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ET, hydrea and feeling fatigued and depressed
Hi all, I haven't been on here for a while. I was diagnosed with ET 3 years ago. Ever since my diagnosis I have been monitored by a haemotologist in Brisbane (yes the other side of the world). The first two years everything was ok. I was studying and working towards a new career. I saw my haemotologist
Hi all, I haven't been on here for a while. I was diagnosed with ET 3 years ago. Ever since my diagnosis I have been monitored by a haemotologist in Brisbane (yes the other side of the world). The first two years everything was ok. I was studying and working towards a new career. I saw my haemotologist
Deya08
in
MPN Voice
3 months ago
Megaloblastic anaemia
Hi, I was diagnosed with megaloblastic anaemia yesterday. My gp, sent over a prescription for Cyanocobalamin 1mg/1ml solution for injection ampoules. My pharmacy and other pharmacies don't stock it. I left a note for my doctor with the receptionist to ask for possibly a different brand or type. I'm new
Hi, I was diagnosed with megaloblastic anaemia yesterday. My gp, sent over a prescription for Cyanocobalamin 1mg/1ml solution for injection ampoules. My pharmacy and other pharmacies don't stock it. I left a note for my doctor with the receptionist to ask for possibly a different brand or type. I'm new
fatfatfat
in
Pernicious Anaemia Society
3 months ago
When to take iron with T3 multi-dosing.
I'm writing this post again as I didn't get many replies and my private Dr hasn't replied. I'm trying to work out when to fit in taking iron (Three arrows) with my T3 doses. I am taking T3 as per my private Dr's schedule which is 3 times per day and 6-7 hours apart. I'm wondering whether to switch to
I'm writing this post again as I didn't get many replies and my private Dr hasn't replied. I'm trying to work out when to fit in taking iron (Three arrows) with my T3 doses. I am taking T3 as per my private Dr's schedule which is 3 times per day and 6-7 hours apart. I'm wondering whether to switch to
PinkSkittles
in
Thyroid UK
4 months ago
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Scoliosis Surgery at 75
I finally went through the Scoliosis Surgery that I had scheduled and canceled a couple of times. I had been on Buprenorphine for over a year and was RLS free. The minute I woke up from my surgery, that ugly monster showed up again. This time I could not even move, much less walk. It started very
I finally went through the Scoliosis Surgery that I had scheduled and canceled a couple of times. I had been on Buprenorphine for over a year and was RLS free. The minute I woke up from my surgery, that ugly monster showed up again. This time I could not even move, much less walk. It started very
Josana13
in
Restless Legs Syndrome
4 months ago
ferritin
Returned to the Dr Today as my Ferritin from last weeks blood test results were 16 ( 10-290 ) When I challenged her she said quote “ well it’s a little low but it’s in range and we there fore cannot prescribe an iron supplement ! Really , I said , I had read it should be around 80 ! She reluctantly
Returned to the Dr Today as my Ferritin from last weeks blood test results were 16 ( 10-290 ) When I challenged her she said quote “ well it’s a little low but it’s in range and we there fore cannot prescribe an iron supplement ! Really , I said , I had read it should be around 80 ! She reluctantly
Oliva1955
in
Thyroid UK
4 months ago
time to try T3
Hypothyroid - 20 years always on T4 but same brand Mercury Pharma, currently taking 150mcg. Like everyone I private test to get T3 T4 have paid in the past to see private endocrinologists and am reasonably well informed (mainly through this forum). I don’t suffer as badly as many people do but maybe
Hypothyroid - 20 years always on T4 but same brand Mercury Pharma, currently taking 150mcg. Like everyone I private test to get T3 T4 have paid in the past to see private endocrinologists and am reasonably well informed (mainly through this forum). I don’t suffer as badly as many people do but maybe
Sususulio
in
Thyroid UK
4 months ago
T3 Trial continued
Medichecks 20 March 2024 History:
Hypothyroid (after RAI in c2004)
Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Gluten
Medichecks 20 March 2024 History:
Hypothyroid (after RAI in c2004)
Spent 2023 improving folate, B12, Vit D although ferritin still poor. Came off PPIs and now take Gaviscon twice daily. Gastritis issues ongoing though. Officially a poor converter (dud DIO2) so really wanted to try T3 Gluten
Rambling9
in
Thyroid UK
4 months ago
Berberine and iron?
