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ASTRO, ASCO, & AUA strongly endorse a shortened course of IMRT for primary therapy
They strongly endorsed moderate hypofractionation (20 or 26 treatments) but only conditionally endorsed SBRT because they didn't consider any data after 3/31/2017. I think SBRT will receive a strong endorsement by this time next year. There is no reason any patient should have to suffer through and pay
They strongly endorsed moderate hypofractionation (20 or 26 treatments) but only conditionally endorsed SBRT because they didn't consider any data after 3/31/2017. I think SBRT will receive a strong endorsement by this time next year. There is no reason any patient should have to suffer through and pay
Tall_Allen
in
Prostate Cancer Network
6 years ago
Book recommendation
I’ve been living with a cancer diagnosis since November 19, 2008. What a journey! Recently, the nurse for my oncologist at the Proton Center in Jacksonville, Fla., where I had 19 proton beam treatments, 18 IMRT radiation treatments, and 7 taxotere treatments from March -May 2009, called me. She said
I’ve been living with a cancer diagnosis since November 19, 2008. What a journey! Recently, the nurse for my oncologist at the Proton Center in Jacksonville, Fla., where I had 19 proton beam treatments, 18 IMRT radiation treatments, and 7 taxotere treatments from March -May 2009, called me. She said
Hidden
in
Advanced Prostate Cancer
6 years ago
Surviving brain surgery after an abcsess
I remember some of the Sunday but nothing after that, I woke in
intensive
care
on the Friday briefly then woke again on the Sunday, I had no speech x was paralyzed down the right side from my head to my feet.
I remember some of the Sunday but nothing after that, I woke in
intensive
care
on the Friday briefly then woke again on the Sunday, I had no speech x was paralyzed down the right side from my head to my feet.
August1964
in
Headway
6 years ago
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Words, Abbreviations & Acronyms
As I read the posts here I am often overwhelmed by the acronyms, abbreviations, and drug names. I rarely know what they refer to. So I'm offering to compile a list of them not only for my own edification and understanding, but for others who might come here and be as confused as I am. So...here are
As I read the posts here I am often overwhelmed by the acronyms, abbreviations, and drug names. I rarely know what they refer to. So I'm offering to compile a list of them not only for my own edification and understanding, but for others who might come here and be as confused as I am. So...here are
DrWrite
in
Advanced Prostate Cancer
6 years ago
New Member - Hoping to be able to contribute to the rich knowledge base here!
As a follower and benefactor of the many knowledgeable posters here, I am now joining the community to share my experience with PC (& an indolent blood cancer, CLL). I was diagnosed with CLL 12 years ago. I have never needed treatment and am very stable Phase One at this time. I had robotic NSRP in
As a follower and benefactor of the many knowledgeable posters here, I am now joining the community to share my experience with PC (& an indolent blood cancer, CLL). I was diagnosed with CLL 12 years ago. I have never needed treatment and am very stable Phase One at this time. I had robotic NSRP in
cujoe
in
Advanced Prostate Cancer
6 years ago
Vegans save the planet (possibly)
Jerry raised an important point the other day concerning human health and the health of the planet. While it’s fashionable these days to tout meat-free diets as a cure for global warming (I think Angela Merkel was the latest to make a statement along those lines) it’s not really that simple. Some facts
Jerry raised an important point the other day concerning human health and the health of the planet. While it’s fashionable these days to tout meat-free diets as a cure for global warming (I think Angela Merkel was the latest to make a statement along those lines) it’s not really that simple. Some facts
TheAwfulToad
in
Healthy Eating
6 years ago
When is enough enough?
