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Saying Hello
Dropping into say hello to all of our friends on this forum! I am sorry it has been so long since I have posted. Life is full, and days turn into weeks, then to months. Most of you know exactly what I mean. Mom is doing ok; she has plateaued for now. Swallowing is still an issue, including the fact
Dropping into say hello to all of our friends on this forum! I am sorry it has been so long since I have posted. Life is full, and days turn into weeks, then to months. Most of you know exactly what I mean. Mom is doing ok; she has plateaued for now. Swallowing is still an issue, including the fact
bazooka111
in
PSP Association
3 years ago
No More Balloons For Me
Hello Brothers, Just finished up 25 rounds of proton beam radiation, and gladly rang the bell at Mayo! I am feeling much better now, walking, and gaining my strength back. Since my tumor was attached to my rectum, they had to insert a balloon up my ass and inflate with water before each treatment
Hello Brothers, Just finished up 25 rounds of proton beam radiation, and gladly rang the bell at Mayo! I am feeling much better now, walking, and gaining my strength back. Since my tumor was attached to my rectum, they had to insert a balloon up my ass and inflate with water before each treatment
DMohr011
in
Advanced Prostate Cancer
3 years ago
Sepsis
Hi all i had septic shock due to a binary infection last september and spent 5 weeks in
intensive
care
. I have an infected finger nail and it looks quite nasty and is very painful. I am also worried about sepsis coming back.
Hi all i had septic shock due to a binary infection last september and spent 5 weeks in
intensive
care
. I have an infected finger nail and it looks quite nasty and is very painful. I am also worried about sepsis coming back.
ZoeH1974
in
ICUsteps
3 years ago
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PCa symptom: Sweet Tooth?
Well, this is something that I did not expect. I have read up on prostate cancer and palliative care, and I prepared to see a loss of appetite in my dad. Wow was I wrong! He has gone the complete other way and it is hilarious. His craving for sweets is through the roof. It's only noon but so far he's
Well, this is something that I did not expect. I have read up on prostate cancer and palliative care, and I prepared to see a loss of appetite in my dad. Wow was I wrong! He has gone the complete other way and it is hilarious. His craving for sweets is through the roof. It's only noon but so far he's
ArabianNights
in
Advanced Prostate Cancer
3 years ago
Waiting on test results is often the hardest part
My Jeff had labs and a palliative care appointment. We are still reeling from the brain mets diagnosis, but I’m grateful to report that his pain is still reasonably managed. I’m typically the most vocal in his palliative care appointments as I strongly advocate for Jeff. As we waited for the doctor,
My Jeff had labs and a palliative care appointment. We are still reeling from the brain mets diagnosis, but I’m grateful to report that his pain is still reasonably managed. I’m typically the most vocal in his palliative care appointments as I strongly advocate for Jeff. As we waited for the doctor,
Pancake_Lefse
in
Advanced Prostate Cancer
3 years ago
Proton therapy vs IMRT?
Looked at studies - seem inconclusive as to any advantage for one over other. Some indications PT may have less side effects, maybe? Local radiation folks (Seattle Cancer Care Alliance) say have seen slightly more rectal bleeding from PT. Thoughts?
Looked at studies - seem inconclusive as to any advantage for one over other. Some indications PT may have less side effects, maybe? Local radiation folks (Seattle Cancer Care Alliance) say have seen slightly more rectal bleeding from PT. Thoughts?
conbio
in
Prostate Cancer Network
3 years ago
Introduction
I was in
intensive
care
for 3 days on ventilator, also in high dependency unit,surgical ward then plastics ward all within 4 weeks. I was then discharged with community nurses to change dressings. I though I had been great and just went with the flow because I had no choice.
I was in
intensive
care
for 3 days on ventilator, also in high dependency unit,surgical ward then plastics ward all within 4 weeks. I was then discharged with community nurses to change dressings. I though I had been great and just went with the flow because I had no choice.
