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Immune Responses + Autoimmune Myelofibrosis
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
LongETinUS
in
MPN Voice
5 months ago
Blood pressure treatment - Irbesartan
Hi all, Its me again with yet another problem. I have Jak 2 positive ET controlled on hydroxycarbamide, aspirin and rivaroxaban. I went to GP to-day to get sun spots on my face treated with liquid nitrogen and whilst there he discussed with me my borderline/raised blood pressure. He decided to start
Hi all, Its me again with yet another problem. I have Jak 2 positive ET controlled on hydroxycarbamide, aspirin and rivaroxaban. I went to GP to-day to get sun spots on my face treated with liquid nitrogen and whilst there he discussed with me my borderline/raised blood pressure. He decided to start
Jelbea
in
MPN Voice
11 months ago
Liver issues and leg pain?
Fairly random question but while I wait for a drs appointment I thought I'd ask....I am awaiting a liver transplant for PSC and I'm getting those dulcit aches in my side that usually indicate imminent cholangitis, but! Whenever this happens I get really bad sharp aching down the outside of my upper leg
Fairly random question but while I wait for a drs appointment I thought I'd ask....I am awaiting a liver transplant for PSC and I'm getting those dulcit aches in my side that usually indicate imminent cholangitis, but! Whenever this happens I get really bad sharp aching down the outside of my upper leg
Katt12340
in
British Liver Trust
1 year ago
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Anyone else have double nephrectomy w Kidney transplant?
I am right at 3 months and still not completely recovered. I had double nephrectomy one day and transplant the next. anyone else have this? It has been a very hard recovery. Every week seems to bring a new problem. I began feeling emotionally drained last week. Struggles there now. My dr. rapidly decreased
I am right at 3 months and still not completely recovered. I had double nephrectomy one day and transplant the next. anyone else have this? It has been a very hard recovery. Every week seems to bring a new problem. I began feeling emotionally drained last week. Struggles there now. My dr. rapidly decreased
Rocknlily
in
Kidney Transplant
2 years ago
Is Ozempic safe for CKD
I have just been diagnosed with type 2 diabetes. also have stage 3 kidney disease. Will this help or hurt. I have read some say it helps. Your thoughts and has anyone tried this having kidney disease.
I have just been diagnosed with type 2 diabetes. also have stage 3 kidney disease. Will this help or hurt. I have read some say it helps. Your thoughts and has anyone tried this having kidney disease.
Butchga62
in
Early CKD Support
1 year ago
Normal test results after CKD diagnosis
Well, after having another blood test ( number 3) to check liver function and also a urine test been told over the phone results are normal no action. Not sure what this means so going to ring to try to speak to doc next week. Not sure how you can go from a you have CKD diagnosis to normal 3 weeks later
Well, after having another blood test ( number 3) to check liver function and also a urine test been told over the phone results are normal no action. Not sure what this means so going to ring to try to speak to doc next week. Not sure how you can go from a you have CKD diagnosis to normal 3 weeks later
Sunnysideup12
in
Early CKD Support
1 year ago
Question 🤷🏻♀️
Could anyone on here give me an answer to this question. Do you now have to go through a GP/ Consultant to get a general urine test. I have go through quite a lot of stomach pain,and on the odd occasion it’s been due to a water infection. Now when I get pain that I feel is different or unbearable
Could anyone on here give me an answer to this question. Do you now have to go through a GP/ Consultant to get a general urine test. I have go through quite a lot of stomach pain,and on the odd occasion it’s been due to a water infection. Now when I get pain that I feel is different or unbearable
Breathless1943
in
IBS Network
1 year ago
Jason fung
Has anyone had any luck with raising gfr kidney function with intermittent fasting have just been listening to him . Not sure if it's gd for kidneys or not .
Has anyone had any luck with raising gfr kidney function with intermittent fasting have just been listening to him . Not sure if it's gd for kidneys or not .