I'm facing a difficult decision. My PSA (620+) continues to rise and bone scans continue to show growth on my spine and ribs despite efforts with all mainstream treatments. It's been suggested by my MO that "we need to get you into a clinical trial while you still look good" meaning while I'm relatively
I'm facing a difficult decision. My PSA (620+) continues to rise and bone scans continue to show growth on my spine and ribs despite efforts with all mainstream treatments. It's been suggested by my MO that "we need to get you into a clinical trial while you still look good" meaning while I'm relatively
Rmanns
in
Advanced Prostate Cancer
6 years ago
Correlation between start of Lupron and start of RT
in my case Eligard. RO seems adamant about starting IMRT right at the 2 month mark from my 6 month Eligard injection. I am not getting the reasoning. (plan on asking him next week) common sense would make one wonder, why not start RT at 4 months? 3months? Is PC more radio sensitive at 2 months than 4
in my case Eligard. RO seems adamant about starting IMRT right at the 2 month mark from my 6 month Eligard injection. I am not getting the reasoning. (plan on asking him next week) common sense would make one wonder, why not start RT at 4 months? 3months? Is PC more radio sensitive at 2 months than 4
ezhoe
in
Advanced Prostate Cancer
6 years ago
Hello everyone I am Sarah and my lovely fiancé Steve has PSP
Steve took ill on the mini cruise and we were taken straight off the ship by ambulance to Southampton Hospital where Steve ended up in
Intensive
Care
with pneumonia, a week later we were transferred back home to Birmingham and he has been in Critical Care ever since.
Steve took ill on the mini cruise and we were taken straight off the ship by ambulance to Southampton Hospital where Steve ended up in
Intensive
Care
with pneumonia, a week later we were transferred back home to Birmingham and he has been in Critical Care ever since.
Hiking13
in
PSP Association
6 years ago
My dad got IMRT today!!!!!!
Thanks to SO many wonderful people who helped fight Florida Blue, my dad received a phone call today while we were on our way for his first standard radiation appt and they overturned the 5 denials!!!!! This would NOT have happened without those who fought for my dad and LCSM AND Denzie!!!!!! To all
Thanks to SO many wonderful people who helped fight Florida Blue, my dad received a phone call today while we were on our way for his first standard radiation appt and they overturned the 5 denials!!!!! This would NOT have happened without those who fought for my dad and LCSM AND Denzie!!!!!! To all
Lisam81
in
Lung Cancer Support
6 years ago
Great North Run report!!
I was about halfway back in the line up and as the Red Arrows flew over head it took about 25 minutes after Sir Mo and the elites started for me to shuffle forward to the start line. 3 of us started together to raise funds for the
intensive
care
unit at The Great North Childrens Hospital where my wife
I was about halfway back in the line up and as the Red Arrows flew over head it took about 25 minutes after Sir Mo and the elites started for me to shuffle forward to the start line. 3 of us started together to raise funds for the
intensive
care
unit at The Great North Childrens Hospital where my wife
ChrisAllen1
Graduate10
in
Bridge to 10K
6 years ago
Are you sepsis aware?
I followed my gut and once he was at hospital he was in
intensive
care
for 4 days!!!!! He remained in hospital for 10 days. The doctors said he had maybe hours to live!!!!! Again I don’t want to scare you I want to raise some awareness!!!!
I followed my gut and once he was at hospital he was in
intensive
care
for 4 days!!!!! He remained in hospital for 10 days. The doctors said he had maybe hours to live!!!!! Again I don’t want to scare you I want to raise some awareness!!!!
Lisalou19
in
LUPUS UK
6 years ago
Three And A Half Months Since I Lost My Beautiful Husband
Hi everyone. I just wanted to say hello and write to you all about how I have been these past three and a half months. Before I tell you how I have been, though, I would like to say that I feel very priviliged to be still part of this community of brave men fighting this disease and their devoted
Hi everyone. I just wanted to say hello and write to you all about how I have been these past three and a half months. Before I tell you how I have been, though, I would like to say that I feel very priviliged to be still part of this community of brave men fighting this disease and their devoted
MelaniePaul
in
Advanced Prostate Cancer
6 years ago
One year in.
