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stem cell transplant survival with MF
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
This link gives some figures for overall survival with or without a transplant. The headline really is the initial mortality close to the transplant is only worth risking if your MF is quite bad. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7218417/
Scaredy_cat
in
MPN Voice
5 months ago
Provenge criteria necessary for acceptance.
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
SViking
in
Advanced Prostate Cancer
1 year ago
Anyone turn down a stem cell transplant?
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
I have post ET MF. Currently I'm on Rux and getting monthly cycles of 5 aza. I don't need transfusions. Day to day I feel pretty good and can do most of what I want. The SCT was recommended because of the risk of progression to AML. I'm finding the decision making to get the SCT very difficult. My
LongETinUS
in
MPN Voice
5 months ago
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Interesting transplant discussion tomorrow night
This was a gripping tale about the unexpected fallout of relationships and careers after a seemingly altruistic
kidney
transplant
. This is Bob's first time speaking to a group of transplant advocates. It should be an entertaining discussion and there will be an opportunity for questions.
This was a gripping tale about the unexpected fallout of relationships and careers after a seemingly altruistic
kidney
transplant
. This is Bob's first time speaking to a group of transplant advocates. It should be an entertaining discussion and there will be an opportunity for questions.
EmilyKidney
in
PKD Charity for Autosomal Dominant PKD
2 years ago
here we go again!
As the experts predicted I now have my 3rd uti. I rang my surgery yesterday on the off chance I could get a repeat script but I don’t why I bothered because I just got the usual response of - no chance were fully booked- ring 111. So I rang at about 4-30 pm -and 111 was also fully booked I think because
As the experts predicted I now have my 3rd uti. I rang my surgery yesterday on the off chance I could get a repeat script but I don’t why I bothered because I just got the usual response of - no chance were fully booked- ring 111. So I rang at about 4-30 pm -and 111 was also fully booked I think because
AnniesRyder5
in
PMRGCAuk
1 year ago
Angiogram
Sadly my
kidney
is still not working properly 4 months after
transplant
and they think this could be to do with a kink in the renal artery, I just wondered if anyone has had the same or similar and what to expect, thanks again 😁 xxx
Sadly my
kidney
is still not working properly 4 months after
transplant
and they think this could be to do with a kink in the renal artery, I just wondered if anyone has had the same or similar and what to expect, thanks again 😁 xxx
Kidneykel
in
Kidney Transplant
2 months ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia? On the other site there were a few who had had MF for quite few years but with treatment were doing ok, and weren’t having transplants, for
lizzziep
in
MPN Voice
5 months ago
new onset neuropathy
hi Hi since a liver transplant 3.5 months ago I have been getting burning feet esp at night. It has gradually worsened and now I get it during the day with pain and swelling and my hands have kicked off now. It is so bad at times I just can’t walk with the discomfort and pain. I’ve heard it’s due
hi Hi since a liver transplant 3.5 months ago I have been getting burning feet esp at night. It has gradually worsened and now I get it during the day with pain and swelling and my hands have kicked off now. It is so bad at times I just can’t walk with the discomfort and pain. I’ve heard it’s due
Zechariah123
in
British Liver Trust
1 year ago
Annual Thyroid Palaver NHS
I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests. I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for
I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests. I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for
Sparklingsunshine
in
Thyroid UK
1 year ago
Antibiotics
Has anyone been prescribed Co-trimoxazole and Cefalexin 500mg to take together? I have a chest infection Klebsiella and have been prescribed the two antibiotics, however, I'm feeling quite unwell, shivery and then hot and not sleeping and wondered if anyone else has had these side effects? It could
Has anyone been prescribed Co-trimoxazole and Cefalexin 500mg to take together? I have a chest infection Klebsiella and have been prescribed the two antibiotics, however, I'm feeling quite unwell, shivery and then hot and not sleeping and wondered if anyone else has had these side effects? It could
PAP48
in
Lung Conditions Community Forum
1 year ago
Stage 5 renal failure plus dialysis and cirrhosis of the liver
