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Kidney failure
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Hereditary kidney disease
Slow progression but leads to
kidney
failure
. MUC1 is considered rare but probably many people have it who don’t know it. If you think you may have it we have a fb group founded by the head nephrologist at Wake forest NC - he’s looking for a cure and the more patients we identify the better.
Slow progression but leads to
kidney
failure
. MUC1 is considered rare but probably many people have it who don’t know it. If you think you may have it we have a fb group founded by the head nephrologist at Wake forest NC - he’s looking for a cure and the more patients we identify the better.
MsJasmine
in
Kidney Dialysis
3 years ago
BK Virus
I am one month post kidney transplant however I have a BK virus that is freaking me out I do labs twice a week and it went from 0 to 57 to 461 to 12,000 haven’t got results from today but would greatly appreciate if anyone can share their experience with me to help me understand what to expect. Thank
I am one month post kidney transplant however I have a BK virus that is freaking me out I do labs twice a week and it went from 0 to 57 to 461 to 12,000 haven’t got results from today but would greatly appreciate if anyone can share their experience with me to help me understand what to expect. Thank
Alkaline1
in
Kidney Transplant
3 years ago
Kidney Transplant Evaluation
I'm scheduled for a kidney transplant evaluation in a few days. I was told that the appointment can take 4 or 5 hours. Can anyone please tell me what is involved with the evaluation?
I'm scheduled for a kidney transplant evaluation in a few days. I was told that the appointment can take 4 or 5 hours. Can anyone please tell me what is involved with the evaluation?
annulla
in
Kidney Transplant
3 years ago
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Tacrolimus Supply Problem?
Dear All, I have been 'on' Tacrolimus since my Kidney Transplant, way back, in July 2013. Recently however my regular Chemist- Rowlands- has had Trouble/ a Problem 'getting' this- however, it appears that NO-ONE else has! My Doctor's has been Great, about this, and has written the Prescription for this
Dear All, I have been 'on' Tacrolimus since my Kidney Transplant, way back, in July 2013. Recently however my regular Chemist- Rowlands- has had Trouble/ a Problem 'getting' this- however, it appears that NO-ONE else has! My Doctor's has been Great, about this, and has written the Prescription for this
AndrewT
in
Vasculitis UK
3 years ago
Decompensated cirrhosis and kidney failure
Mom (age 72) was diagnosed with decompensated cirrhosis with refractory ascites and HE. Soon after creatinine jumped to 7 and her kidney failed. Afterwards, she was on CAPD + rosavel, rifagut & weekly albumin. Also salt intake. Survived 28 months and left us due to heart attack and infection. Doctor
Mom (age 72) was diagnosed with decompensated cirrhosis with refractory ascites and HE. Soon after creatinine jumped to 7 and her kidney failed. Afterwards, she was on CAPD + rosavel, rifagut & weekly albumin. Also salt intake. Survived 28 months and left us due to heart attack and infection. Doctor
Saduser1
in
British Liver Trust
3 years ago
UTI and E.Coli
I’ve been ill for 12 weeks so been off my methotrexate. I’ve had 4 loads of blood tests done and 3 urine infections where I was really ill. Vomiting, fever, nausea, chronic fatigue, I’ve lost 10kilos! Turns out I had a kidney infection and it was resistant to the antibiotics the GP prescribed. I spoke
I’ve been ill for 12 weeks so been off my methotrexate. I’ve had 4 loads of blood tests done and 3 urine infections where I was really ill. Vomiting, fever, nausea, chronic fatigue, I’ve lost 10kilos! Turns out I had a kidney infection and it was resistant to the antibiotics the GP prescribed. I spoke
marie66
in
NRAS
3 years ago
ANA positive patients needed for a new research study
Hi everyone, I have received a request from researchers at University of Nottingham for a project about whether antinuclear antibodies (ANA) can be predictive of disease.
