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sueloo
hi everyone, had AF for 12 years, finally got use to it, stopped worrying and then found I was feeling a lack of strength and energy. ask my GP to check my BNP for heart failure, came back high, that started investigations they said my right ventrical was dilated, talk of pulmonary hypertention not
hi everyone, had AF for 12 years, finally got use to it, stopped worrying and then found I was feeling a lack of strength and energy. ask my GP to check my BNP for heart failure, came back high, that started investigations they said my right ventrical was dilated, talk of pulmonary hypertention not
suebeebee
in
AF Association
8 months ago
metastasised kidney cancer led to Nivolab immunotherapy
Writing for my husband, in brief: Had kidney out due to cancer Metastasised to both lungs and thorax. Five years of scans. Now on his spine, shown on pet scan Started immunotherapy, Nivolab and daily tablet. Had four sessions ,become really really ill. Tired, sick feeling, dizzy, unsteady on feet
Writing for my husband, in brief: Had kidney out due to cancer Metastasised to both lungs and thorax. Five years of scans. Now on his spine, shown on pet scan Started immunotherapy, Nivolab and daily tablet. Had four sessions ,become really really ill. Tired, sick feeling, dizzy, unsteady on feet
MydogBrandy
in
Advanced Prostate Cancer
3 months ago
Polycystic Liver Disease
I have PKD and had a kidney transplant 5 years ago - everything has been great I was also subsequently diagnosed with polycystic liver disease. Although my liver is enormous and filled with innumerable cysts, I was asymptomatic until recently and the cysts are now beginning to cause pain. I will,
I have PKD and had a kidney transplant 5 years ago - everything has been great I was also subsequently diagnosed with polycystic liver disease. Although my liver is enormous and filled with innumerable cysts, I was asymptomatic until recently and the cysts are now beginning to cause pain. I will,
Transplant2018
in
Kidney Transplant
3 months ago
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Over 65? Newly low eGFR?
In this latter group, the risks of
kidney
failure
and death were of similar magnitudes to those of controls without CKD."
In this latter group, the risks of
kidney
failure
and death were of similar magnitudes to those of controls without CKD."
barbara55109
in
Kidney Disease
5 months ago
interstitial cystitis
Hi all So lovely to be part of this community I have had lots of very good advice over the years ! was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last
Hi all So lovely to be part of this community I have had lots of very good advice over the years ! was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last
Mascot68
in
IBS Network
3 months ago
Post Kidney Transplant
I had a kidney transplant 1 1/2 years ago it took over a year for all my numbers to stabilize to normal. Now I have achy joints and muscles everyday mostly shoulders. Don’t know if it’s the anti rejection drugs or just old age. Never had these issues prior to transplant. I’m an active 64 year old male
I had a kidney transplant 1 1/2 years ago it took over a year for all my numbers to stabilize to normal. Now I have achy joints and muscles everyday mostly shoulders. Don’t know if it’s the anti rejection drugs or just old age. Never had these issues prior to transplant. I’m an active 64 year old male
Zbiguy
in
Kidney Disease
3 months ago
Just a quick question.
Hi everyone and thanks for all your help so far. As the chemo has now stopped working for Martin we are looking for any other options that might be available to give him more time. His MO has organised a liquid biopsy to see if there are any mutations that could be treated, which might help. We
Hi everyone and thanks for all your help so far. As the chemo has now stopped working for Martin we are looking for any other options that might be available to give him more time. His MO has organised a liquid biopsy to see if there are any mutations that could be treated, which might help. We
Believeit
in
Advanced Prostate Cancer
3 months ago
Kidney transplant 23 years my gfr now is 13 percent but I want no dialysis.
Hi everyone I hope everyone is doing well . I writing to you guys for some advice on what should I do. Anyhow, my kidney transplant is 23 years old it's been a nice ride so thankful , but in this pass 2 years it has lost fuction due because of the years. I have a donor already my husband but we are waiting
Hi everyone I hope everyone is doing well . I writing to you guys for some advice on what should I do. Anyhow, my kidney transplant is 23 years old it's been a nice ride so thankful , but in this pass 2 years it has lost fuction due because of the years. I have a donor already my husband but we are waiting
jennifer24
in
Kidney Transplant
3 months ago
Chamberpot
Has anyone had severe breathlessness? I have had heart failure for over a year now, and I had a pacemaker fitted on 16th October last, then a change to my blood pressure tablet from Ramapril to Entresto. After a few weeks I became breathless, and developed atrial fibrillation again, so went back on to
Has anyone had severe breathlessness? I have had heart failure for over a year now, and I had a pacemaker fitted on 16th October last, then a change to my blood pressure tablet from Ramapril to Entresto. After a few weeks I became breathless, and developed atrial fibrillation again, so went back on to
Chamberpot
in
AF Association
8 months ago
My first post concerning APC
Hello everyone. I have just found this site, so unfamiliar with posting protocol. Briefly. I was diagnosed with advanced metastatic prostate cancer (bones) in January, 2023 (thought I just needed to stock up on antacids). February, 2023 prescribed Apalutamide plus Trelstar. Ceased being effective April
Hello everyone. I have just found this site, so unfamiliar with posting protocol. Briefly. I was diagnosed with advanced metastatic prostate cancer (bones) in January, 2023 (thought I just needed to stock up on antacids). February, 2023 prescribed Apalutamide plus Trelstar. Ceased being effective April
VisorF9
in
Advanced Prostate Cancer
3 months ago
Brief history and where I am now. My first post.
