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Update on rheumatologist appointment
Hi. Thanks to all who commented on my rituximab post. Was at the rheumatologist today. He wants me to reduce to a three day week until next treatment takes effect. While I agree I currently have no balance and spend all time away from work trying to give my kids time and recovering to start over. I
Hi. Thanks to all who commented on my rituximab post. Was at the rheumatologist today. He wants me to reduce to a three day week until next treatment takes effect. While I agree I currently have no balance and spend all time away from work trying to give my kids time and recovering to start over. I
Stynk
in
NRAS
9 years ago
I Thought a lot of you might be interested in this
New technique bodes well for lung transplant success rate •Nick Lavars •September 20, 2015 The EVLP-treated lungs showed little signs of rejection, while the lungs transplanted without the treatment all showed signs of severe rejection (Credit: University of Manchester) Our bodies have developed
New technique bodes well for lung transplant success rate •Nick Lavars •September 20, 2015 The EVLP-treated lungs showed little signs of rejection, while the lungs transplanted without the treatment all showed signs of severe rejection (Credit: University of Manchester) Our bodies have developed
tomhatha
in
Lung Conditions Community Forum
9 years ago
Cancer drug promises to break down barrier to HIV cure (T-cells and antiretroviral treatments)
There are offshoots from HIV research that can help CLL research. HIV is so difficult to cure because [i]"While antiretroviral treatment successfully suppresses HIV replication in an infected person, it can’t completely remove the virus. This is due to the virus' ability to integrate itself into the
There are offshoots from HIV research that can help CLL research. HIV is so difficult to cure because [i]"While antiretroviral treatment successfully suppresses HIV replication in an infected person, it can’t completely remove the virus. This is due to the virus' ability to integrate itself into the
AussieNeil
Partner
in
CLL Support
9 years ago
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LDN, collagen, and other alternatives
I'm now 9 months into polymyalgic-onset, late-onset RA. Our first working dx was PMR, and since I can't take prednisone, I began researching alternatives. I found a journal article about low dose naltrexone, "The use of low-dose naltrexone (LDN) as a novel anti-inflammatory treatment for chronic pain
I'm now 9 months into polymyalgic-onset, late-onset RA. Our first working dx was PMR, and since I can't take prednisone, I began researching alternatives. I found a journal article about low dose naltrexone, "The use of low-dose naltrexone (LDN) as a novel anti-inflammatory treatment for chronic pain
Julie_R
in
NRAS
9 years ago
Not diagnosed
Hi Everyone - I have not even been to the GP yet but will go if symptoms continue, just wanted a view - know you cannot diagnose! In the last few weeks my knees are very stiff in the morning and become very painful after standing for some time. My knuckles are sometimes swollen and some are becoming
Hi Everyone - I have not even been to the GP yet but will go if symptoms continue, just wanted a view - know you cannot diagnose! In the last few weeks my knees are very stiff in the morning and become very painful after standing for some time. My knuckles are sometimes swollen and some are becoming
CDreamer
in
NRAS
9 years ago
Flu Vaccination Time
Hi folks, it's that time of year when we have to start thinking about flu jabs and the government have issued their vaccination advice (see the links below). The general advice is that immunosuppressed people should have the flu jab unless you are allergic to it. However, please talk to your GP and
Hi folks, it's that time of year when we have to start thinking about flu jabs and the government have issued their vaccination advice (see the links below). The general advice is that immunosuppressed people should have the flu jab unless you are allergic to it. However, please talk to your GP and
RichardE
Volunteer
in
Vasculitis UK
9 years ago
The Vocabulary of Pain (gratuitous prose)
The drugs used to treat it are
immunosuppressants
, and can be as hard to deal with as the disease itself. This has not been a fun ride, but as I slowly come to terms with it I find myself learning the words pain wants to teach me. They’re small words, easy to say and hard to forget.
The drugs used to treat it are
immunosuppressants
, and can be as hard to deal with as the disease itself. This has not been a fun ride, but as I slowly come to terms with it I find myself learning the words pain wants to teach me. They’re small words, easy to say and hard to forget.
Azabat
in
NRAS
9 years ago
Help: How to treat cold sores?
Hello all. I have a nasty but relatively small cold sore in the corner of my mouth...am a bit run down after a little urology op under general anaesthetic 3 weeks ago...was gradually recovering when a houseguest came for the past week...meanwhile was managing a flare of big eroding lesions in my hard
Hello all. I have a nasty but relatively small cold sore in the corner of my mouth...am a bit run down after a little urology op under general anaesthetic 3 weeks ago...was gradually recovering when a houseguest came for the past week...meanwhile was managing a flare of big eroding lesions in my hard
Barnclown
in
LUPUS UK
9 years ago
Do immunosuppressants and sushi mix?
