Any body else like me?

[Emmacrispins]

Please excuse the long post, I’m hoping to pick you lovely ladies brains 💗. I was diagnosed in feb 2020 - hgs stage 3. Surgery and the usual chemo followed and then avastin for maintenance. In October ‘22 my ca125 rose gradually and a scan showed 3 lymph nodes that my oncologist didn’t think were anything to worry about, however the subsequent MDT felt it was a recurrence.

Watching and waiting then followed I was prepared for progression within a month or so.

I’ve had 3 monthly ct scans, each one has shown no change. Because my team in Cornwall ruled surgery out do to one nodule being close to my heart, went for a second opinion with Christina F, an mri scan showed small area of miliary disease but also that the three nodules had shrunk. Because of the miliary disease surgery was ruled out, as chemo is deemed more effective. That was in July, my ct scans still show no change, I feel incredibly lucky that nothings progressed yet, but I wonder if anybody else has had this experience?

[delia2]

Hi. I haven’t had your experience except that I had one quite enlarged lymph node at the end of frontline. I was freaking out until I had a PET scan which showed it to be benign. Over the past three years it has gradually shrunk.

If yours are cancerous, they seem to be stable. But the miliary disease is a different matter. If I were you I would want to treat that. But there is the view that you don’t need to treat until there are symptoms. I wish the best with it.