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It has been my longest and toughest journey of my life.
My fibromyalgia started in a writer way. In 2019, I became very ill with several bloody UTIS, which then affected my skin, my body was producing what was similar to small fish scales, they would ping out of my skin all over my body. Come out my tear ducks. When I was on the loo I could hear them hitting
My fibromyalgia started in a writer way. In 2019, I became very ill with several bloody UTIS, which then affected my skin, my body was producing what was similar to small fish scales, they would ping out of my skin all over my body. Come out my tear ducks. When I was on the loo I could hear them hitting
Mazymoo
in
Fibromyalgia Action UK
1 year ago
Is it worth having a private iron panel done when the NHS results can be so different?
Whom should I believe? A few months ago (April) I had the results above via Medichecks. Last week these were the NHS results: Serum Iron: 29.5umol/L (14.00 - 30.00umol/L) Serum Ferritin 22 (13.00 - 150.00ug/L) Transferrin Saturation 39 (20.00 - 50.00%) TIBC 76 (50.00 - 72.00) So according to NHS
Whom should I believe? A few months ago (April) I had the results above via Medichecks. Last week these were the NHS results: Serum Iron: 29.5umol/L (14.00 - 30.00umol/L) Serum Ferritin 22 (13.00 - 150.00ug/L) Transferrin Saturation 39 (20.00 - 50.00%) TIBC 76 (50.00 - 72.00) So according to NHS
Alanna012
in
Thyroid UK
11 months ago
HELP PLEASE
I am writing this in the middle of the night because I can’t lie still. You can imagine how desperate I am to take a Pramipexole tablet. The good news is I have just done 10 days without any Pramipexole. Stupidly, I haven’t planned my next move. I spoke to a doctor yesterday (I’m in the UK) and he
I am writing this in the middle of the night because I can’t lie still. You can imagine how desperate I am to take a Pramipexole tablet. The good news is I have just done 10 days without any Pramipexole. Stupidly, I haven’t planned my next move. I spoke to a doctor yesterday (I’m in the UK) and he
Lineker
in
Restless Legs Syndrome
1 year ago
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Iron low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
25092
in
Pernicious Anaemia Society
1 year ago
Yawning so much! 🥱
Hello all, Quick question for you to help with if possible. Why, oh why do I yawn 🥱 upon doing any exercise? My Wk 1 R2 run was interspersed with so many yawns! But then I remembered I yawn if I ever go for a walk with steep inclines and yawn when I climb the hospital stairs at work. I do
Hello all, Quick question for you to help with if possible. Why, oh why do I yawn 🥱 upon doing any exercise? My Wk 1 R2 run was interspersed with so many yawns! But then I remembered I yawn if I ever go for a walk with steep inclines and yawn when I climb the hospital stairs at work. I do
Wonderland1
in
Couch to 5K
1 year ago
Any thought as to why ? ? ?
I have just received my blood results taken last week when I saw the endocrinologist..... Mean cell heamoglobin conc, blood 313 g/L Low 😗 I cant help but wonder why considering I am prescribed folic acid plus I take gentle iron. I had a full blood count done when I saw the reumatologist but as
I have just received my blood results taken last week when I saw the endocrinologist..... Mean cell heamoglobin conc, blood 313 g/L Low 😗 I cant help but wonder why considering I am prescribed folic acid plus I take gentle iron. I had a full blood count done when I saw the reumatologist but as
Jillymo
in
Pernicious Anaemia Society
1 year ago
Could I have Bowel Endometriosis?