Wondering if anyone else in the world is dealing with these two together. My husband is, and we're scared. We're hopeful, but doctors don't know how this happened other than being diabetic for decades. Never a drop of alcohol, but a heavy meat eater. Diabetes is in control, A1C too, but hemodialysis
Wondering if anyone else in the world is dealing with these two together. My husband is, and we're scared. We're hopeful, but doctors don't know how this happened other than being diabetic for decades. Never a drop of alcohol, but a heavy meat eater. Diabetes is in control, A1C too, but hemodialysis
Cinderella60
in
British Liver Trust
1 year ago
The Bone-Marrow-Transplant Revolution
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
https://www.theatlantic.com/health/archive/2024/04/bone-marrow-transplant-mismatched-donor/678100/
Hidden
in
CLL Support
5 months ago
RITUXIMAB
HI I HAVE PMR AND MY ANTIBODIES ARE THROUGH THE ROOF. IT HAS CAUSED MY KIDNEY READING TO DROP TO 11% FUNCTION. THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START RITUXIMAB NEXT WEEK. I HAVE HAD
HI I HAVE PMR AND MY ANTIBODIES ARE THROUGH THE ROOF. IT HAS CAUSED MY KIDNEY READING TO DROP TO 11% FUNCTION. THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START RITUXIMAB NEXT WEEK. I HAVE HAD
eyeBRing
in
PMRGCAuk
1 year ago
Stem cell transplant
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
I haven’t posted for a while as things have gotten very complicated for me recently my partner was diagnosed with stomach cancer and around the same time I ran out of options and stem is my last shot I have held off as long as I can so my partner could have surgery and get back on his feet but my dates
Leighcox85
in
MPN Voice
5 months ago
Platelets dropped after obinituzumab and won't rise even after transfusion 🚨
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
Dear all, First of all, thank you very much for all the help and care I have always found on HealthUnlocked. I had my first infusion of obinituzumab and in my case, mainly due to my nephrotic syndrome kidney problem, I had a few problems. High fevers, which are common Attacks of hiccups that last
BMFCDRW
in
CLL Support
6 months ago
Human stem cell transplantation for Parkinson’s disease: A systematic review
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Interestinghttps://www.researchgate.net/publication/379454508_Human_stem_cell_transplantation_for_Parkinson's_disease_A_systematic_review_of_in_situ_survival_and_maturation_of_progenitors_derived_from_human_embryonic_or_induced_stem_cells_in_Parkinsonian_models
Farooqji
in
Cure Parkinson's
6 months ago
protein supplements: yes or no?
Since I just finished Viewray Tx at UCLA, I’m moving on to the diet & exercise research zone. I’d like input on what the latest research, if any, is RE protein supplements. Whey isolate vs. vegan protein supp? Does either one promote or suppress PCa after Tx? Also, what’s the latest on eggs? It seems
Since I just finished Viewray Tx at UCLA, I’m moving on to the diet & exercise research zone. I’d like input on what the latest research, if any, is RE protein supplements. Whey isolate vs. vegan protein supp? Does either one promote or suppress PCa after Tx? Also, what’s the latest on eggs? It seems
BL2023
in
Advanced Prostate Cancer
1 year ago
Momelotinib for Myelofibrosis
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Hi, I have been suffering from primary MF for 9 years and have been on Ruxolitinib. However recently I was advised that Ruxolitinib is no longer effectively managing my MF. My platelets and Hb are low and my spleen has enlarged again. My consultant is trying to get me approved for Momelotinib. She
Cazbolac
in
MPN Voice
6 months ago
Stage 4 endo and trying for a baby
Just looking to see if anyone has been in a similar situation / look for some advise! I had surgery end of June where they found stage 4 endo, I had x2 large cysts in both ovaries and everything was fused together. My right side is blocked when he did the dye test. I was started on Decapytyl for 3
Just looking to see if anyone has been in a similar situation / look for some advise! I had surgery end of June where they found stage 4 endo, I had x2 large cysts in both ovaries and everything was fused together. My right side is blocked when he did the dye test. I was started on Decapytyl for 3
Amy2106
in
Endometriosis UK
1 year ago
Digestive symptoms post dialysis
my husband has been on center hemodialysis for about a year and a half. None of the medical staff seem to be able to understand or help with the extreme throat/esophageal discomfort he feels for close to 24 hours following dialysis., with no appetite. I wondered if anyone else has experienced this. He
my husband has been on center hemodialysis for about a year and a half. None of the medical staff seem to be able to understand or help with the extreme throat/esophageal discomfort he feels for close to 24 hours following dialysis., with no appetite. I wondered if anyone else has experienced this. He
22171
in
Kidney Dialysis
1 year ago
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