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Iron dextran
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My journey to date
I want to thank everyone who has taken the time and interest to advise me on dealing with my RLS. To update, I am fortunate to live near a clinic that deals with movement disorders and have begun seeing a specialist who treats RLS. She has prescribed gabapentin- didn’t work- and now has me on pregabalin
I want to thank everyone who has taken the time and interest to advise me on dealing with my RLS. To update, I am fortunate to live near a clinic that deals with movement disorders and have begun seeing a specialist who treats RLS. She has prescribed gabapentin- didn’t work- and now has me on pregabalin
MountainWanderer
in
Restless Legs Syndrome
6 months ago
Latest results and problems raising dose
TL;DR - should I continue to try increasing my NDT dose slightly (from 1.75 to 2 grains per day, split dosing) based on the test results below, though I am getting some symptoms after increase (mild anxiety, hot flushes and sweats, and palpitations)? Further info/details below the results Inflammation
TL;DR - should I continue to try increasing my NDT dose slightly (from 1.75 to 2 grains per day, split dosing) based on the test results below, though I am getting some symptoms after increase (mild anxiety, hot flushes and sweats, and palpitations)? Further info/details below the results Inflammation
FoggyThinker
in
Thyroid UK
6 months ago
Test results - please advise
Hi everyone, Can I please ask your thoughts on my last test results? TSH: 2.77 mU/l (Range 0.35 - 5.5) 46.99% FT4: 9 pmol/l (Range 9 - 23) 0.00% FT3: 4.7 pmol/l (Range 3.5 - 6.5) 40.00% Vitamin D is still at 87 nmol/L (50nmol/L - sufficiency) , while on
Hi everyone, Can I please ask your thoughts on my last test results? TSH: 2.77 mU/l (Range 0.35 - 5.5) 46.99% FT4: 9 pmol/l (Range 9 - 23) 0.00% FT3: 4.7 pmol/l (Range 3.5 - 6.5) 40.00% Vitamin D is still at 87 nmol/L (50nmol/L - sufficiency) , while on
Dandelions
in
Thyroid UK
6 months ago
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changing from Armour to levo
Hi all I take armour thyroid and have done for over 10 yrs now. I was originally prescribed this by a private doctor but further down the rd I found a way to buy Armour myself so I self medicate. I test my levels regularly (probably every 4-6 months) and I’ve felt in a good place for years. That’s
Hi all I take armour thyroid and have done for over 10 yrs now. I was originally prescribed this by a private doctor but further down the rd I found a way to buy Armour myself so I self medicate. I test my levels regularly (probably every 4-6 months) and I’ve felt in a good place for years. That’s
Tweetypie28
in
Thyroid UK
6 months ago
Transitioning from NDT to T3 (slowly) - anyone done this? Or combines NDT with t3?
Hello there, After many years unsuccessfully on Levo, then NDT, NDT+T4, I'm trying NDT and T3...and it's tricky. My timing might be incorrect, I take now 3 daily doses and I'm feeling overmedicated in the afternoon (tight chest, dizzy, weird energy, hunger, sweaty feet, blurry vision etc.). I take
Hello there, After many years unsuccessfully on Levo, then NDT, NDT+T4, I'm trying NDT and T3...and it's tricky. My timing might be incorrect, I take now 3 daily doses and I'm feeling overmedicated in the afternoon (tight chest, dizzy, weird energy, hunger, sweaty feet, blurry vision etc.). I take
Incoguto
in
Thyroid UK
6 months ago
iron panel test
Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?
Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?
Fluffyone
in
Pernicious Anaemia Society
6 months ago
Second blood test - subclinical? Please help!
