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Co-morbidities with B12D/PA
Did anyone get any strange or unusual comorbidities around the time of their B12 deficiency or PA diagnosis? I just spoke with the hospital concerning a check-up on my parotid gland - a pleomorphic adenoma I had removed in 2020 along with a co-occurring thyroid nodule removal. They state that they
Did anyone get any strange or unusual comorbidities around the time of their B12 deficiency or PA diagnosis? I just spoke with the hospital concerning a check-up on my parotid gland - a pleomorphic adenoma I had removed in 2020 along with a co-occurring thyroid nodule removal. They state that they
Pickle500
in
Pernicious Anaemia Society
1 year ago
iron DROPPED on iron supplementation
Hi everyone, back in September I did a full iron panel as I suspected my iron was causing issues with raising my armour doses. After receiving my results I posted them here and had some great advice from human bean and started supplementing with ferrousgluconate 3 x daily with vit c. I also increased
Hi everyone, back in September I did a full iron panel as I suspected my iron was causing issues with raising my armour doses. After receiving my results I posted them here and had some great advice from human bean and started supplementing with ferrousgluconate 3 x daily with vit c. I also increased
Beau55
in
Thyroid UK
1 year ago
Iron bisglycinate with vitamin b12….
I bought the iron from Thorne but when it arrived I saw that each capsule has 300 mcg of vitamin b12. If I take 75 mg of iron, that will be 900 mcg of the b vitamin. Does anyone know if that is likely to keep me awake or otherwise make it harder to fall asleep? Thank you to anyone who answers!
I bought the iron from Thorne but when it arrived I saw that each capsule has 300 mcg of vitamin b12. If I take 75 mg of iron, that will be 900 mcg of the b vitamin. Does anyone know if that is likely to keep me awake or otherwise make it harder to fall asleep? Thank you to anyone who answers!
Abby2525
in
Restless Legs Syndrome
1 year ago
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B12 range - Dutch B12 deficiency organisation
In my search to understand my B12 levels better, I came across this article which I thought was interesting. https://stichtingb12tekort.nl/zou-ik-een-b12-tekort-kunnen-hebben/hoe-worden-referentiewaarden-vastgesteld-en-hoe-zouden-ze-gebruikt-moeten-worden/ Sorry if it has been posted before or if there's
In my search to understand my B12 levels better, I came across this article which I thought was interesting. https://stichtingb12tekort.nl/zou-ik-een-b12-tekort-kunnen-hebben/hoe-worden-referentiewaarden-vastgesteld-en-hoe-zouden-ze-gebruikt-moeten-worden/ Sorry if it has been posted before or if there's
Dandelions
in
Thyroid UK
1 year ago
Advice on my blood test results, please.
Hello, I was diagnosed in August and really benefitted from advice from people here. I am lacking confidence in the GP as I feel they don't do anything proactively, although they have seemed happy to follow the guidance I am given here. My blood test results are below. I have been prescribed Vitamin
Hello, I was diagnosed in August and really benefitted from advice from people here. I am lacking confidence in the GP as I feel they don't do anything proactively, although they have seemed happy to follow the guidance I am given here. My blood test results are below. I have been prescribed Vitamin
Tired2022
in
Thyroid UK
1 year ago
Vitamin D, Folate but not B12?
