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Rambler 64
Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which
Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which
Rambler64
in
Restless Legs Syndrome
3 years ago
Until what age can someone be qualified to have a kidney transplant? My nephro told me until 70 and takes 8 yrs on the waiting list?
How long does one have to be on the waiting list for a deceased donor kidney transplant?
How long does one have to be on the waiting list for a deceased donor kidney transplant?
Dina0210
in
Kidney Disease
3 years ago
Tips for a new possible ckd diagnosis?
As a new poster, A little about me, I’ve been body building for 10 years now and have remained in good shape physically but have had high bp. My doctor hasn’t said anything yet but he hinted at prescription now meds during my next visit. My gfr back in 2014 was 92 and now it was 67 recently. I’m 28
As a new poster, A little about me, I’ve been body building for 10 years now and have remained in good shape physically but have had high bp. My doctor hasn’t said anything yet but he hinted at prescription now meds during my next visit. My gfr back in 2014 was 92 and now it was 67 recently. I’m 28
FThomp
in
Early CKD Support
3 years ago
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Coeliac disease, Heart failure and now chronic kidney disease. Help with diet needed.
Hi all, I,m 63, I had a stent fitted after HA in Oct 2020 and I have LVSD ,mild to moderate heart
failure
. I have now been diagnosed with chronic
kidney
disease 3 (mild to moderate), I also have coeliac disease.
Hi all, I,m 63, I had a stent fitted after HA in Oct 2020 and I have LVSD ,mild to moderate heart
failure
. I have now been diagnosed with chronic
kidney
disease 3 (mild to moderate), I also have coeliac disease.
Gigi1958
in
British Heart Foundation
2 years ago
LVH / HCM After Renal Transplant
Hi - I’m 55. I had a kidney transplant in 2014. Transplanted kidney has done amazingly well. However, almost immediately after I starting prograf I complained of rapid heart rate and have consistently done so for years. Fast forward to 2021, a physician’s assistant finally listened and I was referred
Hi - I’m 55. I had a kidney transplant in 2014. Transplanted kidney has done amazingly well. However, almost immediately after I starting prograf I complained of rapid heart rate and have consistently done so for years. Fast forward to 2021, a physician’s assistant finally listened and I was referred
Denise-80
in
Kidney Disease
3 years ago
New in Type 1 Diabetes "Monogenic Diabetes"
In today's Daily Mail online, you can read about how " Monogenic Diabetes do produce some insulin. " https://www.dailymail.co.uk/health/article-10171247/Type-1-diabetes-sufferers-ditch-insulin-turns-different-hidden-type.html
In today's Daily Mail online, you can read about how " Monogenic Diabetes do produce some insulin. " https://www.dailymail.co.uk/health/article-10171247/Type-1-diabetes-sufferers-ditch-insulin-turns-different-hidden-type.html
sandybrown
in
Diabetes India
3 years ago
Dialysis Center
I lost my transplanted kidney in July 2021 after 10 years. Now doing hemodialysis at a center. The staff are not trained well. They don’t sanitize probably. They are not professional at all. I’ve voiced my concerns but have to be careful because of retaliation. It’s awful. My anxiety is through the
I lost my transplanted kidney in July 2021 after 10 years. Now doing hemodialysis at a center. The staff are not trained well. They don’t sanitize probably. They are not professional at all. I’ve voiced my concerns but have to be careful because of retaliation. It’s awful. My anxiety is through the
GasolineAlley
in
Kidney Dialysis
3 years ago
Update on hubby
As some of you know my husband, Geoff ,was rushed into hospital on the 4th and a traumatic 20 hours followed (please see previous post). Since then he seems to have received excellent treatment, numerous tests done and treatments given, despite staff shortages on the wards . Geoff was sent home on
As some of you know my husband, Geoff ,was rushed into hospital on the 4th and a traumatic 20 hours followed (please see previous post). Since then he seems to have received excellent treatment, numerous tests done and treatments given, despite staff shortages on the wards . Geoff was sent home on
Thepainterswife
in
Lung Conditions Community Forum
3 years ago
CT Scan
Hi. I recently had a ct scan but I’ve now received a letter saying that because there was a lot of calcium they could not get clear images. I now need a myocardial perfusion scan. I don’t understand. Is this a sign I may have serious problems.
Hi. I recently had a ct scan but I’ve now received a letter saying that because there was a lot of calcium they could not get clear images. I now need a myocardial perfusion scan. I don’t understand. Is this a sign I may have serious problems.
