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APPROVED FOR KIDNEY TRANSPLANT BUT NEED A DONOR...HOW DO I GET MY STORY OUT? So scared about dialysis before getting a kidney.
Hi Sweet Friends.... hope everyone is hanging in there and doing well. I was approved for transplant at Mayo and am so grateful. My dear husbandand wanted to give me on of his kidneys but during his testing they found dangerously low platelets and found he has idiopathic ITP. After 2 hospitalizations
Hi Sweet Friends.... hope everyone is hanging in there and doing well. I was approved for transplant at Mayo and am so grateful. My dear husbandand wanted to give me on of his kidneys but during his testing they found dangerously low platelets and found he has idiopathic ITP. After 2 hospitalizations
Highgfr
in
Kidney Disease
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested on getting on the
kidney
transplant
waitlist? View our free, self-paced beginner’s guide to
kidney
transplant
through our new online resource. Take the first step on your
transplant
journey today!
Are you interested on getting on the
kidney
transplant
waitlist? View our free, self-paced beginner’s guide to
kidney
transplant
through our new online resource. Take the first step on your
transplant
journey today!
KateyC_NKF
Partner
in
Kidney Dialysis
2 years ago
My Recovery so far post Stem cell Transplant
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Jm954
Administrator
in
CLL Support
1 year ago
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rosuvastatin 5mg and kidney damage
Hi everyone My doctor has put me on Rosuvastatin for my cholesterol which was 5.7. M kidney function has dropped from 57 to 49 in just a few weeks. I have just read that this statin has an increased risk of kidney damage. I have now stopped taking it. We put our faith in our doctors but I really wonder
Hi everyone My doctor has put me on Rosuvastatin for my cholesterol which was 5.7. M kidney function has dropped from 57 to 49 in just a few weeks. I have just read that this statin has an increased risk of kidney damage. I have now stopped taking it. We put our faith in our doctors but I really wonder
sukki
in
Early CKD Support
1 year ago
Emphysema
Hi, i joined this group a few months ago. I was diagnosed Dec '21 after being hospitalised because my sats were so low 70-80 at that time. Then it was a whirwind of tests before I got my complete diagnosis with the letter from my consultant with all that fev % stuff at the end of the letter. i went
Hi, i joined this group a few months ago. I was diagnosed Dec '21 after being hospitalised because my sats were so low 70-80 at that time. Then it was a whirwind of tests before I got my complete diagnosis with the letter from my consultant with all that fev % stuff at the end of the letter. i went
Zand60
in
Lung Conditions Community Forum
1 year ago
ARTIFICIAL LIVER
Good news , maybe we don’t have to wait for a liver transplant after all. I didn’t realise that machines existed that can carry out the function of the liver, at this stage they are external like kidney dialysis. Would think you have to hooked up permanently as the liver is always working.
Good news , maybe we don’t have to wait for a liver transplant after all. I didn’t realise that machines existed that can carry out the function of the liver, at this stage they are external like kidney dialysis. Would think you have to hooked up permanently as the liver is always working.
Oztrax
in
British Liver Trust
1 year ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning more about
kidney
transplant
? Check out our free, self-paced guide to
kidney
transplant
through this new online resource. Take the next step on your journey today!
Are you interested in learning more about
kidney
transplant
? Check out our free, self-paced guide to
kidney
transplant
through this new online resource. Take the next step on your journey today!
KateyC_NKF
Partner
in
Kidney Transplant
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning more about
kidney
transplant
? Check out our free, self-paced beginner’s guide to
kidney
transplant
through this new online resource. Take the next step on your journey today!
Are you interested in learning more about
kidney
transplant
? Check out our free, self-paced beginner’s guide to
kidney
transplant
through this new online resource. Take the next step on your journey today!
KateyC_NKF
Partner
in
Kidney Disease
2 years ago
Yellow patches on eyelids
Hi I developed yellow patches on my eyelids and under my eyes pre-transplant. Read it can be a sign of poor liver function so that makes sense, however it has got slightly worse post transplant. My liver function is excellent and cholesterol is low so I’m not sure what is causing it and my consultant
Hi I developed yellow patches on my eyelids and under my eyes pre-transplant. Read it can be a sign of poor liver function so that makes sense, however it has got slightly worse post transplant. My liver function is excellent and cholesterol is low so I’m not sure what is causing it and my consultant
Bantam2
in
British Liver Trust
1 year ago
Depression and Anxiety
I am 68 years male, retired, with diabetes, liver transplant suffering from depression and anxiety. I am single, feel bored, not having hobbies, difficult to pass time alone. Not having friends to talk so missing a lot. I always think of doing suicide. Need help and support.
I am 68 years male, retired, with diabetes, liver transplant suffering from depression and anxiety. I am single, feel bored, not having hobbies, difficult to pass time alone. Not having friends to talk so missing a lot. I always think of doing suicide. Need help and support.
MOVY
in
Anxiety and Depression Support
1 year ago
Blood pressure treatment - Irbesartan
Hi all, Its me again with yet another problem. I have Jak 2 positive ET controlled on hydroxycarbamide, aspirin and rivaroxaban. I went to GP to-day to get sun spots on my face treated with liquid nitrogen and whilst there he discussed with me my borderline/raised blood pressure. He decided to start
Hi all, Its me again with yet another problem. I have Jak 2 positive ET controlled on hydroxycarbamide, aspirin and rivaroxaban. I went to GP to-day to get sun spots on my face treated with liquid nitrogen and whilst there he discussed with me my borderline/raised blood pressure. He decided to start
Jelbea
in
MPN Voice
1 year ago
Anyone had a coronary sinus reducer?
