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Thinking about other options
Hi everyone , I just recently joined this group. I’ve had restless leg syndrome at least 20+ years I’ve had it longer than that but I didn’t even know there was a name associated with what the symptoms were I’ve been to a neurologist probably 10 years ago but didn’t follow it because he was not
Hi everyone , I just recently joined this group. I’ve had restless leg syndrome at least 20+ years I’ve had it longer than that but I didn’t even know there was a name associated with what the symptoms were I’ve been to a neurologist probably 10 years ago but didn’t follow it because he was not
Crazygrl
in
Restless Legs Syndrome
5 years ago
Need suggestion QUICK
Dr B put me on methadone 5mg for my RLS. I have back, neck and shoulder damage/issues we didnt get a chance to discuss. My back, hip and leg are acting up for 3 wks now. The methadone doesnt help enough. AND I'm headed to a EMG-nerve test (painful, stick electrodes in an inch or two to measure nerve)
Dr B put me on methadone 5mg for my RLS. I have back, neck and shoulder damage/issues we didnt get a chance to discuss. My back, hip and leg are acting up for 3 wks now. The methadone doesnt help enough. AND I'm headed to a EMG-nerve test (painful, stick electrodes in an inch or two to measure nerve)
Mona7
in
Restless Legs Syndrome
5 years ago
DESPERATE
I have RLS for which I take Ropinirole, Clonazepam, and Gabapentin. I went into augmentation and my doctor said to take less Ropinirole which I did with some success . I have always had trouble sleeping and I developed insomnia . I was and still am sleep walking , falling, and over eating at night.
I have RLS for which I take Ropinirole, Clonazepam, and Gabapentin. I went into augmentation and my doctor said to take less Ropinirole which I did with some success . I have always had trouble sleeping and I developed insomnia . I was and still am sleep walking , falling, and over eating at night.
sweetiepye
in
Restless Legs Syndrome
5 years ago
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Sores back of throat
Hi guys I was Diagnosed with SLE exactly a year ago I’m on plaquenil ans methrotrexate and steroids but I keep getting recurring sores/ulcers on the back my of throat which is so painful I can’t eat or drink my gp said she thought they were ulcers due to lupus and gave me some throat spray does anyone
Hi guys I was Diagnosed with SLE exactly a year ago I’m on plaquenil ans methrotrexate and steroids but I keep getting recurring sores/ulcers on the back my of throat which is so painful I can’t eat or drink my gp said she thought they were ulcers due to lupus and gave me some throat spray does anyone
Sammymoat1986
in
LUPUS UK
5 years ago
Switch from Ropinirole to Rotigotine
Thanks to everyone who replied to my post about changing from Ropinirole to Rotigotine patches. There was some very useful information and experiences from everyone and good advice. I am considering weaning myself of Ropinirole as it looks like the general view is you should not just switch from one
Thanks to everyone who replied to my post about changing from Ropinirole to Rotigotine patches. There was some very useful information and experiences from everyone and good advice. I am considering weaning myself of Ropinirole as it looks like the general view is you should not just switch from one
murph50
in
Restless Legs Syndrome
5 years ago
Disappointing
So, i saw the neuro today. Went through my whole speech about the legs, etc. Told him the requip basically sucked, made my legs worse, caused insomnia and repetitive thoughts. So....he puts me on.. mirapex. W.T.F?? I flat out asked about methadone and he said, and i quote, "I don't prescribe methadone
So, i saw the neuro today. Went through my whole speech about the legs, etc. Told him the requip basically sucked, made my legs worse, caused insomnia and repetitive thoughts. So....he puts me on.. mirapex. W.T.F?? I flat out asked about methadone and he said, and i quote, "I don't prescribe methadone
Dogdoo
in
Restless Legs Syndrome
5 years ago
West Nile virus turned into viral meningitis
Hello everyone, my husband had west nile virus that turned into viral meningitis On Sept 1 2018. We had no idea it was that a few days before Sept 1 he was very tired no appetite, the evening before Sept 1 he had high fever and just wanted to sleep. The morning he was not himself he wasnt talking well
Hello everyone, my husband had west nile virus that turned into viral meningitis On Sept 1 2018. We had no idea it was that a few days before Sept 1 he was very tired no appetite, the evening before Sept 1 he had high fever and just wanted to sleep. The morning he was not himself he wasnt talking well
Anne463
in
Meningitis Now
5 years ago
Restless legs relieved.