Diagnosed metastatic prostate cancer in January, 2023. Prescribed Apalutamide plus Trelstar in February, 2023. Ceased being effective in April, 2024. Recently began Radium223 (Xofigo) treatment. Not sure if I will continue with Xofigo.
Diagnosed metastatic prostate cancer in January, 2023. Prescribed Apalutamide plus Trelstar in February, 2023. Ceased being effective in April, 2024. Recently began Radium223 (Xofigo) treatment. Not sure if I will continue with Xofigo.
VisorF9
in
Advanced Prostate Cancer
3 months ago
Vasculitis in the pancreas?
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Sandalsforever
in
Vasculitis UK
4 months ago
Low Potassium/High Calcium Caution
Hi Guys I had a mineral check via a hair test and a DNA Methylation report via a mouth swab (corrected 16 June as I had them the wrong way round) as suggested by a nutritionist who has been helping me sort my gut and auto-immune issues. I wasn't expecting much ... but how lovely to be pleasantly surprised
Hi Guys I had a mineral check via a hair test and a DNA Methylation report via a mouth swab (corrected 16 June as I had them the wrong way round) as suggested by a nutritionist who has been helping me sort my gut and auto-immune issues. I wasn't expecting much ... but how lovely to be pleasantly surprised
Wwwdot
in
Pernicious Anaemia Society
4 months ago
Does anyone take this supplement?
I have been doing a lot of research on how to fix cramping. Let me first say, no pickle juice does not work. I also do not have fluid taken off during dialysis. I add 400ml of saline each treatment. I also have no fluid restrictions and so I do drink a lot of water. And none of my mineral labs indicate
I have been doing a lot of research on how to fix cramping. Let me first say, no pickle juice does not work. I also do not have fluid taken off during dialysis. I add 400ml of saline each treatment. I also have no fluid restrictions and so I do drink a lot of water. And none of my mineral labs indicate
Bassetmommer
in
Kidney Dialysis
4 months ago
Low phosphate levels linked to hypothyroidism?
Hi all, I am under close monitoring for my kidneys by a renal consultant. I had severe acute kidney injury (AKI) caused by sepsis last year and am very slowly improving. At my recent six monthly blood test, my phosphate levels had dropped and they are now below range. The trend for this has been dropping
Hi all, I am under close monitoring for my kidneys by a renal consultant. I had severe acute kidney injury (AKI) caused by sepsis last year and am very slowly improving. At my recent six monthly blood test, my phosphate levels had dropped and they are now below range. The trend for this has been dropping
helen_m
in
Thyroid UK
4 months ago
infusion
Hi, I am currently on 40mg of Adalimumab every 2 weeks but it is not working, the hospital have decided that an infusion of Rituximab is the next step, has anybody else had this treatment and did it work?
Hi, I am currently on 40mg of Adalimumab every 2 weeks but it is not working, the hospital have decided that an infusion of Rituximab is the next step, has anybody else had this treatment and did it work?
LTC1607
in
NRAS
4 months ago
psoriasis flair and adalimumab
hi all, I am looking for some advice. I had severe psoriasis which was almost gone thanks to adalimumab. I saw my dermatology team back in April for my 6 monthly check where my psoriasis was flairing up. so I had an adalimumab blood test to see if it was meant to work. I got the results back a
hi all, I am looking for some advice. I had severe psoriasis which was almost gone thanks to adalimumab. I saw my dermatology team back in April for my 6 monthly check where my psoriasis was flairing up. so I had an adalimumab blood test to see if it was meant to work. I got the results back a
katienewland
in
Beyond Psoriasis
4 months ago
Advice on liver and kidney results on latest blood test
Diagnosed end of April, 2 days of intravenous pred @ 500, 1 day at intravenous @ 1mg and then onto 60, 50, 40, 35 - just started on 30 today. Bloods from 3rd June came back with liver and kidney markers out of range ....... steroids 🤷♀️ Have a slot to discuss the results with the surgery pharmacy
Diagnosed end of April, 2 days of intravenous pred @ 500, 1 day at intravenous @ 1mg and then onto 60, 50, 40, 35 - just started on 30 today. Bloods from 3rd June came back with liver and kidney markers out of range ....... steroids 🤷♀️ Have a slot to discuss the results with the surgery pharmacy
Anne241262
in
PMRGCAuk
4 months ago
Renal stenosis
Hi. I started Hydreasin two years ago one capsule a day. Last year it was found I had obstruction of ureteroreanal junction. out of the blue. I suffered much pain and in two days I am having surgery. I read somewhere that Hydroxy does that. Any idea about it? I am thinking of changing to Besremi as
Hi. I started Hydreasin two years ago one capsule a day. Last year it was found I had obstruction of ureteroreanal junction. out of the blue. I suffered much pain and in two days I am having surgery. I read somewhere that Hydroxy does that. Any idea about it? I am thinking of changing to Besremi as
Kelly2
in
MPN Voice
4 months ago
perineal myxoid pseudotumor of fat
I have had CKD3B for 7 years. I am 76 years old. I suffered from end stage interstitial cystitis After battling it for 5 years. My ureters would back up fluid into the kidney and cause UTIs and hydrophynosis, landing me in the hospital on IV antibiotics for 5-6 days, 6 times that year. My urologist
I have had CKD3B for 7 years. I am 76 years old. I suffered from end stage interstitial cystitis After battling it for 5 years. My ureters would back up fluid into the kidney and cause UTIs and hydrophynosis, landing me in the hospital on IV antibiotics for 5-6 days, 6 times that year. My urologist
snoochy
in
Kidney Disease
4 months ago
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