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Lung Transplant Assessment Waiting times
Would anyone like to share their experience of waiting for Lung Transplant assessment, we are waiting for the 3 days of assessment and wondering on average how long we should be waiting and if we should check with people ....
Would anyone like to share their experience of waiting for Lung Transplant assessment, we are waiting for the 3 days of assessment and wondering on average how long we should be waiting and if we should check with people ....
Queenbean
in
Lung Conditions Community Forum
6 years ago
Liver transplant assessment.
My husband has been referred to St.James in Leeds for an assessment, does anyone know what we should expect? Thanks.
My husband has been referred to St.James in Leeds for an assessment, does anyone know what we should expect? Thanks.
Hidden
in
British Liver Trust
6 years ago
Is it normal???? 🤔
OK so I'm coming up to my 2 year lungaversary! I had a single lung transplant and my other lung completely removed. I am suffering extreme pain in both sides today to the point it has brought tears to my eyes. I want to know if this sort of pain is normal so long after a transplant?
OK so I'm coming up to my 2 year lungaversary! I had a single lung transplant and my other lung completely removed. I am suffering extreme pain in both sides today to the point it has brought tears to my eyes. I want to know if this sort of pain is normal so long after a transplant?
Hidden
in
Lung Conditions Community Forum
6 years ago
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Lung Transplant outcomes differences between Transplant Centers
Hello I would like to ask if when being referred for transplant did the respiratory consultant offer a choice in the transplant center. The reason I ask is there appear to be large differences in transplant outcomes particularly 5 and 10 year survival rates between centers. I was researching on the NHS
Hello I would like to ask if when being referred for transplant did the respiratory consultant offer a choice in the transplant center. The reason I ask is there appear to be large differences in transplant outcomes particularly 5 and 10 year survival rates between centers. I was researching on the NHS
Queenbean
in
Lung Conditions Community Forum
6 years ago
Pain, pain go away!
I'm in pain already from going to "school" i called the clinic where I go to for my treatment. I go to dialysis 3 times a week for 3-4 hours or so. Then I had a pneumonia shot making it even worse. I'm in so much pain both arms. Sometimes I'm thinking how long I could still hold on this challenging trials
I'm in pain already from going to "school" i called the clinic where I go to for my treatment. I go to dialysis 3 times a week for 3-4 hours or so. Then I had a pneumonia shot making it even worse. I'm in so much pain both arms. Sometimes I'm thinking how long I could still hold on this challenging trials
Hopeful_kidney
in
Pain Concern
6 years ago
The food supplement that ruined my liver'
Jim McCants took green tea capsules in a drive to get healthy in middle age. His doctors now say they left him needing an urgent liver transplant, writes the BBC's Tristan Quinn. https://www.bbc.com/news/amp/stories-45971416
Jim McCants took green tea capsules in a drive to get healthy in middle age. His doctors now say they left him needing an urgent liver transplant, writes the BBC's Tristan Quinn. https://www.bbc.com/news/amp/stories-45971416
Farooqji
in
Cure Parkinson's
6 years ago
Support for a Type 1 Diabetic - multiple issues
Trying to understand more to support my brother. He is a 51 yo Type 1 diabetic since 21. He is on home dialysis. Still is in process of getting on a list - he has amputations of toes whereby wounds are not healing well. He experiences severe afib. Low protein count is issue as well. Anyone experience
Trying to understand more to support my brother. He is a 51 yo Type 1 diabetic since 21. He is on home dialysis. Still is in process of getting on a list - he has amputations of toes whereby wounds are not healing well. He experiences severe afib. Low protein count is issue as well. Anyone experience
MyBrother
in
Kidney Dialysis
6 years ago
I'm getting there!
The district nurse called today to change my dressings .I'm just over 2 months post liver transplant now and my op wounds have been stubborn to heal. There has only been a tiny amount of bleeding under the dressings this time so I'm nearly there. I'm hoping that when she comes again on Friday that I
The district nurse called today to change my dressings .I'm just over 2 months post liver transplant now and my op wounds have been stubborn to heal. There has only been a tiny amount of bleeding under the dressings this time so I'm nearly there. I'm hoping that when she comes again on Friday that I
alfredthegreat
in
British Liver Trust
6 years ago
This is a repost from an anonymous patient on another liver ailment forum. Never heard of getting my MELD score.
Hi all, read the post below from an anonymous patient on another forum. I've never heard of a MELD score. Anyone else had one done? Should I be asking my GI about this?? Thanks, Stella (Fatty liver is a normal part of aging. High triglycerides, alcohol use, medications - all of this adds up over time
Hi all, read the post below from an anonymous patient on another forum. I've never heard of a MELD score. Anyone else had one done? Should I be asking my GI about this?? Thanks, Stella (Fatty liver is a normal part of aging. High triglycerides, alcohol use, medications - all of this adds up over time
Ktltel
in
PBC Foundation
6 years ago
Liver disease
Fatty liver is a normal part of aging. High triglycerides, alcohol use, medications - all of this adds up over time to affect the liver. After a trip to ER and admitted for pancreatitis, I learned about my liver. Ignorance and "normal lab results" combined to leave me shocked to find stage 4 liver fibrosis
Fatty liver is a normal part of aging. High triglycerides, alcohol use, medications - all of this adds up over time to affect the liver. After a trip to ER and admitted for pancreatitis, I learned about my liver. Ignorance and "normal lab results" combined to leave me shocked to find stage 4 liver fibrosis
Chealth
in
British Liver Trust
6 years ago
Itching after transplant
My husband had a kidney transplant in June. He struggles with itching. Any ideas for how to get relief, it keeps him up at night.
