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Looking for comments on this opening info sheet.
I am a doctor who got interested in RLS over 6/12 ago when my wife's RLS went crazy when she was trying to use Phenergan (sedating antihistamine) to sleep. After a couple of sleepless night she was a mess and complained "And there is no treatment for restless legs!!". I thought that could not be right
I am a doctor who got interested in RLS over 6/12 ago when my wife's RLS went crazy when she was trying to use Phenergan (sedating antihistamine) to sleep. After a couple of sleepless night she was a mess and complained "And there is no treatment for restless legs!!". I thought that could not be right
RLSLearner
in
Restless Legs Syndrome
6 months ago
Antidepressants
Hi, I have been on Esatalapram ( SSRI ) for over 20 years and it has been fantastic for OCD and awful anxiety. I get no side effects at all from this medicine- Until I developed RLS. I have tried to wean off , super super slowing and I can get down to 5mg but anything lower I become very unwell mentally
Hi, I have been on Esatalapram ( SSRI ) for over 20 years and it has been fantastic for OCD and awful anxiety. I get no side effects at all from this medicine- Until I developed RLS. I have tried to wean off , super super slowing and I can get down to 5mg but anything lower I become very unwell mentally
JenniferBut
in
Restless Legs Syndrome
6 months ago
Thinking of going back on Sertraline but my partner makes it seem like i’m being weak or lazy
Hi, So I first wrote on this forum 5 years ago when I suddenly had the worst Health Anxiety of my life and it felt totally out of the blue at the time. I had never experienced anything at all like it. I woke up one day with my muscles aching, feeling dizzy, felt like I was rocking on a boat or like
Hi, So I first wrote on this forum 5 years ago when I suddenly had the worst Health Anxiety of my life and it felt totally out of the blue at the time. I had never experienced anything at all like it. I woke up one day with my muscles aching, feeling dizzy, felt like I was rocking on a boat or like
NEC_xx
in
Anxiety and Depression Support
6 months ago
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Friends thyroid results, please can anyone advise?
Hi! A fellow Pernicious Anaemia sufferer and friend of mine needs some thyroid help please! I'm also hypothyroid / hashi and still 18 months into my journey and not quite there yet so feel the need for advice!. She had some bloods taken this week and the results to me look less than optimal, while being
Hi! A fellow Pernicious Anaemia sufferer and friend of mine needs some thyroid help please! I'm also hypothyroid / hashi and still 18 months into my journey and not quite there yet so feel the need for advice!. She had some bloods taken this week and the results to me look less than optimal, while being
Opal79
in
Thyroid UK
6 months ago
iron supplements
hello! I wondered if anyone could recommend an iron supplement that has no nasties in? The GP suggested I go on it because I’m slightly anaemic. I am very careful with other supplements to not have additives that might trigger the AF (like B12, Vit D etc) but can’t seem to find an iron supplement that
hello! I wondered if anyone could recommend an iron supplement that has no nasties in? The GP suggested I go on it because I’m slightly anaemic. I am very careful with other supplements to not have additives that might trigger the AF (like B12, Vit D etc) but can’t seem to find an iron supplement that
Green_pink
in
Atrial Fibrillation Support
6 months ago
Unlocking the Maze of B Complexes: A Handy List for Safe Dosages and Bioactive Vitamins
It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which
It can be quite challenging to find reliable B-complex supplements that are safe in terms of dosage. Additionally, it is advisable to opt for bioactive vitamins for added safety. To help each other out, I have started compiling a list categorized into low, medium, and high dosages of B6 and B9, which
Esperanto
in
Cure Parkinson's
6 months ago
Jak 2 exon 12
