Fatigue on Tolvaptan

[aab2489]

Hello all,

I've started taking Tolvaptan (45/15) and I'm experiencing extreme muscle fatigue and brain fog.

Does anyone else experience this? Any recommendations on how to deal with this?

[Susan_101 Moderator PKD Charity for Autosomal]

Hi are you potentially a little dehydrated? Additionally, if you are getting up in the night to wee you maybe suffering from disturbed sleep - which can be exhausting.

There is a very well moderated closed Facebook Group its called Tolvaptan Community you will find members share many personal experiences along with hints and tips.

Best wishes

[aab2489 in reply to Susan_101]

thank you Susan, I’ll check out the Facebook 😊

[RonZone in reply to Susan_101]

Susan, are more PKD folks on the facebook pages than on here. I've only run across a few PKD folks on this site. Seems there should be more on here. I'm just not a facebook person.

[Susan_101 Moderator PKD Charity for Autosomal in reply to RonZone]

Hello, Yes Facebook seems to have the most active PKD online groups in the PKD Community.

I know many people who have a Facebook account only to participate in these groups.

For privacy make sure you join a “closed” group this is private and posts will not be seen by “friends” on Facebook.

[RonZone in reply to Susan_101]

Ok, thanks!