Hello,I’m wondering if I have endometriosis but just not sure! I’ve been looking at past discussions here and a lot of the comments around bowel endometriosis are really relatable.After struggling with feeling really tired, light headed and often nauseous/ breathless plus increased period pain (mainly
Hello,I’m wondering if I have endometriosis but just not sure! I’ve been looking at past discussions here and a lot of the comments around bowel endometriosis are really relatable.After struggling with feeling really tired, light headed and often nauseous/ breathless plus increased period pain (mainly
Rachou
in
Endometriosis UK
1 year ago
New blood tests - advice welcome
I have just re-tested after 9 weeks of 69mg ferrous fumarate, 1 taken alternate days as suggested here, Thorne Basic B & Magnesium supplementation in hope of improving T4/T3 conversion. I'm on 125g Levothyroxine. I also take Vit D3 w K2 7000, Thorne Basic B, Magnesium 400mg/day, Zinc, Copper. Selenium
I have just re-tested after 9 weeks of 69mg ferrous fumarate, 1 taken alternate days as suggested here, Thorne Basic B & Magnesium supplementation in hope of improving T4/T3 conversion. I'm on 125g Levothyroxine. I also take Vit D3 w K2 7000, Thorne Basic B, Magnesium 400mg/day, Zinc, Copper. Selenium
HotelHurricaine
in
Thyroid UK
1 year ago
What do these lab results suggest to you please
Later today husband will be speaking to GP regarding latest TFTs which have been erratic this past 3 years. He’s not taking any thyroid replacement yet but I’m expecting - or should I say hoping - GP is going to prescribe something based on over range TSH, although I know they often wait for it to climb
Later today husband will be speaking to GP regarding latest TFTs which have been erratic this past 3 years. He’s not taking any thyroid replacement yet but I’m expecting - or should I say hoping - GP is going to prescribe something based on over range TSH, although I know they often wait for it to climb
Noelnoel
in
Thyroid UK
1 year ago
Cerelle for Adenomyesis?
Hi, I’ve recently been diagnosed with adenomyeosis, I was misdiagnosed with a fibroid but they’re pretty sure it’s adenomyeosis now. My main symptom is unmanageable periods getting worse and worse, they are so heavy that I tend not to leave the house during this time but of course some days I have to
Hi, I’ve recently been diagnosed with adenomyeosis, I was misdiagnosed with a fibroid but they’re pretty sure it’s adenomyeosis now. My main symptom is unmanageable periods getting worse and worse, they are so heavy that I tend not to leave the house during this time but of course some days I have to
Rainarosemary
in
Endometriosis UK
1 year ago
Sobriety and preparing withdrawal from Pramipexole
Hi RLSers, I have been struggling with RLS, first when I was around twenty years old and now as I am well into my middle age. I have been sober for 23 years, but a few years back I started taking Pramipexole. This drug has created more problems for me than it has solved. At the beginning it works
Hi RLSers, I have been struggling with RLS, first when I was around twenty years old and now as I am well into my middle age. I have been sober for 23 years, but a few years back I started taking Pramipexole. This drug has created more problems for me than it has solved. At the beginning it works
sigurdur
in
Restless Legs Syndrome
1 year ago
blood test back - any thoughts?