My rbc and hemoglobin and iron are all high but my mcv hct mch mchc are all. Within range. I tested negative for jak 2 test last year 2022. But because my rbc and hemoglobin are still up my haematology has done a jak 2 exon 12 because they can't under why my bloods are still up. Any information is much
My rbc and hemoglobin and iron are all high but my mcv hct mch mchc are all. Within range. I tested negative for jak 2 test last year 2022. But because my rbc and hemoglobin are still up my haematology has done a jak 2 exon 12 because they can't under why my bloods are still up. Any information is much
Hidden
in
MPN Voice
6 months ago
Hair Loss on Acalabrutinib
Has anyone suffered significant hair loss while taking this drug? Does the hair loss stop at some point in time. Does the hair regrow? This is the one thing the oncologist said wouldn't happen. I have been taking an iron supplement and 5,000 mcg of biotin, information that I read in other posts. My hair
Has anyone suffered significant hair loss while taking this drug? Does the hair loss stop at some point in time. Does the hair regrow? This is the one thing the oncologist said wouldn't happen. I have been taking an iron supplement and 5,000 mcg of biotin, information that I read in other posts. My hair
Vinweesel2023
in
CLL Support
6 months ago
Angina, low dose aspirin
Was diagnosed with angina in 2022 stent fitted to LAD. Fast forward to now. Needing knee replacement, had a pre assessment appointment in december, went in thinking I would be offered surgery on jan. Blood test came back as low iron. Saw anesthetist who was happy regards heart but spoke to colorectal
Was diagnosed with angina in 2022 stent fitted to LAD. Fast forward to now. Needing knee replacement, had a pre assessment appointment in december, went in thinking I would be offered surgery on jan. Blood test came back as low iron. Saw anesthetist who was happy regards heart but spoke to colorectal
annpavitt250448
in
British Heart Foundation
6 months ago
Sometimes ignorance is bliss
Sometimes ignorance is bliss; Probiotic “Lactobacillus plantarum 299v”(a) is supposed to increase iron absorption, park_bear “...I always thought PWP have too much iron in their brains”. — I probably wouldn’t have tried if I remembered that (there are articles on the internet that agree(b) — at least
Sometimes ignorance is bliss; Probiotic “Lactobacillus plantarum 299v”(a) is supposed to increase iron absorption, park_bear “...I always thought PWP have too much iron in their brains”. — I probably wouldn’t have tried if I remembered that (there are articles on the internet that agree(b) — at least
Gcf51
in
Cure Parkinson's
6 months ago
Foot Cramps
Can anyone suggest anything I can take for foot cramps. I am currently taking 600mg pregablin, ramipril, hrt, zapain and naproxen aswell as iron, calcium and magnesium. The cramps are becoming more and more frequent and my Gp said to eat bananas and rub magnesium into my feet. Last night was unbearable
Can anyone suggest anything I can take for foot cramps. I am currently taking 600mg pregablin, ramipril, hrt, zapain and naproxen aswell as iron, calcium and magnesium. The cramps are becoming more and more frequent and my Gp said to eat bananas and rub magnesium into my feet. Last night was unbearable
UpsideDownInsideOut
in
Restless Legs Syndrome
6 months ago
The problem with Buprenorphine, BTBD9 and serotonin syndrome
This is for those of you who are really struggling with the remedies for RLS. Apologies for not referencing all my research but I’ve been completely wiped out for weeks now. However I wanted to share some insights I’ve had recently and hope it inspires thoughts and research. Adenosine is a chemical
This is for those of you who are really struggling with the remedies for RLS. Apologies for not referencing all my research but I’ve been completely wiped out for weeks now. However I wanted to share some insights I’ve had recently and hope it inspires thoughts and research. Adenosine is a chemical
Typicallygaslit
in
Restless Legs Syndrome
6 months ago
NHS Endo - South East - Pro T3 - Three referral choices...
