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Osteoporosis post kidney transplant
Post kidney transplant woman, 1 year 4 months, Has anyone been treated with a particular medication? Reaction? Side effects
Post kidney transplant woman, 1 year 4 months, Has anyone been treated with a particular medication? Reaction? Side effects
Hydrangea2023
in
Osteoporosis Support
1 year ago
Hello from Manchester
Just to say hello - I have had a recent diagnosis of SLE - Lupus and grateful to have discovered Lupus UK - having spent too much time doom=scrolling and reading about Selena Gomez and kidney transplants. Wishing everyone a good day and positive mental health in our personal battles.
Just to say hello - I have had a recent diagnosis of SLE - Lupus and grateful to have discovered Lupus UK - having spent too much time doom=scrolling and reading about Selena Gomez and kidney transplants. Wishing everyone a good day and positive mental health in our personal battles.
ancoats23
in
LUPUS UK
1 year ago
NICE recommends voclosporin to treat lupus nephritis
NICE have made a recommendation to the NHS that a new treatment, voclosporin, can be used in combination with mycophenolate mofetil (MMF) to treat some patients with lupus nephritis. This is only the second treatment developed specifically for lupus to be approved in within the UK. Exciting stuff! You
NICE have made a recommendation to the NHS that a new treatment, voclosporin, can be used in combination with mycophenolate mofetil (MMF) to treat some patients with lupus nephritis. This is only the second treatment developed specifically for lupus to be approved in within the UK. Exciting stuff! You
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
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low motivation
Hey all. Last times I facing problems with very low motivation to do something. It's hard for me to leave bed. I hove no pain or another discomfort. But any my wish to do something breaking by question “why?”. All actions seem meaningless. My mood is a little uprising only when I use tablets like ibuprophen
Hey all. Last times I facing problems with very low motivation to do something. It's hard for me to leave bed. I hove no pain or another discomfort. But any my wish to do something breaking by question “why?”. All actions seem meaningless. My mood is a little uprising only when I use tablets like ibuprophen
TomMilds
in
Kidney Dialysis
1 year ago
First Post (advice if possible)
hi all, my SO drinks minimum of 45 units per week, sometimes 60. Gets up for work bright as a button, if he goes two days without booze he's quite nasty and won't eat because each food group needs to "have a beer with it". He won't listen to reason, thinks I am nagging, constantly promising to
hi all, my SO drinks minimum of 45 units per week, sometimes 60. Gets up for work bright as a button, if he goes two days without booze he's quite nasty and won't eat because each food group needs to "have a beer with it". He won't listen to reason, thinks I am nagging, constantly promising to
ChelseaPH
in
British Liver Trust
1 year ago
Beta Blockers for Portal Hypertension /heart failure
Advice please for the type of Beta Blockers someone with Portal Hypertension and Heart Failure might be put on. I'm currently on Nebivolol for HF.
Advice please for the type of Beta Blockers someone with Portal Hypertension and Heart Failure might be put on. I'm currently on Nebivolol for HF.
Curryandchips
in
British Liver Trust
1 year ago
Fatigue on Tolvaptan
Hello all, I've started taking Tolvaptan (45/15) and I'm experiencing extreme muscle fatigue and brain fog. Does anyone else experience this? Any recommendations on how to deal with this?
Hello all, I've started taking Tolvaptan (45/15) and I'm experiencing extreme muscle fatigue and brain fog. Does anyone else experience this? Any recommendations on how to deal with this?
aab2489
in
PKD Charity for Autosomal Dominant PKD
1 year ago
Pseudomonas and carpets?
Does anyone know if Pseudomonas is in carpets? I tore out 2 rooms a few yrs ago and put Laminate in and so glad i did it but still have carpeting in my bedroom and office in my house and wonder if maybe Pseudomonas is in it as I have had 6 courses of Iv antibiotics for colonized Pseudomonas this year
Does anyone know if Pseudomonas is in carpets? I tore out 2 rooms a few yrs ago and put Laminate in and so glad i did it but still have carpeting in my bedroom and office in my house and wonder if maybe Pseudomonas is in it as I have had 6 courses of Iv antibiotics for colonized Pseudomonas this year
Lapis5
in
Lung Conditions Community Forum
2 years ago
Skin Lesion
Hi there I’ve had a skin lesion since Xmas. I tried all sorts of creams and even antibiotics and nothing has shifted it. It does feel a bit tender but my main concern is that it itches. Long story short; saw my GP who in end referred me two Wk wait. I had photos done and then called in for biopsy
Hi there I’ve had a skin lesion since Xmas. I tried all sorts of creams and even antibiotics and nothing has shifted it. It does feel a bit tender but my main concern is that it itches. Long story short; saw my GP who in end referred me two Wk wait. I had photos done and then called in for biopsy
Evanslil
in
Pain Concern
2 years ago
Polyhydramnios
I am pregnant with my 3rd child and have Polyhydramnios. A diabetes test come back clear and in a couple of weeks I have my 28 week scan looking into it under the fetal medicine department, I am not to sure what a scan under this department means and also what else it means to have this fluid when diabetes
I am pregnant with my 3rd child and have Polyhydramnios. A diabetes test come back clear and in a couple of weeks I have my 28 week scan looking into it under the fetal medicine department, I am not to sure what a scan under this department means and also what else it means to have this fluid when diabetes
Hidden
in
Pregnancy and Parenting Support
2 years ago
Treating leukocytosis in PV
