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Appt with infectious disease specialist today: New CMV game plan
I had my first appointment with an infectious disease specialist today. She reviewed all my pre and post transplant data with me. She gathered detailed information about the side effects I’ve been experiencing with Valcyte as well as what had been tried with medication dose changes etc. In addition,
I had my first appointment with an infectious disease specialist today. She reviewed all my pre and post transplant data with me. She gathered detailed information about the side effects I’ve been experiencing with Valcyte as well as what had been tried with medication dose changes etc. In addition,
Jayhawker
in
Kidney Transplant
1 year ago
just diagnosed with CKD stage 3.
hi all I have been on this sight for my husband who had prostate cancer and robotic prostatectomy 4 years ago. Due to very slight rise in PSA they did a Pet scan which showed kidney cancer, what a shock no symptoms at all, apparently until late stages there is no symptoms. Anyway he has had Nephrectomy
hi all I have been on this sight for my husband who had prostate cancer and robotic prostatectomy 4 years ago. Due to very slight rise in PSA they did a Pet scan which showed kidney cancer, what a shock no symptoms at all, apparently until late stages there is no symptoms. Anyway he has had Nephrectomy
Willowdene
in
Early CKD Support
1 year ago
Intestinal cramps
Does anyone have what feels like intestinal cramps? When this happens it feels like my whole abdomen is painful then all of a sudden eases after a bowel movement but is loose when I go. Its a very short lived pain. I do have adhesions attaching colon to uterus so not sure if this is the reason for this
Does anyone have what feels like intestinal cramps? When this happens it feels like my whole abdomen is painful then all of a sudden eases after a bowel movement but is loose when I go. Its a very short lived pain. I do have adhesions attaching colon to uterus so not sure if this is the reason for this
me94
in
Endometriosis UK
1 year ago
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Lupkynis protects kidneys in lupus nephritis patients for up to 3 years
The therapy is an oral medication approved in US, UK, and EU Lupkynis (voclosporin) continues to be safe and to protect kidney function when taken for up to three years by patients with lupus nephritis, a kidney complication of lupus. That’s according to the full results from AURORA 2 (NCT03597464
The therapy is an oral medication approved in US, UK, and EU Lupkynis (voclosporin) continues to be safe and to protect kidney function when taken for up to three years by patients with lupus nephritis, a kidney complication of lupus. That’s according to the full results from AURORA 2 (NCT03597464
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Famous Kidney Transplant People
I am watching Modern Family (rerun and the series is now ended) and remembered that Sarah Hyland, the oldest daughter, Hailey, of Claire and Phil on the show, was transplanted with a
kidney
when she was younger by a
donation
from her father.
I am watching Modern Family (rerun and the series is now ended) and remembered that Sarah Hyland, the oldest daughter, Hailey, of Claire and Phil on the show, was transplanted with a
kidney
when she was younger by a
donation
from her father.
TaffyTwoshoes27
in
Kidney Transplant
1 year ago
Hi potassium levels
CKD since 2021 current GFR is 50 recently diagnosed with hi potassium would like some tastey low potassium convenience foods and dining out tips for upcoming trip. Thanks
CKD since 2021 current GFR is 50 recently diagnosed with hi potassium would like some tastey low potassium convenience foods and dining out tips for upcoming trip. Thanks
pjmcd
in
Early CKD Support
1 year ago
liver dialysis
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
Harriet-sarah
in
British Liver Trust
1 year ago
angry about kidney transplant?
I received a kidney transplant about a year ago. I was donated a live one. However, I was very uncertain about transplant, and feel like I was pushed into having one due to other people’s insistence, amongst other things. As such, I am very resentful and angry. additionally, everyone treats my donor
I received a kidney transplant about a year ago. I was donated a live one. However, I was very uncertain about transplant, and feel like I was pushed into having one due to other people’s insistence, amongst other things. As such, I am very resentful and angry. additionally, everyone treats my donor
Asertfev
in
Kidney Transplant
1 year ago
AF Medications
I have had AF for a few months now, I have also attended A & E four times recently with palpations and chest pains. Each time they have given me either, sometimes both, potassium or magnesium intravenously. I have also had a kidney transplant (4 years ago). They cannot give me any more medication
I have had AF for a few months now, I have also attended A & E four times recently with palpations and chest pains. Each time they have given me either, sometimes both, potassium or magnesium intravenously. I have also had a kidney transplant (4 years ago). They cannot give me any more medication
Mismarswe
in
AF Association
1 year ago
Am I too old for transplant?
Waiting on son to qualify for
donation
of living
kidney
. Since then, I went to my local transplant center last week for evaluation to get on their wait list too, as a back up plan. I finally met their required weight limits.
Waiting on son to qualify for
donation
of living
kidney
. Since then, I went to my local transplant center last week for evaluation to get on their wait list too, as a back up plan. I finally met their required weight limits.
