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Feeling deflated after latest results - warning rant about to take place :-)
Hi All, It's been a while since posting on here and having been diagnosed with Graves over a year ago. I was doing ok, in range and stable with alternating days on 5mg and 10 mg. After a series of issues with the endocrinology dept at the hospital, an inappropriate clinical secretary (long story),
Hi All, It's been a while since posting on here and having been diagnosed with Graves over a year ago. I was doing ok, in range and stable with alternating days on 5mg and 10 mg. After a series of issues with the endocrinology dept at the hospital, an inappropriate clinical secretary (long story),
epixme
in
Thyroid UK
1 year ago
Did anyone see the Nightwalkers Fall magazine?
Most of the issue was about iron and RLS. Had several good articles but a couple of things I had not heard before, or at least I don't remember. When doing a full panel iron and especially ferritin levels, if you have had an infection or inflamatory process (?), wait 6 weeks before testing. It said
Most of the issue was about iron and RLS. Had several good articles but a couple of things I had not heard before, or at least I don't remember. When doing a full panel iron and especially ferritin levels, if you have had an infection or inflamatory process (?), wait 6 weeks before testing. It said
Opie__
in
Restless Legs Syndrome
1 year ago
PA and my first iron infusion
Hi all,I had my first iron infusion on Tuesday. I'll have one a week for 10 weeks. They gave me IV benadryl before infusion started to combat any reactions. I did fine, but sleepy the rest of the day. I really was happy to finally get the first one out of the way. Today I woke up feeling very anxious
Hi all,I had my first iron infusion on Tuesday. I'll have one a week for 10 weeks. They gave me IV benadryl before infusion started to combat any reactions. I did fine, but sleepy the rest of the day. I really was happy to finally get the first one out of the way. Today I woke up feeling very anxious
Wowo23
in
Pernicious Anaemia Society
1 year ago
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Possible transformation to MF?
I’ve spoken with the specialist nurse from haematology this morning, my iron infusion has helped my anaemia but the consultant wants me to have another bmb after Christmas, and to actually go in and see the consultant in person (will be the first time since January 2020) to discuss the results approximately
I’ve spoken with the specialist nurse from haematology this morning, my iron infusion has helped my anaemia but the consultant wants me to have another bmb after Christmas, and to actually go in and see the consultant in person (will be the first time since January 2020) to discuss the results approximately
lizzziep
in
MPN Voice
1 year ago
Digoxin side effects or post covid
I just had a blood check to find that in the last few months my iron levels have dropped quite a bit. Now I have read that digoxin can affect iron levels and so can post covid . I have a fairly mild infection about 8 weeks ago. I also understand low iron can actually cause a fib? Any ideas welcome
I just had a blood check to find that in the last few months my iron levels have dropped quite a bit. Now I have read that digoxin can affect iron levels and so can post covid . I have a fairly mild infection about 8 weeks ago. I also understand low iron can actually cause a fib? Any ideas welcome
Cassag
in
AF Association
1 year ago
My Experience With WARFARIN and ELIQUIS
Warfarin for 27 months and friends noticed my coloring was pale. Nearly passed out walking to car in a large parking lot. Had lab draw blood next day, and CBC revealed RED BLOOD CELL COUNT down to 5.8. Supposed to be 13. I was bleeding internally somewhere. Hospitalized and given transfusions and an
Warfarin for 27 months and friends noticed my coloring was pale. Nearly passed out walking to car in a large parking lot. Had lab draw blood next day, and CBC revealed RED BLOOD CELL COUNT down to 5.8. Supposed to be 13. I was bleeding internally somewhere. Hospitalized and given transfusions and an
Warfarin2014
in
Anticoagulation Support
1 year ago
Haemochromatosis and my liver
Male, now 50. My story starts five years ago when I was renovating my house and tripped down a broken staircase and knocked myself unconscious. I went to A&E and after getting a head scan my GP had me get some blood tests for any nasty tell tale signs to do with concussion and bleed on the brain. Thankfully
Male, now 50. My story starts five years ago when I was renovating my house and tripped down a broken staircase and knocked myself unconscious. I went to A&E and after getting a head scan my GP had me get some blood tests for any nasty tell tale signs to do with concussion and bleed on the brain. Thankfully
HydroBee
in
British Liver Trust
1 year ago
Should I stop any supplements after transfer?