My husband had a kidney transplant in June. He struggles with itching. Any ideas for how to get relief, it keeps him up at night.
livinginiowa
in
Kidney Transplant
6 years ago
HEALING FOR SICKLE CELL DISEASE
Our hospital heals and eliminat all chronic Sickle Cell Disease in 3 to 4 weeks with no threat, surgery or bone marrow transplants involved. We adopt the most simple, safe, fast and successful genius method to heal all SCD. Find us in google: Supreme Sickle Cell Hospital Nigeria
Our hospital heals and eliminat all chronic Sickle Cell Disease in 3 to 4 weeks with no threat, surgery or bone marrow transplants involved. We adopt the most simple, safe, fast and successful genius method to heal all SCD. Find us in google: Supreme Sickle Cell Hospital Nigeria
sepremesicklecell
in
Sickle Cell Society
6 years ago
Grateful for any advice on taking a Vit B Complex plus a good mumtivitamin
I’m currently taking Thorne Basic B Complex but also after advice on here looking for a decent A-Z multivitamin. If anyone versed in this has a moment to take a look at the multivitamin and advise if ok to take with the B Comolex. Thank you lovely people in advance 😊 Ok it won’t let me load the pics
I’m currently taking Thorne Basic B Complex but also after advice on here looking for a decent A-Z multivitamin. If anyone versed in this has a moment to take a look at the multivitamin and advise if ok to take with the B Comolex. Thank you lovely people in advance 😊 Ok it won’t let me load the pics
Mandymoos8
in
Pernicious Anaemia Society
6 years ago
Fibroscan
Once you had your fibroscan, how long did it take to get the ball rolling after that? I guess it depends on the result but say for example if it was a very high score, would you then be put in for liver transplant assessment?
Once you had your fibroscan, how long did it take to get the ball rolling after that? I guess it depends on the result but say for example if it was a very high score, would you then be put in for liver transplant assessment?
ktan49
in
British Liver Trust
6 years ago
Flu vaccine shortage
I was booked to have my flu jab at my GP this week but the appointment was cancelled due to shortage of vaccine. Despite being 'vulnerable' as I have Lupus and renal transplant this made no difference. The appointment has been re-booked towards the end of November, but there's no guarantee. I have
I was booked to have my flu jab at my GP this week but the appointment was cancelled due to shortage of vaccine. Despite being 'vulnerable' as I have Lupus and renal transplant this made no difference. The appointment has been re-booked towards the end of November, but there's no guarantee. I have
Kate-L
in
LUPUS UK
6 years ago
Flu jab & getting ready for winter
Went to the GP to get my flu jab earlier which I'm hoping will keep me protected over the winter. I've also been put back on doxycycline to give me a base level protection now that the sun is on the wane. Not overly pleased by this as I hate the hot flushes and burning feeling I get when I take the tablets
Went to the GP to get my flu jab earlier which I'm hoping will keep me protected over the winter. I've also been put back on doxycycline to give me a base level protection now that the sun is on the wane. Not overly pleased by this as I hate the hot flushes and burning feeling I get when I take the tablets
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
6 years ago
MF transplant update - discharged from BMT unit and back home
Hi All, delighted to report that I am back home from my local BMT unit and will now be treated as an outpatient. Still along way to go. A bit of background... I was diagnosed with primary myelofibrosis, JAK2 V617F, normal cytogenetics, at age 35. Health declined this year and decided to go for an early
Hi All, delighted to report that I am back home from my local BMT unit and will now be treated as an outpatient. Still along way to go. A bit of background... I was diagnosed with primary myelofibrosis, JAK2 V617F, normal cytogenetics, at age 35. Health declined this year and decided to go for an early
Simon96
in
MPN Voice
6 years ago
Excited to have found support!
Hello...I am the mom of a 30 yr. old son in need of a kidney transplant. It is so hard to see him go thru dialysis among everything else he has had to go thru. He is strong and handling it better than I am. I know it's not about me, but would love to hear from other parents who have children or young
Hello...I am the mom of a 30 yr. old son in need of a kidney transplant. It is so hard to see him go thru dialysis among everything else he has had to go thru. He is strong and handling it better than I am. I know it's not about me, but would love to hear from other parents who have children or young
Luckysmom
in
Kidney Transplant Patient Support
6 years ago
One year on
Yesterday was a special anniversary for me, my first Liversary. I spend the morning with Sandy at the Scottish Liver Transplant Unit, having a regular check up, but also saying a big Thank You to the team. I couldn't say thank you to my donor, go wrote the following "A year ago, I got a gift, a
Yesterday was a special anniversary for me, my first Liversary. I spend the morning with Sandy at the Scottish Liver Transplant Unit, having a regular check up, but also saying a big Thank You to the team. I couldn't say thank you to my donor, go wrote the following "A year ago, I got a gift, a
George_2017
in
British Liver Trust
6 years ago
Hi I'm New
Hi everyone, I've been diagnosed with Alpha-1. Anti trypsim deficiency which has lead to me having Emphysema/COPD Gold stage 4 MRC breathless score 4 my FEV1 is 0.48, 20% predicted. I was a smoker but I've now stopped 8 months ago. My consultant was going to put me forward for a lung transplant but
Hi everyone, I've been diagnosed with Alpha-1. Anti trypsim deficiency which has lead to me having Emphysema/COPD Gold stage 4 MRC breathless score 4 my FEV1 is 0.48, 20% predicted. I was a smoker but I've now stopped 8 months ago. My consultant was going to put me forward for a lung transplant but
Diddy2017
in
Lung Conditions Community Forum
6 years ago
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