Excited to have found support!

[Luckysmom]

Hello...I am the mom of a 30 yr. old son in need of a kidney transplant. It is so hard to see him go thru dialysis among everything else he has had to go thru. He is strong and handling it better than I am. I know it's not about me, but would love to hear from other parents who have children or young adults going thru this. I have been looking for a support group for a long time. Thank you

[Charlene_Coxhead]

Hi luckysmom

I'm guessing from the way you spell mom you live in America as her in the UK we spell it mum.

Welcome to the group and I hope you find the support you need. I'm in my 30s myself and was born with my kidney condition however I only found out when I was 21. I'm in end stage renal failure myself and I see the hurt and see the worry in my parents eyes especially when I'm going through I bad time. My mum and dad tried to be my love donor but dad was a match and a good one but his renal function wasn't good enough we even had a date booked for surgery Feb 2018 and two weeks before the day they sad no. Mum wasn't a match but was going to do the paired exchange but only one of her kidneys is working she has good renal function but mainly from the left. So for them they feel they have let me down but this is not true and it was a massive thing them being tested.

It's hard being a mom seeing the child in pain and suffering but us CKD patients are made of strong stuff.

Do you feel helpless thst you can't protect him as this is what my mum says to me. She gets angry because I've spent 18 years knowing about this disease.

How long have you know about your sons condition? Have you considered being a live do or or at least being tested. How is your son on a day to day basis? I'm guessing he's just getting on with it and dealing with everything in his stride, which is probably even harder for you to see. Your son is made of strong stuff.

I hope you get the support you are looking for.

If you ever need a chat then you've come to the right place

Charlene x

[Skevi]

Hello!im a mum of a 19 years old girl who is just 5 months post transplant! She was on peritonial dialisis for nearly two years! Trasplant is hard but definitely worth it!! I hope you come close of that date and start a new life.... ( her father gave her a kidney) ❤️🙏🏻