Search
Search
About
Log in
Join
Experiences with
Kidney transplant
Posts
Communities
7,885 public posts
Filter results
nephrectomy
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
I have to have a nephrectomy because I have a tumor on my kidney and cyst I have polycythameia Vera anyone had this surgery with polycythameia
Sickey
in
MPN Voice
8 months ago
PMR Heavy Legs / Lead Legs / Low Energy
Hello, I haven't posted in a long time. I've read many articles. I didn't know what DSNS was until I went to the FAQ's and then tapering plans page. Both PMRpro and DorsetLady, and others have tapering plans (thank you PMRpro & DorsetLady). I have bounced around 15 to 5 MG for the past year. I'm currently
Hello, I haven't posted in a long time. I've read many articles. I didn't know what DSNS was until I went to the FAQ's and then tapering plans page. Both PMRpro and DorsetLady, and others have tapering plans (thank you PMRpro & DorsetLady). I have bounced around 15 to 5 MG for the past year. I'm currently
Me_2
in
PMRGCAuk
8 months ago
Update on Dipyridamole
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
WideBody
in
Restless Legs Syndrome
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Desperate for answers
Husband still have mental issues after 6 months from having a
kidney
transplant
. His personality go from one extreme to the next and he makes a strange humming noise and he says he cannot stop it and does not have any control over his moods and believe me he can be very unbearable at times.
Husband still have mental issues after 6 months from having a
kidney
transplant
. His personality go from one extreme to the next and he makes a strange humming noise and he says he cannot stop it and does not have any control over his moods and believe me he can be very unbearable at times.
Hairme
in
Kidney Transplant
2 years ago
cystitisy like feelings
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Norelo8
in
My Ovacome
8 months ago
Update: re my "draining fluid" post
I recently about (4th August) posted on the above topic. I thought I was going into hospital to have fluid drained. To those that replied, sorry for the delay! I will be reading and responding over the next few days, but in the meantime, thanks to all of you, you are a great source of support and
I recently about (4th August) posted on the above topic. I thought I was going into hospital to have fluid drained. To those that replied, sorry for the delay! I will be reading and responding over the next few days, but in the meantime, thanks to all of you, you are a great source of support and
taar
in
British Liver Trust
8 months ago
Looking for information
I had my
kidney
transplant
April, 2019. In the last couple of months I have had issues with being so cold that I need a coat or a heating pad. Then after about half an hour, I am so warm it's almost as if I have a horrible sunburn, especially on my back. Is this from the anti-rejection meds?
I had my
kidney
transplant
April, 2019. In the last couple of months I have had issues with being so cold that I need a coat or a heating pad. Then after about half an hour, I am so warm it's almost as if I have a horrible sunburn, especially on my back. Is this from the anti-rejection meds?
Ynnep
in
Kidney Transplant
2 years ago
CTC MEANING
I entered the SPLASH trial in Spet 2022 and had my first treatment in Dec 2022. I had mets from PSMA scan aZhang at Moffitt. He thought I had responded rather well to the treaments and suggested I shoudl get a CTC (curculating tumor) test and as long as that was under 5 perhaps Provenge treatment. The
I entered the SPLASH trial in Spet 2022 and had my first treatment in Dec 2022. I had mets from PSMA scan aZhang at Moffitt. He thought I had responded rather well to the treaments and suggested I shoudl get a CTC (curculating tumor) test and as long as that was under 5 perhaps Provenge treatment. The
Joeym1040
in
Advanced Prostate Cancer
8 months ago
Curious about Hyper-magnesium and hypothyroidism
Has anyone experienced hyper magnesium with hypothyroidism? Im curious because my mag levels (although not reliable) is on the higher side and Im just wondering about this. Link below that I was reading. https://www.merckmanuals.com/professional/endocrine-and-metabolic-disorders/electrolyte-disorders
Has anyone experienced hyper magnesium with hypothyroidism? Im curious because my mag levels (although not reliable) is on the higher side and Im just wondering about this. Link below that I was reading. https://www.merckmanuals.com/professional/endocrine-and-metabolic-disorders/electrolyte-disorders
Batty1
in
Thyroid UK
8 months ago
CKD on PD DIALYSIS
I'm also on the
kidney
/pancreas
transplant
list. Somebody gave this website cause I struggle with having people to talk to, just in general cause of all my health I just don't want to burden people but I feel like really alone. Just a little lost is all.
I'm also on the
kidney
/pancreas
transplant
list. Somebody gave this website cause I struggle with having people to talk to, just in general cause of all my health I just don't want to burden people but I feel like really alone. Just a little lost is all.
