Jimmy went to see GI yesterday because his regular Dr felt he had fluid built up in stomach. He's scheduled for procedure to pull fluid off this Thursday. His liver function and rest of labs are actually ok. Dr says he's holding his own . He's taking a reduced dosage of Lenvima (2tablets) because of side effects and sometimes has to back off for a day or two even at lower dose due to side effects.
Insurance was giving problem about refilling his xifaxan. Wanted the GI to try alternative medicines that are cheaper. Problem is that none actually work for hepatic encephalopathy. Only xifaxan and lactulose are approved for treatment. Luckily the GI got hospital involved and they've got it approved to come from hospital pharmacy and mailed to us. So we're just plugging on and trying to live every day to fullest. Picture is from Jimmy's birthday on September 10th at our favorite Mexican restaurant.