Hello, I posted here a while ago with results from a Monitor My Health blood test and got some really helpful replies. It was also suggested that I do a full test to get a better picture so I did the Medichecks Advanced Thyroid Function Blood Test and have just got the results - they are saying I may
Hello, I posted here a while ago with results from a Monitor My Health blood test and got some really helpful replies. It was also suggested that I do a full test to get a better picture so I did the Medichecks Advanced Thyroid Function Blood Test and have just got the results - they are saying I may
littlebluegnome
in
Thyroid UK
6 months ago
Update on colonoscopy
I posted a few weeks ago about an aborted colonoscopy due to onset of AF triggered by stress of bowel cleansing prep (Moviprep). The objective of procedure was to see if any gastric issue causing blood loss / anaemia/ very low iron. Consultant keen to try again but this time agreed to use CT colonography
I posted a few weeks ago about an aborted colonoscopy due to onset of AF triggered by stress of bowel cleansing prep (Moviprep). The objective of procedure was to see if any gastric issue causing blood loss / anaemia/ very low iron. Consultant keen to try again but this time agreed to use CT colonography
50568789
in
Atrial Fibrillation Support
6 months ago
Iron and B12
Just caught the back end of a TV programme where a "doctor" was advising that an iron deficiency and vit B12 deficiency may be the cause of peoples T issues. Anyone been down this route or have I misheard the TV? Tried using search function in the forum but never found anything TIA
Just caught the back end of a TV programme where a "doctor" was advising that an iron deficiency and vit B12 deficiency may be the cause of peoples T issues. Anyone been down this route or have I misheard the TV? Tried using search function in the forum but never found anything TIA
mingsbeard
in
Tinnitus UK
6 months ago
Exercise and Low Thyroid: Am I doing more harm than good? Advice, please!
I would like to ask about having low thyroid levels and doing exercise. I have hypo symptoms, and blood tests show low FT3 and FT4, but normal TSH (for reference, last blood test results are below). So far, no doctor or endocrinologist thinks I have any thyroid issue. One of my symptoms has been unexplained
I would like to ask about having low thyroid levels and doing exercise. I have hypo symptoms, and blood tests show low FT3 and FT4, but normal TSH (for reference, last blood test results are below). So far, no doctor or endocrinologist thinks I have any thyroid issue. One of my symptoms has been unexplained
Overlooked
in
Thyroid UK
6 months ago
Daughter thyroid results
HiI am new here with a question for my daughter (19). She is really struggling with fatigue so much so she is home from Uni. Also feels sick, headaches, really cold hands and feet and very pale. She had low ferritin last year and was put on iron tablets for 3 months. She went for a private blood test
HiI am new here with a question for my daughter (19). She is really struggling with fatigue so much so she is home from Uni. Also feels sick, headaches, really cold hands and feet and very pale. She had low ferritin last year and was put on iron tablets for 3 months. She went for a private blood test
PennB
in
Thyroid UK
6 months ago
Feeling anxious about appointment....
Just wondering if anyone can shed any information that may help me understand. I've been unwell most of 2023, was in hospital for 8 days with suspected pneumonia. Prior to this I've had abnormal blood tests for a while. I'm anemic but my iron levels, vitamin b12 levels are fine... I've had a number
Just wondering if anyone can shed any information that may help me understand. I've been unwell most of 2023, was in hospital for 8 days with suspected pneumonia. Prior to this I've had abnormal blood tests for a while. I'm anemic but my iron levels, vitamin b12 levels are fine... I've had a number
Suncheek1991
in
Early CKD Support
6 months ago
What the heck, Thyroid!?