Not been about much lately due to getting busy with the new service I set up, so I hope everyone is well. A few will remember the hassle I had around 18 months ago getting my daughter's GP to get her 'Active' B12 checked, it never happened. She's continued to struggle feeling tired etc etc. Her new
Not been about much lately due to getting busy with the new service I set up, so I hope everyone is well. A few will remember the hassle I had around 18 months ago getting my daughter's GP to get her 'Active' B12 checked, it never happened. She's continued to struggle feeling tired etc etc. Her new
Ritchie1268
in
Pernicious Anaemia Society
1 year ago
Ferritin level is lower
My blood results are now TSATs 26 and Ferritin is 95. However in August my TSATs were 29 and Ferritin 217. I am still taking iron alternate days with vitamin c. Can anyone advise how I can improve my ferritin levels please? Also why would ferritin have reduced so much? Thankyou
My blood results are now TSATs 26 and Ferritin is 95. However in August my TSATs were 29 and Ferritin 217. I am still taking iron alternate days with vitamin c. Can anyone advise how I can improve my ferritin levels please? Also why would ferritin have reduced so much? Thankyou
Biscuitface
in
Restless Legs Syndrome
1 year ago
B12 Reading
I found a couple of interesting articles about B12 deficiency https://lpi.oregonstate.edu/mic/vitamins/vitamin-B12 This article talks about a study the US Department of Agriculture undertook which says as many as two fifths of the US population may be B12 deficient. https://www.legistorm.com/stormfeed
I found a couple of interesting articles about B12 deficiency https://lpi.oregonstate.edu/mic/vitamins/vitamin-B12 This article talks about a study the US Department of Agriculture undertook which says as many as two fifths of the US population may be B12 deficient. https://www.legistorm.com/stormfeed
MoKayD
in
Pernicious Anaemia Society
1 year ago
The Human Serum Metabolome of Vitamin B-12 Deficiency and Repletion, and Associations with Neurological Function in Elderly Adults
Just came across this paper from a few years ago. Thought it interesting as, so often, B12 seems to be though of as a one-trick pony - affecting erythropoiesis and nothing else. The occasional use of methylmalonic acid and homocysteine as additional tests. And that's your lot, folks. In my
Just came across this paper from a few years ago. Thought it interesting as, so often, B12 seems to be though of as a one-trick pony - affecting erythropoiesis and nothing else. The occasional use of methylmalonic acid and homocysteine as additional tests. And that's your lot, folks. In my
helvella
in
Pernicious Anaemia Society
1 year ago
b12 advice please
Ranges for b12 in my area are 180 to 2000ngl Stop the thyroid madness say that serum b12 should be in the upper quarter of any range for health of thyroid along with optimum ferritin folate and d3. I have been concentrating on trying to get all the levels to optimum. I believe that my b12 has been low
Ranges for b12 in my area are 180 to 2000ngl Stop the thyroid madness say that serum b12 should be in the upper quarter of any range for health of thyroid along with optimum ferritin folate and d3. I have been concentrating on trying to get all the levels to optimum. I believe that my b12 has been low
Badmintonteresas
in
Thyroid UK
1 year ago
Can anyone recommend a good private pernicious anemia doctor anywhere in Scotland? Two NHS GPs ignored my symptoms they don't listen
Hello, I am desperately looking for a doctor who is competent about vitamin B12 deficiency and/or pernicious anemia. I am positive to gastric parietal cell antibodies, my B12 levels are 444 (should be between 200-883) so nobody takes me seriously because it's not low. GPs won't even consider injections
Hello, I am desperately looking for a doctor who is competent about vitamin B12 deficiency and/or pernicious anemia. I am positive to gastric parietal cell antibodies, my B12 levels are 444 (should be between 200-883) so nobody takes me seriously because it's not low. GPs won't even consider injections
Patient300
in
Pernicious Anaemia Society
1 year ago
Vitamin B complex without B 12
Hi all,I am trying my best to work on an optimal vitamins level for me. Reading loads about best substances to take for each them for a better digestion. I think I got to the best iron, B12, vitamin D, vitamine C and Magnessium for me but struggling to find a highly absorvable Vitamin B Complex without