I haven't been on here in a long while. My medical history is pretty complex, I'm seen locally at the Bristol Heart Institute but also under the care of the Cardio-oncology team at the Royal Brompton which a forum member told me about years ago thankfully. Basically my bone marrow transplant and other
I haven't been on here in a long while. My medical history is pretty complex, I'm seen locally at the Bristol Heart Institute but also under the care of the Cardio-oncology team at the Royal Brompton which a forum member told me about years ago thankfully. Basically my bone marrow transplant and other
SomersetJo
in
British Heart Foundation
1 year ago
Fit test 200. Urgent CT colonoscopy being ordered. Bowel symptoms. Anyone had a ct colonoscopy....I'm scared.
Hi I'm age 47 female went into premature menopause at age 13yrs. Developed erosive lichen planus at age 30 which effects all my mucous membranes, 9 gynaecology operations had including a total hysterectomy & vaginectomy....ibs all my life but over the last 6months had severe bowel symtons.Fit test 200
Hi I'm age 47 female went into premature menopause at age 13yrs. Developed erosive lichen planus at age 30 which effects all my mucous membranes, 9 gynaecology operations had including a total hysterectomy & vaginectomy....ibs all my life but over the last 6months had severe bowel symtons.Fit test 200
Tinytash76
in
Colon Cancer Connected
1 year ago
GFR drop 62 to 57 does that matter?
hi. I'm back with question. Reminder: i had declining GFR to 40s that began to go back up to 60 than 62. Latest it dropped to 57. Not very significant but it is back below 60. Should I be concerned or is it so close to 60 it doesn't matter?? is it likely to continue to drop? Or its wait and see i guess
hi. I'm back with question. Reminder: i had declining GFR to 40s that began to go back up to 60 than 62. Latest it dropped to 57. Not very significant but it is back below 60. Should I be concerned or is it so close to 60 it doesn't matter?? is it likely to continue to drop? Or its wait and see i guess
Cobalt2sister
in
Early CKD Support
1 year ago
Lupkynis approved in Switzerland to treat adults with lupus nephritis
Approval specifically covers treatment of active class 3, 4, and 5 disease by Marisa Wexler, MS | May 8, 2023 [i]
lupusnewstoday.com/news/lupkynis-approved-switzerland-treat-adults-lupus-nephritis/
[/i] Lupkynis (voclosporin) is now approved in Switzerland to treat adults with active lupus
Approval specifically covers treatment of active class 3, 4, and 5 disease by Marisa Wexler, MS | May 8, 2023 [i]
lupusnewstoday.com/news/lupkynis-approved-switzerland-treat-adults-lupus-nephritis/
[/i] Lupkynis (voclosporin) is now approved in Switzerland to treat adults with active lupus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Bereavement and loss.
Hello everyone. I've not been around for quite a while but thought now is the time to tell you that my husband passed away in February after his long struggle with chronic rejection of his double lung transplant which he only received in June 2021. I'm struggling coming to terms with his passing and
Hello everyone. I've not been around for quite a while but thought now is the time to tell you that my husband passed away in February after his long struggle with chronic rejection of his double lung transplant which he only received in June 2021. I'm struggling coming to terms with his passing and
Biofreak
in
Lung Conditions Community Forum
1 year ago
Clonidine for hypertension
Hello, Does anyone have experience with taking clonidine for hypertension? My FWP has been experiencing fluctuating blood pressure (anything from 102/66 or lower to 180/90 or even 200/80 on occasions) and his cardiologist has been adjusting his meds but they don’t seem to be that effective. We
Hello, Does anyone have experience with taking clonidine for hypertension? My FWP has been experiencing fluctuating blood pressure (anything from 102/66 or lower to 180/90 or even 200/80 on occasions) and his cardiologist has been adjusting his meds but they don’t seem to be that effective. We
Peppa_pig
in
Cure Parkinson's
1 year ago
transplant with no social support?
I have an appointment to discuss lung transplant but I have no real social support, just one elderly sibling. I did mention this to the girl on the phone but she was very breezy about it and just said when I'd had the transplant I wouldn't be let out of hospital until I was ok and the transplant would
I have an appointment to discuss lung transplant but I have no real social support, just one elderly sibling. I did mention this to the girl on the phone but she was very breezy about it and just said when I'd had the transplant I wouldn't be let out of hospital until I was ok and the transplant would
bundelino
in
Lung Conditions Community Forum
1 year ago
Looking for information
I had my
kidney
transplant
April, 2019. In the last couple of months I have had issues with being so cold that I need a coat or a heating pad. Then after about half an hour, I am so warm it's almost as if I have a horrible sunburn, especially on my back. Is this from the anti-rejection meds?
I had my
kidney
transplant
April, 2019. In the last couple of months I have had issues with being so cold that I need a coat or a heating pad. Then after about half an hour, I am so warm it's almost as if I have a horrible sunburn, especially on my back. Is this from the anti-rejection meds?
Ynnep
in
Kidney Transplant
2 years ago
THE “C” WORD
Before I get kicked off this forum, “C” stands for Cirrhosis. And yes on my ultrasound report it mentions the dreaded “C” word. But there really is no difference between Cirrhosis and fybrosis except the degree of fybrosis at some arbitrary stage is classed as Cirrhosis. Immediately we hear or see
Before I get kicked off this forum, “C” stands for Cirrhosis. And yes on my ultrasound report it mentions the dreaded “C” word. But there really is no difference between Cirrhosis and fybrosis except the degree of fybrosis at some arbitrary stage is classed as Cirrhosis. Immediately we hear or see
Oztrax
in
British Liver Trust
1 year ago
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