Will this end

[Silverlining101]

I have been dealing with hell the past few months. At this point just not sure if it will end. I worry every day all day and can’t sleep when I do wake up it’s all over again. I had been having awful headaches which lead to treacherous body aches after so many Er visits all test were negative. I started to believe I had Lyme disease that test was negative as well as two CTs and many MRIs. Recently went to my primary care and found out I was anemic. Which was causing the dizzy spells headaches shortness of breath. I started to feel better until I had another migraine and now dealing with cold and burning sensation all over my head. I once again went to the er where there sent me home and told me to wait for the neurologist appointment. Between those and electric shocks time to time I am scared for my life! No one seems to believe me I’m worried sick

[osbo54]

You can have Lyme disease but test negative. As a Lyme patient, I have read and researched many stories of people who have had Lyme for years and always test negative. There are better labs than the usual two out there, and you need to use those. One is in CA and is called Ingenex. You may have to find a Lyme doc to use those labs because most docs go by the tests done by Lab Corp or Quest. I suggest you try to make sure it is NOT Lyme before you move onto other diagnosis.

[Chloe2018]

Are you on any medication?

[Silverlining101 in reply to Chloe2018]

I have been prescribed anxiety medicine however I didn’t want to take it because I have dealt with anxiety all my life without medication. I just feel that it’s deeper than my anxiety so I’m torn whether to start the medicine or not

[Chloe2018 in reply to Silverlining101]

Is it a benzo? If it is don’t take it. It’s ruined my life. I’m going through withdrawal and it’s the worst ever. The anxiety i had before the benzo was nothing compared to now and the physical pain that med causes is torture