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Ugh night sweats!
Does any body else get severe night sweats with langerhans cell histiocytosis! Last night I woke up wet thru, as if I had been in a bath! 😩😩also the tiredness I get is unbelievable! 12 hours at night straight thru then another 3 hours in the afternoon! ShTtered!! 😩😩😩
Does any body else get severe night sweats with langerhans cell histiocytosis! Last night I woke up wet thru, as if I had been in a bath! 😩😩also the tiredness I get is unbelievable! 12 hours at night straight thru then another 3 hours in the afternoon! ShTtered!! 😩😩😩
Sandrapez
in
Lung Conditions Community Forum
7 years ago
Is vision adversely affected by PD?
Does anyone feel that they have or had eye problems which were caused or influenced by PD? I am preparing for an appointment with my eye doctor who will seek solutions for my worsening eyesight. Eye problems include tented, wrinkled retinas in both eyes, double vision, left eye magnification,
Does anyone feel that they have or had eye problems which were caused or influenced by PD? I am preparing for an appointment with my eye doctor who will seek solutions for my worsening eyesight. Eye problems include tented, wrinkled retinas in both eyes, double vision, left eye magnification,
ronn
in
Cure Parkinson's
7 years ago
gabapentin good but the weight gains a killer.. or amyl trips in the day as i have them at night and dont have any problems feedback welcome
I had my first spinal fusion in november 2012 anterior approach at my c5 c6 level crushed discs in between squeezing my spinal cord a little .. Operation was a waste of time, i still had the same pains and they was worst in some cases also caused incontinence whothgich i never had before and my balance
I had my first spinal fusion in november 2012 anterior approach at my c5 c6 level crushed discs in between squeezing my spinal cord a little .. Operation was a waste of time, i still had the same pains and they was worst in some cases also caused incontinence whothgich i never had before and my balance
WAGS56
in
Pain Concern
8 years ago
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pain pain go away and dont come back another day ......
Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i
Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i
WAGS56
in
Pain Concern
8 years ago
Dont forget your meds ..
Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i
Hi Peeps, Just thought i would do a run down of my feelings and emotions which range from anxiety to panic attacks ,in early 2012 i was having sensations in both my hands and feet of a burning and tingly sensations which in turn ran up my arms and down my legs,i had been like this for many a month i
WAGS56
in
Anxiety Support
8 years ago
Feeling BEYOND hopeless!!
Hi! My name is Dan, I'm a 39 year old male who suffers from BDD (body dysmorphic disorder), OCD (mainly thoughts and mirror checking), stress and all kinds of anxiety disorders. I was originally diagnosed with BDD, OCD and major depression when I was 16. I noticed I started needing everything to be
Hi! My name is Dan, I'm a 39 year old male who suffers from BDD (body dysmorphic disorder), OCD (mainly thoughts and mirror checking), stress and all kinds of anxiety disorders. I was originally diagnosed with BDD, OCD and major depression when I was 16. I noticed I started needing everything to be
danh228
in
Anxiety and Depression Support
8 years ago
Night Blindness
Is anyone troubled by this? I haven't been able to drive in the dark for a few years now and it's a real pain. I seem to have a problem with Vit A/Beta Carotene as I have Carotenemia. I take a Vit A supplement a couple of times a week but it's no better. Anyone got any ideas please? Thanks :-)
Is anyone troubled by this? I haven't been able to drive in the dark for a few years now and it's a real pain. I seem to have a problem with Vit A/Beta Carotene as I have Carotenemia. I take a Vit A supplement a couple of times a week but it's no better. Anyone got any ideas please? Thanks :-)
infomaniac
in
Thyroid UK
8 years ago
Double Vision
Hi Guys, A few days ago I developed double vision. My right eye was able to look right but did not look left it just froze. This resulted in a visit to A&E as everything I looked at was two. Blood tests, MRI, ECG all came back normal. Within 24 hours my vision was almost back to normal however my right
Hi Guys, A few days ago I developed double vision. My right eye was able to look right but did not look left it just froze. This resulted in a visit to A&E as everything I looked at was two. Blood tests, MRI, ECG all came back normal. Within 24 hours my vision was almost back to normal however my right
Liberton
in
LUPUS UK
8 years ago
Fundraising for "this is Adam campaign"
Adam is a wonderful human being who has had a difficult start to life! through no fault of his own. Like all our children they are very precious to us and Adam survived the odds and was born with quadriplegic cerebral palsy, epilepsy, cortical visual impairment (blind) but to name a few serious chronic
Adam is a wonderful human being who has had a difficult start to life! through no fault of his own. Like all our children they are very precious to us and Adam survived the odds and was born with quadriplegic cerebral palsy, epilepsy, cortical visual impairment (blind) but to name a few serious chronic
Sabberz_Yaqqerz
in
Children With Cerebral Palsy
8 years ago
Glasses for double vision - and who knows what else?