Hi. I started my adventure a year ago today, 8/31/2017. I guess it's time to say hello. I'll throw down my numbers. Maybe it will make some of you feel better about your numbers. Last summer I started to have some old-man urinary symptoms. I was 51, so they seemed par for the course. I was feeling a
Hi. I started my adventure a year ago today, 8/31/2017. I guess it's time to say hello. I'll throw down my numbers. Maybe it will make some of you feel better about your numbers. Last summer I started to have some old-man urinary symptoms. I was 51, so they seemed par for the course. I was feeling a
RustyDakota
in
Advanced Prostate Cancer
6 years ago
Professor Christina
Hello lovely ladies and men. I’ve read all your wonderful messages. Your support and love is overwhelming. I’m sorry I e not replied to the messages but I’m so tired. Update. Thanks to your recommendations about professor Christina at the Hammersmith, we got an appointment with her yesterday morning
Hello lovely ladies and men. I’ve read all your wonderful messages. Your support and love is overwhelming. I’m sorry I e not replied to the messages but I’m so tired. Update. Thanks to your recommendations about professor Christina at the Hammersmith, we got an appointment with her yesterday morning
Suzanne333
in
My Ovacome
6 years ago
LCHF could be a boon for Diabetes if practised scientifically, but beginners may face a challenge if he is a vegetarian !
As a T2, You feel great with LCHF diet - thanks to this forum, you keep getting tips from the veterans to overcome the initial hurdles. It is a science - now getting recognised all over as a solution for obesity and diabetes. Once you undetstand the science and practice LCHF, you don't feel like
As a T2, You feel great with LCHF diet - thanks to this forum, you keep getting tips from the veterans to overcome the initial hurdles. It is a science - now getting recognised all over as a solution for obesity and diabetes. Once you undetstand the science and practice LCHF, you don't feel like
namaha
Administrator
in
Diabetes India
6 years ago
Recurrence after lymph node dissection / How best to stall PSA progression
Hi, I am new to this forum and looking for Tall Allen's (thanks for your past help Allen) or anybody else's thoughts. I have been treated since 2011 when I got diagnosed with a PSA of 65, Gleason 4+3=7 and seminal vesicle involvement. I had brachytherapy, IMRT and 2 years of hormone therapy done at
Hi, I am new to this forum and looking for Tall Allen's (thanks for your past help Allen) or anybody else's thoughts. I have been treated since 2011 when I got diagnosed with a PSA of 65, Gleason 4+3=7 and seminal vesicle involvement. I had brachytherapy, IMRT and 2 years of hormone therapy done at
Yarbo3
in
Advanced Prostate Cancer
6 years ago
We as caregivers are at increased risk for mental health and physical health problems
Today I read about this study in the UK: https://www.medpagetoday.com/psychiatry/anxietystress/74764 Unsurprisingly to me as a caregiver for someone living with melanoma, the results indicated that when caring for someone who is terminally ill with cancer, they were surprised at the sheer scale of the
Today I read about this study in the UK: https://www.medpagetoday.com/psychiatry/anxietystress/74764 Unsurprisingly to me as a caregiver for someone living with melanoma, the results indicated that when caring for someone who is terminally ill with cancer, they were surprised at the sheer scale of the
missyrand
Ambassador
in
Melanoma Caregivers
6 years ago
Update. Let’s take John English’s fight for best treatment viral.
This will s the info you need to contact the CEO. PLEASE take a moment and send him an email. —————— Please help this patient get the treatment he needs. His name is John W. English. He has lung cancer with SVC. His doctor ordered proton therapy because it’s safest. Florida Blue refused saying
This will s the info you need to contact the CEO. PLEASE take a moment and send him an email. —————— Please help this patient get the treatment he needs. His name is John W. English. He has lung cancer with SVC. His doctor ordered proton therapy because it’s safest. Florida Blue refused saying
Denzie
Volunteer
in
Lung Cancer Support
6 years ago
Raynaud’s Disease and Keto Diet update
I’ve been experimenting with deliberately challenging myself with low temperatures . This morning I walked 10 minutes to the local shop for some eggs, wearing short sleeves and no hat (and no hair!) in 11C. The walk back was COLD as I got soaked by steady rain with a temperature of probably 5C or less
I’ve been experimenting with deliberately challenging myself with low temperatures . This morning I walked 10 minutes to the local shop for some eggs, wearing short sleeves and no hat (and no hair!) in 11C. The walk back was COLD as I got soaked by steady rain with a temperature of probably 5C or less
2bats
in
Cure Parkinson's
6 years ago
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