Hello everyone. Hope you are all ok x
Nice to be back in my own bed,
So Some of my family came to visit me when I got home on Friday which was nice but draining, they had forgotten to mention they had been suffering with a really bad cold virus!! That spreads like wildfire, they laughed & said I would be fine But due to my current state my immune system is already depleted, it didn't take me long to catch it & now i have laryngitis, its painful & feels like I've swallowed glass, & now a crackling chesty cough nothing is ever simple!
So my pancreatitis- ultrasound clear for gallstones (good)
I managed to see my Gastroenterologist specialist & he's ordered urgent invasive bloods, & a PET scan. He was concerned with my weight loss, & had mentioned a few deficiencies including exocrine pancreatic insufficiency & Copper deficiency- urgent investigation- I'm only eating a few spoonfuls of soup a day. I can't tolerate anything. I have Steatorrhea & even though I'm only consuming liquid he's alarmed I'm going to the toilet 5 times or more & I showed him some pictures that I tried to show my GP & he was shocked!
My Gastroscopy stomach Biopsy was clear & negative for H.Pylori.
It's the pancreas alone.
The blood & stool tests are as follows
Stool: Chemical Pathology
carcinoembryonic antigen (CEA) and CA 19-9 & Serum CA 19-9
A BUN Test
Amylase & Lipase
Iron & Copper
My specialist showed such empathy, he said as much as he would of liked to of got the tests done ASAP I couldn't afford it privately. So he's put a urgent rush for all of these tests within a week in a bit. Which I thought was wonderful.
He explained to me & my partner that I could have something RARE, a disease that no one has heard of. He really does want to help me. & we both could see & feel how caring he was. So all in all. I've lost 2 stone, my hair is falling out so I've been wearing a cap to bed to try and stop it, my lips are constantly dry & my itching has become unbearable. It's shocking to see myself in the mirror as I've never been this thin. But I thought I would keep you all posted. Your all in my heart x