I have been reading Prograf experiences in recent days and it reminded me to alert you to my recent experience.
I had a transplant in December 2011 and was on a reducing dose of all of my medications in the first 12-18 months after transplant. These stabilised in summer 2013 at 500mg x 2 of MMF and 1mg AM and .5mg PM of Prograf. About 4 months ago I read an article about a new drug that had been produced that was a 24 hour dose of immunosuppressant rather than twice a day. I contacted my hospital to see if they were going to adopt this and was told that they had no plans to do so. I then received at email suggesting that I could look to reduce medication so I am now on .5mg of prograf (am and pm) and 1 x 500mg of MMF. This reduction was achieved in two stages with blood tests after 2 weeks. As yet, they have not suggested further revision after my second blood test (Wednesday this week - after 4 weeks on reduced dose).
Two questions of the Prograf taking community:
what is a typical dose for you (Program and MMF)
have you discussed reducing the doses with your team?
I have read of patients who can manage without immunosuppressants and given that they are powerful drugs, it is an attractive proposition.
I would be interested to hear your thoughts and experiences.