RHOC
in
Kidney Disease
1 year ago
If it’s not one thing, it's another! Update
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Gulfstream_Maggie
in
Fibromyalgia Action UK
8 months ago
Blood clots in calf
Has anyone had issues with blood clots (superficial vein thrombosis) in their legs? In April I thought I’d just pulled a calf muscle but on the advice of my Pilates teacher (!) saw my GP who immediately prescribed blood-thinning medication and sent me off to the emergency hospital clinic the next
Has anyone had issues with blood clots (superficial vein thrombosis) in their legs? In April I thought I’d just pulled a calf muscle but on the advice of my Pilates teacher (!) saw my GP who immediately prescribed blood-thinning medication and sent me off to the emergency hospital clinic the next
Susiemac1321
in
NRAS
8 months ago
fluctuation Tacrolimus Data
I’m 14 months post
transplant
. My donor
kidney
is doing very well. However, I’ve been experiencing numerous major changes (6.5 to 12.9) in my Tacrolymous levels. Of course I'm in regular contact with my transplant center about this. They seem to be puzzled by these data fluctuations too.
I’m 14 months post
transplant
. My donor
kidney
is doing very well. However, I’ve been experiencing numerous major changes (6.5 to 12.9) in my Tacrolymous levels. Of course I'm in regular contact with my transplant center about this. They seem to be puzzled by these data fluctuations too.
Jayhawker
in
Kidney Transplant
3 months ago
gobsmacked
I can't believe they won't prescribe Subutex to a suffering chronic pain sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me. They look at me as if I'm a drug seeker
I can't believe they won't prescribe Subutex to a suffering chronic pain sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me. They look at me as if I'm a drug seeker
Hidden
in
Restless Legs Syndrome
8 months ago
microscopic blood in urine.
Hi (sorry for a long one) I am a 34 year old Female and have recently had trouble with bowels and abdomen pain, so I saw my GP for that and while she wasn’t interested in that (put it down to IBS), she was very interested in the fact I have had Microscopic Haematuria in my Urine in the past. I was
Hi (sorry for a long one) I am a 34 year old Female and have recently had trouble with bowels and abdomen pain, so I saw my GP for that and while she wasn’t interested in that (put it down to IBS), she was very interested in the fact I have had Microscopic Haematuria in my Urine in the past. I was
Elliehca
in
Pelvic Pain Support Network
8 months ago
strange feeling
wondering if anyone can help for about 4 months now I have had a stitch like feeling that comes and goes in kidney area! I see doctor who said not to worry all seems fine 🤷♀️. So I made another appointment had bloods and kidney function was ok! Since then I still have the stitch feeling, have had UTI
wondering if anyone can help for about 4 months now I have had a stitch like feeling that comes and goes in kidney area! I see doctor who said not to worry all seems fine 🤷♀️. So I made another appointment had bloods and kidney function was ok! Since then I still have the stitch feeling, have had UTI
Readbecgar
in
Early CKD Support
8 months ago
Post-Transplant Arterial Line Bruise
Has anyone else experienced inside arm bruises after
kidney
transplant
surgery like this? Very painful, Tylenol won't touch it and they don't want to prescribe anything stronger.
Has anyone else experienced inside arm bruises after
kidney
transplant
surgery like this? Very painful, Tylenol won't touch it and they don't want to prescribe anything stronger.
frebusmaxwell
in
Kidney Transplant
2 years ago
Advice on blood test please
Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please ..feeling pretty rough x
Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please ..feeling pretty rough x
Lincsangel1
in
Pernicious Anaemia Society
8 months ago
Noo shoos!
Having looked into these shoes that Frizzbomb67 asked about, I decided to order the support version, Brookes Launch GTS. They arrived quickly, and included a free pair of running socks! When I first tried them on I thought they were awful, really stiff and solid, like putting a cardboard box on my feet
Having looked into these shoes that Frizzbomb67 asked about, I decided to order the support version, Brookes Launch GTS. They arrived quickly, and included a free pair of running socks! When I first tried them on I thought they were awful, really stiff and solid, like putting a cardboard box on my feet
Curlygurly2
Graduate
in
Couch to 5K
8 months ago
Protein Question
Is anyone eating a high protein diet but worried about the effects on their kidneys? Would a high protein intake cause kidney disease eventually?
Is anyone eating a high protein diet but worried about the effects on their kidneys? Would a high protein intake cause kidney disease eventually?
FlippinOut
in
British Liver Trust
8 months ago
1
...
19
20
21
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
881 results
Early CKD Support
786 results
Lung Conditions Community Forum
574 results
View top 10 communities
Sort by
Most Relevant
Newest