Hi all, Am finally getting to go through my first frozen transfer after 3 cancelled cycles (one fresh two frozen). I'm currently taking a few supplements (have been for at least 9 -12 months) but is there any that I should stop taking the day of or after transfer? I assume most are fine but just wanted
Hi all, Am finally getting to go through my first frozen transfer after 3 cancelled cycles (one fresh two frozen). I'm currently taking a few supplements (have been for at least 9 -12 months) but is there any that I should stop taking the day of or after transfer? I assume most are fine but just wanted
Esb27
in
Fertility Network UK
1 year ago
Can anyone help 🤞🤗
Not sure if posting in the right bit 🤔🙈 My symptoms are Extreme tiredness Feel like I zone out almost into space Tiredness behind eyes Feel overwhelmed by normal things. Feel almost numb like sit in a daze but my brains going 100 miles per hour. Having thyroid checked next week My iron was
Not sure if posting in the right bit 🤔🙈 My symptoms are Extreme tiredness Feel like I zone out almost into space Tiredness behind eyes Feel overwhelmed by normal things. Feel almost numb like sit in a daze but my brains going 100 miles per hour. Having thyroid checked next week My iron was
Happyxx
in
Pernicious Anaemia Society
1 year ago
OSTEOARTHRITIS
hello lovey people, Please remove if not appropriate as I realise this not entirely relevant to thyroid, but I’ve come to trust this forum so much with health queries I thought I’d ask. Does anyone have any good recommendations for osteoarthritis (in someone with thyroid disease? They are optimal
hello lovey people, Please remove if not appropriate as I realise this not entirely relevant to thyroid, but I’ve come to trust this forum so much with health queries I thought I’d ask. Does anyone have any good recommendations for osteoarthritis (in someone with thyroid disease? They are optimal
Hidden
in
Thyroid UK
1 year ago
Pramipexole vacations
I am currently completely off Pramipexole for 7 months, after being on it for 6 years. It was the only medication that gave me excellent relief and no side effects, except one sudden episode of augmentation . All the augmentation symptoms have resolved, but the symptoms of course are daily and last
I am currently completely off Pramipexole for 7 months, after being on it for 6 years. It was the only medication that gave me excellent relief and no side effects, except one sudden episode of augmentation . All the augmentation symptoms have resolved, but the symptoms of course are daily and last
Hidden
in
Restless Legs Syndrome
1 year ago
A brief respite and now back with a vengeance
I suffer from restless legs syndrome and was prescribed pramipexole. I started a reduction program several months ago and by September I was down to half a tablet today. I was diagnosed with breast cancer and had to have a mastectomy 3 moths ago. Unbeknown to me the surgery temporarily raised my ferritin
I suffer from restless legs syndrome and was prescribed pramipexole. I started a reduction program several months ago and by September I was down to half a tablet today. I was diagnosed with breast cancer and had to have a mastectomy 3 moths ago. Unbeknown to me the surgery temporarily raised my ferritin
RestlessMe
in
Restless Legs Syndrome
1 year ago
Next steps?
Hi all, I've been lurking a while and am grateful for all I've learned so far! After a stressful period in my life I became unwell in May 2021 with severe fatigue, brain fog, feeling the cold and being very thirsty. In the course of testing and personal research I cut out gluten and my symptoms became
Hi all, I've been lurking a while and am grateful for all I've learned so far! After a stressful period in my life I became unwell in May 2021 with severe fatigue, brain fog, feeling the cold and being very thirsty. In the course of testing and personal research I cut out gluten and my symptoms became
kayscout
in
Thyroid UK
1 year ago
Iron results-any advice?
