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Livedo reticularis
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Liver cancer metastasis to my lungs incurable
Hello I have had the devastating news that there is no cure for my cancer. I am 31 and haven’t yet achieved anything that I wanted too, I am heartbroken and completely devastated. I no this is a huge long shot but does anyone know of any clinical trials going on in anywhere in the world that maybe be
Hello I have had the devastating news that there is no cure for my cancer. I am 31 and haven’t yet achieved anything that I wanted too, I am heartbroken and completely devastated. I no this is a huge long shot but does anyone know of any clinical trials going on in anywhere in the world that maybe be
Valentina_22
in
Blue Faery Liver Cancer
2 years ago
A bit of good news
Morning. We'll after a few weeks of coming to terms with Stage 4 Fibrosis (compensated) at last a bit of good news as far as my T2 Diabetes is concerned. I have lost a total of 32 lbs in weight and my reading is now 39!! It was 114 when I was initially diagnosed 2 years ago. I am due another FibroScan
Morning. We'll after a few weeks of coming to terms with Stage 4 Fibrosis (compensated) at last a bit of good news as far as my T2 Diabetes is concerned. I have lost a total of 32 lbs in weight and my reading is now 39!! It was 114 when I was initially diagnosed 2 years ago. I am due another FibroScan
Robert1220
in
British Liver Trust
2 years ago
Cancer Health Seeking Black or Latino HCC Patient Story
From Bob Barnett, Editor-in-Chief at Cancer Health -- please contact him directly if you're interested in sharing your story. I'm writing to ask your help in finding a Black or Latino man with liver cancer who we can profile or work with to write his story in an essay. I'd like to highlight some of
From Bob Barnett, Editor-in-Chief at Cancer Health -- please contact him directly if you're interested in sharing your story. I'm writing to ask your help in finding a Black or Latino man with liver cancer who we can profile or work with to write his story in an essay. I'd like to highlight some of
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
2 years ago
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LDH Lactate Dehydrogenase Off The Charts - Why?
I completed my 12 months Obinutuzumab/Venclexta treatment regimen March 1st. I go tomorrow (Friday, May 27, 2022) for my first doctor visit since ending treatment. I feel great. No problems that I know of....BUT. Yesterday I went to the lab to have blood drawn and tests run in preparation of my
I completed my 12 months Obinutuzumab/Venclexta treatment regimen March 1st. I go tomorrow (Friday, May 27, 2022) for my first doctor visit since ending treatment. I feel great. No problems that I know of....BUT. Yesterday I went to the lab to have blood drawn and tests run in preparation of my
DanBro1
in
CLL Support
2 years ago
Fibroscan results
I wanted to share my recent scan results to spur on anyone with severe fibrosis/early cirrhosis. From a diagnosis of NAFLD F3-4 in November 2020 following an MRi showing bridging fibrosis and fibroscan score of 11.6 kpa, my fibroscan score yesterday was 5.6kpa F0-F1. After my first ultrasound scan
I wanted to share my recent scan results to spur on anyone with severe fibrosis/early cirrhosis. From a diagnosis of NAFLD F3-4 in November 2020 following an MRi showing bridging fibrosis and fibroscan score of 11.6 kpa, my fibroscan score yesterday was 5.6kpa F0-F1. After my first ultrasound scan
Muse12
in
British Liver Trust
2 years ago
It remains enigmatic.
