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Livedo reticularis
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Hepatic Encephalopathy
Hi, My partner was diagnosed with cirrhosis earlier this year and the last 3 weeks have been a nightmare! He has had two hospital stays during this time and the thing that frightens me most is the HE. He got up this morning in his underpants, came downstairs, put a pair of work gloves on and picked up
Hi, My partner was diagnosed with cirrhosis earlier this year and the last 3 weeks have been a nightmare! He has had two hospital stays during this time and the thing that frightens me most is the HE. He got up this morning in his underpants, came downstairs, put a pair of work gloves on and picked up
Graylings
in
British Liver Trust
2 years ago
Has anyone every had an inexperienced tech for Fibro Scan with innacurate results?
I had a fibro scan on my liver. The technician was having a difficult time and had to call someone else in, she to could not get a reading either (they said the numbers were coming up blank) They had some good pictures and said lets just send these and see what happens. Backstory: I had a huge
I had a fibro scan on my liver. The technician was having a difficult time and had to call someone else in, she to could not get a reading either (they said the numbers were coming up blank) They had some good pictures and said lets just send these and see what happens. Backstory: I had a huge
Summtyme
in
British Liver Trust
2 years ago
Mannitol and sense of Taste/Smell
Mannitol was once quite a popular great white hope against PD, but only ever really seemed to benefit perhaps 1 in 5 at best. It did really seem to benefit me though. Given how cheap it is it is always worth a punt (I know big pharma study found no benefit, but we will agree to differ on how believable
Mannitol was once quite a popular great white hope against PD, but only ever really seemed to benefit perhaps 1 in 5 at best. It did really seem to benefit me though. Given how cheap it is it is always worth a punt (I know big pharma study found no benefit, but we will agree to differ on how believable
alexask
in
Cure Parkinson's
2 years ago
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engaging with alcohol support for transplant assessment
hiya, partner diagnosed with decompensated cirrhosis 22.12.21 - has remained alcohol free since that date with comparative ease . He is being very well looked after by our local liver unit and whilst we are still hoping he may have some improvement (he is actually pretty well despite a UKMELD of 52)
hiya, partner diagnosed with decompensated cirrhosis 22.12.21 - has remained alcohol free since that date with comparative ease . He is being very well looked after by our local liver unit and whilst we are still hoping he may have some improvement (he is actually pretty well despite a UKMELD of 52)
Rshc
in
British Liver Trust
2 years ago
Agitation awaiting liver transplant
My husband and I are constantly arguing over the smallest things. He becomes very agitated and verbally abusive. He has compensated cirrhosis and HCC. He is currently awaiting a liver transplant. Our marriage is in tatters.
My husband and I are constantly arguing over the smallest things. He becomes very agitated and verbally abusive. He has compensated cirrhosis and HCC. He is currently awaiting a liver transplant. Our marriage is in tatters.
dimplykidlet
in
British Liver Trust
2 years ago
Liver Transplant Pre / Post op
Just found out I need a liver transplant in two years. Non drinker, liver disease undiagnosed for 20 years but it looks like its finally packing up. Does anyone live in the Cardiff / South Wales area who may have been through this process so I can get a handle on what I've got coming my way. Only found
Just found out I need a liver transplant in two years. Non drinker, liver disease undiagnosed for 20 years but it looks like its finally packing up. Does anyone live in the Cardiff / South Wales area who may have been through this process so I can get a handle on what I've got coming my way. Only found
Chrisjohnsy
in
British Liver Trust
2 years ago
Immuno suppressant choice and no response to Pred treatment
Morning everyone, I posted on here a few weeks ago as my 19 year old son Adam Green had been diagnosed with AIH. Yesterday we had a follow up consultation and he was told he has Cirrhosis stage A/B. Decompensated Transplant may be the option going forwards. His body isnt responding to the 30mg Pred over
Morning everyone, I posted on here a few weeks ago as my 19 year old son Adam Green had been diagnosed with AIH. Yesterday we had a follow up consultation and he was told he has Cirrhosis stage A/B. Decompensated Transplant may be the option going forwards. His body isnt responding to the 30mg Pred over
MicheleG33
in
British Liver Trust
2 years ago
Negative then positive then Negative AMA???