CharlieDav
in
Ataxia UK
3 years ago
Dr. Ondo have an appt with this dr in December. Can anyone tell me if they have seen him or had any experience with him and their thoughts
I have rls that originally started years ago in my legs. I developed renal failure and went on dialysis for 5 and 1/2 years which caused my rls to go off the charts. I have now had a kidney transplant as of July 2020 and with all the meds I take for anti rejection meds I have developed rls in my abdomen
I have rls that originally started years ago in my legs. I developed renal failure and went on dialysis for 5 and 1/2 years which caused my rls to go off the charts. I have now had a kidney transplant as of July 2020 and with all the meds I take for anti rejection meds I have developed rls in my abdomen
ESRDRLS
in
Restless Legs Syndrome
3 years ago
Obstructed defecation syndrome
I have suffered from IBS all my life (i`m in my 60s), mainly with occasional bouts of diarhoea and pain, but about 5 years ago the symptoms changed. I needed to go to the loo at least 5 times every day but didn`t have diarhoea and struggled to pass motions even when they were soft, and always felt
I have suffered from IBS all my life (i`m in my 60s), mainly with occasional bouts of diarhoea and pain, but about 5 years ago the symptoms changed. I needed to go to the loo at least 5 times every day but didn`t have diarhoea and struggled to pass motions even when they were soft, and always felt
janke
in
IBS Network
3 years ago
7 months post kidney transplant. I’m up to 40 minutes of walking 3-4 times a week. Day after exercise tired , useless. Any others?
Tired day after exercise
Tired day after exercise
3KMa
in
Kidney Transplant
3 years ago
Educating the public about the need for living kidney donors
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Transplant
3 years ago
Educating the public about the need for living kidney donors
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Transplant Patient Support
3 years ago
Educating the public about the need for living kidney donors.
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Disease
3 years ago
AM I ELIGIBLE FOR KIDNEY TRANSPLANT?
I’M A MALE 76 YEARS OLD. I’M A CANCER SURVIVER ( RENAL CELL CARCINOMA STAGE 4|) AUGUST 2013. MY LATTEST GFR WAS 32. AM I ELIGIBLE FOR A TRANSPLANT LIST? OR I WILL I HAVE TO GET A DIRECT KIDNEY OR NOTHING. REGARDS DANNY JOE HUMPHREY . REGARDS DANNY JOE HUMPHREY
I’M A MALE 76 YEARS OLD. I’M A CANCER SURVIVER ( RENAL CELL CARCINOMA STAGE 4|) AUGUST 2013. MY LATTEST GFR WAS 32. AM I ELIGIBLE FOR A TRANSPLANT LIST? OR I WILL I HAVE TO GET A DIRECT KIDNEY OR NOTHING. REGARDS DANNY JOE HUMPHREY . REGARDS DANNY JOE HUMPHREY
pigeonman
in
Early CKD Support
3 years ago
At my wits end…
Just after a bit of support, my 6 year old has had a “poo problem” for 3 years now. She started off struggling to poo, we went to gp and they gave her lactulose, that didn’t work so they added senna and it just got worse and worse. She then went on movicol up to 12 sachets to clear her out , which it
Just after a bit of support, my 6 year old has had a “poo problem” for 3 years now. She started off struggling to poo, we went to gp and they gave her lactulose, that didn’t work so they added senna and it just got worse and worse. She then went on movicol up to 12 sachets to clear her out , which it
ClareKnight
in
ERIC
3 years ago
How do you get ESRD Medicare if you get a preemptive kidney transplant (before dialysis has begun).
Does anyone know the particulars of getting ESRD Medicare prior to the start of dialysis? Medicare’s guidelines say that you qualify in the month that you receive a kidney transplant, but they don’t say what day of the month or if you start your application after you have already received the transplant
Does anyone know the particulars of getting ESRD Medicare prior to the start of dialysis? Medicare’s guidelines say that you qualify in the month that you receive a kidney transplant, but they don’t say what day of the month or if you start your application after you have already received the transplant
Hidden
in
Kidney Transplant
3 years ago
Help for those who need a kidney transplant
From a nonprofit organization: www.LKDN.org a Free online program that shows you how others have achieved a successful living kidney transplant experience. Having Your Kidney Donor Find YOU! www.havingyourkidneydonorfindyou.org Information developed by a 2-time kidney transplant recipient.
From a nonprofit organization: www.LKDN.org a Free online program that shows you how others have achieved a successful living kidney transplant experience. Having Your Kidney Donor Find YOU! www.havingyourkidneydonorfindyou.org Information developed by a 2-time kidney transplant recipient.
hmysel
in
Kidney Transplant Patient Support
3 years ago
Missed pill and no period. Pregnant or not?
Hello I have been on the Desogestrel for 4 years. A few weeks ago my prescription was not ready in time leaving me without any pills for about a week. Normally as soon as I miss 2 days I start a period this time I have had no period. I had a few cramps feeling like I was going to start my period but
Hello I have been on the Desogestrel for 4 years. A few weeks ago my prescription was not ready in time leaving me without any pills for about a week. Normally as soon as I miss 2 days I start a period this time I have had no period. I had a few cramps feeling like I was going to start my period but
Hoolahoop12
in
BASHH
3 years ago
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