The Vocabulary of Pain (gratuitous prose): I wrote an... - NRAS

NRAS

37,223 members46,068 posts

The Vocabulary of Pain (gratuitous prose)

Azabat profile image
7 Replies

I wrote an article for my adaptive outdoors organization, pretty much my first piece of serious prose since my last brain injury. I'm proud of it, so I thought I'd share.

The Vocabulary of Pain

I was diagnosed with rheumatoid arthritis in November after several years of increasing joint pain. This is only the latest in a long list of chronic conditions that haunt me, but it has been difficult to find my equilibrium. RA is a disease of the immune system, one which can affect any system of the body, and not just the joints. The drugs used to treat it are immunosuppressants, and can be as hard to deal with as the disease itself. This has not been a fun ride, but as I slowly come to terms with it I find myself learning the words pain wants to teach me. They’re small words, easy to say and hard to forget. Words like ‘can’t’ and ‘don’t’, words that limit and corral me in new and horrible ways. Words have always been my friends, my dearest companions in dark places and hard times. It has been awful to listen to the slow decline of my inner vocabulary into syllables of defeat and depression.

Then Kerri called me from CRIS Adaptive Adventures. She offered me time in a kayak, on an adaptive hike, time in a recumbent bike. Last week I joined the summer students on the KVR. The day was perfect for August; hot and clear with a clean little breeze to dry the sweat and keep us smiling. I heard that inner monologue change. All of those nasty little defeatist words crumbled under the power of one more – adapt. I can adapt. I will not listen to pain any more. It has a place in my life, but I will not permit it to rule. CRIS gave me back my summer, gave me back the sense of who I am. I am more than pain says I am, I am capable and adaptable and I am strong. Society seems to equate disability with weakness, but this is far from the truth. It is my adversities that strengthen me, that give me a breadth of experience that can benefit not only me, but others. I can change the vocabulary of my pain because I must. I thank CRIS for giving me the people and places that make this change possible.

Bats

the indomitable

Written by
Azabat profile image
Azabat
To view profiles and participate in discussions please or .
Read more about...
7 Replies

Excellent! Thanks for sharing this. There are lots of things you can still do with a little creativity and a lot of determination. I am off to play Pickle Ball shortly. Have a great day, Doreen

Jora profile image
Jora

Brilliant! As I would have expected. I wish there was a CRIS here. I can't even find a hydrotherapy pool that is convenient and affordable. There is one brilliant one, very close to home - but it's just for dogs! It'd love that but its probably not considered hygienic.

When you feel low, read that article you wrote. You deserve to be proud of what you have achieved, and that includes writing the piece.

Jo xxx

helixhelix profile image
helixhelix

It's so hard to find the mental space to be reflective, and so much easier to trudge on day by day battling through. So hugely impressed that you've managed this, and had some fun adventures along the way as well.

Well done Bats it is spot on - just as your writing usually is. I think you are right to put the word "adapt" up there. In fact I'd have it in neon tubing!

My life has changed out of all recognition since RA started five years ago. I would say that as many of these changes are good as are bad. Chronic pain is transformative - through it I've met some of the most vibrant and perceptive cyber people, a few even in the flesh.

I sense you would be a delight to meet in person - not least because of your ability to cut to the chase with words.

Txx

sylvi profile image
sylvi

I am so happy you have something like that to enable(thats another word for you enable) you to do the things that YOU want to do not what the disease dictates you do.xxxxx

KatyMary profile image
KatyMary

You have a beautiful way with words Bat x

carotopgal profile image
carotopgal

This is so "right on" on so many levels. Thank you for sharing. You really have a gift of expression and feeling. :-)

Not what you're looking for?

You may also like...

a thoughtful piece of prose about pain

this was written and posted by Teadrinker on painconcern and posted with permission:- Pain Pain...
hamble99b profile image

The Small Hours (gratuitous poetry)

Long ago my mother sang of Winken, Blinken, and Nod, That was the shape of the small hours between...
Azabat profile image

The beginning

Hi everyone, This will be my first post on this forum. After many years suffering chronic pain and...
Daviator profile image

Pain and extreme fatigue

Hi everyone, Im having a hard time with extreme fatigue at the moment. Exhaused even after sleep...

I haven't been on this site for a while, I've been isolating! A friend told me that I should be on the site because of the way I feel.

The Neurontin makes it very hard to find my words or I say the wrong words. The doctors office told...

Moderation team

See all
Donagh-NRAS profile image
Donagh-NRASAdministrator
Nicola-NRAS profile image
Nicola-NRASAdministrator
KateL-NRAS profile image
KateL-NRASAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.