HSV21
in
Kidney Transplant
1 month ago
Scottish Medicines appraisal of voclosporin
Do you live in Scotland? Do you have lupus nephritis or care for someone with lupus nephritis? The Scottish Medicines Consortium (SMC) are currently conducting an appraisal to decide whether voclosporin, a new treatment for lupus nephritis, will be commissioned for use by the NHS in Scotland. LUPUS
Do you live in Scotland? Do you have lupus nephritis or care for someone with lupus nephritis? The Scottish Medicines Consortium (SMC) are currently conducting an appraisal to decide whether voclosporin, a new treatment for lupus nephritis, will be commissioned for use by the NHS in Scotland. LUPUS
Debbie_kinsey
Administrator
in
LUPUS UK
1 year ago
Desensitization for second transplant (cadaver )
Hi all Anyone who has experience with desensitization procedure for carrying out second kidney transplant? I want to know the process and expected results. My crossmatch came positive or weak positive 7 times and I want to consider desensitization procedure now.
Hi all Anyone who has experience with desensitization procedure for carrying out second kidney transplant? I want to know the process and expected results. My crossmatch came positive or weak positive 7 times and I want to consider desensitization procedure now.
ashok5085
in
Kidney Transplant
1 year ago
update
just wanted to let you all know i had my kidney transplant from my live donor (older brother) on June 21st everything’s going okay and my GFR is 101% our hla was a perfect match, they said the only way things could get better is if we were identical twins 🙌🏼
just wanted to let you all know i had my kidney transplant from my live donor (older brother) on June 21st everything’s going okay and my GFR is 101% our hla was a perfect match, they said the only way things could get better is if we were identical twins 🙌🏼
renalrose
in
Kidney Dialysis
1 year ago
bicalutamide and finasteride
I’m on both 50 mg bicalutamide and 5 mg finasteride daily.. no side affects..psa is .4. The program is 6 months on..then off until the psa rises 3 times..then back on the meds..
I’m on both 50 mg bicalutamide and 5 mg finasteride daily.. no side affects..psa is .4. The program is 6 months on..then off until the psa rises 3 times..then back on the meds..
mikeey43
in
Advanced Prostate Cancer
1 year ago
Low kt/v score
Ok time for a 6 month update: So after 6 months of PD dialysis, my kt/v score from my 48 hour urine collection, PD sample, and blood test this week came back as 1.43. This was after they increased my volume to 2300ml per exchange, 4 exchanges a night over 10 hours. So I'm still flunking that test. At
Ok time for a 6 month update: So after 6 months of PD dialysis, my kt/v score from my 48 hour urine collection, PD sample, and blood test this week came back as 1.43. This was after they increased my volume to 2300ml per exchange, 4 exchanges a night over 10 hours. So I'm still flunking that test. At
RonZone
in
Kidney Dialysis
1 year ago
Preemptive Kidney Transplant
I am schedule to have a preemptive transplant in just under a month. Currently I am very tired and sleep a lot. I am nausious all the time. My GFR is at 13 but I have not done any dialyisis. Can anyone share with me tips and tricks you wish you knew going into the surgery and how recovery was? Do
I am schedule to have a preemptive transplant in just under a month. Currently I am very tired and sleep a lot. I am nausious all the time. My GFR is at 13 but I have not done any dialyisis. Can anyone share with me tips and tricks you wish you knew going into the surgery and how recovery was? Do
LRob0223
in
Kidney Transplant
1 year ago
when to start dialysis
My GFR just hit 15 and my nephrologist says I can start PD dialysis as soon as I want and it may improve the way I feel. Seems like a huge decision to make as I dont think I feel that bad but who knows. How did people decide when to start dialysis and do you feel better now that you are doing it.
My GFR just hit 15 and my nephrologist says I can start PD dialysis as soon as I want and it may improve the way I feel. Seems like a huge decision to make as I dont think I feel that bad but who knows. How did people decide when to start dialysis and do you feel better now that you are doing it.
Oceanviewed
in
Kidney Dialysis
1 year ago
Newly diagnosed- fusiform anuersym post kidney transplant
I am 36 and had a kidney transplant almost 1.5 years ago from polycystic kidney disease. I found out about a month ago I have a brain aneurysm. My uncle passed away from a ruptured brain aneurysm. I am not well researched in this, but I am trying to learn as much as I can so I can make wise decisions
I am 36 and had a kidney transplant almost 1.5 years ago from polycystic kidney disease. I found out about a month ago I have a brain aneurysm. My uncle passed away from a ruptured brain aneurysm. I am not well researched in this, but I am trying to learn as much as I can so I can make wise decisions
PKDpostTRANSPLANT
in
Brain Aneurysm Support
1 year ago
UTI,s
Dropped fron 22.5 prednisone to 20 three days ago and started having bad uti consequences. It must just be a consequence. See if Bactrim antibiotics works. Have you ever heard of this happening?
Dropped fron 22.5 prednisone to 20 three days ago and started having bad uti consequences. It must just be a consequence. See if Bactrim antibiotics works. Have you ever heard of this happening?
Seal49
in
PMRGCAuk
1 year ago
The Queen is still gonna shine even in the rain
I think it is easy for me to be positive because I am not on dialysis. I think and hope a kidney donor is around the corner. I don't only hope for myself, but I wish more people would donate. I have to remember when I was healthy donating was not even on my radar and I remember one time one of my friends
I think it is easy for me to be positive because I am not on dialysis. I think and hope a kidney donor is around the corner. I don't only hope for myself, but I wish more people would donate. I have to remember when I was healthy donating was not even on my radar and I remember one time one of my friends
HipHopQueen
in
Kidney Dialysis
1 year ago
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