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
Phantom38
in
Restless Legs Syndrome
1 year ago
ferritin and Levo dose
Guidance please. GP did a blood test including iron as was feeling tired, cold and shaky. Currently on 100 Levo. I never have changed brand and always do a test 9am without medication within 24 hrs beforehand etc. These are results ; no t3 tested for some reason but historically has always been in range
Guidance please. GP did a blood test including iron as was feeling tired, cold and shaky. Currently on 100 Levo. I never have changed brand and always do a test 9am without medication within 24 hrs beforehand etc. These are results ; no t3 tested for some reason but historically has always been in range
Hopeful129
in
Thyroid UK
1 year ago
T3 or Hydrocortisone
I’ve historically had problems raising my levo dose, as soon as I get to 50, I start to feel dreadful. I’ve been experimenting with hydrocortisone at 2.5 and 5mg doses alongside the levo. I stopped the HC for a week to see if it made a difference and re-started again yesterday at 5mg. OH BOY! There’s
I’ve historically had problems raising my levo dose, as soon as I get to 50, I start to feel dreadful. I’ve been experimenting with hydrocortisone at 2.5 and 5mg doses alongside the levo. I stopped the HC for a week to see if it made a difference and re-started again yesterday at 5mg. OH BOY! There’s
Jamima
in
Thyroid UK
1 year ago
Looking for advice
Hello RLS tribe, I'm looking for advice on medication I take for rls, (I've had all the iron blood work done and am currently high in brain iron stores) I take 20mg of iron biglycinate daily to keep it high, along with magnesium malate, omega oils, vit c & b vitamins, currently what gives me a decent
Hello RLS tribe, I'm looking for advice on medication I take for rls, (I've had all the iron blood work done and am currently high in brain iron stores) I take 20mg of iron biglycinate daily to keep it high, along with magnesium malate, omega oils, vit c & b vitamins, currently what gives me a decent
Loopylegs
in
Restless Legs Syndrome
1 year ago
Retested: low D & B12, high ferritin
I have retested with medicheck because I'm in the queue to see a private endocrinologist about my symptoms. I was hoping that treating my vitamins and minerals may give a different thyroid hormone picture. Iron 239ug/L (range 30-150) I am under haematology, treated for iron deficiency anaemia. Tested
I have retested with medicheck because I'm in the queue to see a private endocrinologist about my symptoms. I was hoping that treating my vitamins and minerals may give a different thyroid hormone picture. Iron 239ug/L (range 30-150) I am under haematology, treated for iron deficiency anaemia. Tested
Insomania
in
Thyroid UK
1 year ago
Latest Blood Test Results
Good morning all. I have an endo appt this Thursday and am trying to prepare myself as I am worried my dosage of Levo might be reduced. I am concerned that T3 conversion needs improvement as I still don't feel 'good' but because my TSH is at the bottom of the range my endo may ignore my concern. I can't
Good morning all. I have an endo appt this Thursday and am trying to prepare myself as I am worried my dosage of Levo might be reduced. I am concerned that T3 conversion needs improvement as I still don't feel 'good' but because my TSH is at the bottom of the range my endo may ignore my concern. I can't
nimble
in
Thyroid UK
1 year ago
WEEKLY CHAT 24-30 APRIL 🫖☕️💬
Hello runners. How is everyone? Well, we’ve got to kick off with the London Marathon! Did you watch it? I don’t know about you but once that music starts I always a feel a bit emotional. So many inspiring stories of incredible achievement. Some disappointments too of course ☹️ We had three amazing
Hello runners. How is everyone? Well, we’ve got to kick off with the London Marathon! Did you watch it? I don’t know about you but once that music starts I always a feel a bit emotional. So many inspiring stories of incredible achievement. Some disappointments too of course ☹️ We had three amazing
Irishprincess
Administrator
in
Fun Beyond 10K & Race Support
1 year ago
Comments On Blood Test Results Please
I don't post very often but I read a lot on here, and after having a Blue Horizon full thyroid blood test, I would be interested in the thoughts of anyone on what came out of it. I had radioactive iodine some years ago and am on levothyroxine (100mg). My results from the GP always come back as 'normal
I don't post very often but I read a lot on here, and after having a Blue Horizon full thyroid blood test, I would be interested in the thoughts of anyone on what came out of it. I had radioactive iodine some years ago and am on levothyroxine (100mg). My results from the GP always come back as 'normal
Ant5
in
Thyroid UK
11 months ago
Comments On Blood Test Results Please
I don't post very often but I read a lot on here, and after having a Blue Horizon full thyroid blood test, I would be interested in the thoughts of anyone on what came out of it. I had radioactive iodine some years ago and am on levothyroxine (100mg). My results from the GP always come back as 'normal
I don't post very often but I read a lot on here, and after having a Blue Horizon full thyroid blood test, I would be interested in the thoughts of anyone on what came out of it. I had radioactive iodine some years ago and am on levothyroxine (100mg). My results from the GP always come back as 'normal
Ant5
in
Thyroid UK
11 months ago
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