I am so confused. I'm not sure if I should even be here. 4 months ago I tested negative for AMA. 2 weeks ago I came back positive. I asked to redo the test and tonight my test results came back negative. Obviously haven't spoke to my Hepatologist yet. I was diagnosed solely based on a positive AMA test
I am so confused. I'm not sure if I should even be here. 4 months ago I tested negative for AMA. 2 weeks ago I came back positive. I asked to redo the test and tonight my test results came back negative. Obviously haven't spoke to my Hepatologist yet. I was diagnosed solely based on a positive AMA test
Hellcat79
in
PBC Foundation
2 years ago
PLEASE HELP! Positive then negative AMA
Thanks for allowing me to join your group. I have a few questions for members. First of all a short back story. I'm 43, 6 months ago I was diagnosed with Stage 3 fatty liver with NASH. I went on a clean diet lost 50 pounds and reversed my condition. The same week I was told I reversed, I was diagnosed
Thanks for allowing me to join your group. I have a few questions for members. First of all a short back story. I'm 43, 6 months ago I was diagnosed with Stage 3 fatty liver with NASH. I went on a clean diet lost 50 pounds and reversed my condition. The same week I was told I reversed, I was diagnosed
Hellcat79
in
PBC Foundation
2 years ago
Heptlar for PBC
Hi, Has anyone heard or taken Heptlar manufactured by Abbot for PBC or AIH? Heptral 400mg Tablet is a medicine used for the treatment of liver disease associated with reduced bile formation (intrahepatic cholestasis). It protects the liver cells from toxins and helps the liver to perform its normal functions
Hi, Has anyone heard or taken Heptlar manufactured by Abbot for PBC or AIH? Heptral 400mg Tablet is a medicine used for the treatment of liver disease associated with reduced bile formation (intrahepatic cholestasis). It protects the liver cells from toxins and helps the liver to perform its normal functions
Cat1966
in
PBC Foundation
2 years ago
Nutrient absorption- coffee, grains and alcohol
I have from time to time tried various food combinations - but a few months back tried cutting out coffee grains and alcohol at the same time and felt much better after a week and dropped some weight. I have over the past week picked this up again and with similar immediate results. It has left me
I have from time to time tried various food combinations - but a few months back tried cutting out coffee grains and alcohol at the same time and felt much better after a week and dropped some weight. I have over the past week picked this up again and with similar immediate results. It has left me
Danielj1
in
Thyroid UK
2 years ago
still decompensated after 5 months any hope?
my partner diagnosed with decompensated cirrhosis on 22.12.21. Stopped drinking that day, 5 months later eating healthy high protein low salt, doing everything he has been asked. At the start sodium was dangerously low so he couldn't take water tablets - now his sodium is back within normal levels whilst
my partner diagnosed with decompensated cirrhosis on 22.12.21. Stopped drinking that day, 5 months later eating healthy high protein low salt, doing everything he has been asked. At the start sodium was dangerously low so he couldn't take water tablets - now his sodium is back within normal levels whilst
Rshc
in
British Liver Trust
2 years ago
Baffled
I have pulled back from level 4 cirrhosis with ascites and jaundice as well as two bad bleeds and was doing well. I then developed a pregnant stomach again ( I'm 60) drumlike, tight, uncomfortable so I assumed ascites and resumed spironolactone. No effect. Had a US scan on Monday- no fluid found! Has
I have pulled back from level 4 cirrhosis with ascites and jaundice as well as two bad bleeds and was doing well. I then developed a pregnant stomach again ( I'm 60) drumlike, tight, uncomfortable so I assumed ascites and resumed spironolactone. No effect. Had a US scan on Monday- no fluid found! Has
theoldboiler
in
British Liver Trust
2 years ago
New blood work advice please
