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My uncle got a double lung transplant September 11, 2020. He is currently in ICU. He had to have 2 emergency surgeries due to one of the lungs not working properly. He was put on an ECMO machine and ventilator. 2 days later they put him on dyalisis. I've been visiting him daily. It's so hard to see him
My uncle got a double lung transplant September 11, 2020. He is currently in ICU. He had to have 2 emergency surgeries due to one of the lungs not working properly. He was put on an ECMO machine and ventilator. 2 days later they put him on dyalisis. I've been visiting him daily. It's so hard to see him
DeisyD
in
ICUsteps
4 years ago
Meet the Liver Transplant Team
Hi, we have just got back from a face to face at Queens Medical Centre. They agree that Kevin needs a transplant and they are going to do everything they can to that end. However the cardio gram that was done isn’t any good so they are arranging and MRI as they need to know that his heart is strong
Hi, we have just got back from a face to face at Queens Medical Centre. They agree that Kevin needs a transplant and they are going to do everything they can to that end. However the cardio gram that was done isn’t any good so they are arranging and MRI as they need to know that his heart is strong
Bs1524
in
British Liver Trust
4 years ago
NKF Virtual Patient Event: Everything You Need to Know About Insurance
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for a free webinar
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for a free webinar
KristiS_NKF
Administrator
in
Parents of Children with Kidney Disease
4 years ago
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NKF Virtual Patient Event: Everything You Need to Know About Insurance
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for
KristiS_NKF
Administrator
in
Kidney Transplant
4 years ago
NKF Virtual Patient Event: Everything You Need to Know About Insurance
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for a free webinar
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for a free webinar
KristiS_NKF
Administrator
in
Kidney Disease
4 years ago
NKF Virtual Patient Event: Everything You Need to Know About Insurance
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for a free webinar
Are you looking for more information about insurance options for people with kidney disease? Are you enrolled in Medicare (or looking to enroll soon) and want to learn more about your options? Have you seen information about Medicare Advantage Plans and want to learn more? Join us for a free webinar
KristiS_NKF
Administrator
in
Kidney Dialysis
4 years ago
WEIGHT LOSS
I want to loose belly fat I am 3 yrs post kidney transplant.. Due to Covid I can't go outside, never went to gym. Please guide me what to do.
I want to loose belly fat I am 3 yrs post kidney transplant.. Due to Covid I can't go outside, never went to gym. Please guide me what to do.
neet24
in
Kidney Transplant
4 years ago
Chicagoland Kidney Disease Dinner?
Hello all! And especially Chicagoland friends! I recently had a transplant about 3 months ago and I am adjusting to my new life and I would love to meet and make friends with more kidney transplant people as well as people that have yet to complete that part of the journey. I know there are local support
Hello all! And especially Chicagoland friends! I recently had a transplant about 3 months ago and I am adjusting to my new life and I would love to meet and make friends with more kidney transplant people as well as people that have yet to complete that part of the journey. I know there are local support
trvlgirl28
in
Kidney Transplant
4 years ago
Study finds lung transplant patients not given antifungal preventive drugs have higher risk of death.
Antifungal preventive medications reduce mortality risk by half in the first year following lung transplantation, according to Mayo Clinic research involving 667 patients who received lung transplants from 2005 to 2018. The retrospective study, published in the Annals of the American Thoracic Society
Antifungal preventive medications reduce mortality risk by half in the first year following lung transplantation, according to Mayo Clinic research involving 667 patients who received lung transplants from 2005 to 2018. The retrospective study, published in the Annals of the American Thoracic Society
2greys
in
Lung Conditions Community Forum
4 years ago
PBC and progression
With having PBC, if you respond to the medicines, will you definitely still need a liver transplant say if you have PBC for 30-40 years? How much does Urso slow the progression since no matter what PBC always progresses?
With having PBC, if you respond to the medicines, will you definitely still need a liver transplant say if you have PBC for 30-40 years? How much does Urso slow the progression since no matter what PBC always progresses?
