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Iron Levels with CLL
Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't seem too concerned and I also see a doc in Cincinnati that says low iron is not normal with CLL/acalabrutinib, so he wants me to have an upper
Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't seem too concerned and I also see a doc in Cincinnati that says low iron is not normal with CLL/acalabrutinib, so he wants me to have an upper
susq9948
in
CLL Support
1 year ago
Chest pain, buzzing, popping and strong heartbeats
sometimes and I rarely need to take
Inderal
to stop the palpitations and anxiety. I often wake up with either numb fingers or hands. I've went to many doctors and they could not diagnose the problem. I did many echocardiograms and they're all different.
sometimes and I rarely need to take
Inderal
to stop the palpitations and anxiety. I often wake up with either numb fingers or hands. I've went to many doctors and they could not diagnose the problem. I did many echocardiograms and they're all different.
yanask
in
Pain Concern
2 years ago
Low Ferritin and iron supplements & Iron Panel interpretation
Further to my post of 24.10.22 Endo increased my Levo to 75 mcg daily and advised TSH to aim for 0.5-2.5, when I mentioned low ferritin she looked at the blood test and said everything is within range? Said my symptoms of brain fog, swimmy head, heaviness and tinitis are unlikely related to thyroid
Further to my post of 24.10.22 Endo increased my Levo to 75 mcg daily and advised TSH to aim for 0.5-2.5, when I mentioned low ferritin she looked at the blood test and said everything is within range? Said my symptoms of brain fog, swimmy head, heaviness and tinitis are unlikely related to thyroid
Watamu
in
Thyroid UK
1 year ago
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New results-any insight appreciated
ThyroidTSH 3.1 range 0.27-4.20 TsH 4 14.3 range 12-22 B12 760 range 197-771 on 8 weekly injections Folate >20 range 3.9 - 26.8 Vit D 72 Ferritin 55 range 13-150 Iron Serum iron 20.4 range 5.8-34.5 % transferrin 2.25 range 2-3.6 % saturation 36% range 16-40% Stopped taking PPI 2 months ago and propranolol
ThyroidTSH 3.1 range 0.27-4.20 TsH 4 14.3 range 12-22 B12 760 range 197-771 on 8 weekly injections Folate >20 range 3.9 - 26.8 Vit D 72 Ferritin 55 range 13-150 Iron Serum iron 20.4 range 5.8-34.5 % transferrin 2.25 range 2-3.6 % saturation 36% range 16-40% Stopped taking PPI 2 months ago and propranolol
Paula1710
in
Thyroid UK
1 year ago
B12 Conference Netherlands June 2023
Hi All, Thought some of you might be interested in this conference. Maybe your doctors might be interested? First International Conference on Vitamin B12 Deficiency in Clinical Practice https://b12-institute.nl/b12-conference-june-2023/ The Bookends of Life: pregnancy, childhood, adults, & the
Hi All, Thought some of you might be interested in this conference. Maybe your doctors might be interested? First International Conference on Vitamin B12 Deficiency in Clinical Practice https://b12-institute.nl/b12-conference-june-2023/ The Bookends of Life: pregnancy, childhood, adults, & the
Sleepybunny
in
Pernicious Anaemia Society
1 year ago
Advice on iron test results please
Having had a history of low ferritin and been prescribed iron tablets, I thought I’d do a test to see if I actually needed them. Surprisingly, my ferritin level has improved but is still not optimal to support my thyroid. Should I take the iron supplements?
Having had a history of low ferritin and been prescribed iron tablets, I thought I’d do a test to see if I actually needed them. Surprisingly, my ferritin level has improved but is still not optimal to support my thyroid. Should I take the iron supplements?
