Search
Search
About
Log in
Join
Experiences with
Intravenous immunoglobulin (IVIg)
Posts
Communities
519 public posts
Filter results
Would you go for Intralipid or IVIg?
Has anyone experience with immunotherapy, specifically
IVIg
- how many infusions were needed and did you get your NK cells re-tested during your treatment to check they were working? Thank you xx
Has anyone experience with immunotherapy, specifically
IVIg
- how many infusions were needed and did you get your NK cells re-tested during your treatment to check they were working? Thank you xx
Clar-bear
in
Fertility Network UK
3 years ago
Covid antibodies
I am very immunosuppressed, getting
IVIG
infusions every 6 weeks. I had the finger prick test which showe no antibodies then I had the blood draw test Covid IGg spike protein test and I had 4 times the positive rate for the test.
I am very immunosuppressed, getting
IVIG
infusions every 6 weeks. I had the finger prick test which showe no antibodies then I had the blood draw test Covid IGg spike protein test and I had 4 times the positive rate for the test.
LDPCLL
in
Vasculitis UK
3 years ago
Where to get IVIG drip
Hi Can someone please recommend where I can get
IVIG
admistered in the UK or abroad at a reasonable price. The fertility clinic I'm with at the moment are charging £2000 for this! I would greatly appreciate any advice and suggestions. Thank you in advance.
Hi Can someone please recommend where I can get
IVIG
admistered in the UK or abroad at a reasonable price. The fertility clinic I'm with at the moment are charging £2000 for this! I would greatly appreciate any advice and suggestions. Thank you in advance.
weekitty
in
Fertility Network UK
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
The Leukemia & Lymphoma Society’s National Patient Registry COVID-19 vaccination antibody results - published today (Greenberg et al)
40
IVIG
25 Source: The LLS National Patient Registry.
40
IVIG
25 Source: The LLS National Patient Registry.
lankisterguy
Volunteer
in
CLL Support
3 years ago
I have had ITP for 5 months and no medications have helped....Prednisone, Dexamethasone (very temporary) Revolade and Rituximab. IVIG ???
Has anyone here been having
IVIG
infusions on a regular basis (perhaps every three weeks) rather than having a splenectomy?
Has anyone here been having
IVIG
infusions on a regular basis (perhaps every three weeks) rather than having a splenectomy?
Bradyella
in
ITP Support Association
3 years ago
Help with newly diagnosed ITP husband
They started him on steroids and
IVIG
for 3 days and it did nothing but push his platelets up to 4. Still staying in hospital. They then did a bone marrow biopsy. Still waiting for results. On Friday just gone they started him on rituximab and antibiotics for the fever.
They started him on steroids and
IVIG
for 3 days and it did nothing but push his platelets up to 4. Still staying in hospital. They then did a bone marrow biopsy. Still waiting for results. On Friday just gone they started him on rituximab and antibiotics for the fever.
Dominiquegriff
in
ITP Support Association
3 years ago
What next?
I’ve got high NKC but had treatment with an
IVIG
drip before each transfer. I’m also taking folate for MTHFR. The one embryo we have left is a 3bb. Does anyone have any ideas? Should I go straight into transfer number 3 or have a break? I just want to keep going...
I’ve got high NKC but had treatment with an
IVIG
drip before each transfer. I’m also taking folate for MTHFR. The one embryo we have left is a 3bb. Does anyone have any ideas? Should I go straight into transfer number 3 or have a break? I just want to keep going...
Gabriella89
in
Fertility Network UK
3 years ago
IVIG for polymyositis, side effects?
Has anyone suffered scary
IVIG
side effects? I've been having
IVIG
for about 18 months and it was going great, with some side effects but nothing too bad.
Has anyone suffered scary
IVIG
side effects? I've been having
IVIG
for about 18 months and it was going great, with some side effects but nothing too bad.
ClareR12345
in
Myositis UK
3 years ago
Please help........new patient
Have tried Prednisone,
IVIG
, Dexamethasone Revolade and now Rituximab. My platelets have always been 100-137 prior to Dec. I had a very bad bladder infection and platelets dropped to 1 and have not recovered. I have had no episodes of bleeding. Could I have been misdiagnosed?
Have tried Prednisone,
IVIG
, Dexamethasone Revolade and now Rituximab. My platelets have always been 100-137 prior to Dec. I had a very bad bladder infection and platelets dropped to 1 and have not recovered. I have had no episodes of bleeding. Could I have been misdiagnosed?
Bradyella
in
ITP Support Association
3 years ago
Covid antibodies
I am extremly surprised and happy as needing
IVIG
and having had O+V the probability of a positive result was rather low. But does it mean that I am now protected against Covid and can rely on the clearly positive result? Sorry if this topic was already discussed. Best regards Reinhard
I am extremly surprised and happy as needing
IVIG
and having had O+V the probability of a positive result was rather low. But does it mean that I am now protected against Covid and can rely on the clearly positive result? Sorry if this topic was already discussed. Best regards Reinhard
Reinhard
in
CLL Support
3 years ago
IVIG - Joint Pain - Hydrocortisone
I have written before that
IVIG
seems to reduce the join pain that I experience. I have been off
IVIG
for the last 4 months due to the pandemic and have notice an increase in the last months in the pain I experience in the shoulders, arms and legs.