Hi! V grateful for all the wisdom from this forum. Just did a full iron panel on Medichecks as ferritin has been consistently low, and I've been on and off ferrous fumarate for years. GP only tests ferritin; advice on here seemed to be to get the full picture. Results below... Ferritin much better
Hi! V grateful for all the wisdom from this forum. Just did a full iron panel on Medichecks as ferritin has been consistently low, and I've been on and off ferrous fumarate for years. GP only tests ferritin; advice on here seemed to be to get the full picture. Results below... Ferritin much better
Penicookie
in
Thyroid UK
1 year ago
Anti depressants and RLS
Hi fellow sufferers. I weaned myself off of Sertraline in the summer as partly responsible for worsening my severe RLS. And I had an iron infusion in August. For the last 4-5 weeks I have been symptom free of RLS, though still on 50mg pregabalin. But I find myself at an all time low for other reasons
Hi fellow sufferers. I weaned myself off of Sertraline in the summer as partly responsible for worsening my severe RLS. And I had an iron infusion in August. For the last 4-5 weeks I have been symptom free of RLS, though still on 50mg pregabalin. But I find myself at an all time low for other reasons
veronal
in
Restless Legs Syndrome
1 year ago
Transferrin saturation iron results query please?
Hi,After testing via both usual companies and all failing for iron/ferritin have finally received some results through Monitormyheath,the NHS. I'm a bit confused by results, & contact is very slow,so thought I'd ask here meanwhile please. It said results wld be given as haemoglobin and transferrin as
Hi,After testing via both usual companies and all failing for iron/ferritin have finally received some results through Monitormyheath,the NHS. I'm a bit confused by results, & contact is very slow,so thought I'd ask here meanwhile please. It said results wld be given as haemoglobin and transferrin as
Jo5454
in
Thyroid UK
1 year ago
Post 2 - my own bloods - advice please :)
Hi everyone Posted about my dads bloods for feedback but also curious about my own results. I had my levels tested through GP a few weeks ago and they were looking good (tsh around 1, t4 I think around 17). I was therefore surprised to see the following when I got my tests done privately through medichecks
Hi everyone Posted about my dads bloods for feedback but also curious about my own results. I had my levels tested through GP a few weeks ago and they were looking good (tsh around 1, t4 I think around 17). I was therefore surprised to see the following when I got my tests done privately through medichecks
Needleandthread44
in
Thyroid UK
1 year ago
Latest bloods- advice please :)
Hi all, My dad has had his levo increased several times last year by private endo. He was on 75mcg and the endo has increased it steadily that now he is on 125mg daily. His most recent bloods (done through medichecks, 9am before any food drink or levo) TSH X 0.21 mIU/L (Range: 0.27 - 4.2) Free T3
Hi all, My dad has had his levo increased several times last year by private endo. He was on 75mcg and the endo has increased it steadily that now he is on 125mg daily. His most recent bloods (done through medichecks, 9am before any food drink or levo) TSH X 0.21 mIU/L (Range: 0.27 - 4.2) Free T3
Needleandthread44
in
Thyroid UK
1 year ago
Can you take an iron supplement for a short time without gp prescription?
Hi My last Ferritin result was 64 (30-150) I have read that Ferritin better to be at least 80 to help thyroid hormones work. I have lingering fatigue, terrible hair and a couple of other things. I read that the hair thing can also be low ferritin? I'm taking vit d and b complex. There's no way on this
Hi My last Ferritin result was 64 (30-150) I have read that Ferritin better to be at least 80 to help thyroid hormones work. I have lingering fatigue, terrible hair and a couple of other things. I read that the hair thing can also be low ferritin? I'm taking vit d and b complex. There's no way on this
BiscuitBaby
in
Thyroid UK
1 year ago
olaparib dosage adjustments
when I first started olaparib 4 months back, my Haemoglobin and platelets dropped significantly. I was asked to take 2 tabs (150mg each) twice a day. When haem dropped to 6.8, my doc reduced the dose to 1tab *2 and put me on iron supplement. Day before, haem went Upto 11, hence he has upped my dose
when I first started olaparib 4 months back, my Haemoglobin and platelets dropped significantly. I was asked to take 2 tabs (150mg each) twice a day. When haem dropped to 6.8, my doc reduced the dose to 1tab *2 and put me on iron supplement. Day before, haem went Upto 11, hence he has upped my dose
Goodgirl98
in
My Ovacome
1 year ago
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