[u]Lay summary[/u]
[i]Patients with rare diseases frequently describe a long path to diagnosis. ANA-associated diseases are
Hi everyone, I have received a request from researchers at University of Nottingham for a project about whether antinuclear antibodies (ANA) can be predictive of disease.
[u]Lay summary[/u]
[i]Patients with rare diseases frequently describe a long path to diagnosis. ANA-associated diseases are
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
Travelling abroad/best portable compressor in your opinion please
Hi I’m new here! I had LV Heart Failure in 2010 and lived a fairly unrestricted life. In Jan this year I contracted COVID which has made my condition worse with RV Heart failure (pacemaker upgraded) and type II respiratory failure for which I’m on 2 litres at rest, 3 mobilising and 4 at night through
Hi I’m new here! I had LV Heart Failure in 2010 and lived a fairly unrestricted life. In Jan this year I contracted COVID which has made my condition worse with RV Heart failure (pacemaker upgraded) and type II respiratory failure for which I’m on 2 litres at rest, 3 mobilising and 4 at night through
WeirdOxygenGirl
in
Lung Conditions Community Forum
3 years ago
Besremi versus Pegasys
This question was raised by Flynn2107 months ago. I looked into it and replied there but it seems worth a new post with the recent FDA approval. PEG and Ropeg (Besremi) use polyethylene glycol (PEG) to control the release of the INF molecule. The earliest INFs had less of a control element and more
This question was raised by Flynn2107 months ago. I looked into it and replied there but it seems worth a new post with the recent FDA approval. PEG and Ropeg (Besremi) use polyethylene glycol (PEG) to control the release of the INF molecule. The earliest INFs had less of a control element and more
EPguy
in
MPN Voice
3 years ago
Leg ache - side effect metronidazole
Hi I have had 2 days of metronidazole for dental 400mg twice a day - advised to stop it due to side effect - leg pain in calf muscles - has anyone experienced this and if so how long do these symptoms last - has anyone had similar problems
Hi I have had 2 days of metronidazole for dental 400mg twice a day - advised to stop it due to side effect - leg pain in calf muscles - has anyone experienced this and if so how long do these symptoms last - has anyone had similar problems
Impega
in
Pain Concern
3 years ago
New here curios and confused lol
Hi my name is Rick I was diagnosed with adpkd on 5th jan 2022 I have never had any cases of pkd in my family before me and only discovered I had it while investigating high blood pressure I’m 38 and bar the blood pressure have had no symptoms until now , I constantly have to p during the night and am
Hi my name is Rick I was diagnosed with adpkd on 5th jan 2022 I have never had any cases of pkd in my family before me and only discovered I had it while investigating high blood pressure I’m 38 and bar the blood pressure have had no symptoms until now , I constantly have to p during the night and am
Chappy1708
in
PKD Charity for Autosomal Dominant PKD
3 years ago
left ventricular systolic dysfunction
Following my recent heart echo this diagnosis has appeared on my NHS GP record - "left ventricular systolic dysfunction". I had the echo because I get breathless these days just walking across the road to the shops, but when I went to see the GP to discuss my results there was no mention of "left ventricular
Following my recent heart echo this diagnosis has appeared on my NHS GP record - "left ventricular systolic dysfunction". I had the echo because I get breathless these days just walking across the road to the shops, but when I went to see the GP to discuss my results there was no mention of "left ventricular
Stinky1953
in
AF Association
3 years ago
Decompensated liver, ascites, aki
He got decompensated liver disease failed rapidly from day he went into hospital, his ended up back in twice low sodium, his got ascites and gets drained every 2 to 3 weeks he has stage 1 and 2
kidney
failure
, I'm at my wits end.
He got decompensated liver disease failed rapidly from day he went into hospital, his ended up back in twice low sodium, his got ascites and gets drained every 2 to 3 weeks he has stage 1 and 2
kidney
failure
, I'm at my wits end.
