Experiences with

Immunosuppressants

Hi, I was diagnosed with hypersensitivity pnumonitis about 3years ago, after exposure To mould, I Was treated initially with chemo, now steroids, oxygen and have tried immunosuppressant's but have had bad reactions to the later. Is there anyone else with this condition who may have some advice or knowledge

Has anyone noticed abnormal blood test results (high leukocytes, neutrophiles, lymphocytes count and ESR) ONLY when under steroid or immunosuppressive treatment (everything goes back to normal when treatment is stopped)? In my understanding such abnormal results are a marker of inflammatory disease so

Hi All, Do you think the more comprehensive Genova saliva Cortisol/DHEA/sigA test is worth paying a bit extra for or is the standard cortisol/DHEA one sufficient? Referenced below... Thank you... Adrenal Stress Profile (ASI): Cortisol/DHEA Specimen requirements: Saliva Cost: £77.00 (Discounted Price

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2) Was it related to your Beçhets, or was it from being on immunosuppressants? 3) Would a spinal fluid come back pretty much clear after just a few days of antibiotic and antiviral treatments? Would it come back clear anyway?

Medically, immunosuppressants are prescribed in order to suppress the patient’s immune system to reduce the severity of the reaction. Alongside the preventative measures, pain medication and anti-inflammatories are used to tackle the symptoms of the disease.

Now he is having to wait for a CT scan and depending on what they find they could try immunosuppressants but this would be a "last ditch attempt". He now has a home oxygen monitoring system where he has to send his results down the line. 1 week ago his levels were 90. He is now down to 75.

Hi folks hope you're doing ok. I was wondering whether anyone has managed to get their immunosuppression medication down to minimal levels? My Adoport was reduced from 3.5 x 2 to 1mg X 2 - & my creatinine finally broke the 200 barrier for the first time in 16 months since the transplant - and I felt

Am so glad this forum is here. I've popped in now & then over the past few years, but not said hello. I'm inspired to post by pam's thread..I like the way she has introduced herself! I'm a bit more longwinded 😜 My ED also seems to come from mother & father, although father seemed more marfanoid

Would it be possible to put a question on the page? Has anyone else who is on Tacrolimous (or any other immunosuppressive drug I don't know if they work the same) suffered or suffers with eczema? My little girl is 8 and is on Tacrolimous and her eczema is awful. Kings told me that as she is on Tacrolimous

Hi, my new dermatologist has said I have discoid Lupus as well as systemic and will write to my renal transplant consultant to ask if I can be put on hydroxychloroquine. I'm already on prednisolone steroids, mycophenalte mofetil and Prograf/Tacrolimus for immune suppression plus other meds for other

Hi. I'm recently diagnosed with sle. I was started on indoneticin then steroids and have now been started on hydroxychloroquin so am currently taking all 3 plus the proton pump lazasaprol (sorry for any misspelling) since I've started the hydroxy I'm suffering bad stomach and diarrhoea plus general queezyness

Main medications are Qvar inhaler, Spiriva inhaler, and immunosuppressants (Methotrexate (low dose) and Enbrel) for psoriatic arthropathy, and painkillers / creams for psoriasis. Conditions have been stable for years.

During the last few days a number of newspapers have reported a study which suggests that Vitamin D may be helpful in the treatment of MS. For example the Daily Mirror: http://www.mirror.co.uk/lifestyle/health/could-vitamin-d-cure-multiple-7095294 It is not the first time Vitamin D has been connected

I was diagnosed with hyperthyroidism on the 20th nov after getting a blood test due to having execive and painfull mouth ulcers along with a few other symptoms in the last year. I was refered to the specialist who then prescribed me 20mg Carbimazole. I have only been taking for two weeks and so far have

I recently had a DaT scan to check whether I have Parkinson's. The scan involves an injection with radioactive material that is then seen by using a CT-like method, only with higher radiation levels. Don't get me wrong - I did my research into this scan before having it and everywhere I looked its said

Hi friends, since my last post about 2 months ago when I mentioned that my rhuemy wanted me to have my aorta scanned to check on giant cells ( my CRP &ESR had been creeping up) before deciding the next step with my pred dose. I had a CT scan on 30th October the conclusion of which was stated as: subtle

Hello everyone, As usual I am being my scientific self and doing research with our good friend Dr. Google. As always, I really appreciate the guidance I receive here and the helpful advice, experience sharing, and wisdom everyone has to offer. I was researching an herbal or natural supplement that

I am newly diagnosed and getting used to the immunosuppressants and steroids not to mention everything else that goes with it. My story is similar to everyone else's, misdiagnosis after misdiagnosis. Hospitals, consultants just a nightmare.

Just read this today...after several years mulling the pros & cons of vaccination over...this seems a pretty good summary to me: http://www.medpagetoday.com/Rheumatology/GeneralRheumatology/54422?xid=nl_mpt_DHE_2015-11-02&eun=g714072d0r This past year, I've been referred by my Lupus & Vasculitis clinic