Hi, Hello, Re: program on Channel 5, Tuesday 23 July 2019, 10:15 pm, relating to restless Legs Syndrome (RLS). I’m 87 years old, a retired engineer. I could empathise with all the people on the program, who suffered from the condition. And that’s because I’ve had RLS for more years than I care to
Hi, Hello, Re: program on Channel 5, Tuesday 23 July 2019, 10:15 pm, relating to restless Legs Syndrome (RLS). I’m 87 years old, a retired engineer. I could empathise with all the people on the program, who suffered from the condition. And that’s because I’ve had RLS for more years than I care to
Warren8TO10
in
Restless Legs Syndrome
5 years ago
Can’t sleep
I have been dealing with RLS for 15 years and have been taking Ropinirole. I had to increase the dose because it wasn’t working. I saw my doctor and he recommended taking extended release. I haven’t slept more than 2 hours a night for over a week. I’m so exhausted and depressed. I’ve even tried medical
I have been dealing with RLS for 15 years and have been taking Ropinirole. I had to increase the dose because it wasn’t working. I saw my doctor and he recommended taking extended release. I haven’t slept more than 2 hours a night for over a week. I’m so exhausted and depressed. I’ve even tried medical
Mommalicious
in
Restless Legs Syndrome
5 years ago
Side effects of TB meningitis?
Hi all, I would like to hear your experience on TB meningitis... My dad has been diagnosed with TB meningitis and was under medications for 1 month now.. He now have difficulty balancing which make walking difficult. He has to walk slowly with walking stick, and he has also changed to toe out walking
Hi all, I would like to hear your experience on TB meningitis... My dad has been diagnosed with TB meningitis and was under medications for 1 month now.. He now have difficulty balancing which make walking difficult. He has to walk slowly with walking stick, and he has also changed to toe out walking
CCKL
in
Meningitis Now
5 years ago
Restless leg syndrome help
I am new to this site and always looking for answers for a cure to this problem which I have been diagnosed 7 years ago I take two ropinirole which is two 1 mg tablets at night also I have 1 tablet of multivitamins with iron which was said that a lot of the restless legs is something to do with lack
I am new to this site and always looking for answers for a cure to this problem which I have been diagnosed 7 years ago I take two ropinirole which is two 1 mg tablets at night also I have 1 tablet of multivitamins with iron which was said that a lot of the restless legs is something to do with lack
Frenchfrog67
in
Restless Legs Syndrome
5 years ago
RLS Relief
I have restless legs too. I have read many messages on here. I feel for you. I am on a 1 mg tablet of Ropinirole & 2 - 5 mg Flexeril tablets before bedtime. I find that helps me at night. I'm on the Flexeril because I couldn't relax at night enough to to sleep. But, if I forget & eat something
I have restless legs too. I have read many messages on here. I feel for you. I am on a 1 mg tablet of Ropinirole & 2 - 5 mg Flexeril tablets before bedtime. I find that helps me at night. I'm on the Flexeril because I couldn't relax at night enough to to sleep. But, if I forget & eat something
lynnmcguire24
in
Restless Legs Syndrome
5 years ago
There is an excellent solution to the restless leg syndrome : place a bar of DIAL SOAP under the fitted sheet where your feet rest. cure
Advantages of dial soap for treatment of restless legs - homeopathic solution. Keep using it
Advantages of dial soap for treatment of restless legs - homeopathic solution. Keep using it
EmmaLaura
in
PMRGCAuk
5 years ago
Neurofeedback for ADHD Treatment; Train The Brain
I have heard of biofeedback for ADHD treatment. I reached out to a brain center in my area and during my consultation was told about the EEG tests and 20-40 sessions that I will need in order to train my ADHD brain to concentrate, focus and chill out my hyperactivity. Has anyone tried it? If so, please