Pastelart
in
Thyroid UK
1 year ago
USA Iron Infusion billing code E83.1
I finally got an iron infusion approved for tomorrow. The doc put request in for anemia but I got the correct billing code from the RLS Foundation:E83.1 Disorder of iron metabolism, unspecified. Excludes1: iron deficiency anemia/ sideroblastic anemia E83 Excludes1: dietary mineral deficiency/ parathyroid
I finally got an iron infusion approved for tomorrow. The doc put request in for anemia but I got the correct billing code from the RLS Foundation:E83.1 Disorder of iron metabolism, unspecified. Excludes1: iron deficiency anemia/ sideroblastic anemia E83 Excludes1: dietary mineral deficiency/ parathyroid
SkyCop
in
Restless Legs Syndrome
1 year ago
Neuropsychiatric symptoms of B12 deficiency
I came across an article that seems quite informative on the general topic of B12 deficiency, and especially on the topic of its neuropsychiatric symptoms. The article title is "The Neuropsychiatry of Vitamin B12 Deficiency in Elderly Patients". Here is the link: https://neuro.psychiatryonline.org
I came across an article that seems quite informative on the general topic of B12 deficiency, and especially on the topic of its neuropsychiatric symptoms. The article title is "The Neuropsychiatry of Vitamin B12 Deficiency in Elderly Patients". Here is the link: https://neuro.psychiatryonline.org
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Vitamin B12
Hi everyone, I just read some posts relating to vitamin B12 injections.a few months ago I began getting a vitaminB12 injection privately as I believed that its harder for older people to make the vitamin, plus I hoped it would possibly lessen my RLS.im due another injection shortly, please can I have
Hi everyone, I just read some posts relating to vitamin B12 injections.a few months ago I began getting a vitaminB12 injection privately as I believed that its harder for older people to make the vitamin, plus I hoped it would possibly lessen my RLS.im due another injection shortly, please can I have
Whymelord
in
Restless Legs Syndrome
1 year ago
WHAT’S THE DIFFERENCE BETWEEN VITAMIN B12 DEFICIENCY AND PERNICIOUS ANAEMIA?
The above is the title of a webpage on the Home page of the PAS (first tab). However, like a Times article, the headline bears no relationship with the words below., ie it doesn't describe the difference, it just describes B12 deficiency. There is a similar page describing Pernicious Anaemia, but again
The above is the title of a webpage on the Home page of the PAS (first tab). However, like a Times article, the headline bears no relationship with the words below., ie it doesn't describe the difference, it just describes B12 deficiency. There is a similar page describing Pernicious Anaemia, but again
BrianTheElder
in
Pernicious Anaemia Society
1 year ago
Jaundice?
Hi everyone, I got diagnosed with a b12 deficiency and have had 6 b12 shots as part of my loading doses. I have noticed my skin turning yellow on the palms of my hands and was wondering if anyone else has experienced this as a result of a b12 deficiency. I have a doctors appointment in a couple of weeks
Hi everyone, I got diagnosed with a b12 deficiency and have had 6 b12 shots as part of my loading doses. I have noticed my skin turning yellow on the palms of my hands and was wondering if anyone else has experienced this as a result of a b12 deficiency. I have a doctors appointment in a couple of weeks
bchase
in
Pernicious Anaemia Society
2 years ago
is active b12 a better indicator than free b12
hi all my recent total b12 test came in at 468 (range 179-2000) so just 17% through range. I take sublingual b12 drops daily, a vitamin b complex tablet and I had a b12 shot a few weeks ago and so wasn’t expecting it to drop. I got my active b12 test back today and it says 116 (range 37.5-150) so
hi all my recent total b12 test came in at 468 (range 179-2000) so just 17% through range. I take sublingual b12 drops daily, a vitamin b complex tablet and I had a b12 shot a few weeks ago and so wasn’t expecting it to drop. I got my active b12 test back today and it says 116 (range 37.5-150) so
Knackeredandcross
in
Pernicious Anaemia Society
2 years ago
Some Help with Vits and Mins Please
Hello It's a constant struggle for me to raise and hold my ferritin, folate and B12 levels. They fight to drop lower all the time. I eat as much recommended iron rich foods as I can (but I just can't eat as much of this as I did because I don't have the energy to cook breakfast anymore which is where
Hello It's a constant struggle for me to raise and hold my ferritin, folate and B12 levels. They fight to drop lower all the time. I eat as much recommended iron rich foods as I can (but I just can't eat as much of this as I did because I don't have the energy to cook breakfast anymore which is where
FancyPants54
in
Thyroid UK
2 years ago
Reactions to Antibiotics and unable to treat UTI/Prostatitis
Hello all, I'll try to keep this as short as possible! Background: Vegan since 2012, vegetarian from 2007. I stopped multivitamin that contained 160 mcg of B12 in July 2021 until late July 2022. Dietary intake 1 mcg b12 /day for a year (swapped out soy milk for another version and it wasn't fortified
Hello all, I'll try to keep this as short as possible! Background: Vegan since 2012, vegetarian from 2007. I stopped multivitamin that contained 160 mcg of B12 in July 2021 until late July 2022. Dietary intake 1 mcg b12 /day for a year (swapped out soy milk for another version and it wasn't fortified
Whoa182
in
Pernicious Anaemia Society
2 years ago
Diagnosed with b12 deficiency not pernicious anemia so far.