Ablack98
in
PBC Foundation
4 years ago
Knee pain
Hello, I am 10 years post kidney transplant patient. I have osteoporosis, I have lately had some painful knee pain. Curious if anyone else may have osteoporosis, and how you deal with the joint pain. Thanks
Hello, I am 10 years post kidney transplant patient. I have osteoporosis, I have lately had some painful knee pain. Curious if anyone else may have osteoporosis, and how you deal with the joint pain. Thanks
Hidden
in
Kidney Transplant
4 years ago
Heart transplant v coping with A FIB
I have spoke to everyone before here; after surgery I was very down as most of us are and was trying to find someone I could talk to as my husband isn't very good at this. I did manage to find someone I could speak with, my health overall went up a step and I was able to do a bit more. I started a phased
I have spoke to everyone before here; after surgery I was very down as most of us are and was trying to find someone I could talk to as my husband isn't very good at this. I did manage to find someone I could speak with, my health overall went up a step and I was able to do a bit more. I started a phased
Magicmog12
in
AF Association
4 years ago
Occasional sore tongue
It seems my tongue and sometimes the roof of my mouth feel like I burnt myself with a hot beverage when that is not the case. Sometimes brushing the area with my tooth brush seems to help. I’ve tried all sorts of toothpaste formulations. In can vary during the day and from day to day. I avoid any toothpastes
It seems my tongue and sometimes the roof of my mouth feel like I burnt myself with a hot beverage when that is not the case. Sometimes brushing the area with my tooth brush seems to help. I’ve tried all sorts of toothpaste formulations. In can vary during the day and from day to day. I avoid any toothpastes
Karenjaninaz
in
PMRGCAuk
4 years ago
Alan Hyde - QE Hospital Birmingham.
Many people who have received their liver transplant at the QE, will most likely know of Alan Hyde. Alan has been a strong supporter of the QE for over 14-years, visiting patients on the liver transplant ward (726), Alan was also chairman of the “Queen Elizabeth Liver Patients Support Group”, and featured
Many people who have received their liver transplant at the QE, will most likely know of Alan Hyde. Alan has been a strong supporter of the QE for over 14-years, visiting patients on the liver transplant ward (726), Alan was also chairman of the “Queen Elizabeth Liver Patients Support Group”, and featured
Richard-Allen
in
British Liver Trust
4 years ago
5th Anniversary
Hi Folks , , many of you will be aware of my Stem Cell Transplant for Primary Myelofibrosis which happened 5 years ago today. . It wasn't an easy ride in my case and my battle with Graft Versus Host Disease is well documented on the Forum. Also the issues caused by high dose steroids needed to save my
Hi Folks , , many of you will be aware of my Stem Cell Transplant for Primary Myelofibrosis which happened 5 years ago today. . It wasn't an easy ride in my case and my battle with Graft Versus Host Disease is well documented on the Forum. Also the issues caused by high dose steroids needed to save my
JediReject
in
MPN Voice
4 years ago
Preventing hair loss post transplant
Hi everyone! I’m one month post kidney transplant and everything is going really well! In the past, i’ve suffered from major hair loss do to stress regarding my CKD and intense hospitalizations. I had lost half of my hair in thickness. Fortunately, it grew back twice as thick within a year and a
Hi everyone! I’m one month post kidney transplant and everything is going really well! In the past, i’ve suffered from major hair loss do to stress regarding my CKD and intense hospitalizations. I had lost half of my hair in thickness. Fortunately, it grew back twice as thick within a year and a
Amyb93
in
Kidney Transplant
4 years ago
19 months Post kidney and Pancreas transplant and I have gained 45-50lbs in the last 5or6 months I eat well not alot of excise due to COVID
Has anyone else had this problem?
Has anyone else had this problem?
KatieJohnston
in
Kidney Transplant
4 years ago
Empathy
This morning I lay hear reading the wonderful replies to’ Family and friends’ which was under the heading of ‘Liver Transplant Assessment ‘ and the empathy I felt was none other than astounding which gave me a wonderful feeling inside to know that there are still such wonderful caring people out there
This morning I lay hear reading the wonderful replies to’ Family and friends’ which was under the heading of ‘Liver Transplant Assessment ‘ and the empathy I felt was none other than astounding which gave me a wonderful feeling inside to know that there are still such wonderful caring people out there
FlyingArrow
in
British Liver Trust
4 years ago
Itching post-transplant
Hello all! Just wondering...have any of you experienced intense itching after liver transplant? Thanks so much!
Hello all! Just wondering...have any of you experienced intense itching after liver transplant? Thanks so much!
PramirJC
in
British Liver Trust
4 years ago
Omg how do some doctors get there degree
just taken my 15 yo daughter to doct as has history of low b12 and iron, her injections were stopped last year on a paediatrician advice and to monitor every 3 months which we have been doing and have stayed pretty stable even though she tested positive to parietal cell antibody, shes been complaining
just taken my 15 yo daughter to doct as has history of low b12 and iron, her injections were stopped last year on a paediatrician advice and to monitor every 3 months which we have been doing and have stayed pretty stable even though she tested positive to parietal cell antibody, shes been complaining
sbadd
in
Pernicious Anaemia Society
4 years ago
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