advice please

[gavinlwright]

I was referred for a fibroscan after a blood test. It took approx 11 months for scan which happened a few weeks before Christmas. The scan revealed I had nafld with a score of 36. This was all conducted by a specialist nurse, as yet I have not seen a consultant and had no further tests or scans.

I had an appointment to see the consultant in may but this has now been moved to July. I have given up alcohol and have lost some weight. I have not had any contact with the gastroenterologist or any correspondence confirming findings or referrals to dietician or anyone else.

I have further had a heart condition diagnosed and have been scheduled to have a pacemaker fitted. The support from cardiology has been good.

My question I suppose is; is it common to be left without any support from the nhs for so long after a liver diagnosis and what advice can be given as with everything going on I am struggling?

[Mrsmaggie]

Hi, no advise but in exactly the same position as you …..just waiting !

[gavinlwright in reply to Mrsmaggie]

I want to say I’m glad I’m not the only one but it just seems wrong to be left in limbo for so long.

[BritishLiverTrust1 Partner British Liver Trust]

If you would find it useful to talk things over, our nurse-led helpline is open Monday to Friday from 9am to 3pm on 0800 652 7330 (excluding bank holidays)

Best wishes

British Liver Trust