I have written before that
IVIG
seems to reduce the join pain that I experience. I have been off
IVIG
for the last 4 months due to the pandemic and have notice an increase in the last months in the pain I experience in the shoulders, arms and legs.
RobertCLL
in
CLL Support
3 years ago
Need a medical researcher by 5/31 for the ITP study I want done - Eradication of Unidentified Organisms Can Cure Some ITP
Unfortunately, since the "ghost" organism could not be identified through blood or stool, the antibiotic therapy was stopped and the doctors again treated me with the standard ITP therapy of
IVIG
, steroids, thrombopoietin receptor agonist, and monoclonal antibodies.
Unfortunately, since the "ghost" organism could not be identified through blood or stool, the antibiotic therapy was stopped and the doctors again treated me with the standard ITP therapy of
IVIG
, steroids, thrombopoietin receptor agonist, and monoclonal antibodies.
CDmom
in
ITP Support Association
3 years ago
Covid Vaccination and IVIG
I believe the medical recommendation is to leave 2 weeks between the COVID vaccination and
IVIG
infusion. Is that correct?
I believe the medical recommendation is to leave 2 weeks between the COVID vaccination and
IVIG
infusion. Is that correct?
RobertCLL
in
CLL Support
3 years ago
Next steps after failed IVF with NK cell protocol
After finding out about various immune problems and undergoing LIT,
IVIG
and taking an assortment of medication we finally got our little miracle. Our little girl was born in November.
After finding out about various immune problems and undergoing LIT,
IVIG
and taking an assortment of medication we finally got our little miracle. Our little girl was born in November.
Poppyhb
in
Fertility, Miscarriage & IVF Support
3 years ago
Covid and kiddos-what's your strategy?
I'm not in treatment, still riding the wave of one in 2015 but I do get
IVIG
every 6 weeks. If it were just me I could keep on isolating but my heart is breaking for her. What are parents doing?
I'm not in treatment, still riding the wave of one in 2015 but I do get
IVIG
every 6 weeks. If it were just me I could keep on isolating but my heart is breaking for her. What are parents doing?
CoCoLuna11
in
CLL Support
3 years ago
Worsening of immune thrombocytopenia following Covid-19 vaccination
However, 12% had a median platelet count drop of 96% within 2-5 days post-vaccination with new bleeding symptoms; after rescue therapy with corticosteroids +/-
IVIG
, platelets recovered to >30x109 /L a median 3 days later.
However, 12% had a median platelet count drop of 96% within 2-5 days post-vaccination with new bleeding symptoms; after rescue therapy with corticosteroids +/-
IVIG
, platelets recovered to >30x109 /L a median 3 days later.
Jm954
Administrator
in
CLL Support
3 years ago
Retinal thinning anyone? A sign of NPSLE?
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4567399/ I still have marked bilateral nystagmus and she agreed to keep on with the recommendation of neuro dosed
IVIG
. Woo hoo!!!
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4567399/ I still have marked bilateral nystagmus and she agreed to keep on with the recommendation of neuro dosed
IVIG
. Woo hoo!!!
Jmiller623
in
LUPUS UK
3 years ago
Does the haematologist really know what he's talking about?!
Ivig
every 4 weeks. Last November, kidney biopsy. Cryoglobulinemia! So the cryo kicks up symptoms not necessarily related to CLL. Blood test numbers all roughly within perimeters, except immunoglobulin, 1.49! The haem just shrugs his shoulders when I ask cryo questions. And he's not the only one.
Ivig
every 4 weeks. Last November, kidney biopsy. Cryoglobulinemia! So the cryo kicks up symptoms not necessarily related to CLL. Blood test numbers all roughly within perimeters, except immunoglobulin, 1.49! The haem just shrugs his shoulders when I ask cryo questions. And he's not the only one.
happyclappy
in
CLL Support
3 years ago
From a Concerned Father.
She also was diagnosed with Post Herpes NMDAR autoimmune for which
IVIG
treatment was also given (3 weeks since that was given). Currently my daughter is overall ok - eats well, stable and does her daily tasks well.
She also was diagnosed with Post Herpes NMDAR autoimmune for which
IVIG
treatment was also given (3 weeks since that was given). Currently my daughter is overall ok - eats well, stable and does her daily tasks well.
saleembhai69
in
Encephalitis International
3 years ago
ITP after COVID vaccine
Prednisone, platelet transfusion,
IVIG
, dexamethasone and now I'm looking at Rituximab. This almost seems worse than CLL!
Prednisone, platelet transfusion,
IVIG
, dexamethasone and now I'm looking at Rituximab. This almost seems worse than CLL!
DoNorth
in
ITP Support Association
3 years ago
1
...
7
8
9
...
26
Next page
10
20
Filter results
Clear filters
Posted in
All communities
CLL Support
182 results
ITP Support Association
148 results
Fertility Network UK
46 results
View top 10 communities
Sort by
Most Relevant
Newest