Well, I found myself in this forum by following bread crumbs left by FancyPants54 Thankfully she's a bit messy with her snacks 😊 I've been on Pernicious anemia forum for the past few years dealing with my PA/AMAG. I think I may have been selected by whomever makes such selections to have the benefit
Well, I found myself in this forum by following bread crumbs left by FancyPants54 Thankfully she's a bit messy with her snacks 😊 I've been on Pernicious anemia forum for the past few years dealing with my PA/AMAG. I think I may have been selected by whomever makes such selections to have the benefit
Rexz
in
Thyroid UK
6 months ago
hopful2
I saw Dr Scott Cooper this morning and I am hopeful that he will help me. He was familiar with augmentation and was very thorough is his examination. He has ordered a full iron panel and checking B12 and magnesium levels. In all he is doing 3 panels. He is also doing nerve conductivity test. He said
I saw Dr Scott Cooper this morning and I am hopeful that he will help me. He was familiar with augmentation and was very thorough is his examination. He has ordered a full iron panel and checking B12 and magnesium levels. In all he is doing 3 panels. He is also doing nerve conductivity test. He said
6236
in
Restless Legs Syndrome
6 months ago
New Medichecks Results - grateful for any thoughts…advice…
Bit of history: started levo 50mcg in may 2023 after being diagnosed with sc hypothyroidism…so… Medichecks test done 22 Aug 2023: t4 14.3 (12-22) t3 3.5 (3.1-6.8) tsh 2.830 (0.27-4.2) tgab 262 (0-115) tpo 12.5 (0-34) I sent those results to practice and triage nurse booked for an NHS test
Bit of history: started levo 50mcg in may 2023 after being diagnosed with sc hypothyroidism…so… Medichecks test done 22 Aug 2023: t4 14.3 (12-22) t3 3.5 (3.1-6.8) tsh 2.830 (0.27-4.2) tgab 262 (0-115) tpo 12.5 (0-34) I sent those results to practice and triage nurse booked for an NHS test
JoJoloveschocolate
in
Thyroid UK
6 months ago
Opinion on RLS diagnosis
I am a 35 YO female, and I’ve been suffering from migraine for the past 3 years. The intensity and frequency of migraine has increased throughout the years going from 1 debilitating attack per month to 6-8 per month.Last august 2023, I had an increase in attacks and that’s when the supposedly RLS symptoms
I am a 35 YO female, and I’ve been suffering from migraine for the past 3 years. The intensity and frequency of migraine has increased throughout the years going from 1 debilitating attack per month to 6-8 per month.Last august 2023, I had an increase in attacks and that’s when the supposedly RLS symptoms
Ariel88
in
Restless Legs Syndrome
6 months ago
Symptoms but blood tests Normal?
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
jennylouise91
in
Thyroid UK
6 months ago
Genetic test positive
In November 2023 my iron labs were increased. Ferritin 117 TSAT 58 my doctor said we would retest in six month and do genetic testing but wasn’t concerned. My results just came in and it showed homogenous for H63D. I haven’t been able to speak with him yet. I am extremely scared.
In November 2023 my iron labs were increased. Ferritin 117 TSAT 58 my doctor said we would retest in six month and do genetic testing but wasn’t concerned. My results just came in and it showed homogenous for H63D. I haven’t been able to speak with him yet. I am extremely scared.
rupertj
in
Haemochromatosis Society UK
6 months ago
what questions should I ask my neurologist?
I am seeing a neurologist for the first time tomorrow morning. Are there any important questions that I should ask? I’m taking the maximum dose of Ropinirole so I shall ask for a change in medication, what can help with changing meds I.e. withdrawal symptoms. I shall ask about Iron levels my last
I am seeing a neurologist for the first time tomorrow morning. Are there any important questions that I should ask? I’m taking the maximum dose of Ropinirole so I shall ask for a change in medication, what can help with changing meds I.e. withdrawal symptoms. I shall ask about Iron levels my last
Louless9
in
Restless Legs Syndrome
6 months ago
Dr Berkowski Article on Dopamine Agonists Oct '23.
https://www.calameo.com/sleeplabmagazine/books/006372046fb2b80cd3776 Dr Berkowski is one of the top US experts on RLS and he firmly believes dopamine agonists cause permanent damage to dopamine receptors. This means pregabalin and gabapentin often don't work for us, nor do iron infusions. It may be helpful
https://www.calameo.com/sleeplabmagazine/books/006372046fb2b80cd3776 Dr Berkowski is one of the top US experts on RLS and he firmly believes dopamine agonists cause permanent damage to dopamine receptors. This means pregabalin and gabapentin often don't work for us, nor do iron infusions. It may be helpful
Joolsg
in
Restless Legs Syndrome
6 months ago
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