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Experiences with
Intravenous immunoglobulin (IVIg)
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ITP diagnosed in Pregnancy
Second trimester she fell down to 24000 & within a day 14000 where she was given
IVIG
Treatment. Few days later again 8000 again
IVIG
& Prednisone 70Mg. Doctors have told for a weekly visit now, not sure If she would be able to cope up well with this.
Second trimester she fell down to 24000 & within a day 14000 where she was given
IVIG
Treatment. Few days later again 8000 again
IVIG
& Prednisone 70Mg. Doctors have told for a weekly visit now, not sure If she would be able to cope up well with this.
nitindhureja
in
ITP Support Association
6 years ago
Sed rates and IVIG (gammagobulin infusion).
Just wondering if anyone knows if
IVIG
will cause this to happen.
Just wondering if anyone knows if
IVIG
will cause this to happen.
Leeleep
in
PMRGCAuk
6 years ago
No 11q or 17p deletion
I go for my 6th
ivig
and will get tons of blood work and will see my doctor....couple of typos: bother me not bother Mr and, due to not due ti RBC'S are not is hanging in there.
I go for my 6th
ivig
and will get tons of blood work and will see my doctor....couple of typos: bother me not bother Mr and, due to not due ti RBC'S are not is hanging in there.
Ladydi49
in
CLL Support
6 years ago
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croup
He received
IVIG
and within a week his blood platelets were up to the five hundreds. Slowly but surely they will drop down to the 20th and he'd get a treatment again. He's had about four or five treatments of the
IVIG
.
He received
IVIG
and within a week his blood platelets were up to the five hundreds. Slowly but surely they will drop down to the 20th and he'd get a treatment again. He's had about four or five treatments of the
IVIG
.
Jmcleod
in
ITP Support Association
6 years ago
Low plates again
Her platelets were 2 she received treatment (
IVIg
) March 16th. Platelets were going up highest level on March 23 was 179. She had a CBC yesterday April 2nd and level was 45. Does this mean that she has chronic itp? Or can something else be wrong? I’m really hoping for the acute itp.
Her platelets were 2 she received treatment (
IVIg
) March 16th. Platelets were going up highest level on March 23 was 179. She had a CBC yesterday April 2nd and level was 45. Does this mean that she has chronic itp? Or can something else be wrong? I’m really hoping for the acute itp.
Gisellet
in
ITP Support Association
6 years ago
Raised platelet gradually from 21 to 222
He was diagnosed last January 6, 2018 with a count of 21, he was given
ivig
and count was raised to 117. Since then, I gave him a total transition healthy diet and lifestyle.
He was diagnosed last January 6, 2018 with a count of 21, he was given
ivig
and count was raised to 117. Since then, I gave him a total transition healthy diet and lifestyle.
zronquillo
in
ITP Support Association
6 years ago
Cure ITP by homeopathic balancing of the immune system
This went on for 5 months of rollercoaster platelet counts of 1,000 to over a million(after Nplate) Every two weeks I was on
IVIG
and DEX bursts; it was a horrible cycle. I am around 160,000 to 190,000 platelet count for a while now and have had no
IVIG
or dex since 10/17.
This went on for 5 months of rollercoaster platelet counts of 1,000 to over a million(after Nplate) Every two weeks I was on
IVIG
and DEX bursts; it was a horrible cycle. I am around 160,000 to 190,000 platelet count for a while now and have had no
IVIG
or dex since 10/17.
CDmom
in
ITP Support Association
6 years ago
Here I go again
Ivig
didn’t work. It’s like a bad dream I don’t wake up from. 😕
Ivig
didn’t work. It’s like a bad dream I don’t wake up from. 😕
wjoyful
in
ITP Support Association
6 years ago
Don’t stand so close to me!
They loaded me up with a third round of antibiotics and an
IVIG
infusion. So hoping I can finally recover and get back to normal. I think bowing at a safe distance is a much better idea than hand shaking - no? https://media.giphy.com/media/hWjyKDWBopz9K/giphy.gif
They loaded me up with a third round of antibiotics and an
IVIG
infusion. So hoping I can finally recover and get back to normal. I think bowing at a safe distance is a much better idea than hand shaking - no? https://media.giphy.com/media/hWjyKDWBopz9K/giphy.gif
SunnyCA
in
CLL Support
6 years ago
Newly diagnosed and searching for answers.
She tested positive for direct Coombs prior to her first
IVIG
. Her platelets at the time of transport was 15k. After treatment her platelets rose to 42k. Since then she was doing wonderful until this past Sunday when she woke up with a migraine and she slept most of the day and night.
She tested positive for direct Coombs prior to her first
IVIG
. Her platelets at the time of transport was 15k. After treatment her platelets rose to 42k. Since then she was doing wonderful until this past Sunday when she woke up with a migraine and she slept most of the day and night.
amberlbrown2
in
ITP Support Association
6 years ago
Pneumonia Shot
I am still getting monthly
ivig
treatments which I don't know what my level is because they haven't checked yet. I get another one March 15th and another April 19th at which time I will be getting a bunch of blood work done.
