for 6 days. They came in and told me I had to stay another 7 days. I was angry because theyb had ied to me abut the help they were going to give me then said they were not. so
I was put in St Micheals Hospita;l from a infection of my coplon. stayed 5 days then sent to St Micheals rehab and was there for 6 days. They came in and told me I had to stay another 7 days. I was angry because theyb had ied to me abut the help they were going to give me then said they were not. so
Lostgoose
in
CLL Support
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Tuesday
Good news Tuesday. Today’s blood test results from the Liver Nurse were very encouraging. Albumen back to normal. Bilirubin heading in the right direction. With every thing crossed it looks like a compensated liver is possible. 3 months of hell may be easing. As Gene Krantz (NASA Launch Team Manager
Good news Tuesday. Today’s blood test results from the Liver Nurse were very encouraging. Albumen back to normal. Bilirubin heading in the right direction. With every thing crossed it looks like a compensated liver is possible. 3 months of hell may be easing. As Gene Krantz (NASA Launch Team Manager
Hidden
in
British Liver Trust
1 year ago
What are your symptoms of regenerative nodular hyperplasia and is it worth doing a CT scan?
Wanted to ask of those who were diagnonsed with RNH what you symptoms were and how it was eventually diagnosed (and whether you went through a battery of tests, all showing normal liver function)? It appears this has a lot of cirrhosis symptoms but is very difficult to diagnose (only a specialised form
Wanted to ask of those who were diagnonsed with RNH what you symptoms were and how it was eventually diagnosed (and whether you went through a battery of tests, all showing normal liver function)? It appears this has a lot of cirrhosis symptoms but is very difficult to diagnose (only a specialised form
Vkusnyatina
in
British Liver Trust
1 year ago
Bloods
Been off the drink now 14 months been for a assessment for TP just waiting to see if i can get on list, my recent blood test showed my bilirubin is 81 now down from 140, INR still 2.1 is that a big jump forward for the good 140 to 81 if any one with decompensated liver what are yours
Been off the drink now 14 months been for a assessment for TP just waiting to see if i can get on list, my recent blood test showed my bilirubin is 81 now down from 140, INR still 2.1 is that a big jump forward for the good 140 to 81 if any one with decompensated liver what are yours
lonmallin50
in
British Liver Trust
1 year ago
advise please
can anyone help with more information as I am still unsure what’s going on. I was diagnosed with fatty liver last week. I understand what I have to do to keep a check on it. But I am having problems understanding why this has happened. Last year I had an ultrasound and it showed normal liver but dilated
can anyone help with more information as I am still unsure what’s going on. I was diagnosed with fatty liver last week. I understand what I have to do to keep a check on it. But I am having problems understanding why this has happened. Last year I had an ultrasound and it showed normal liver but dilated
Bettina2023
in
British Liver Trust
1 year ago
fibroscan vs mre/mri
My fibroscan and MRE/MRI result are st totally 2 different spectrum. Which is the correct one? Fibroscan show my CAP is 400 and Kpa of 10.9. MRE/MRI show i have no fatty liver or fibrosis. How can they differ so much?
My fibroscan and MRE/MRI result are st totally 2 different spectrum. Which is the correct one? Fibroscan show my CAP is 400 and Kpa of 10.9. MRE/MRI show i have no fatty liver or fibrosis. How can they differ so much?
Reneling
in
British Liver Trust
1 year ago
weight gain
I’m wondering if anyone else having had a kidney transplant is dealing with a large amount of weight gain. If so how are you dealing with it?
I’m wondering if anyone else having had a kidney transplant is dealing with a large amount of weight gain. If so how are you dealing with it?
Shepip51
in
Kidney Dialysis
1 year ago
Advice if possible
Hi, Apologies in advance for the long story but I have been so worried about this and am hoping there may be someone on here with similar experience who may be able to reassure me. I am a 65 year old female. I rarely drink alcohol, am only 5 lbs into the overweight bracket, do some form of exercise
Hi, Apologies in advance for the long story but I have been so worried about this and am hoping there may be someone on here with similar experience who may be able to reassure me. I am a 65 year old female. I rarely drink alcohol, am only 5 lbs into the overweight bracket, do some form of exercise
Husband2022
in
British Liver Trust
1 year ago
advice please
I was referred for a fibroscan after a blood test. It took approx 11 months for scan which happened a few weeks before Christmas. The scan revealed I had nafld with a score of 36. This was all conducted by a specialist nurse, as yet I have not seen a consultant and had no further tests or scans. I had
I was referred for a fibroscan after a blood test. It took approx 11 months for scan which happened a few weeks before Christmas. The scan revealed I had nafld with a score of 36. This was all conducted by a specialist nurse, as yet I have not seen a consultant and had no further tests or scans. I had
gavinlwright
in
British Liver Trust
1 year ago
Questions
As I stated in my first post here, they told me my MRE results were "mild scarring."I thought it was gonna be a lot worse although I know scarring is to be taken seriously. I am awaiting to see stomach doctor and will no doubt learn more about what I'm dealing with. I have read early fibrosis doesn't
As I stated in my first post here, they told me my MRE results were "mild scarring."I thought it was gonna be a lot worse although I know scarring is to be taken seriously. I am awaiting to see stomach doctor and will no doubt learn more about what I'm dealing with. I have read early fibrosis doesn't
Rbbooks
in
British Liver Trust
1 year ago
Due to have 2 days of tests Starting Monday for TP suitability. Very nervous ! First time I've posted.