Jolly1980
in
Anxiety Support
3 years ago
ICUSTEPSCHESTER changes it’s name and ……
ICUStepsChester started over 4 years ago to support
Intensive
Care
& HDU patients and their families who lived in the Chester and surrounding areas. They are managed by a team of volunteers and provide services which are free of charge.
ICUStepsChester started over 4 years ago to support
Intensive
Care
& HDU patients and their families who lived in the Chester and surrounding areas. They are managed by a team of volunteers and provide services which are free of charge.
FamilyHistorian
in
ICUsteps
3 years ago
1st meeting with RO tomorrow morning what questions should I ask?
If you could go back to your 1st meeting with your RO what do you wish you had asked? I have been on Eligard for 50 days, well tolerated so far. planning to start Zytiga on Nov. 2nd. Not sure when radiation treatments will actually start. The plan they have proposed for me is 28 sessions with a total
If you could go back to your 1st meeting with your RO what do you wish you had asked? I have been on Eligard for 50 days, well tolerated so far. planning to start Zytiga on Nov. 2nd. Not sure when radiation treatments will actually start. The plan they have proposed for me is 28 sessions with a total
Scout4answers
in
Advanced Prostate Cancer
3 years ago
A journey to come home
Around 3 weeks ago I put a post up asking for prayers. I want to thank you all for your thoughtful comments and keeping us in mind. I pray for you all daily. As an update, my dad is currently in palliative care at home. I wanted to provide a bit of back story on the situation - both the bad and good
Around 3 weeks ago I put a post up asking for prayers. I want to thank you all for your thoughtful comments and keeping us in mind. I pray for you all daily. As an update, my dad is currently in palliative care at home. I wanted to provide a bit of back story on the situation - both the bad and good
ArabianNights
in
Advanced Prostate Cancer
3 years ago
Seeking advice for rising PSA in 77 yo husband
Grateful for advice for my 78 yo husband. Any specific questions to ask hubs’ medical oncologist at tomorrow’s appt regarding rising PSA since Aug 2019: 0.05—8/9/19 0.08—2/11/20 0.18—8/19/20 0.21—1/6/21 0.24—4/8/21 0.47—7/15/21 0.38—10/14/21 Note: Axumen Pet/CT (9/4/20) & bone scan showed no metastases
Grateful for advice for my 78 yo husband. Any specific questions to ask hubs’ medical oncologist at tomorrow’s appt regarding rising PSA since Aug 2019: 0.05—8/9/19 0.08—2/11/20 0.18—8/19/20 0.21—1/6/21 0.24—4/8/21 0.47—7/15/21 0.38—10/14/21 Note: Axumen Pet/CT (9/4/20) & bone scan showed no metastases
Lyubov
in
Advanced Prostate Cancer
3 years ago
New Game plan
Thanks to all of you for your feedback, based on what I learned from this group I have a better understanding of what I need to do for a favorable outcome to the Oligometastatic disease I have been confronted with. Plan is to get PSMA scan and use aggressive radiation, including SBRT if needed, as well
Thanks to all of you for your feedback, based on what I learned from this group I have a better understanding of what I need to do for a favorable outcome to the Oligometastatic disease I have been confronted with. Plan is to get PSMA scan and use aggressive radiation, including SBRT if needed, as well
Scout4answers
in
Advanced Prostate Cancer
3 years ago
My mother Irina
Hi all, My name is Roman and I'm from Melbourne Australia. I haven't posted much but have followed the forum since my mum being diagnosed with stage 3 high grade serious ovarian cancer in 2017. I think I've read every post since joining and feel as though I know many of the ladies on here. I can't tell
Hi all, My name is Roman and I'm from Melbourne Australia. I haven't posted much but have followed the forum since my mum being diagnosed with stage 3 high grade serious ovarian cancer in 2017. I think I've read every post since joining and feel as though I know many of the ladies on here. I can't tell
RomanZ
in
My Ovacome
3 years ago
Can PSA be determined from the blood clots that are produced in from radiation cystitis?