I have rather exciting personal news :) . Some of you will remember that the neuro-optometrist diagnosed me with a visual processing disorder last month. His lenses helped me slightly (better focus, wider focal field, better 3D vision) but he felt a specialist in Scotland could give more help. I'm now
I have rather exciting personal news :) . Some of you will remember that the neuro-optometrist diagnosed me with a visual processing disorder last month. His lenses helped me slightly (better focus, wider focal field, better 3D vision) but he felt a specialist in Scotland could give more help. I'm now
NightBird
in
Headway
8 years ago
Asking for information please......
I am new to this sight so thank you for allowing me to be a part of a Thorn filled journey that I am on since 2009.....Does anyone else suffer from gastroparesis and if so can you please share any information? I have had it for at least 2.5 years now and nothing can be done except a j tube which I refuse
I am new to this sight so thank you for allowing me to be a part of a Thorn filled journey that I am on since 2009.....Does anyone else suffer from gastroparesis and if so can you please share any information? I have had it for at least 2.5 years now and nothing can be done except a j tube which I refuse
Majikshoos
in
SHARE Metastatic Breast Cancer
8 years ago
Rituxan (Rituxamab) - Worth looking into with your doctor to help with APS symptoms (especially headaches)
I was first diagnosed with APS over 8 years ago. The headaches have been my primary complaint the whole time, as I never had them at all before being diagnosed with APS. I've tried everything imaginably possible to relieve the headaches including watching my INR closer (my target is 3.0 to 4.0) and
I was first diagnosed with APS over 8 years ago. The headaches have been my primary complaint the whole time, as I never had them at all before being diagnosed with APS. I've tried everything imaginably possible to relieve the headaches including watching my INR closer (my target is 3.0 to 4.0) and
10yearsandcounting
in
Hughes Syndrome APS Forum
8 years ago
Extreme Penile Pain - Suspecting Pudendal Nerve Entrapment - Seeking Advice and Hope
Hello everyone, My name is David, I'm 24 and I live in LA. About six months or so, I developed a distinct pain at the head/tip of my penis. I was sexually active at the time, so I figured I may have caught an STD or maybe just had UTI. Got tested for multiple STDs and infections by various urologists
Hello everyone, My name is David, I'm 24 and I live in LA. About six months or so, I developed a distinct pain at the head/tip of my penis. I was sexually active at the time, so I figured I may have caught an STD or maybe just had UTI. Got tested for multiple STDs and infections by various urologists
David23
in
Pelvic Pain Support Network
8 years ago
I'm new and am having PLIF Spinal Fusion on 2 levels
i have hypermobility ehlers danlos syndrome (basicially too much collegan). As a result I have various illnesses and severe degenerative disc disease. I have had four failed disectomies over the course of the last six years on L5/S1 and in January I am having a PLIF spinal fusion on L4/5 and L5/S1. Am
i have hypermobility ehlers danlos syndrome (basicially too much collegan). As a result I have various illnesses and severe degenerative disc disease. I have had four failed disectomies over the course of the last six years on L5/S1 and in January I am having a PLIF spinal fusion on L4/5 and L5/S1. Am
23012017
in
Pain Concern
8 years ago
Crunch time!