Wondering if anyone suspects covid vaccine and b12 deficiency. I have tinnitus b12. speech impairment headaches last about 2 minutes also transulent zig zags over my eyes again lasts 2 minutes. Taking b12 injections monthly. Is this enough given my symptoms. Would like to hear if others have my symptoms
Wondering if anyone suspects covid vaccine and b12 deficiency. I have tinnitus b12. speech impairment headaches last about 2 minutes also transulent zig zags over my eyes again lasts 2 minutes. Taking b12 injections monthly. Is this enough given my symptoms. Would like to hear if others have my symptoms
Janeames
in
Pernicious Anaemia Society
2 years ago
Too much iron?
I had the results of my Medichecks Advanced Thyroid Function Blood Test yesterday. I have had Hashimotos for many years and am on 125mcm Thyroxine. My antibodies were very high, as always, but free T3 and free T4 were well in range. My TSH is always rock bottom as I have secondary hypothyroidism.
I had the results of my Medichecks Advanced Thyroid Function Blood Test yesterday. I have had Hashimotos for many years and am on 125mcm Thyroxine. My antibodies were very high, as always, but free T3 and free T4 were well in range. My TSH is always rock bottom as I have secondary hypothyroidism.
Kenley
in
Thyroid UK
2 years ago
Should my niece be treated for pernicious aneamia or at least b12 deficiency please
My neice had vitamin b12 result of 265 ( range is 211 to 911) and iron was low at the time . She was given iron tablets on prescription at time . Her ferritin was 14 (10 to 291 ) . HB was 130 (115 to 165 ) . I know they are in range but was thinking is she heading for pernicious anaemia . And do u find
My neice had vitamin b12 result of 265 ( range is 211 to 911) and iron was low at the time . She was given iron tablets on prescription at time . Her ferritin was 14 (10 to 291 ) . HB was 130 (115 to 165 ) . I know they are in range but was thinking is she heading for pernicious anaemia . And do u find
poppppy
in
Pernicious Anaemia Society
2 years ago
B12 injections from Germany
Hi,, i have just gone to re order from Versandapo the Vitamin B12 Depot Rotexmedica injections and they are currently unavailable. Can i purchase anywhere else?
Hi,, i have just gone to re order from Versandapo the Vitamin B12 Depot Rotexmedica injections and they are currently unavailable. Can i purchase anywhere else?
Hidden
in
Pernicious Anaemia Society
2 years ago
Co-morbidities with B12D/PA
Did anyone get any strange or unusual comorbidities around the time of their B12 deficiency or PA diagnosis? I just spoke with the hospital concerning a check-up on my parotid gland - a pleomorphic adenoma I had removed in 2020 along with a co-occurring thyroid nodule removal. They state that they
Did anyone get any strange or unusual comorbidities around the time of their B12 deficiency or PA diagnosis? I just spoke with the hospital concerning a check-up on my parotid gland - a pleomorphic adenoma I had removed in 2020 along with a co-occurring thyroid nodule removal. They state that they
Pickle500
in
Pernicious Anaemia Society
2 years ago
iron DROPPED on iron supplementation
Hi everyone, back in September I did a full iron panel as I suspected my iron was causing issues with raising my armour doses. After receiving my results I posted them here and had some great advice from human bean and started supplementing with ferrousgluconate 3 x daily with vit c. I also increased
Hi everyone, back in September I did a full iron panel as I suspected my iron was causing issues with raising my armour doses. After receiving my results I posted them here and had some great advice from human bean and started supplementing with ferrousgluconate 3 x daily with vit c. I also increased
Beau55
in
Thyroid UK
2 years ago
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