I am still getting monthly
ivig
treatments which I don't know what my level is because they haven't checked yet. I get another one March 15th and another April 19th at which time I will be getting a bunch of blood work done.
Ladydi49
in
CLL Support
6 years ago
I.V.I.G. any tips?
Frequent infections following chemo means H.I.V.G likely according to my chest consultant. She is writing to my haematologist who already has results that haemoglobulins are low.. anyone had this? did it make a difference? Any tips? Thanks and a Happy Healthy Easter everyone...
Frequent infections following chemo means H.I.V.G likely according to my chest consultant. She is writing to my haematologist who already has results that haemoglobulins are low.. anyone had this? did it make a difference? Any tips? Thanks and a Happy Healthy Easter everyone...
luckyackerl
in
CLL Support
6 years ago
Falling apart mentally & physically, hate this disease, no energy..can't do the things I use to do
Abdominal CT scan results in, Lump on the left side of my abdomen, total meltdown crying uncontrollably yesterday during 4th
ivig
infusion, Mycobacterium Avium complex lung bases...going to pulmonologist tomorrow...spleen 11.9 centimeters by 17.3 centimeters.
Abdominal CT scan results in, Lump on the left side of my abdomen, total meltdown crying uncontrollably yesterday during 4th
ivig
infusion, Mycobacterium Avium complex lung bases...going to pulmonologist tomorrow...spleen 11.9 centimeters by 17.3 centimeters.
Ladydi49
in
CLL Support
7 years ago
immune deficiency
IVIG
has been suggested by immunologist, but I am not convinced this is the best decision as it is a life long commitment. Anyone have a similar experience?
IVIG
has been suggested by immunologist, but I am not convinced this is the best decision as it is a life long commitment. Anyone have a similar experience?
jack23
in
Non Hodgkin's Lymphoma Friends
7 years ago
IVIG Therapy
My doctor wants me to do
IVIG
. My family and friends support this since I have been so sick. Reading the potential side effects of this treatment are rather scary! Anyone else had this treatment? Any words of wisdom? Thanks for your help!
My doctor wants me to do
IVIG
. My family and friends support this since I have been so sick. Reading the potential side effects of this treatment are rather scary! Anyone else had this treatment? Any words of wisdom? Thanks for your help!
ckblack
in
CLL Support
7 years ago
Annual Patient Conference videos (USA)
There is much good info in there but you have to remember they all seem to LOVE
IVIG
as a first line treatment and I know MY Dr. said no, it's too expensive and too short term. There are good ones on diet and exercise as on the YouTube channel there are others from past conferences as well.
There is much good info in there but you have to remember they all seem to LOVE
IVIG
as a first line treatment and I know MY Dr. said no, it's too expensive and too short term. There are good ones on diet and exercise as on the YouTube channel there are others from past conferences as well.
MAuk
in
Myositis UK
7 years ago
Sinusitis and bronchitis and cough that won't go away
I just finished 3
ivig
infusions and have 3 more schedule due to my IGg being low. The cough is mostly tight and congested and other times I can move it but it takes several minutes of really hard coughing that has my chest and abdomen hurting.
I just finished 3
ivig
infusions and have 3 more schedule due to my IGg being low. The cough is mostly tight and congested and other times I can move it but it takes several minutes of really hard coughing that has my chest and abdomen hurting.
Ladydi49
in
CLL Support
7 years ago
Going Crazy!
Was admitted into All Childrens hospital and given 2
IVIG
treatments that brought numbers up to 35....that was great! But has now dropped to 1 and has been holding at 1 for 3 weeks now. Put on a 4 day dose of steroids that did absolutely nothing for her.
Was admitted into All Childrens hospital and given 2
IVIG
treatments that brought numbers up to 35....that was great! But has now dropped to 1 and has been holding at 1 for 3 weeks now. Put on a 4 day dose of steroids that did absolutely nothing for her.
Chickensmom
in
ITP Support Association
7 years ago
Toddler - acute? Chronic? Slow progress
Ivig
x2 was not successful and we have been on a steroid for about 5 weeks now. Took awhile but saw a jump from 1k to 15k then slow until we made it to 30k. Saw a very small drop when weaning back on his steroid and then a big jump up to 60k.
Ivig
x2 was not successful and we have been on a steroid for about 5 weeks now. Took awhile but saw a jump from 1k to 15k then slow until we made it to 30k. Saw a very small drop when weaning back on his steroid and then a big jump up to 60k.
Zzbb
in
ITP Support Association
7 years ago
IVIG
Hi all I recently had my second of 3
ivig
infusions as I have had sinusitis and bronchitis for almost 3 months. Currently I'm finally feeling better and no side effects.
Hi all I recently had my second of 3
ivig
infusions as I have had sinusitis and bronchitis for almost 3 months. Currently I'm finally feeling better and no side effects.
Ladydi49
in
CLL Support
7 years ago
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