Hubs had RARP 2014; IMRT & ADT 2016 for recurrence. He's now experiencing low but increasing (doubling) PSA. Simultaneously, having second bout of radiation cystitis, using Foley to dilate urethra. But blood clots are being produced. Just wondering if that sloughed off tissue (from bladder/urethra
Hubs had RARP 2014; IMRT & ADT 2016 for recurrence. He's now experiencing low but increasing (doubling) PSA. Simultaneously, having second bout of radiation cystitis, using Foley to dilate urethra. But blood clots are being produced. Just wondering if that sloughed off tissue (from bladder/urethra
Lyubov
in
Advanced Prostate Cancer
3 years ago
Follow up care was NOT scheduled
Sooo … when I was looking at Jeff’s upcoming appointments, I was really concerned there was no sense of urgency in his follow up care for the brain metastasis. I couldn’t shake my concern and pleaded with Jeff to let me message his care team to find out why there was such a delay. Jeff finally consented
Sooo … when I was looking at Jeff’s upcoming appointments, I was really concerned there was no sense of urgency in his follow up care for the brain metastasis. I couldn’t shake my concern and pleaded with Jeff to let me message his care team to find out why there was such a delay. Jeff finally consented
Pancake_Lefse
in
Advanced Prostate Cancer
3 years ago
Removal of tracheostomy after 1 week but advised no further intensive care or ventilation in future?! So confused and scared
and may never leave
intensive
care
.
and may never leave
intensive
care
.
Parapp
in
Headway
3 years ago
Webinar 11th August 12.30pm, CAR - T therapy update
We will be joined by: Professor Amit Patel, Consultant in Cellular Therapies and Transplantation, Haematology Oncology and
Intensive
Care
Medicine, Lead for Cellular/CAR-T Therapies, The Christie NHS Foundation Trust.
We will be joined by: Professor Amit Patel, Consultant in Cellular Therapies and Transplantation, Haematology Oncology and
Intensive
Care
Medicine, Lead for Cellular/CAR-T Therapies, The Christie NHS Foundation Trust.
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Has anyone here completely overcome Radiation Cystitis or Radiation Urethritis for the long term?
Asking because my hubs is having 2nd bout in less than 1 year. Urologist is repeating same procedure of dilating urethra using successively larger catheters every two weeks with Foley 24/7 apparatus. Last bout, hubs started out with bleeding & blood clots. This time, no blood at first, just had hard
Asking because my hubs is having 2nd bout in less than 1 year. Urologist is repeating same procedure of dilating urethra using successively larger catheters every two weeks with Foley 24/7 apparatus. Last bout, hubs started out with bleeding & blood clots. This time, no blood at first, just had hard
Lyubov
in
Advanced Prostate Cancer
3 years ago
LCHF - the scientific explanation
I was just browsing Youtube last night and came across this excellent video by Dr Garry Fettke which explains why the LCHF diet is so healthy. https://youtu.be/e2g-OW-NZcY
I was just browsing Youtube last night and came across this excellent video by Dr Garry Fettke which explains why the LCHF diet is so healthy. https://youtu.be/e2g-OW-NZcY
Eryl
Visitor
in
Weight Loss Support
3 years ago
Small update on my Jeff
Since the Zytiga/Prednisone can potentially make Jeff sick, while he’s in the hospital, they have suspended his cancer treatment. Currently, it’ll be at least Tuesday for discharge. Once he resumes the medication however, his oncologist authorized taking the Zytiga at night and the Prednisone in the
Since the Zytiga/Prednisone can potentially make Jeff sick, while he’s in the hospital, they have suspended his cancer treatment. Currently, it’ll be at least Tuesday for discharge. Once he resumes the medication however, his oncologist authorized taking the Zytiga at night and the Prednisone in the
Pancake_Lefse
in
Advanced Prostate Cancer
3 years ago
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