came home my tummy was doing stunts and show and I was up all night I’m not sure if Imagined this having this conversation when I started taking rituximab infusion but I think I'm meant to stay away from sushi (or perhaps I am thinking about a tv show referring to pregnant women) Has anyone on
immunosuppressants
came home my tummy was doing stunts and show and I was up all night I’m not sure if Imagined this having this conversation when I started taking rituximab infusion but I think I'm meant to stay away from sushi (or perhaps I am thinking about a tv show referring to pregnant women) Has anyone on
immunosuppressants
wotshernameagain
in
LUPUS UK
9 years ago
Trouble swallowing
I have been diagnosed with systematic scleroderma and it has affected my stomach and esophagus, among other things . My treatment is lansopranzole 30mg and domperidone before each meal. My rheumatologist has treated me with an immunosuppressant infusion called mabthera (drastic substance called rituximab
I have been diagnosed with systematic scleroderma and it has affected my stomach and esophagus, among other things . My treatment is lansopranzole 30mg and domperidone before each meal. My rheumatologist has treated me with an immunosuppressant infusion called mabthera (drastic substance called rituximab
boome
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
Lupus, immunosuppressed and catching lots of viruses
I've had a bit of a tough time since January. I've often caught the odd extra cold than my friends but this year had been ridiculous. I started with a chest infection in January for which I had 2 weeks off work. Since then I have just had cold/flu virus one after another. I'm now left with a constant
I've had a bit of a tough time since January. I've often caught the odd extra cold than my friends but this year had been ridiculous. I started with a chest infection in January for which I had 2 weeks off work. Since then I have just had cold/flu virus one after another. I'm now left with a constant
Sarah74
in
LUPUS UK
9 years ago
Drenched with sweat
I have read somewhere that Kwells can be helpful, but I'm not sure how compatible they are with
immunosuppressants
or antibiotics. I'm drinking loads of water, off spicy food ( I was anyway) but nothing seems to help. any suggestions would be much appreciated. Jora
I have read somewhere that Kwells can be helpful, but I'm not sure how compatible they are with
immunosuppressants
or antibiotics. I'm drinking loads of water, off spicy food ( I was anyway) but nothing seems to help. any suggestions would be much appreciated. Jora
Jora
in
NRAS
9 years ago
Chicken Pox
I know if I haven't had it I could need antibiotics if I do get CP but I'm on so many
immunosuppressants
and I'm not well myself at the moment (think its a flare but possibly a virus on top) that I'm wondering how easy it is for me to catch it again and if it's happened to anyone on here?
I know if I haven't had it I could need antibiotics if I do get CP but I'm on so many
immunosuppressants
and I'm not well myself at the moment (think its a flare but possibly a virus on top) that I'm wondering how easy it is for me to catch it again and if it's happened to anyone on here?
jlmack
in
NRAS
9 years ago
Mycophenolate mofetil - longer term experiences?
However, she is concerned about the potential risks during the longer term associated with taking high levels of
immunosuppressants
. I need to take tacrolimus for my liver but she wondered whether my mycophenolate could be reduced.
However, she is concerned about the potential risks during the longer term associated with taking high levels of
immunosuppressants
. I need to take tacrolimus for my liver but she wondered whether my mycophenolate could be reduced.
artytransplantee
in
ITP Support Association
9 years ago
Antibiotics & immunosuppression
Hi. I am currently on a hefty dose of Klaricid for a deep infection to my foot but don't know whether I should discontinue the Mycophenolate until the antibiotics are finished. My wbc is always low but this doesn't seem to affect me adversely. I haven't been able to get an answer from the surgery whilst
Hi. I am currently on a hefty dose of Klaricid for a deep infection to my foot but don't know whether I should discontinue the Mycophenolate until the antibiotics are finished. My wbc is always low but this doesn't seem to affect me adversely. I haven't been able to get an answer from the surgery whilst
Fennella02
in
LUPUS UK
9 years ago
are any of your chronic symptoms a degree stronger on one side of your body?
First, some background: Rheumatology instructed me to stop daily hydroxy 400mg last feb when blood tests prior to starting IV osteoporosis treatment found hypogammaglobulinaemia & leukopenia....nb for years before starting on oral immunosuppression, my gammaglobulins, complements, haematocrit & white
First, some background: Rheumatology instructed me to stop daily hydroxy 400mg last feb when blood tests prior to starting IV osteoporosis treatment found hypogammaglobulinaemia & leukopenia....nb for years before starting on oral immunosuppression, my gammaglobulins, complements, haematocrit & white
Barnclown
in
LUPUS UK
9 years ago
More on Prograf
I have read of patients who can manage without
immunosuppressants
and given that they are powerful drugs, it is an attractive proposition. I would be interested to hear your thoughts and experiences. Mike
I have read of patients who can manage without
immunosuppressants
and given that they are powerful drugs, it is an attractive proposition. I would be interested to hear your thoughts and experiences. Mike
Hidden
in
British Liver Trust
9 years ago
Immunosuppressant
My rheumy has mentioned immunosuppressants.imuran was one and methotrexate was the other.could anyone give me an idea of that these are like,side effects and benefits. Have people been taken off steroids before they start these drugs or is it a sliding scale process ? Do you tend to remain on plequnil
My rheumy has mentioned immunosuppressants.imuran was one and methotrexate was the other.could anyone give me an idea of that these are like,side effects and benefits. Have people been taken off steroids before they start these drugs or is it a sliding scale process ? Do you tend to remain on plequnil
amandajane76
in
LUPUS UK
9 years ago
Shingles when you're immunosuppressed
Of course its easy not to understand what is happening when you have a number of different ailments and sensitivities. So when I developed a swollen eye and red swelling on my forehead I assumed it was my usual sensitivity to sun. It wasnt - it developed into shingles. My RA pain is not too bad at the
Of course its easy not to understand what is happening when you have a number of different ailments and sensitivities. So when I developed a swollen eye and red swelling on my forehead I assumed it was my usual sensitivity to sun. It wasnt - it developed into shingles. My RA pain is not too bad at the
cathie
in
NRAS
9 years ago
Meaning of ECG
I had an ECG today and the printout from the machine said: Sinus rhythm Left atrial (something which implied a problem) Right bundle branch block 1. The cardiologist dismissed these as of no significance, but I'd still like to have some appreciation of what they mean. Any experts out there? 2. I'm
I had an ECG today and the printout from the machine said: Sinus rhythm Left atrial (something which implied a problem) Right bundle branch block 1. The cardiologist dismissed these as of no significance, but I'd still like to have some appreciation of what they mean. Any experts out there? 2. I'm
cgarmstr
in
Atrial Fibrillation Support
9 years ago
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