I have heard of biofeedback for ADHD treatment. I reached out to a brain center in my area and during my consultation was told about the EEG tests and 20-40 sessions that I will need in order to train my ADHD brain to concentrate, focus and chill out my hyperactivity. Has anyone tried it? If so, please
ADHDGuiltFree123
in
CHADD's Adult ADHD Support
5 years ago
QUALITY OF LIFESTATEMENT
Many times on this site I have mentioned the fact that I've completed what is known as 'A Quality of Life Statement'. I have been asked on several occasions to explain. Unfortunately I have misplaced the original document. And as it was 5 foolscap typed pages long, I was somewhat hesitant to replicate
Many times on this site I have mentioned the fact that I've completed what is known as 'A Quality of Life Statement'. I have been asked on several occasions to explain. Unfortunately I have misplaced the original document. And as it was 5 foolscap typed pages long, I was somewhat hesitant to replicate
TEAH35
in
Restless Legs Syndrome
5 years ago
Cellulitis aftermath.
I had a severe bout of cellulitis in my leg 2years ago,and it has been left like this.
I had a severe bout of cellulitis in my leg 2years ago,and it has been left like this.
Dr1957
in
LSN
5 years ago
Clonazepam
Been to see a neurologist after trying pregablin and gabapentin with no success..in fact both exaggerated the symptoms. He has prescribed clonazepam.. After a week there is still no change or sleep.. Any suggestions welcome
Been to see a neurologist after trying pregablin and gabapentin with no success..in fact both exaggerated the symptoms. He has prescribed clonazepam.. After a week there is still no change or sleep.. Any suggestions welcome
shebobs
in
Restless Legs Syndrome
5 years ago
Please read....
8 years ago i was diagnosed with rhuematoid arthritis then when referred to consultant they medicated me with methotraxate which just made me more poorly and then diagnosed with fybromyalgia instead. Every sympton i have had in the last 8 years has been put down to fybromyalgia and arthritis. I was
8 years ago i was diagnosed with rhuematoid arthritis then when referred to consultant they medicated me with methotraxate which just made me more poorly and then diagnosed with fybromyalgia instead. Every sympton i have had in the last 8 years has been put down to fybromyalgia and arthritis. I was
Sg1474
in
Fibromyalgia Action UK
5 years ago
Dr Buchfuhrer is Awesome!
After suffering for years with RLS that went into augmentation I found out about Dr Buchfuhrer and set up a visit. I’ve seen multiple neurologists, and GPS who did their best to help me. No one could help. In fact it only got worse because they increased requip and then The Neupro patch to levels that
After suffering for years with RLS that went into augmentation I found out about Dr Buchfuhrer and set up a visit. I’ve seen multiple neurologists, and GPS who did their best to help me. No one could help. In fact it only got worse because they increased requip and then The Neupro patch to levels that
Jrskyhook32
in
Restless Legs Syndrome
5 years ago
Shingles vaccination. Is this a good idea when you have hypothyroidism?
My husband has just been invited by the surgery to have a shingles vaccination and in a fortnight's time I will become eligible for the same vaccination. I have never thought of shingles as being that serious or even all that common but apparently one in three people will get it after the age of 50 and
My husband has just been invited by the surgery to have a shingles vaccination and in a fortnight's time I will become eligible for the same vaccination. I have never thought of shingles as being that serious or even all that common but apparently one in three people will get it after the age of 50 and
Caroline888
in
Thyroid UK
5 years ago
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