Road blocks

[Sagiegirl]

Hi all,I thought I'd update you all.

I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever.

After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT.

So now the search is on to find out what drugs didn't agree with me and the start to another 4 week wait for the transplant.

Hopefully 3rd time lucky and we can do this.

At the moment I'm feeling incredibly frustrated and wondering why this has all gone wrong for me.

I'll keep you posted closer to the time.

[Mazcd Partner MPNVoice]

Hi Sagiegirl, how frustrating and disappointing for you, I hope they can identify the drugs that caused this. Sending you lots of best wishes, Maz

[hunter5582]

Sorry to hear about the challenge figuring out the adverse reaction. Hope you get is sorted out ASAP. Wishing you all the best and success moving forward.

[Spanelmad]

Hope your getting over the alergic reaction now.All the best for your next BMT

[Flyingsteamer]

I hope they find out what caused the reaction and you can get back on track. All the best and thinking of you.

[LFCLove]

Keep the faith and carry on, all will be good.

All the best and keep us posted

[Wyebird]

oh dear, this is not what you need. Fingers crossed it can be overcome.

Sending hugs

[HazeBlue]

please can I ask what Is the condition you have ?

[Sagiegirl in reply to HazeBlue]

I have Myelofibrosis.

[HazeBlue]

thanks for reply . I have ET and PV now . Been on Hydroxy for 11 years . Started with ET and recently changed and now too many reds . . I don’t cope well with venesections . Tolerate Hydroxy but cancer risk does bother me .

[Carol0925]

sending healing vibes and wishing you all the best 🙏🤞

[clematis26]

I'm sure the path lab is working flat out to identify this rogue reaction - sending you all good wishes that the transplant goes ahead soon - keep in touch, virtual OXO Sue

[artydutch]

that must have been so difficult when you were mentally prepared to start. I sincerely hope all will be smooth for a months time! Good luck!

[Gaithersburg]

Oh no - you must be really fed up with all the waiting. Really hope they find the cause soon so you finally have the procedure. 🤞

[penpen18]

I’m so sorry. So frustrating! Hang in there. 🥰

[Cja1956]

I really hope they can find the cause soon. It’s so frustrating after you set your mind to this. Let us know what happens.

[Tipsy2023]

Hi Sagiegirl keep on updating us and everything is crossed for you ,makes walking difficult but small price to pay . I guess you are not paddling through puddles as we are in the uk . Sending every bit of positivity I can and throwing in some meditation.. night night from uk

[azaelea]

So sorry to hear this. Sending hopes that all will be resolved very soon. xx

[PhysAssist]

Hi Sagiegirl,

I'm sorry to hear that you're having these stumbling blocks in your way.

I didn't "Like" your post- because although I'm glad that you posted, I don't like what has happened to you at all.

Do remember that it's all part of the process, and please don't forget to breathe!

Wishing you the Best in all things,

PA.

[Bullace]

Sorry for your frustration and disappointment and all good wishes for when they can continue the procedure.