Hello everyone, Hope you are all keeping well. So I was diagnosed with Graves in April of this year after symptoms of high heart rate/palpitations, nervousness and heat intolerance. I was placed onto 20mg Carbimazole and Propanolol. My blood work is in the photos, first bloods were on diagnoses 14/
Hello everyone, Hope you are all keeping well. So I was diagnosed with Graves in April of this year after symptoms of high heart rate/palpitations, nervousness and heat intolerance. I was placed onto 20mg Carbimazole and Propanolol. My blood work is in the photos, first bloods were on diagnoses 14/
Pjd94
in
Thyroid UK
2 years ago
Teeth
I've recently read that teeth are looked at prior to a liver transplant is this the case and what happens if your teeth are in bad shape 😬
I've recently read that teeth are looked at prior to a liver transplant is this the case and what happens if your teeth are in bad shape 😬
Lippy42
in
British Liver Trust
2 years ago
PBC diagnosis? AMA 125,1
Hi, I am 55 year old. In 2008 I had a self resolved Hep C, and the virus has never been present since, I had two tests in 2008 and one now, no virus, this takes chronic Hep C off the table. I have my blood tests yearly (except 2019, 2020), everything was normal. In November 2021 my ALT and AST were
Hi, I am 55 year old. In 2008 I had a self resolved Hep C, and the virus has never been present since, I had two tests in 2008 and one now, no virus, this takes chronic Hep C off the table. I have my blood tests yearly (except 2019, 2020), everything was normal. In November 2021 my ALT and AST were
Cat1966
in
PBC Foundation
2 years ago
Worried about alcohol damage
Hi, I was diagnosed in 2018 with fatty liver via ultrasound and raised enzymes. At the time I was drinking quite a bit, I did try to cut down a lot but probably could have done alot better. Fast forward to this year and I go to the doctors for stomach pains, I have the usual blood tests and she books
Hi, I was diagnosed in 2018 with fatty liver via ultrasound and raised enzymes. At the time I was drinking quite a bit, I did try to cut down a lot but probably could have done alot better. Fast forward to this year and I go to the doctors for stomach pains, I have the usual blood tests and she books
Hayleypop
in
British Liver Trust
2 years ago
Cirrhotic pbc
Hi all, My mother was diagnosed 30 years ago with Autoimmune Hepatits. She was 22 years on immunosuppressive treatment which she decided to discontinue after a talk with her doctor. Two years ago her liver enzymes were abnormal especially ALP and GGT (272, 332) weak ASMA positive and mildly abnormal
Hi all, My mother was diagnosed 30 years ago with Autoimmune Hepatits. She was 22 years on immunosuppressive treatment which she decided to discontinue after a talk with her doctor. Two years ago her liver enzymes were abnormal especially ALP and GGT (272, 332) weak ASMA positive and mildly abnormal
Shon1234
in
PBC Foundation
2 years ago
Refaxamin
Does anyone know how long it is safe to take refaxamin for, I have been taking it for two years now, I haven’t had any HE in that time, I was diagnosed with liver cirrhosis 2 years ago and went into a coma and was put forward for a transplant, but since then my liver has recommpensated
Does anyone know how long it is safe to take refaxamin for, I have been taking it for two years now, I haven’t had any HE in that time, I was diagnosed with liver cirrhosis 2 years ago and went into a coma and was put forward for a transplant, but since then my liver has recommpensated
Johnsville1
in
British Liver Trust
2 years ago
Refaxamin
I have liver cirrhosis and was considered twice for a transplant, I haven’t had any alcohol for 2 years now, but I am taking refaxamin and lactalose to stop HE which I haven’t had for a year and a half. Do you know if I have to continue with the refaxamin for the rest of my life.
I have liver cirrhosis and was considered twice for a transplant, I haven’t had any alcohol for 2 years now, but I am taking refaxamin and lactalose to stop HE which I haven’t had for a year and a half. Do you know if I have to continue with the refaxamin for the rest of my life.
Johnsville1
in
British Liver Trust
2 years ago
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