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Not sure how to feel!
15 months ago I was rejected by Papworth for a lung transplant as they said my oesophagus was too damaged and I wouldn’t survive the operation!!! Obviously, this initially felt like a death sentence as I felt that was it. Although the thought of going through a lung transplant scares the **** out of
15 months ago I was rejected by Papworth for a lung transplant as they said my oesophagus was too damaged and I wouldn’t survive the operation!!! Obviously, this initially felt like a death sentence as I felt that was it. Although the thought of going through a lung transplant scares the **** out of
Lynnelovessunshine
in
Lung Conditions Community Forum
6 years ago
Hi I have such a heavy stone on my chest
Hi guys feeling down right now my liver tests were stable most of The year ggt in The 150-230 range i had a biopsy with mild liver fibrosis detected last year and now my ggt keep on rising it's now about 293 they say 300 is very high ggt gpt is about118 doctor seemed worried next test in 3 weeks said
Hi guys feeling down right now my liver tests were stable most of The year ggt in The 150-230 range i had a biopsy with mild liver fibrosis detected last year and now my ggt keep on rising it's now about 293 they say 300 is very high ggt gpt is about118 doctor seemed worried next test in 3 weeks said
Febeli57
in
British Liver Trust
6 years ago
Finished Hidden C medication 👍🏻
Well after 25 days of hard going antibiotics hubby and I have now finished our course. Some days they really knocked us both sick for a few hours and gave a few bad griping pains but all done now. Weirdly hubbys had his bloods done today as part of his ongoing liver issues and they were better than the
Well after 25 days of hard going antibiotics hubby and I have now finished our course. Some days they really knocked us both sick for a few hours and gave a few bad griping pains but all done now. Weirdly hubbys had his bloods done today as part of his ongoing liver issues and they were better than the
baby2016
in
Fertility Network UK
6 years ago
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Managing Chronic Lymphocytic Leukemia and Its Complications Part I Thursday, November 8, 2018
Dear Friends, CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshop Series, Life with Chronic Lymphocytic Leukemia (CLL), on Thursdays, November 8 and 29. These one-hour telephone and webcast workshops are a cost-free way to learn about cancer-related issues from
Dear Friends, CancerCare welcomes you to participate in our upcoming CancerCare Connect® Education Workshop Series, Life with Chronic Lymphocytic Leukemia (CLL), on Thursdays, November 8 and 29. These one-hour telephone and webcast workshops are a cost-free way to learn about cancer-related issues from
lankisterguy
Volunteer
in
CLL Support
6 years ago
2 NEW BREAKTHROUGHS
Wow! Wow! Wow! Sunny, these are amazing articles! The human body's amazing ability to heal, in collaboration with the ingenuity of scientists and researchers, is so exciting. You are proof of that, Sunny! You look amazing! Reach for the stars, Bev On Thu, Oct 11, 2018 at 8:17 PM Sunny <medsurgrnurse
Wow! Wow! Wow! Sunny, these are amazing articles! The human body's amazing ability to heal, in collaboration with the ingenuity of scientists and researchers, is so exciting. You are proof of that, Sunny! You look amazing! Reach for the stars, Bev On Thu, Oct 11, 2018 at 8:17 PM Sunny <medsurgrnurse
SunnyXXOO
in
PBC Foundation
6 years ago
6 and a half weeks post op
Hi everyone, I'm 6.5 weeks post liver transplant and still bleeding from op wounds. one small area being packed with a healing sterile gauze. Has anyone else experienced this problem? I am eating plenty of protein and drinking a protein drink to aid healing, also eating a very healthy diet with far more
Hi everyone, I'm 6.5 weeks post liver transplant and still bleeding from op wounds. one small area being packed with a healing sterile gauze. Has anyone else experienced this problem? I am eating plenty of protein and drinking a protein drink to aid healing, also eating a very healthy diet with far more
alfredthegreat
in
British Liver Trust
6 years ago
HIGH GGT AND ALP
my moms blood results for her ggt is 1109 and alp1 959 anybody had these high results she had her 2nd liver transplant in mar 18 and her 1st in Aug 17 Thanks
my moms blood results for her ggt is 1109 and alp1 959 anybody had these high results she had her 2nd liver transplant in mar 18 and her 1st in Aug 17 Thanks
Tracey2973
in
British Liver Trust
6 years ago
Introduction!
Hello! I'm a three time kidney transplant recipient. I was hospitalized and diagnosed with ESRD as an otherwise healthy 21 year old (no known cause). I I was on dialysis (hemodialysis and peritoneal dialysis) briefly before my first transplant four months later. Four months after that, my transplanted
Hello! I'm a three time kidney transplant recipient. I was hospitalized and diagnosed with ESRD as an otherwise healthy 21 year old (no known cause). I I was on dialysis (hemodialysis and peritoneal dialysis) briefly before my first transplant four months later. Four months after that, my transplanted
kevinlally
in
Kidney Transplant
6 years ago
Been there done that!