So I'm just 60 and diagnosed decompensated ARLD.in September 22. A month later they have found Varices and then a lesion on liver. Have been sober 9 months, on strict diet and keep to it most of the time. Theve banded 2 Varices and put me on beta blockers. You know before I got unwell presenting with
So I'm just 60 and diagnosed decompensated ARLD.in September 22. A month later they have found Varices and then a lesion on liver. Have been sober 9 months, on strict diet and keep to it most of the time. Theve banded 2 Varices and put me on beta blockers. You know before I got unwell presenting with
Gus63
in
British Liver Trust
1 year ago
Hepatic encephalopathy
I've been been diagnosed with fatty liver after CT and 2 ultrasounds and normal bloods but I itch all the time and get confused and really scared I get muscle cramps and stomach cramps chest pain my stomach looks like a football and I've put on 8lb with in 2 weeks I also have spider veins on my chest
I've been been diagnosed with fatty liver after CT and 2 ultrasounds and normal bloods but I itch all the time and get confused and really scared I get muscle cramps and stomach cramps chest pain my stomach looks like a football and I've put on 8lb with in 2 weeks I also have spider veins on my chest
Hidden
in
British Liver Trust
1 year ago
NAFLD
was interested if anyone with NAFLD/NASH diagnosis and F2 fibrosis have a had consistent low or normal AST/ALT ? Basically any blood test I have had is right in the normal range, this includes antibodies, platelets etc. How can I be so fatigued if there are no signs in blood work, ever ? My fibroscan
was interested if anyone with NAFLD/NASH diagnosis and F2 fibrosis have a had consistent low or normal AST/ALT ? Basically any blood test I have had is right in the normal range, this includes antibodies, platelets etc. How can I be so fatigued if there are no signs in blood work, ever ? My fibroscan
Oztrax
in
British Liver Trust
1 year ago
Mild Scarring
Hello, everyone, I've been lurking here since last year. I want to thank you for your inspiring stories and wealth of positive information you exchange and for being brave enough to share your struggles and losses. I am 43 from usa, just diagnosed with mild scarring of my liver through mre. I am not
Hello, everyone, I've been lurking here since last year. I want to thank you for your inspiring stories and wealth of positive information you exchange and for being brave enough to share your struggles and losses. I am 43 from usa, just diagnosed with mild scarring of my liver through mre. I am not
Rbbooks
in
British Liver Trust
1 year ago
Mycophenolate trial?
Hi, I've been invited to take part in a drug trial of mycophenolate in early stage Limited Systemic Scleroderma. It's being overseen by Prof Denton and Royal Free/ UCLH. I understand the drop is commonly used for people receiving organ transplants and in the diffuse cutaneous form of Sac, but the trial
Hi, I've been invited to take part in a drug trial of mycophenolate in early stage Limited Systemic Scleroderma. It's being overseen by Prof Denton and Royal Free/ UCLH. I understand the drop is commonly used for people receiving organ transplants and in the diffuse cutaneous form of Sac, but the trial
LadyTrundle
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
25 years of daily heavy drinking
hi, I have been one of the lucky ones, and I’m not writing this to gloat, I’ve read many of the stories on here about the effects of drinking, and it has been through reading these and re-assessing my own lifestyle that I was able to finally go to the doctor and tell him the truth about my drinking.
hi, I have been one of the lucky ones, and I’m not writing this to gloat, I’ve read many of the stories on here about the effects of drinking, and it has been through reading these and re-assessing my own lifestyle that I was able to finally go to the doctor and tell him the truth about my drinking.
Menomosso
in
British Liver Trust
1 year ago
New to group need help I'm so Scared
My husband went to hospital in Jan and was given ascitic drain, they drained 7 5 litres ans he lost 10kg overnight, they told us he had liver failure, this was genuinely the first we knew. He gave up drinking immediately and we thought he'd improve but...... in reality he has been in bed ever since!
My husband went to hospital in Jan and was given ascitic drain, they drained 7 5 litres ans he lost 10kg overnight, they told us he had liver failure, this was genuinely the first we knew. He gave up drinking immediately and we thought he'd improve but...... in reality he has been in bed ever since!
123toyouto
in
British Liver Trust
1 year ago
Liver fibrosis
i did my fibroscan yesterday and the result came back alarming. My CAP value is at 400 and Fibrosis score 10.9. I’m arranging for a MRE to confirm diagnosis. Doctor says that this is still reversible. I’m so scared tha I’m having living cirrhosis. I’m only 39 yo with 2 young kids. Would appreciate
i did my fibroscan yesterday and the result came back alarming. My CAP value is at 400 and Fibrosis score 10.9. I’m arranging for a MRE to confirm diagnosis. Doctor says that this is still reversible. I’m so scared tha I’m having living cirrhosis. I’m only 39 yo with 2 young kids. Would appreciate
Reneling
in
British Liver Trust
1 year ago
1
...
50
51
52
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
5092 results
PBC Foundation
981 results
Lung Conditions Community Forum
470 results
View top 10 communities
Sort by
Most Relevant
Newest