Hallo Everyone, and Thank you again to Fibro2021, I have read your very numerous and various responses to people, and admire your clarity and that you never patronize! I begin to see how hypertensive portal gastropathy, is somewhat serious, perhaps more serious than that which is occuring in my colon
Hallo Everyone, and Thank you again to Fibro2021, I have read your very numerous and various responses to people, and admire your clarity and that you never patronize! I begin to see how hypertensive portal gastropathy, is somewhat serious, perhaps more serious than that which is occuring in my colon
JonBechstein
in
British Liver Trust
2 years ago
Jaundice
Just wondering if jaundice can happen slowly over time, as it builds up. Often hear stories of folks suddenly waking up yellow with an acute attack, but my husband is waiting transplant and although his bilirubin remains relatively stable, it is obviously persistently out of range. He had a bout of jaundice
Just wondering if jaundice can happen slowly over time, as it builds up. Often hear stories of folks suddenly waking up yellow with an acute attack, but my husband is waiting transplant and although his bilirubin remains relatively stable, it is obviously persistently out of range. He had a bout of jaundice
Ewife
in
British Liver Trust
2 years ago
Liver Fibrosis F3
Hi new on here. Had a positive chat to the British Liver Trust for my F3 Fibrosis. I was told they caught it before it turned to Cirrhosis and that it can be reversed with diet as mine is probably linked to being overweight and Fatty Liver. I have been diagnosed with GAVE (aka Watermelon Stomach)
Hi new on here. Had a positive chat to the British Liver Trust for my F3 Fibrosis. I was told they caught it before it turned to Cirrhosis and that it can be reversed with diet as mine is probably linked to being overweight and Fatty Liver. I have been diagnosed with GAVE (aka Watermelon Stomach)
drittz78
in
British Liver Trust
2 years ago
Gastroscopy to check for varices
Right, I'm at the next step in my Alcohol Related Liver Disease Journey. After being advised in February that I may have Cirrhosis and portal hypertension I ceased drinking. Have done quite well with a couple of relapses with visitors, just the one day each time then back on the wagon. I had the ultra
Right, I'm at the next step in my Alcohol Related Liver Disease Journey. After being advised in February that I may have Cirrhosis and portal hypertension I ceased drinking. Have done quite well with a couple of relapses with visitors, just the one day each time then back on the wagon. I had the ultra
eileenet49
in
British Liver Trust
2 years ago
AMA negative but ANA positive
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Hi there, I was diagnosed with PBC just over two years ago, which was such a shock to me me as I had no idea about this condition (only visited doctor for a routine check-up 😧!!) Have been on Urso ( 2 years) but my ALP and GGT are still high!! Had biopsy and fibroscan 10.1 Specialist says I am
Liz_K
in
PBC Foundation
2 years ago
Cirrhosis LFTs came back as normal but still worried
I spoke with my consultant today as I'd not had my blood results from last month. He told me my Liver function tests showed now as normal but said I'm probably still border line decompensated as LFTs don't matter. I asked him about hypertension as I have normal portal vein flow and normal flow through
I spoke with my consultant today as I'd not had my blood results from last month. He told me my Liver function tests showed now as normal but said I'm probably still border line decompensated as LFTs don't matter. I asked him about hypertension as I have normal portal vein flow and normal flow through
thelad73
in
British Liver Trust
2 years ago
Urso and pain
I have been taking urso now for 6 months. I still get a pain almost daily in my liver area. Sometimes it's a sharp stab that makes jump and other times it's just a dull ache. I wonder to myself when it happens is my liver getting worse and its constantly on my mind. Does this happen to anybody else?
I have been taking urso now for 6 months. I still get a pain almost daily in my liver area. Sometimes it's a sharp stab that makes jump and other times it's just a dull ache. I wonder to myself when it happens is my liver getting worse and its constantly on my mind. Does this happen to anybody else?