bevgt
in
Early CKD Support
1 year ago
ET/MPNs cause or irritate musculoskeletal issues
Hi all, I hope everyone is keeping as well as they can be…. I have read a few stories and queries on here recently and it peaked my thoughts. I have had a few issues over this last year but these were old irritants let’s say from earlier years. 1) I went through a period quite a few years ago of
Hi all, I hope everyone is keeping as well as they can be…. I have read a few stories and queries on here recently and it peaked my thoughts. I have had a few issues over this last year but these were old irritants let’s say from earlier years. 1) I went through a period quite a few years ago of
Grendall
in
MPN Voice
1 year ago
liver transplant , I have cirrhosis and liver cancer but when I spoke to the specialist he said I would not be eligible for a transplant, I
I was told by a Harley street Consultant, my best way of a cure was a liver transplant, I have been diagnosed with HCC cancer along with portal vein and cirrhosis , I feel very fit and well and when seeing the specialists they thought I was a lot younger than my 73 years But it seems my age is an
I was told by a Harley street Consultant, my best way of a cure was a liver transplant, I have been diagnosed with HCC cancer along with portal vein and cirrhosis , I feel very fit and well and when seeing the specialists they thought I was a lot younger than my 73 years But it seems my age is an
Willow1950
in
British Liver Trust
1 year ago
Long Term Hematospermia
Hey, I have been suffering since dec 19 with Hematospermia. I done many tests, including a biopsy in jul 20, and PSA tests along the way. Took a very strong antibiotic, which messed up my digestive system, making it slower than it was. Anyway, this this has still not disappeared. It's not painful. Is
Hey, I have been suffering since dec 19 with Hematospermia. I done many tests, including a biopsy in jul 20, and PSA tests along the way. Took a very strong antibiotic, which messed up my digestive system, making it slower than it was. Anyway, this this has still not disappeared. It's not painful. Is
Pakouwi
in
Men's Health Forum
1 year ago
About my CT examintion
Hello Good people After the removal of 1.6cm tissue(cancer) from the right of my kidney. The Dr. decided after 6 months to make CT scan and the result which i got it yesterday . I had obviously nothing on the right kidney and every thing in the pelvis too clear even the thorax is ok. continuation
Hello Good people After the removal of 1.6cm tissue(cancer) from the right of my kidney. The Dr. decided after 6 months to make CT scan and the result which i got it yesterday . I had obviously nothing on the right kidney and every thing in the pelvis too clear even the thorax is ok. continuation
NOCanceros
in
Advanced Prostate Cancer
1 year ago
anyone living in Singapore/india post kidney transplant ?
hi, I currently live in the US and had a
kidney
transplant
in Dec 2020. I’m on belatacept and Myfortic currently. Bela because I developed a reaction to tacrolimus. I’m likely to move to Singapore next year this time and am told Bela is not available there.
hi, I currently live in the US and had a
kidney
transplant
in Dec 2020. I’m on belatacept and Myfortic currently. Bela because I developed a reaction to tacrolimus. I’m likely to move to Singapore next year this time and am told Bela is not available there.
Hidden
in
Kidney Transplant
2 years ago
liver transplant
I just thought I’d let you all know I have just been called for my liver transplant, this is the second time I’ve been called so fingers crossed this time 🤞. Stay safe all Dogbot 🐶🌈
I just thought I’d let you all know I have just been called for my liver transplant, this is the second time I’ve been called so fingers crossed this time 🤞. Stay safe all Dogbot 🐶🌈
Dogbot
in
British Liver Trust
1 year ago
Start of my stem cell journey 0.3.1 ambulatory care
I have been offered Ambulatory Care (treatment in a specialised day unit) for my stem cell transplant has anyone else gone through this process?
I have been offered Ambulatory Care (treatment in a specialised day unit) for my stem cell transplant has anyone else gone through this process?
Grizly
in
MPN Voice
6 months ago
Start of my Stem Cell Journey 0.3
Well, where do I start. The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist
Well, where do I start. The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist
Grizly
in
MPN Voice
6 months ago
Erectile disfunction
Hi, since I have had a liver transplant I have struggled to maintain an erection.My consultant has sent me for tests, I think they tested my testosterone levels but everything seems okay. Since my transplant in October 2021. I have got cirrhosis again. They are keeping an eye on me as I'm not far off
Hi, since I have had a liver transplant I have struggled to maintain an erection.My consultant has sent me for tests, I think they tested my testosterone levels but everything seems okay. Since my transplant in October 2021. I have got cirrhosis again. They are keeping an eye on me as I'm not far off
Refs
in
British Liver Trust
1 year ago
Issue when using 1.5 solution on Amia
been on the Amia a few years now. Usually use 1.5 and a 2.5 solutions together with the last bag being 2000ml of Icodextrin, so 3 bags total. With this combo I do PD as I sleep. Machine doesn't usually beep until I'm nearing the end. I can deal with that. My problem is when I use two 1.5 bags drainage
been on the Amia a few years now. Usually use 1.5 and a 2.5 solutions together with the last bag being 2000ml of Icodextrin, so 3 bags total. With this combo I do PD as I sleep. Machine doesn't usually beep until I'm nearing the end. I can deal with that. My problem is when I use two 1.5 bags drainage
Baddstuff
in
Kidney Dialysis
1 year ago
No to transplant
As anyone ever said ‘no’ turned down a
kidney
transplant
? Why?
As anyone ever said ‘no’ turned down a
kidney
transplant
? Why?
Jfkh30
in
Kidney Disease
2 years ago
Why is provenge (immunotherapy) not used in the beginning of treatment
Hi all, My father was recently diagnosed with stage 4 prostate metastatic prostate cancer, gleason 4+5. We are all in in state of shock and trying to figure out what the best treatment plan would be for him (he is 65 and was in good health). The research i've done showed provenge (immunotherapy) as
Hi all, My father was recently diagnosed with stage 4 prostate metastatic prostate cancer, gleason 4+5. We are all in in state of shock and trying to figure out what the best treatment plan would be for him (he is 65 and was in good health). The research i've done showed provenge (immunotherapy) as
Jdhanoa
in
Advanced Prostate Cancer
1 year ago
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