For ILC or Lobular ladies: This video... - SHARE Metastatic ...

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For ILC or Lobular ladies

ba5083 profile image
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This video was released within the last 10 days from by LBCA (Lobular Breast Cancer Alliance). Highlights of 2023 International ILC Symposium. The video is about 2 hours long with a lot of info. I want to listen again because of all the info. A couple things I initially took away all or almost all Lobular Cancers have a loss of e-cadherin. A FES PET provides a more accurate diagnosis (but can provide false positives). Intense exercise including strength training is very important (obviously most if not all need to built up to that intensity). The example, if you can't talk your working too hard, if you can sing your not working hard enough. And in the Q&A - Onc might want to consider treating with a combination of AKT and CDK4/6 drugs for ILC patients. Here is the link

youtu.be/e0YpKuK9d5c?si=yfs...

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ba5083
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6 Replies
Bettybuckets profile image
Bettybuckets

thank you so much for posting. I can’t wait to sit and watch it. Just made 3 huge batch’s of my Xmas granola and have 18 min to lie down before swim.

Upk4 profile image
Upk4

thank you for sharing this information. I have lobular cancer too. Later today I will view the presentation.

kellylinkane profile image
kellylinkane

thank you for sharing!!

Tanyateresa profile image
Tanyateresa

Thank you for sharing. Fascinated about the strength training. Only walking one hour a day so will have to up my exercise routine

ba5083 profile image
ba5083 in reply to Tanyateresa

You are doing better than I. Verzenio is taking its toll on my energy. My work schedule is 4 10 hours days. I do my best with walking and strength training on my off days but tough on my work days. I liked the description regarding workout intensity.

Tanyateresa profile image
Tanyateresa in reply to ba5083

Wow impressed by your 10 hour work schedule. Not back to my previous work schedule at all. Only do half days at mo but hope to progress

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