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First dialysis.... not for a wuss
As I promised, I am going to document my journey as I have done before. Now it is hemodialysis. Holy mackerel. Anyone who thinks this is easy, let them sit in the chair for a turn and see what they think. My husband came with me and will be attending the training with me for the next five weeks. I am
As I promised, I am going to document my journey as I have done before. Now it is hemodialysis. Holy mackerel. Anyone who thinks this is easy, let them sit in the chair for a turn and see what they think. My husband came with me and will be attending the training with me for the next five weeks. I am
Bassetmommer
in
Kidney Dialysis
7 months ago
Intrinsic factor antibody
I'm posting on here as I been advised to. I've just been back to my GP because I had a blood test done the other week for intrinsic factor antibody. I had a result of 3.66 which I thought was positive but my GP just said it's negative ? I had the test done because my vitamins b12 is 211.
I'm posting on here as I been advised to. I've just been back to my GP because I had a blood test done the other week for intrinsic factor antibody. I had a result of 3.66 which I thought was positive but my GP just said it's negative ? I had the test done because my vitamins b12 is 211.
suzybear
in
Pernicious Anaemia Society
7 months ago
Time flies... when you're having babies!
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
3 months ago
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Not posted for a while
since coming off Ropinirole in October 2023 a lot has happened. I saw Doctor Jose Thomas at the Spire hospital in Cardiff South Wales before Christmas and completed his standard forms relating to RLS, sleep patterns mental state and so on. He wrote to my GP suggesting i commence a course of Pregabalin
since coming off Ropinirole in October 2023 a lot has happened. I saw Doctor Jose Thomas at the Spire hospital in Cardiff South Wales before Christmas and completed his standard forms relating to RLS, sleep patterns mental state and so on. He wrote to my GP suggesting i commence a course of Pregabalin
HipHop1972
in
Restless Legs Syndrome
3 months ago
Peginterferon
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
caroline_284
in
MPN Voice
7 months ago
And again news about clinical trials
Clinical trial tests creatine monohydrate and exercise to preserve muscle mass in prostate cancer
https://www.news-medical.net/news/20231011/Clinical-trial-tests-creatine-monohydrate-and-exercise-to-preserve-muscle-mass-in-prostate-cancer-patients.aspx (hint: been a natural bodybuilder from
Clinical trial tests creatine monohydrate and exercise to preserve muscle mass in prostate cancer
https://www.news-medical.net/news/20231011/Clinical-trial-tests-creatine-monohydrate-and-exercise-to-preserve-muscle-mass-in-prostate-cancer-patients.aspx (hint: been a natural bodybuilder from
Maxone73
in
Advanced Prostate Cancer
7 months ago
GFR question
Hi everyone, I'm a 59 year old male. I have high blood pressure and diabetes. A few years ago my GP said that I was dehydrated and need to drink more water. Didn't look at my test results other than to keep taking my meds for high blood pressure and diabetes. Fast forward to around 6 months ago I
Hi everyone, I'm a 59 year old male. I have high blood pressure and diabetes. A few years ago my GP said that I was dehydrated and need to drink more water. Didn't look at my test results other than to keep taking my meds for high blood pressure and diabetes. Fast forward to around 6 months ago I
tatarsalad
in
Early CKD Support
7 months ago
Hemodialysis Technician Teacher Turned TikTok Star
Lamarr Holland is not only an incredible dialysis educator, but also a TikTok star! Hear how his skills are allowing him to spread information on CKD and dialysis to patients world wide. Learn more at: https://www.kidney.org/newsletter/hemodialysis-technician-teacher-turned-tiktok-star
Lamarr Holland is not only an incredible dialysis educator, but also a TikTok star! Hear how his skills are allowing him to spread information on CKD and dialysis to patients world wide. Learn more at: https://www.kidney.org/newsletter/hemodialysis-technician-teacher-turned-tiktok-star
JackieJ_NKF
Partner
in
Kidney Dialysis
7 months ago
Lab work
Got my labs yesterday and. Was happy to see how well they were. ALB is still low but coming up. Kt/v was 2.41 not sure how they do that on hemo but I’ll take it. Potassium and phosphorus are in range as is hemoglobin. My PTH was low so I need to stop the calciteol. Since my BP at dialysis on Thursday
Got my labs yesterday and. Was happy to see how well they were. ALB is still low but coming up. Kt/v was 2.41 not sure how they do that on hemo but I’ll take it. Potassium and phosphorus are in range as is hemoglobin. My PTH was low so I need to stop the calciteol. Since my BP at dialysis on Thursday
horsie63
in
Kidney Dialysis
7 months ago
Constipation
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Groda
in
PMRGCAuk
7 months ago
latest news on liver transplants fo4 young people
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
Harriet-sarah
in
British Liver Trust
9 months ago
An Eventful January
I like to keep the NHS busy. My January itinerary as its stands, although more can be added yet. Week 1 - Respiratory Chest Consultant, following a CT Scan on 29/12 I had an appt with the Consultant a few days later. As I expected the scan showed that I had a Pleural Effusion/Pneumonia (fluid) in both
I like to keep the NHS busy. My January itinerary as its stands, although more can be added yet. Week 1 - Respiratory Chest Consultant, following a CT Scan on 29/12 I had an appt with the Consultant a few days later. As I expected the scan showed that I had a Pleural Effusion/Pneumonia (fluid) in both
Hidden
in
British Heart Foundation
4 months ago
Provenge criteria necessary for acceptance.