Hi, I went T3 only 3 weeks ago after trying combination therapy for 6 months. At around the same I had my local surgery test for blood FBC, blood sugar, cholesterol, calcium folate, B12 Iron etc. This was just to check for my self that I wasn't encountering any other issues. To my surprise they also
Hi, I went T3 only 3 weeks ago after trying combination therapy for 6 months. At around the same I had my local surgery test for blood FBC, blood sugar, cholesterol, calcium folate, B12 Iron etc. This was just to check for my self that I wasn't encountering any other issues. To my surprise they also
joey82
in
Thyroid UK
6 months ago
Feeling poorly
Evening everyone, I have continued to feel increasingly unwell. Shoulder and neck pain continues and keeps me awake or wakes me up every night now. I sometimes wake up with sweat around my neck and chest. The steroid injection I had 13 days ago helped a bit to decrease the intensity of pain but it hasn
Evening everyone, I have continued to feel increasingly unwell. Shoulder and neck pain continues and keeps me awake or wakes me up every night now. I sometimes wake up with sweat around my neck and chest. The steroid injection I had 13 days ago helped a bit to decrease the intensity of pain but it hasn
MsWhistledown
in
Thyroid UK
6 months ago
Stomach cancer
Hi, my wife gave birth to our 4th child, around months ago. She started having sickness and pain stomach area about 2 monthsagao. GP did a h pylori stool test, which came positive. She took 2 types of antibiotics and some acid related tablets (esomeprazole) for a week. She felt fine while taking the
Hi, my wife gave birth to our 4th child, around months ago. She started having sickness and pain stomach area about 2 monthsagao. GP did a h pylori stool test, which came positive. She took 2 types of antibiotics and some acid related tablets (esomeprazole) for a week. She felt fine while taking the
Carefull
in
Oesophageal & Gastric Cancer
6 months ago
What should my optimal vitamin levels be please?
Hi there, I’m trying to get vitamin levels up to hopefully help with poor conversion. Iron was low and I’ve recently retested for that after supplementing for about 3 months. Ferritin is now at 65 ug/L Folate has dropped from >45 a year ago to 8.5ug/L My question is what should they ideally be?
Hi there, I’m trying to get vitamin levels up to hopefully help with poor conversion. Iron was low and I’ve recently retested for that after supplementing for about 3 months. Ferritin is now at 65 ug/L Folate has dropped from >45 a year ago to 8.5ug/L My question is what should they ideally be?
Thywotsit
in
Thyroid UK
6 months ago
Need advice on what to do next!
Recently diagnosed with Hashimotos following endocrinologist appt, which was actually to investigate causes for my hair loss (lost 60% of hair after covid vaccination, then Covid itself in early 2022). Also been suffering other symptoms for around 2 years - weight gain, tired all the time, joint pains
Recently diagnosed with Hashimotos following endocrinologist appt, which was actually to investigate causes for my hair loss (lost 60% of hair after covid vaccination, then Covid itself in early 2022). Also been suffering other symptoms for around 2 years - weight gain, tired all the time, joint pains
ErnieBear
in
Thyroid UK
6 months ago
Update On Eclipse Trial-another failure. Has LU-177 worked for anyone?
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3=7. Subsequent PSA was non-detectable as tested every three months for the first two years
SViking
in
Advanced Prostate Cancer
6 months ago
has anyone gone back to t4 after trying thyroid-s?
Hello, Happy 2024 to everyone! May it bring you health and happiness! Ive had a crazy year with Thyroid-s and while i like the feel of the medicine - im not sure it loves me back! At 1.25 grains my results where tsh 0.6 and ft3 just in range, while t4 slightly under. I tried increasing to 1.5 grains
Hello, Happy 2024 to everyone! May it bring you health and happiness! Ive had a crazy year with Thyroid-s and while i like the feel of the medicine - im not sure it loves me back! At 1.25 grains my results where tsh 0.6 and ft3 just in range, while t4 slightly under. I tried increasing to 1.5 grains
MiaMam
in
Thyroid UK
6 months ago
Blood tests, T3 and talking to GP
Hi & happy new year, I started a trial of T3 at the end of November (privately sourced) and was planning on testing my bloods in February. It’s still early days but I do feel ‘better’. My GP has called me in for annual blood test next week, a 1.00pm appointment as no early morning ones available.
Hi & happy new year, I started a trial of T3 at the end of November (privately sourced) and was planning on testing my bloods in February. It’s still early days but I do feel ‘better’. My GP has called me in for annual blood test next week, a 1.00pm appointment as no early morning ones available.
Slowrunner1208
in
Thyroid UK
6 months ago
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