Kt1985
in
British Liver Trust
3 years ago
Kidney Jokes
Thought I would do something admirable this holiday season and donate a kidney I got nothing but grief from the Salvation Army bell ringer who's bucket I was trying to shove it in ~~~~~~ So I got a kidney shaped pool... It has a stone in it... ~~~ Did you hear about the man who got a brain transplant
Thought I would do something admirable this holiday season and donate a kidney I got nothing but grief from the Salvation Army bell ringer who's bucket I was trying to shove it in ~~~~~~ So I got a kidney shaped pool... It has a stone in it... ~~~ Did you hear about the man who got a brain transplant
Sophiebun11
in
Kidney Disease
3 years ago
My husband hasCKD. I’m so scared
Hello everyone! I’m really scared for my husbands life. He is 45 years old and his primary has just diagnosed him with CKD. He has GFR of 70. Doctor really scared us by telling us that at his age he would properly require Dialysis and a kidney transplant. We have an appointment to see a specialist
Hello everyone! I’m really scared for my husbands life. He is 45 years old and his primary has just diagnosed him with CKD. He has GFR of 70. Doctor really scared us by telling us that at his age he would properly require Dialysis and a kidney transplant. We have an appointment to see a specialist
Dianamillo
in
Early CKD Support
3 years ago
creatine ?
I have a question please - have tried, but without success to find an answer : I have a good eGFR result, but my creatine is high - I am sticking to a low protein diet which has helped raise my eGFR but has no affect on my high creatine level? What can I do to bring my creatine level down ? Also,
I have a question please - have tried, but without success to find an answer : I have a good eGFR result, but my creatine is high - I am sticking to a low protein diet which has helped raise my eGFR but has no affect on my high creatine level? What can I do to bring my creatine level down ? Also,
barneyfrances
in
Early CKD Support
3 years ago
Low triiodothyronine levels correlate with high B-type natriuretic peptide levels in patients with heart failure
An association between low T3 and cardiac disorders. They appear to very responsibly avoid unwarranted conclusions - which came first? - but at least the question is being asked. [i] • Open Access • Published: 08 November 2021
Low triiodothyronine levels correlate with high B-type natriuretic
An association between low T3 and cardiac disorders. They appear to very responsibly avoid unwarranted conclusions - which came first? - but at least the question is being asked. [i] • Open Access • Published: 08 November 2021
Low triiodothyronine levels correlate with high B-type natriuretic
helvella
Thyroid UK
in
Thyroid UK
3 years ago
UTI I've had a UTI .
I've had a UTI infection every month since August ,just flared up again ,last two months it's been on my third week after chemo ,so ruins my two good weeks ,has anyone else had this problem ,if so is there a solution , I've had a seven day course of antibiotics for the last four months . Cheryl
I've had a UTI infection every month since August ,just flared up again ,last two months it's been on my third week after chemo ,so ruins my two good weeks ,has anyone else had this problem ,if so is there a solution , I've had a seven day course of antibiotics for the last four months . Cheryl
fendweller
in
My Ovacome
3 years ago
Mom recurrence after 4 years remission
Still i am in stress… my mom had OC 2017, that 4 years silent, and may 2021 it was back. throughout the abdomen and lymph nodes of the abdomen, around the liver, she was treated with the same platinum chemo. Do anyone have in first recurrence have same chemo as in first time? I think it worked very good
Still i am in stress… my mom had OC 2017, that 4 years silent, and may 2021 it was back. throughout the abdomen and lymph nodes of the abdomen, around the liver, she was treated with the same platinum chemo. Do anyone have in first recurrence have same chemo as in first time? I think it worked very good
Inguc_is
in
My Ovacome
3 years ago
Covid and Decreased eGFR
I am 74 and my e GFR has been decreasing for years but no dr. ever brought my attention to
kidney
failure
. I also have Hashimoto's and genetic high homocysteine so inflammation is an issue.
I am 74 and my e GFR has been decreasing for years but no dr. ever brought my attention to
kidney
failure
. I also have Hashimoto's and genetic high homocysteine so inflammation is an issue.
OKShakespeare
in
Kidney Disease
3 years ago
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