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
SViking
in
Advanced Prostate Cancer
7 months ago
here we go again!
As the experts predicted I now have my 3rd uti. I rang my surgery yesterday on the off chance I could get a repeat script but I don’t why I bothered because I just got the usual response of - no chance were fully booked- ring 111. So I rang at about 4-30 pm -and 111 was also fully booked I think because
As the experts predicted I now have my 3rd uti. I rang my surgery yesterday on the off chance I could get a repeat script but I don’t why I bothered because I just got the usual response of - no chance were fully booked- ring 111. So I rang at about 4-30 pm -and 111 was also fully booked I think because
AnniesRyder5
in
PMRGCAuk
7 months ago
Annual Thyroid Palaver NHS
I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests. I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for
I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests. I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for
Sparklingsunshine
in
Thyroid UK
7 months ago
CYSTOSCOPY NEGATIVE August 2023
Hey Ladies and Gents. The urologist/oncologist says we can stop the monthly chemo infusions since my urinary bladder looks free of any neoplasm. And next April (2024), if it holds, I’ll be cancer free for three years and can get back on the lung transplant list. “Let your last thinks all be thanks
Hey Ladies and Gents. The urologist/oncologist says we can stop the monthly chemo infusions since my urinary bladder looks free of any neoplasm. And next April (2024), if it holds, I’ll be cancer free for three years and can get back on the lung transplant list. “Let your last thinks all be thanks
Sharp5Flat13
in
Lung Conditions Community Forum
9 months ago
Elevated Liver Enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Mhalpha
in
British Liver Trust
4 months ago
Antibiotics
Has anyone been prescribed Co-trimoxazole and Cefalexin 500mg to take together? I have a chest infection Klebsiella and have been prescribed the two antibiotics, however, I'm feeling quite unwell, shivery and then hot and not sleeping and wondered if anyone else has had these side effects? It could
Has anyone been prescribed Co-trimoxazole and Cefalexin 500mg to take together? I have a chest infection Klebsiella and have been prescribed the two antibiotics, however, I'm feeling quite unwell, shivery and then hot and not sleeping and wondered if anyone else has had these side effects? It could
PAP48
in
Lung Conditions Community Forum
8 months ago
Stage 5 renal failure plus dialysis and cirrhosis of the liver
Wondering if anyone else in the world is dealing with these two together. My husband is, and we're scared. We're hopeful, but doctors don't know how this happened other than being diabetic for decades. Never a drop of alcohol, but a heavy meat eater. Diabetes is in control, A1C too, but hemodialysis
Wondering if anyone else in the world is dealing with these two together. My husband is, and we're scared. We're hopeful, but doctors don't know how this happened other than being diabetic for decades. Never a drop of alcohol, but a heavy meat eater. Diabetes is in control, A1C too, but hemodialysis
Cinderella60
in
British Liver Trust
8 months ago
Belatacept
Anyone else have to stop taking tacrolimus due to
kidney
toxicity? I am two years out from my deceased donor
transplant
. At one year, my
kidney
function was normal. Now, at two years, my creatinine is 2.2 and my eGFR is 31.
Anyone else have to stop taking tacrolimus due to
kidney
toxicity? I am two years out from my deceased donor
transplant
. At one year, my
kidney
function was normal. Now, at two years, my creatinine is 2.2 and my eGFR is 31.
Hawk12
in
Kidney Transplant
6 months ago
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