I was recently diagnosed with APS. I am 43 and live in Canada. I had a stroke and MRI actually showed multiple strokes. Feel very lucky that they didnt affect me much, other than some minor issues with my vision and headaches. The stroke made the doctors here look at my medical history, going back to my son born with an IUGR, 3 miscarriages and migraines with aura. Back in 2013-14 I was undergoing an investigation into my miscarriages and an elevated ANA was discoved. The tests for lupus came back negative. Not sure if the other two were sent for. This time around, after my stroke, the labs came back with elevated ANA again calling for more testing. Two of them for lupus and anticardilipin came back negative. Then they had to send off for beta 2 glycoprotein - which took forever- and it came back with IGM elevated value of 21. So they put a diagnoses of A PS and started me on warfarin. I am still dealing with the shock that they have not tested me for beta 2 glycoprotein when I was treated for miscarriages as I really wanted to have another baby. I feel so cheated and disappointed.
My questions are:
1. Anyone out in Canada having similar issues? Are you getting anywhere with your doctor? Can you recommend a knowledgeable rheumatologist?
2. What would be the best way to learn more about primary APS? I read a lot on the web and in this forum but still need more information as to what type of medications are out there and their possibilities along with side effect etc.
Thank you all!