Hi my name is Dave I had a kidney transplant 5 months ago I feel I need to talk about my exspearance!i was on dialyses for 7 years and the last 4 I had more appointments than you could shake a stick at! Now I had my transplant 5 months ago there’s no more dialyses no more appointments! It’s amazing but
Hi my name is Dave I had a kidney transplant 5 months ago I feel I need to talk about my exspearance!i was on dialyses for 7 years and the last 4 I had more appointments than you could shake a stick at! Now I had my transplant 5 months ago there’s no more dialyses no more appointments! It’s amazing but
Gotthecall_123
in
Kidney Dialysis
6 years ago
Disclosing CKD
Hi everyone, I need some advice. I don’t know if I should disclose my medical condition to my employer. I was recently diagnosed with with CKD. I found out in June I had CKD. I only confided in one colleague. After my biopsy I found out I have Stage IV CKD, just last week. It is caused by IGA Nephropathy
Hi everyone, I need some advice. I don’t know if I should disclose my medical condition to my employer. I was recently diagnosed with with CKD. I found out in June I had CKD. I only confided in one colleague. After my biopsy I found out I have Stage IV CKD, just last week. It is caused by IGA Nephropathy
Socky
in
Early CKD Support
6 years ago
Pathos Report from Transurethral Urinary Bladder Tumor Resection
Finishing the surgery, my urologist thought the bladder tumors were entirely superficial and it shouldn’t affect my status for getting a lung transplant (the parameters are cancer free, smoke free for at least two years). Turns out some were low grade, but some were high grade (actively growing). Very
Finishing the surgery, my urologist thought the bladder tumors were entirely superficial and it shouldn’t affect my status for getting a lung transplant (the parameters are cancer free, smoke free for at least two years). Turns out some were low grade, but some were high grade (actively growing). Very
Sharp5Flat13
in
Lung Conditions Community Forum
6 years ago
17w1d
Hello, I’m 17 weeks and 1 day pregnant with our first, last week we got told baby has very low amniotic fluid, not sure how it’s low I have no been leaking, I have drank 4-5 leters of water a day, i now started drinking coconut water in hopes that next week the fluid will re gain a bit . Has anyone had
Hello, I’m 17 weeks and 1 day pregnant with our first, last week we got told baby has very low amniotic fluid, not sure how it’s low I have no been leaking, I have drank 4-5 leters of water a day, i now started drinking coconut water in hopes that next week the fluid will re gain a bit . Has anyone had
Miraclebabe
in
Pregnancy and Parenting Support
6 years ago
Double lung transplant patients advice
Hi looking for any advice on a double lung transplant my neice needs in the near future from people that have had this operation please
Hi looking for any advice on a double lung transplant my neice needs in the near future from people that have had this operation please
Concernedunc
in
Lung Conditions Community Forum
6 years ago
sickle cell news - oct-deec 2018 edition
1.Sickle Cell Trait (SCT): the good, the bad, the deadly 2.SCT not always advantageous or benign 3.SCT: Ugandan SCD activist Ssebandeke Ashiraf has SCT, but it behaves much like SCD 4.SCT: former NFL player James Clarke Ryan nearly nearly knocked out by Sickle Cell Trait, turns activist impatient
1.Sickle Cell Trait (SCT): the good, the bad, the deadly 2.SCT not always advantageous or benign 3.SCT: Ugandan SCD activist Ssebandeke Ashiraf has SCT, but it behaves much like SCD 4.SCT: former NFL player James Clarke Ryan nearly nearly knocked out by Sickle Cell Trait, turns activist impatient
sicklecellnews
in
Sickle Cell Society
6 years ago
Transplant
Can a liver and kidney transplant patient use hymilayn salt on foods?
Can a liver and kidney transplant patient use hymilayn salt on foods?
SexMachine
in
Kidney Disease
6 years ago
So what does a liver transplant scar look like?
Just wondering??
Just wondering??
Brett11
in
British Liver Trust
6 years ago
My story
Hi all. I am including the link to the story that the National Kidney Foundation wrote about "my kidney journey." https://www.kidney.org/newsletter/woman-waiting-kidney-shares-her-story-and-helps-others-process A Woman Waiting for a Kidney Shares Her Story and Helps Others in the Process
Hi all. I am including the link to the story that the National Kidney Foundation wrote about "my kidney journey." https://www.kidney.org/newsletter/woman-waiting-kidney-shares-her-story-and-helps-others-process A Woman Waiting for a Kidney Shares Her Story and Helps Others in the Process
WYOAnne
NKF Ambassador
in
Kidney Transplant
6 years ago
Prescription exemption
I fully appreciate the concerns and myself have a question my husband is on the heart lung transplant list he also has suspected cancer mark on face but apparently doesn't cover prescription exemption but never the less as transplant patient who also has blood clots he's not got a lot going in way if
I fully appreciate the concerns and myself have a question my husband is on the heart lung transplant list he also has suspected cancer mark on face but apparently doesn't cover prescription exemption but never the less as transplant patient who also has blood clots he's not got a lot going in way if
CAZBERRY59
in
Thyroid UK
6 years ago
TIPS offered as alternative to transplant
After waiting over 9 months for Liver Transplant assessment I'm offered a TIPS by the transplant team. They say they are not ruling out transplant in the future but that a TIPS can improve my quality of life (Acities fills me up every week and I have a drain once a month) but Ive yet to find out the
After waiting over 9 months for Liver Transplant assessment I'm offered a TIPS by the transplant team. They say they are not ruling out transplant in the future but that a TIPS can improve my quality of life (Acities fills me up every week and I have a drain once a month) but Ive yet to find out the
hawksey
in
British Liver Trust
6 years ago
Surgery May Send Me to the Back of the Queue.
The Transurethral Urinary Bladder Tumor Resection I had last Wednesday may impede my standing for a lung transplant. The pulmonologist upon learning of this diagnosis said in order to be on the donor waiting list, you have to be cancer free for at least two years. However, the urologist said the tumors
The Transurethral Urinary Bladder Tumor Resection I had last Wednesday may impede my standing for a lung transplant. The pulmonologist upon learning of this diagnosis said in order to be on the donor waiting list, you have to be cancer free for at least two years. However, the urologist said the tumors
Sharp5Flat13
in
Lung Conditions Community Forum
6 years ago
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