Hi, So glad to have found this wonderful forum! I am a 74 year female who recently started taking pregabalin for RLS. I just got back my ferritin level and it is 12. I will order some iron and would like to know how many mg is a good dose. Also, I started taking niacin 500mg daily for my cholesterol
Hi, So glad to have found this wonderful forum! I am a 74 year female who recently started taking pregabalin for RLS. I just got back my ferritin level and it is 12. I will order some iron and would like to know how many mg is a good dose. Also, I started taking niacin 500mg daily for my cholesterol
glorious-granny
in
Restless Legs Syndrome
4 months ago
Advice please on latest results after dose decrease
Dear all, for the last 3 months I've been taking 112 levo (eutirox) and 10ml T3 Liotir (liquid). A slight reduction from the 125 levo I was taking when I last posted.My results (using protocol advised here) are as follows: Ft3 2.92 (2.30-4.20) 3 x months ago on 125 levo - 3.18 Ft4 0.93 (0.89-1.76)
Dear all, for the last 3 months I've been taking 112 levo (eutirox) and 10ml T3 Liotir (liquid). A slight reduction from the 125 levo I was taking when I last posted.My results (using protocol advised here) are as follows: Ft3 2.92 (2.30-4.20) 3 x months ago on 125 levo - 3.18 Ft4 0.93 (0.89-1.76)
Sandytango
in
Thyroid UK
4 months ago
NAC and Thyroid Antibodies
Currently hypothyroid, high TgAB, TPO and TSI normal. Am on 600mcg of levothyroxine across the week. Has anyone had success in reducing thyroid antibodies by taking NAC? What other supplements do you take to support thyroid health besides vit D, iron, B12, Folate? These are already under control
Currently hypothyroid, high TgAB, TPO and TSI normal. Am on 600mcg of levothyroxine across the week. Has anyone had success in reducing thyroid antibodies by taking NAC? What other supplements do you take to support thyroid health besides vit D, iron, B12, Folate? These are already under control
Curious123
in
Thyroid UK
4 months ago
Considering Conception & Ideal Thyroid Levels
Hi all. I finally saw an endocrinologist and they suggested increasing thyroxine dose by 20% when doing an embryo transfer to ensure adequate thyroxine. I asked about FT3 and FT4 levels but they were only interested in TSH which didn’t make sense given it only signals thyroid production and isn’t a thyroid
Hi all. I finally saw an endocrinologist and they suggested increasing thyroxine dose by 20% when doing an embryo transfer to ensure adequate thyroxine. I asked about FT3 and FT4 levels but they were only interested in TSH which didn’t make sense given it only signals thyroid production and isn’t a thyroid
Curious123
in
Thyroid UK
4 months ago
Please help 🙏
Hello everyone. Same old story. I booked my 3 monthly b12 injection I've been having for past 15 years. Gp says no more & did blood tests. FBC normal apart from low WBC 1.3. B12 high but low iron. No idea why b12 injections were started in the first place just that my level was 130. I attach his
Hello everyone. Same old story. I booked my 3 monthly b12 injection I've been having for past 15 years. Gp says no more & did blood tests. FBC normal apart from low WBC 1.3. B12 high but low iron. No idea why b12 injections were started in the first place just that my level was 130. I attach his
Irismay
in
Pernicious Anaemia Society
4 months ago
West Sussex/Hampshire/Surrey borders endo recommendation please
Hi, I have high HDL and normal LDL. Total levels over 6. Used to be very low cholesterol before half thyroidectomy over 15 years ago due to multi nodular goitre. Now on 75mg Levo. I am also type 2 diabetic for 30 years. Also low ferritin approx 30 despite taking iron daily. Recently given a statin
Hi, I have high HDL and normal LDL. Total levels over 6. Used to be very low cholesterol before half thyroidectomy over 15 years ago due to multi nodular goitre. Now on 75mg Levo. I am also type 2 diabetic for 30 years. Also low ferritin approx 30 despite taking iron daily. Recently given a statin
debfinch
in
Thyroid UK
4 months ago
Extremely weak legs
Morning everyone, I have fibromyalgia and osteoarthritis in most joints in my body. Since Christmas I have had extremely weak legs to the point now that even going from my chair to the bathroom I’m near collapsing. My legs go very wobbly and start to shake then my whole body shakes and I get breathless
Morning everyone, I have fibromyalgia and osteoarthritis in most joints in my body. Since Christmas I have had extremely weak legs to the point now that even going from my chair to the bathroom I’m near collapsing. My legs go very wobbly and start to shake then my whole body shakes and I get breathless
Cockerspaniels2
in
Fibromyalgia Action UK
4 months ago
Vitamins/supplement balance 2ww and TTC. SO CONFUSING!
