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fluctuation Tacrolimus Data
I’m 14 months post
transplant
. My donor
kidney
is doing very well. However, I’ve been experiencing numerous major changes (6.5 to 12.9) in my Tacrolymous levels. Of course I'm in regular contact with my transplant center about this. They seem to be puzzled by these data fluctuations too.
I’m 14 months post
transplant
. My donor
kidney
is doing very well. However, I’ve been experiencing numerous major changes (6.5 to 12.9) in my Tacrolymous levels. Of course I'm in regular contact with my transplant center about this. They seem to be puzzled by these data fluctuations too.
Jayhawker
in
Kidney Transplant
4 months ago
Update: re my "draining fluid" post
I recently about (4th August) posted on the above topic. I thought I was going into hospital to have fluid drained. To those that replied, sorry for the delay! I will be reading and responding over the next few days, but in the meantime, thanks to all of you, you are a great source of support and
I recently about (4th August) posted on the above topic. I thought I was going into hospital to have fluid drained. To those that replied, sorry for the delay! I will be reading and responding over the next few days, but in the meantime, thanks to all of you, you are a great source of support and
taar
in
British Liver Trust
8 months ago
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? Check out our free, self-paced guide to
kidney
transplant
through this new online resource. Take the next step on your journey today!
Are you interested in learning more about
kidney
transplant
? Check out our free, self-paced guide to
kidney
transplant
through this new online resource. Take the next step on your journey today!
KateyC_NKF
Partner
in
Kidney Transplant
2 years ago
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kidney
transplant
through this new online resource. Take the next step on your journey today!
Are you interested in learning more about
kidney
transplant
? Check out our free, self-paced beginner’s guide to
kidney
transplant
through this new online resource. Take the next step on your journey today!
KateyC_NKF
Partner
in
Kidney Disease
2 years ago
CTC MEANING
I entered the SPLASH trial in Spet 2022 and had my first treatment in Dec 2022. I had mets from PSMA scan aZhang at Moffitt. He thought I had responded rather well to the treaments and suggested I shoudl get a CTC (curculating tumor) test and as long as that was under 5 perhaps Provenge treatment. The
I entered the SPLASH trial in Spet 2022 and had my first treatment in Dec 2022. I had mets from PSMA scan aZhang at Moffitt. He thought I had responded rather well to the treaments and suggested I shoudl get a CTC (curculating tumor) test and as long as that was under 5 perhaps Provenge treatment. The
Joeym1040
in
Advanced Prostate Cancer
8 months ago
Curious about Hyper-magnesium and hypothyroidism
Has anyone experienced hyper magnesium with hypothyroidism? Im curious because my mag levels (although not reliable) is on the higher side and Im just wondering about this. Link below that I was reading. https://www.merckmanuals.com/professional/endocrine-and-metabolic-disorders/electrolyte-disorders
Has anyone experienced hyper magnesium with hypothyroidism? Im curious because my mag levels (although not reliable) is on the higher side and Im just wondering about this. Link below that I was reading. https://www.merckmanuals.com/professional/endocrine-and-metabolic-disorders/electrolyte-disorders
Batty1
in
Thyroid UK
8 months ago
If it’s not one thing, it's another! Update
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Gulfstream_Maggie
in
Fibromyalgia Action UK
8 months ago
Blood clots in calf
Has anyone had issues with blood clots (superficial vein thrombosis) in their legs? In April I thought I’d just pulled a calf muscle but on the advice of my Pilates teacher (!) saw my GP who immediately prescribed blood-thinning medication and sent me off to the emergency hospital clinic the next
Has anyone had issues with blood clots (superficial vein thrombosis) in their legs? In April I thought I’d just pulled a calf muscle but on the advice of my Pilates teacher (!) saw my GP who immediately prescribed blood-thinning medication and sent me off to the emergency hospital clinic the next
Susiemac1321
in
NRAS
8 months ago
gobsmacked
I can't believe they won't prescribe Subutex to a suffering chronic pain sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me. They look at me as if I'm a drug seeker
I can't believe they won't prescribe Subutex to a suffering chronic pain sufferer, but freely give it out to drug addicts.......I'm just gobsmacked. There is a drug out there that could potentially stop me from jumping off a bridge but they won't give it to me. They look at me as if I'm a drug seeker
Hidden
in
Restless Legs Syndrome
8 months ago
microscopic blood in urine.