I have just been diagnosed with degenerative hip problems, lordosis (excessive curvature of the lumbar spine), scoliosis of the lumbar spine, spina bifida occulta (hidden) and I have a 25-50% slip of my 5th lumbar vertebrae. All this is resulting in spinal fusion surgery in the new year which is major
I have just been diagnosed with degenerative hip problems, lordosis (excessive curvature of the lumbar spine), scoliosis of the lumbar spine, spina bifida occulta (hidden) and I have a 25-50% slip of my 5th lumbar vertebrae. All this is resulting in spinal fusion surgery in the new year which is major
Pottypud
in
Weight Loss Support
8 years ago
Si joint
Hi, Can anyone recommend any exercises for this
joint
. Has anyone had a
fusion
, which device was used and what was the consultants name. Ideally I'm looking for recommendations. Prepared to travel the whole of Uk Thanks
Hi, Can anyone recommend any exercises for this
joint
. Has anyone had a
fusion
, which device was used and what was the consultants name. Ideally I'm looking for recommendations. Prepared to travel the whole of Uk Thanks
stokebones
in
Pain Concern
8 years ago
Lithotripsy and Spinal Fusions
My name is Karen and I have a history of kidney stones. The last kidney stone was a 16 mm stone and took two lithotripsy's to break it up. I have also had a lumbar fusion L5 & S1 in 2001 and my latest x-ray showed a post surgical change in the Lumbosacral spine. This was noted from X-rays done between
My name is Karen and I have a history of kidney stones. The last kidney stone was a 16 mm stone and took two lithotripsy's to break it up. I have also had a lumbar fusion L5 & S1 in 2001 and my latest x-ray showed a post surgical change in the Lumbosacral spine. This was noted from X-rays done between
Firejetsgirl
in
Early CKD Support
8 years ago
Ginkgo biloba
I seen this herb chart in my chemist and it said this herb is good for blood flow for raynaud's syndrome, with the cold winter coming in, and being off aza I've noticed my hands getting white again, it's not painful and I don't want to take medication for it because it doesn't bother me that much just
I seen this herb chart in my chemist and it said this herb is good for blood flow for raynaud's syndrome, with the cold winter coming in, and being off aza I've noticed my hands getting white again, it's not painful and I don't want to take medication for it because it doesn't bother me that much just
Jess_doyle
in
LUPUS UK
8 years ago
Joint hypermobility?
My physiotherapist and also a doctor at the Pain Clinic told me in passing that I have JHS. I have often thought I had but my joints aren't mobile, but I have a problems,with dislocation (I have dislocated 14 times), AF, had Ptosis, prolapsed bowel, severe joint pain, scoliosis, fatigue and practically
My physiotherapist and also a doctor at the Pain Clinic told me in passing that I have JHS. I have often thought I had but my joints aren't mobile, but I have a problems,with dislocation (I have dislocated 14 times), AF, had Ptosis, prolapsed bowel, severe joint pain, scoliosis, fatigue and practically
Curkyperkins
in
Ehlers-Danlos Support UK
8 years ago
New appointment for pain management
I had L5/S1 spinal fusion in March 2015. All of last year did not seem too bad, either that or I kept telling myself to give my back time to heal and that it would get better. This year I'm not so sure. I have been having sharp jabs in lower back that at times almost brings me to my knees, mostly
I had L5/S1 spinal fusion in March 2015. All of last year did not seem too bad, either that or I kept telling myself to give my back time to heal and that it would get better. This year I'm not so sure. I have been having sharp jabs in lower back that at times almost brings me to my knees, mostly
rettalee55
in
Australian Pain Management Association
8 years ago
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