How do you manage preparing for an IVF cycle with suplements if you are also trying naturally? I am in a 2ww and might be pregnant if you believe in miracles. I have been taking the list below before, but learnt this is too much and can be detrimental in a two week wait so swapped for a pregnancy
How do you manage preparing for an IVF cycle with suplements if you are also trying naturally? I am in a 2ww and might be pregnant if you believe in miracles. I have been taking the list below before, but learnt this is too much and can be detrimental in a two week wait so swapped for a pregnancy
Cuppppatea
in
Fertility Network UK
4 months ago
Is it necessary to fast prior to doing a full iron panel test?
Does anyone know whether the results are adversely affected by eating and drinking prior to drawing blood for an iron panel test? I’m talking at home, finger prick testing. Thanks.
Does anyone know whether the results are adversely affected by eating and drinking prior to drawing blood for an iron panel test? I’m talking at home, finger prick testing. Thanks.
J972
in
Thyroid UK
4 months ago
Buprenorphine
Good Morning, I wondered if anyone could help with the following. I have had a call from my GP asking me to go in to see him about a couple of Liver Blood Tests I have had recently which show elevated SERUM GAMMA GT and ALT/SGPT serum levels. I want to be prepared in case he says that the Buprenorphine
Good Morning, I wondered if anyone could help with the following. I have had a call from my GP asking me to go in to see him about a couple of Liver Blood Tests I have had recently which show elevated SERUM GAMMA GT and ALT/SGPT serum levels. I want to be prepared in case he says that the Buprenorphine
Ced60
in
Restless Legs Syndrome
4 months ago
Daughters bloods, awful GP's
Following on from previous post https://healthunlocked.com/pasoc/posts/150635331/daughter-still-really-not-great-and-cannot-get-through-to-medics Kept trying to get earlier B12 jab, she has not been great, told no. Checking on another matter with surgery accidentally found out she had an appointment
Following on from previous post https://healthunlocked.com/pasoc/posts/150635331/daughter-still-really-not-great-and-cannot-get-through-to-medics Kept trying to get earlier B12 jab, she has not been great, told no. Checking on another matter with surgery accidentally found out she had an appointment
Polo22
in
Pernicious Anaemia Society
4 months ago
Referred to private Endo - London; advice and recommendations please
Hi all, I have just been referred by the GP to an Endo. I was hoping that someone could privately DM me with recommendations for private endos in central London. I am also wondering whether I could be suffering from Hashimotos hyperthyroid flare ups: To recap; I have hashimotos, and had a hemithyroidectomy
Hi all, I have just been referred by the GP to an Endo. I was hoping that someone could privately DM me with recommendations for private endos in central London. I am also wondering whether I could be suffering from Hashimotos hyperthyroid flare ups: To recap; I have hashimotos, and had a hemithyroidectomy
RuthNelson
in
Thyroid UK
4 months ago
let’s target iron: precision delivery makes healthy cells 10 times more resistant to chemo agent
since cancers in general tend to accumulate iron… https://www.ucsf.edu/news/2022/03/422401/treating-tough-tumors-exploiting-their-iron-addiction
since cancers in general tend to accumulate iron… https://www.ucsf.edu/news/2022/03/422401/treating-tough-tumors-exploiting-their-iron-addiction
Maxone73
in
Advanced Prostate Cancer
4 months ago
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