Hi (sorry for a long one) I am a 34 year old Female and have recently had trouble with bowels and abdomen pain, so I saw my GP for that and while she wasn’t interested in that (put it down to IBS), she was very interested in the fact I have had Microscopic Haematuria in my Urine in the past. I was
Hi (sorry for a long one) I am a 34 year old Female and have recently had trouble with bowels and abdomen pain, so I saw my GP for that and while she wasn’t interested in that (put it down to IBS), she was very interested in the fact I have had Microscopic Haematuria in my Urine in the past. I was
Elliehca
in
Pelvic Pain Support Network
8 months ago
strange feeling
wondering if anyone can help for about 4 months now I have had a stitch like feeling that comes and goes in kidney area! I see doctor who said not to worry all seems fine 🤷♀️. So I made another appointment had bloods and kidney function was ok! Since then I still have the stitch feeling, have had UTI
wondering if anyone can help for about 4 months now I have had a stitch like feeling that comes and goes in kidney area! I see doctor who said not to worry all seems fine 🤷♀️. So I made another appointment had bloods and kidney function was ok! Since then I still have the stitch feeling, have had UTI
Readbecgar
in
Early CKD Support
9 months ago
Advice on blood test please
Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please ..feeling pretty rough x
Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please ..feeling pretty rough x
Lincsangel1
in
Pernicious Anaemia Society
9 months ago
Noo shoos!
Having looked into these shoes that Frizzbomb67 asked about, I decided to order the support version, Brookes Launch GTS. They arrived quickly, and included a free pair of running socks! When I first tried them on I thought they were awful, really stiff and solid, like putting a cardboard box on my feet
Having looked into these shoes that Frizzbomb67 asked about, I decided to order the support version, Brookes Launch GTS. They arrived quickly, and included a free pair of running socks! When I first tried them on I thought they were awful, really stiff and solid, like putting a cardboard box on my feet
Curlygurly2
Graduate
in
Couch to 5K
9 months ago
Protein Question
Is anyone eating a high protein diet but worried about the effects on their kidneys? Would a high protein intake cause kidney disease eventually?
Is anyone eating a high protein diet but worried about the effects on their kidneys? Would a high protein intake cause kidney disease eventually?
FlippinOut
in
British Liver Trust
9 months ago
Desperate for answers
Husband still have mental issues after 6 months from having a
kidney
transplant
. His personality go from one extreme to the next and he makes a strange humming noise and he says he cannot stop it and does not have any control over his moods and believe me he can be very unbearable at times.
Husband still have mental issues after 6 months from having a
kidney
transplant
. His personality go from one extreme to the next and he makes a strange humming noise and he says he cannot stop it and does not have any control over his moods and believe me he can be very unbearable at times.
Hairme
in
Kidney Transplant
2 years ago
Strange eGFR Reading?
Last month, my blood test showed a Creatinine level of 1.64 and an eGRF of 45. A follow up test 3 weeks later showed a Creatinine level of 1.60 and an eGFR of 32. Yes, I was a little dehydrated for the 2nd test, but these results make no sense to me. I then used several online calculators and keep
Last month, my blood test showed a Creatinine level of 1.64 and an eGRF of 45. A follow up test 3 weeks later showed a Creatinine level of 1.60 and an eGFR of 32. Yes, I was a little dehydrated for the 2nd test, but these results make no sense to me. I then used several online calculators and keep
Saltyy
in
Early CKD Support
9 months ago
CKD on PD DIALYSIS
I'm also on the
kidney
/pancreas
transplant
list. Somebody gave this website cause I struggle with having people to talk to, just in general cause of all my health I just don't want to burden people but I feel like really alone. Just a little lost is all.
I'm also on the
kidney
/pancreas
transplant
list. Somebody gave this website cause I struggle with having people to talk to, just in general cause of all my health I just don't want to burden people but I feel like really alone. Just a little lost is all.
RHOC
in
Kidney Disease
1 year ago
notalgia paresthetica
I have vasculitis, MPA, and have developed nostalgia paresthetica, (my own diagnosis). Intense itching on my back is driving me crazy. This has been going on for a few months. Does anyone have experience with this and advice to share??
I have vasculitis, MPA, and have developed nostalgia paresthetica, (my own diagnosis). Intense itching on my back is driving me crazy. This has been going on for a few months. Does anyone have experience with this and advice to share??
GinnyMa
in
Vasculitis UK
9 months ago
Endo/cyst on the kidney after MRI - could this happen to you?
Hi ladies! The results came in for the first MRI (still waiting for the results of the second MRI). A cyst was spotted on one of my kidneys and the blood test indicated issues with my kidneys. I know this might indicate deep infiltrating endometriosis on the kidney/ureter or... I know that endo can lead
Hi ladies! The results came in for the first MRI (still waiting for the results of the second MRI). A cyst was spotted on one of my kidneys and the blood test indicated issues with my kidneys. I know this might indicate deep infiltrating endometriosis on the kidney/ureter or... I know that endo can lead
Endosufferer1
in
Endometriosis UK
9 months ago
Has anyone navigated Medicare while trying to get the TPIAT?
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Hi All 👋 We recently had a patient reach out to us about the TPIAT while on Medicare. Medicare covers the removal of the pancreas, but it does not cover the islet cell transplantation; the patient was quoted $70K for the islet cell transplantation. 🙁 They ask that anyone who has also navigated the
Skye_MC
Administrator
in
Chronic Pancreatitis Support
8 months ago
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