I was diagnosed with PV in 2015 and I am JAK2 positive. I've been on Jakafi for about six months, and my current dosage of 10 mg/day seems to be doing a good job of controlling my HCT, HGB, and PLT numbers. However, my WBC numbers are consistently high, running at 19-20 K/uL. I understand that the literature
I was diagnosed with PV in 2015 and I am JAK2 positive. I've been on Jakafi for about six months, and my current dosage of 10 mg/day seems to be doing a good job of controlling my HCT, HGB, and PLT numbers. However, my WBC numbers are consistently high, running at 19-20 K/uL. I understand that the literature
sbs_patient
in
MPN Voice
2 years ago
UTI & Kidney Infection - with endometriosis
Is anyone else experiencing a lot of recurring UTI/ Kidney infections with endometriosis? If so what supplements / dietary changes would you advise to help prevent them? I was diagnosed last June and have had two laparoscopies to treat severe endometriosis, ever since I’ve had these surgeries I have
Is anyone else experiencing a lot of recurring UTI/ Kidney infections with endometriosis? If so what supplements / dietary changes would you advise to help prevent them? I was diagnosed last June and have had two laparoscopies to treat severe endometriosis, ever since I’ve had these surgeries I have
Paininthebackside1
in
Endometriosis UK
2 years ago
pre cancer now kidney mass
Hi I’ve posted here before I had precancerous cells on my ovary and Fallopian tube which was removed along with the ovary and Fallopian tube in 2021. I recently had a scan because I’m experiencing pain on my gallbladder and have fatty liver during the scan they found a mass on my kidney which they
Hi I’ve posted here before I had precancerous cells on my ovary and Fallopian tube which was removed along with the ovary and Fallopian tube in 2021. I recently had a scan because I’m experiencing pain on my gallbladder and have fatty liver during the scan they found a mass on my kidney which they
PB22
in
My Ovacome
2 years ago
weight gain
I’m wondering if anyone else having had a kidney transplant is dealing with a large amount of weight gain. If so how are you dealing with it?
I’m wondering if anyone else having had a kidney transplant is dealing with a large amount of weight gain. If so how are you dealing with it?
Shepip51
in
Kidney Dialysis
2 years ago
Travel insurance to cover Endometriosis when waiting for surgery
Hi all, I was just wondering if anyone could recommend a travel insurance provider that would cover me for Endometriosis and Hydronephrosis (due to Endometriosis). I am struggling to find anyone to insure me because I am on a waiting list for a laproscopy and i need my kidney stent changing in June.
Hi all, I was just wondering if anyone could recommend a travel insurance provider that would cover me for Endometriosis and Hydronephrosis (due to Endometriosis). I am struggling to find anyone to insure me because I am on a waiting list for a laproscopy and i need my kidney stent changing in June.
Seetheworld
in
Endometriosis UK
2 years ago
High albumin?
What could cause slightly high albumin in blood? Just had some blood tests done and this was the only thing out of range. When I Google it, I only find dehydration as a possible cause. I drink a ton of water so this seems very unlikely to me. My past levels have always been within range. The doctor didn
What could cause slightly high albumin in blood? Just had some blood tests done and this was the only thing out of range. When I Google it, I only find dehydration as a possible cause. I drink a ton of water so this seems very unlikely to me. My past levels have always been within range. The doctor didn
Healthnut22
in
British Liver Trust
2 years ago
Can anyone figure out my MRD
Can anyone figure out what my MRD ( CLL cells per 10,000) is from this report. Component Your Value Standard Range Interpretation Flow cytometric immunophenotyping performed on the peripheral blood shows a small, dim kappa restricted B-cell population (representing ~98% of B cells, 6% of total
Can anyone figure out what my MRD ( CLL cells per 10,000) is from this report. Component Your Value Standard Range Interpretation Flow cytometric immunophenotyping performed on the peripheral blood shows a small, dim kappa restricted B-cell population (representing ~98% of B cells, 6% of total
johnliston
in
CLL Support
2 years ago
UPJ Obstruction
Does anyone have experience with have a UPJ obstruction that is effecting their kidney function? Recently diagnosed with having one. This was discovered after some testing as a result of a low GFR score. It is all very confusing so trying to find someone with a similar experience.
Does anyone have experience with have a UPJ obstruction that is effecting their kidney function? Recently diagnosed with having one. This was discovered after some testing as a result of a low GFR score. It is all very confusing so trying to find someone with a similar experience.
lets_walk
in
Early CKD Support
2 years ago
Wanted: Mega Labs Spreadsheet!
Hi everyone, I have an ok spreadsheet of all my results on the go, but am aware it could be a lot better. I just have thyroid panel and main vits & minerals on it for now, but conscious that I could really do with adding the rest on - full bloods, kidney and liver tests and whatever else comes up sometimes
Hi everyone, I have an ok spreadsheet of all my results on the go, but am aware it could be a lot better. I just have thyroid panel and main vits & minerals on it for now, but conscious that I could really do with adding the rest on - full bloods, kidney and liver tests and whatever else comes up sometimes
Ebx_design
in
Thyroid UK
2 years ago
Thyroid dysfunction and its role in renal problems
This interesting paper links renal problems to thyroid dysfunction. -->
Thyroid Dysfunction and Renal Function: A Crucial Relationship to Recognize
February 2023
Cureus 15(2):e35242 DOI: 10.7759/cureus.35242
Rania Naguib, Eman Elkemary
[b
This interesting paper links renal problems to thyroid dysfunction. -->
Thyroid Dysfunction and Renal Function: A Crucial Relationship to Recognize
February 2023
Cureus 15(2):e35242 DOI: 10.7759/cureus.35242
Rania Naguib, Eman Elkemary
[b
diogenes
in
Thyroid UK
1 year ago
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