Search
Search
About
Log in
Join
Experiences with
Intravenous immunoglobulin (IVIg)
Posts
Communities
519 public posts
Filter results
Chronic ITP
In August 17 my wife get pregnant, doctor stoped elctrombopag as its not safe and start steroide which not worked and plt count is 10000, so doctor given
IvIg
2g/kg in Ist week of Dec 17 but plt count go up only up to 40000 after 2 week count was 20000 and again after 2 week its only 7000.
In August 17 my wife get pregnant, doctor stoped elctrombopag as its not safe and start steroide which not worked and plt count is 10000, so doctor given
IvIg
2g/kg in Ist week of Dec 17 but plt count go up only up to 40000 after 2 week count was 20000 and again after 2 week its only 7000.
jangirdinesh
in
ITP Support Association
7 years ago
Leukeran (Chlorambucil) Rash?
In August, I started a course of monthly treatments with Gazyva and
IVIg
, and then 70mg of Leukeran at 15-day intervals. In November I began itching with each round of Leukeran, and then the itch became a rash. Now I'm covered in what resemble first and second-degree burns from waist to face.
In August, I started a course of monthly treatments with Gazyva and
IVIg
, and then 70mg of Leukeran at 15-day intervals. In November I began itching with each round of Leukeran, and then the itch became a rash. Now I'm covered in what resemble first and second-degree burns from waist to face.
Smedley54
in
CLL Support
7 years ago
Professor Graham Hughes' Blog January 2018
Professor Graham Hughes' Blog January 2018
BLOG : January 2018 January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave
Professor Graham Hughes' Blog January 2018
BLOG : January 2018 January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Professor Graham Hughes' Blog January 2018
[u]BLOG : January 2018[/u]
January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave a lecture to colleagues in Cambridge.
[u]BLOG : January 2018[/u]
January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave a lecture to colleagues in Cambridge.
MaryF
Administrator
in
Hughes Syndrome APS Forum
7 years ago
11 year old son ITP
When he has episodes of bleeding he is treated with
IVIG
. So thats the history....now my issue is that he is misbehaving and having issues in school with behavior...he's anxious...moody...I wonder of its connected. Any advice is helpful.
When he has episodes of bleeding he is treated with
IVIG
. So thats the history....now my issue is that he is misbehaving and having issues in school with behavior...he's anxious...moody...I wonder of its connected. Any advice is helpful.
Bishoprena
in
ITP Support Association
7 years ago
GRand daughter
She's 10 and and it's been 1 year now and every month sometime twice a month she drops to 1000 and 4000 nothing is working and
IVIG
isn't holding he count high enough we are lost on answers
She's 10 and and it's been 1 year now and every month sometime twice a month she drops to 1000 and 4000 nothing is working and
IVIG
isn't holding he count high enough we are lost on answers
Kayla2007
in
ITP Support Association
7 years ago
Can I get IVIG?
Can I request
IVIG
as a quick fix to help me now? I know it’s expensive but hear it’s very effective short term and used a lot in the USA. Or are they likely just to offer me steroids which I don’t want? What if I don’t have Polymyositis and I have IBM?
Can I request
IVIG
as a quick fix to help me now? I know it’s expensive but hear it’s very effective short term and used a lot in the USA. Or are they likely just to offer me steroids which I don’t want? What if I don’t have Polymyositis and I have IBM?
MissFG
in
Myositis UK
7 years ago
Is it safe to just take Promacta 50mg every other day since my platelets are high and I don't have a lower dose.
It is day 45 post my every 2 week
IVIG
and dex pulse since may 2017 when I was diagnosed with ITP and I hope to keep off the
IVIG
! I would like to go down to 25 mg Promacta but do not have that dose. Only 50 and 75mg pills.
It is day 45 post my every 2 week
IVIG
and dex pulse since may 2017 when I was diagnosed with ITP and I hope to keep off the
IVIG
! I would like to go down to 25 mg Promacta but do not have that dose. Only 50 and 75mg pills.
CDmom
in
ITP Support Association
7 years ago
Introductions
After 6 months of that (12 months on steroids) I ask d to start on
IVIG
. This happens this week. I am told it is a tough road for me due to all the added layers of complexity
After 6 months of that (12 months on steroids) I ask d to start on
IVIG
. This happens this week. I am told it is a tough road for me due to all the added layers of complexity
Eliotf
in
Myositis UK
7 years ago
My son
Now he's on
ivig
treatment every 4 months now. Any thoughts would be helpful. If anybody's has questions I will answer to Thank you
Now he's on
ivig
treatment every 4 months now. Any thoughts would be helpful. If anybody's has questions I will answer to Thank you
ScoobyDoo910
in
Early CKD Support
7 years ago
Living with Behcet's Syndrome for 22yrs
Hello every one, I live in the U.S.A. I have a great doctor. I was diagnosed @ 18 yrs old in November 1995. Nobody knew what I had or what to do until I found a new Dr. just being hired by my insurance. His name Dr. Andrew Nguyen. The first thing he did was start me on Remicade infusions on February
Hello every one, I live in the U.S.A. I have a great doctor. I was diagnosed @ 18 yrs old in November 1995. Nobody knew what I had or what to do until I found a new Dr. just being hired by my insurance. His name Dr. Andrew Nguyen. The first thing he did was start me on Remicade infusions on February
FRNSCGRL27
in
Behçet's UK
7 years ago
Coverage for revolade
I’ve had ITP now for 6 months and so far fails on
ivig
and prednesone. I go to see a hematologist finally but only one time because the only one my doctor could get to see me is far to get to. So I was going to ask him if I could try revolade but there are two problems.