Meeru2007
in
PBC Foundation
2 years ago
ELF's
Any thoughts on ELF blood tests v Fibroscan, i want to see if 2 years of good diet, weight loss, no drink etc has made a difference, everytime I get a Fibroscan I am dissappointed as the KPA is going up not down, I just want to try and find out why and thought should I get the advanced Liver blood tests
Any thoughts on ELF blood tests v Fibroscan, i want to see if 2 years of good diet, weight loss, no drink etc has made a difference, everytime I get a Fibroscan I am dissappointed as the KPA is going up not down, I just want to try and find out why and thought should I get the advanced Liver blood tests
Ruggerhead
in
British Liver Trust
2 years ago
Frustration with appointments
The QE hospital at Birmingham asked for a follow up liver cancer scan this was arranged by my cirrhosis consultant, I had the scan on 1st April saw my cirrhosis consultant on 13th May happy with the cirrhosis and had forwarded the scan to QE for my telephone consultation on the 18th with QE. I also had
The QE hospital at Birmingham asked for a follow up liver cancer scan this was arranged by my cirrhosis consultant, I had the scan on 1st April saw my cirrhosis consultant on 13th May happy with the cirrhosis and had forwarded the scan to QE for my telephone consultation on the 18th with QE. I also had
oap74
in
British Liver Trust
2 years ago
problem
Hi I was wondering if anyone has had a liver transplant and have problems with there heart .
Hi I was wondering if anyone has had a liver transplant and have problems with there heart .
Petrina_gmfc
in
British Liver Trust
2 years ago
Methotrexate and A1AD caused cirrhosis
Hello! I’ve had rheumatoid arthritis for 27 years (since I was 25) and the medication I took was methotrexate. Four years ago I had a fatty liver and was told to stop the methotrexate, loose a bit of weight and cut down drinking. I followed the advice and as far as I was aware, my liver went back to
Hello! I’ve had rheumatoid arthritis for 27 years (since I was 25) and the medication I took was methotrexate. Four years ago I had a fatty liver and was told to stop the methotrexate, loose a bit of weight and cut down drinking. I followed the advice and as far as I was aware, my liver went back to
Fluffysian
in
British Liver Trust
2 years ago
Ascites
Hi me again :( So Ascites, my hubby has now probably been drained at least 5 times since his proper diagnoses of Alcoholic Cirrhosis back in Jan/Feb & near death spell in hospital in April! Whiles in hospital for 3 weeks he was drained twice of a hell of a lot of fluid! We then saw the consultant beginning
Hi me again :( So Ascites, my hubby has now probably been drained at least 5 times since his proper diagnoses of Alcoholic Cirrhosis back in Jan/Feb & near death spell in hospital in April! Whiles in hospital for 3 weeks he was drained twice of a hell of a lot of fluid! We then saw the consultant beginning
Blossom0410
in
British Liver Trust
2 years ago
decompensated cirrhosis - aching
Partner diagnosed 22.12.22 decompensated alcohol related cirrhosis. Stopped drinking then. Bloods slowly improving until a bit of a crisis 3 weeks ago when he was suffering from awful edema (he previously couldn't take water tablets due to low sodium). He is back home and bloods are now looking better
Partner diagnosed 22.12.22 decompensated alcohol related cirrhosis. Stopped drinking then. Bloods slowly improving until a bit of a crisis 3 weeks ago when he was suffering from awful edema (he previously couldn't take water tablets due to low sodium). He is back home and bloods are now looking better
Rshc
in
British Liver Trust
2 years ago
Alcohol free beers???????
Hi all, well I think I know what the answer will be/should be.. So my husband with Alcoholic decompensated cirrhosis who has been dry now well over a month (well done him x) But has now been getting the Heineken 0.0 beers which are actually 0.05 ABV. Sooooooo not completely ethanol free are they! He
Hi all, well I think I know what the answer will be/should be.. So my husband with Alcoholic decompensated cirrhosis who has been dry now well over a month (well done him x) But has now been getting the Heineken 0.0 beers which are actually 0.05 ABV. Sooooooo not completely ethanol free are they! He
Blossom0410
in
British Liver Trust
2 years ago
Help
Daughter waiting to see a liver specialist that was urgently requested by GP she has no appetite she feels exhausted and doesn’t feel if she has any chance of getting better her mood swings are difficult to handle she feels so sad
Daughter waiting to see a liver specialist that was urgently requested by GP she has no appetite she feels exhausted and doesn’t feel if she has any chance of getting better her mood swings are difficult to handle she feels so sad
Hidden
in
British Liver Trust
2 years ago
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