Hi all,I am trying my best to work on an optimal vitamins level for me. Reading loads about best substances to take for each them for a better digestion. I think I got to the best iron, B12, vitamin D, vitamine C and Magnessium for me but struggling to find a highly absorvable Vitamin B Complex without
Carlax
in
Thyroid UK
1 year ago
Testing coming up
I read this helpful info on a forum post here from the admin: “Taking supplements that contain B12 will affect any tests ordered by your doctor to assess your B12 status. You should not take any supplement with B12 before having your B12 assessed (including MMA/homocysteine/Active B12). For testing
I read this helpful info on a forum post here from the admin: “Taking supplements that contain B12 will affect any tests ordered by your doctor to assess your B12 status. You should not take any supplement with B12 before having your B12 assessed (including MMA/homocysteine/Active B12). For testing
kushami36
in
Pernicious Anaemia Society
1 year ago
Perspective: The High-Folate–Low-Vitamin B-12 Interaction Is a Novel Cause of Vitamin B-12 Depletion with a Specific Etiology—A Hypothesis
Note: This paper is presented by its own authors as a [u]hypothesis[/u] rather than a wholly proved and accepted theory. However, excess folic acid has been identified as an issue many times. Typically, a GP prescribes 5 milligram doses, every day, and the patient continues taking that indefinitely
Note: This paper is presented by its own authors as a [u]hypothesis[/u] rather than a wholly proved and accepted theory. However, excess folic acid has been identified as an issue many times. Typically, a GP prescribes 5 milligram doses, every day, and the patient continues taking that indefinitely
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Multi Vitamins
I am having a total gastrectomy in December and have been told that I will need to take a multi vitamin for the rest of my life, however the one the dietician recommended has vitamin K in it. Can anyone recommend a multi vitamin without this vitamin in that I can purchase in uk please. Many thanks
I am having a total gastrectomy in December and have been told that I will need to take a multi vitamin for the rest of my life, however the one the dietician recommended has vitamin K in it. Can anyone recommend a multi vitamin without this vitamin in that I can purchase in uk please. Many thanks
Molly100
in
Hughes Syndrome APS Forum
1 year ago
Iron Levels
I am on a reduction program for pramipexole, and it’s going really well. I’m taking gentle iron every other night. I also have some codeine tablets and I take one at bedtime. However I had surgery about eight weeks ago. I had my second full iron panel blood test about four weeks ago. My ferritin levels
I am on a reduction program for pramipexole, and it’s going really well. I’m taking gentle iron every other night. I also have some codeine tablets and I take one at bedtime. However I had surgery about eight weeks ago. I had my second full iron panel blood test about four weeks ago. My ferritin levels
RestlessMe
in
Restless Legs Syndrome
1 year ago
b12 availability?
I have been advised to have B9/folate. How would I know B12 levels are ‘available’?
I have been advised to have B9/folate. How would I know B12 levels are ‘available’?
PaulaG3
in
Pernicious Anaemia Society
1 year ago
B12 Test
I would like to get my B12 tested again using private Active B12 test. Last jab 2 weeks ago and take supplements. Would this be ok?
I would like to get my B12 tested again using private Active B12 test. Last jab 2 weeks ago and take supplements. Would this be ok?
smg1950
in
Pernicious Anaemia Society
1 year ago
Liposomal B12
Does anyone know about this form of B12? is it more effective than standard B12 supplements? would it be an alternative to injections?
Does anyone know about this form of B12? is it more effective than standard B12 supplements? would it be an alternative to injections?
Vonni7
in
Pernicious Anaemia Society
1 year ago
Questions & Advice for a newbie please!
Hi all, I've been investigating possible causes of long-term fatigue. My symptoms & PA risk factors are listed below. I'm currently waiting on results for the Intrinsic factor antibodies test (bloods taken over 2 weeks ago through GP). On advice of a nutritionist I've been taking an oral B complex,
Hi all, I've been investigating possible causes of long-term fatigue. My symptoms & PA risk factors are listed below. I'm currently waiting on results for the Intrinsic factor antibodies test (bloods taken over 2 weeks ago through GP). On advice of a nutritionist I've been taking an oral B complex,
Spiralizer
in
Pernicious Anaemia Society
1 year ago
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