I’ve had ITP now for 6 months and so far fails on
ivig
and prednesone. I go to see a hematologist finally but only one time because the only one my doctor could get to see me is far to get to. So I was going to ask him if I could try revolade but there are two problems.
wjoyful
in
ITP Support Association
7 years ago
Myasthenia Gravis
Underwent
IVIG
and 13 months of Plasma Pherfesses(sp). I have been on Cellcept for 22 months. I started a prednisone taper after 18 months at 60mg. In four months I was completely off.
Underwent
IVIG
and 13 months of Plasma Pherfesses(sp). I have been on Cellcept for 22 months. I started a prednisone taper after 18 months at 60mg. In four months I was completely off.
Mgsucks
in
PMRGCAuk
7 years ago
Apparently time for treatment
I want go into all the test, etc but I was getting to the point of not being able to walk across the floor without difficulty breathing and coughing my head off I started having
iVIG
infusions unfortunately the side effects from 2 infusions were to extreme to continue.
I want go into all the test, etc but I was getting to the point of not being able to walk across the floor without difficulty breathing and coughing my head off I started having
iVIG
infusions unfortunately the side effects from 2 infusions were to extreme to continue.
Sallyurnotal
in
CLL Support
7 years ago
CD38 POSITIVE AND ZAP -70 POSITIVE
I also just had (3) days ago the first of 3
ivig
infusions as my IGg is low and because I have been unable to fight off a sinusitis/bronchitis infection that started 7 weeks ago. So far I haven't had any side effects from it. Wishing everyone the best, Dianne
I also just had (3) days ago the first of 3
ivig
infusions as my IGg is low and because I have been unable to fight off a sinusitis/bronchitis infection that started 7 weeks ago. So far I haven't had any side effects from it. Wishing everyone the best, Dianne
Ladydi49
in
CLL Support
7 years ago
i am new here.
Hi everyone, my name is fatah, i have low platelets since 2012 and i get
IVIG
every month 750 ml ,and it goes as low as 19 i was told , if i remove the spleen it will helpful any suggestion thank you.
Hi everyone, my name is fatah, i have low platelets since 2012 and i get
IVIG
every month 750 ml ,and it goes as low as 19 i was told , if i remove the spleen it will helpful any suggestion thank you.
Fatah
in
ITP Support Association
7 years ago
No need to afraid from ITP
My son,13 now was diagnosed with ITP in 2016, since then lots of steroids,so many
IVIG
and lots of costly medication, ...... A long period of trauma, physically, psychologically, mentally. Spent so much but of no use.
My son,13 now was diagnosed with ITP in 2016, since then lots of steroids,so many
IVIG
and lots of costly medication, ...... A long period of trauma, physically, psychologically, mentally. Spent so much but of no use.
Deepayada
in
ITP Support Association
7 years ago
Decreased WBC's
My husband started Imbruvica 5weeks ago , along with Allopurinol and an Infusion once a month of
IVIG
.
My husband started Imbruvica 5weeks ago , along with Allopurinol and an Infusion once a month of
IVIG
.
Chintzy
in
CLL Support
7 years ago
Igg infusions
Had (2)
Ivig
treatments. Exactly 4-5 hours after rapid heartbeat. One week later massive headache, leg aches, lower back (which has been there since that day) kidney ache. Went to oncologist. Dr. tend to brush stuff off like you would have had symptoms right after.
Had (2)
Ivig
treatments. Exactly 4-5 hours after rapid heartbeat. One week later massive headache, leg aches, lower back (which has been there since that day) kidney ache. Went to oncologist. Dr. tend to brush stuff off like you would have had symptoms right after.
kathmich
in
CLL Support
7 years ago
48 year old male just diagnosed with ITP 4 weeks ago
Thursday I was given my first
IVIG
and my count went to 11 and then on the Friday I was transfered to Oldham hospital. Saturday I dropped back down to 3 and so I was given a second
IVIG
on the Saturday. Sunday the count went to 25 and then on the Monday 45 when I was allowed home.
Thursday I was given my first
IVIG
and my count went to 11 and then on the Friday I was transfered to Oldham hospital. Saturday I dropped back down to 3 and so I was given a second
IVIG
on the Saturday. Sunday the count went to 25 and then on the Monday 45 when I was allowed home.
Steve5563
in
ITP Support Association
7 years ago
1
...
16
17
18
...
26
Next page
10
20
Filter results
Clear filters
Posted in
All communities
CLL Support
182 results
ITP Support Association
148 results
Fertility Network UK
46 results
View top 10 communities
Sort by
Most Relevant
Newest