Hello everyone, I developed ITP three years ago despite already taking immunosuppressant medication - 20+ years earlier I had a liver transplant for autoimmune hepatitis. To prevent rejection, I have been taking tacrolimus (Prograf). My experiences during my early days with ITP were much like those others refractory to steroids but responsive to IVIG have described here. Thankfully, my platelets have been stable and usually 150 or better for the past 2+ years, thanks largely to the addition of mycophenolate mofetil to my list of meds. I saw my haematologist last week. She was very pleased with everything and doesn't want to change any of medication now. However, she is concerned about the potential risks during the longer term associated with taking high levels of immunosuppressants. I need to take tacrolimus for my liver but she wondered whether my mycophenolate could be reduced. I will raise this issue at the liver transplant clinic, but as part of my "research", I'd be interested to hear from people here who have been treated with mycophenolate, both in terms of their ITP and any major side effects or complications associated with this drug.
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