I just wanted to know if any of you managed to have babies after surgery for stage 4 endometriosis and with adenomyosis.
I’m 36 now and I’m due my surgery in just under 3 weeks time. I’m very nervous about being able to have a baby with my partner. We don’t want to do it straight away but I’m worried it may never happen.
I know eventually I’ll need a hysterectomy to deal with the adenomyosis but I just don’t wanna say goodbye to the chance of having a baby with the love of my life just yet.
My gyny specialist suggested a coil after my surgery to control the adeno and then we can have it taken out when I wanna try for a baby and that I should be able to get pregnant but I just wondered if any of you have managed it?
Thanks in advance xx
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Kieraface
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Hi I don't have adenomyosis but I do have endometriosis ( unsure of my stage) My endometriosis was undiagnosed until we had been TTC 6 years nearly ( previously it was unexplained infertility) we had a chemical pregnancy after my first laparoscopic surgery and after my third ( but this time with an endometriosis specialist to remove all the endometriosis) we had our first daughter Francesca who is now 4 I was 37 having her. After having Francesca we suffered a late loss at 20 weeks, then another chemical pregnancy and a loss at 7 weeks. We then had our youngest daughter Eliza who is 19 months old. We are now 4 weeks pregnant. In the beginning we didn't think we'd ever have one baby let alone more! After my last surgery a lady on health unlocked recommended a supplement called serreptase to me for removing scar tissue and actually I'm convinced that's why I was able to conceive again. It really eased my endometriosis symptoms so when im not pregnant I take that daily. I'm now 41. Ladies are having babies later in life. It's a decision only you and your partner can make and having no regrets. It is a big decision. Good luck Xx
thank you for sharing your experiences with me! Congratulations! I hope the pregnancy is smooth sailing for you and you have another beautiful bundle to enjoy in 8 months time xx
Hi! I had my surgery in May this year (my third laparoscopy to remove endo) and got pregnant in July! Before that surgery I was told that I would not be able to conceive without the surgery so we decided to go for it afterwards and so far so good. It is totally up to you when you start trying and if you want to but it is possible. I don’t have adenomyosis so can’t comment on that but my consultant was really helpful so make sure to ask them lots of questions ☺️I also had the coil in between all my surgeries but had it removed at my last one to try to conceive. It helped with my symptoms but they didn’t completely go away.
I can only comment on the endo side. I have/had stage 4 endometriosis that has been treated with 2 minor surgeries and one major. We TTC for 7 years and had 3 IVFs in that time that all failed.
I had a third laparscopic surgery in Sept last year that was by the most intensive involving a full removal of all but the growths on one ovary as it would have meant losing the ovary and a bowel resection due to how the endo had attacked my intestines. Following this I was advised (a little like yourself) to go on birth control to allow recovery and deter regrowth/scaring etc. I had that from 3 months before surgery and until the end of December. I then had one period and am now currently expecting our first little one next month. Don't know if it helps either but I am also 34 so similar age to yourself.
I hand on heart can say both pain wise and fertility were both improved by the surgery.
congratulations kinder Cat! Thanks for also putting my mind at rest about the surgery: I’ve been so sore and the back pain has been relentless. Really appreciate you telling me your experience.
I’m hoping the adeno hasn’t taken our chances away x
I had terrible adenomyosis (on top of endo) which eventually lead to a full hysterectomy but I managed to have a four healthy pregnancies and c sections. My eldest is now 15 and my youngest is 8. I knew I had my diagnosis from young and so we prioritised having our children. Now they’re bigger I’m back at university and retraining. We are so glad we prioritised having them as I had my full hysterectomy at 33, just after my last one was born as I was haemorrhaging on the first day of my period. They asked me to start measuring my blood loss, so I switched to a menstrual cup and started catching it (sorry if TMI) and I was loosing 800ml (including enormous clots) on day one. They had to admit me for transfusions and did my op very soon after. Pregnancies were a joy as they stopped all my symptoms. If you both know you want children together, from our experience prioritising that over savings/career/house purchase was all worth it for us. We bought our first home when our youngest was 6 and at the end of this academic year I’ll finally be qualified to start my my longed for career. It’s a decision only the two of you can make, but for us, putting children ahead of those things was the right choice even if it did complicate things somewhat. Sending you much love.
Thank you so much for sending that! Finally someone with adeno too! I am lucky in that I have had kids myself many years ago but My partner doesn’t have any of his own. He’s great with mine but we have talked about having our own. He’s fine either way but I’d love to have A child with him, I don’t want to be the reason he never gets to be a daddy x
It’s an awful disease and I’m so glad you have a diagnosis! I uterus was full of if it but it didn’t seem to impact my fertility at all, fortunately. I lost one half of an identical twin pregnancy (DS3) but that later turned out to be a genetic issue. In short my uterus did a great job regardless of the absolute state it was in. I trust yours will do the same when you’re ready. Xx
Thank you 💛💛 I hope so. All children are precious and I love mine but I also want to experience being a mum with someone who loves me and supports me, and who will let me enjoy being a mum, I’ve never had that. I had a horrific experience with my ex ( 15 days post partum found out he’d been having an affair with someone from work and I almost died giving birth and he wasn’t bothered) I’d love to be able to actually be a mum and have a baby daddy who loves me and supports me and wants our little family unit to grow
Also I’m so sorry you lost a twin but silver linings is you still had ds3 x
Thank you so much for your reply! Hope everything with your pregnancy goes well! Listen to your body and rest when needed. Hopefully pregnancy dulls yours endo symptoms for a while too xx
I already had a 7year old, I had no issues getting pregnant for my 7year old. But struggled with my second. The doctors said we had unexplained fertility because my partner had low sperm count. I had a laparoscopic procedure and I was diagnosed stage IV endometriosis, I was advised by the gynaecologist to have a coil fitted in straight after the procedure or get pregnant asap. We chose the later, I had my procedure in august 2021, I was 36 at the time and by November I was pregnant with my second. It was obviously a stressful 3months but so grateful we didn’t have to go the route of IVF and it happened naturally. Wishing you all the best in your procedure.
Thank you for sharing your experience ❤️💛 we’ve said if we don’t have one by the time I’m 40 we’ll not have our own and I’ll get a hysterectomy. Thanks! Super nervous about the surgery. Got a kink in my bowel caused by the DIE , so having an mdt and robotic surgery x
Yes I had 2. The surgeon made it clear after my first surgery he thought I had a window of a few years before it wouldn't be possible. We were younger than we would have liked to start a family and it took a year for my (now) husband to get his head round the idea. It was a tough time and it took a few years yo actually fall pregnant both times but we got there. I've had everything out now and it is a relief. Hope your operation goes well x
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but silver linings is you still had ds3 x
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