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Hypomyelination and congenital cataract
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German tara
Hi everyone I've being getting a tube off biogenesis gel for dry mouth last night was the first dry mouth since afore xmas it was great I woke up at 2 my mouth completely dry no moisture at all in mouth tongue could off used it for sanding that rough had some water but still abit dry but
Hi everyone I've being getting a tube off biogenesis gel for dry mouth last night was the first dry mouth since afore xmas it was great I woke up at 2 my mouth completely dry no moisture at all in mouth tongue could off used it for sanding that rough had some water but still abit dry but
Germantara
in
Lung Conditions Community Forum
5 months ago
Black stools
Hi was wondering if anyone has had black stools when you go to the toilet feeling sick and in a lot of pain in your stomach l have cirrhosis of the liver through medication that I was on .
Hi was wondering if anyone has had black stools when you go to the toilet feeling sick and in a lot of pain in your stomach l have cirrhosis of the liver through medication that I was on .
Petrina_gmfc
in
British Liver Trust
6 months ago
Royal Free visit
Hi all, I just thought I would give a quick update. I attended the Royal Free Hospital last Thursday ,I was seen in the Scleroderma clinic by a member of the team. She asked questions and examined me, she then went and got a senior colleague,(not Prof Denton) unfortunately can’t remember their names
Hi all, I just thought I would give a quick update. I attended the Royal Free Hospital last Thursday ,I was seen in the Scleroderma clinic by a member of the team. She asked questions and examined me, she then went and got a senior colleague,(not Prof Denton) unfortunately can’t remember their names
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
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Constipation from PARPS
Hello, I had a recurrence last year after being in remission for over 6 years. I was diagnosed as being a 3C and am BRAC2. I did really well with the chemo and now I have been taking Olaparib for a little less than 3 weeks. It's been rough especially at the beginning. They had to wait a few extra
Hello, I had a recurrence last year after being in remission for over 6 years. I was diagnosed as being a 3C and am BRAC2. I did really well with the chemo and now I have been taking Olaparib for a little less than 3 weeks. It's been rough especially at the beginning. They had to wait a few extra
Chanterelle
in
My Ovacome
5 months ago
Advice for chronic constipation
My symptoms are so much better since my laparoscopy 9 months ago but I’m still constipated all. the. time. My surgeon has told me repeatedly that he’s very confident he removed all present endo and that there was none on my bowel. I’ve had a colonoscopy and MRI which have come back fine, aside from
My symptoms are so much better since my laparoscopy 9 months ago but I’m still constipated all. the. time. My surgeon has told me repeatedly that he’s very confident he removed all present endo and that there was none on my bowel. I’ve had a colonoscopy and MRI which have come back fine, aside from
Sunflower117
in
Endometriosis UK
5 months ago
I am desperately in need of help!
Hi everyone, I have been suffering from IBS for 8 years now, but over the last year my condition has gotten much worse. My main symptoms are heartburn, acid reflux, indigestion, bloating, and gut spasms. I am now at a stage where I can get through the first 9 hours of the day feeling fairly OK, but
Hi everyone, I have been suffering from IBS for 8 years now, but over the last year my condition has gotten much worse. My main symptoms are heartburn, acid reflux, indigestion, bloating, and gut spasms. I am now at a stage where I can get through the first 9 hours of the day feeling fairly OK, but
Crescendo251
in
IBS Network
5 months ago
accidental overdose of thyroxine
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
Tjqui00
in
Thyroid UK
5 months ago
To much gas
I had an ultrasound 3 weeks ago got letter saying I've to go for a ct scan they will send me a date out for it because there was to much overlying gas to get a fully clear picture of my liver to complete the evaluation I've had to go for a ct scan before 3 are 4 times because of gas but the person doing
I had an ultrasound 3 weeks ago got letter saying I've to go for a ct scan they will send me a date out for it because there was to much overlying gas to get a fully clear picture of my liver to complete the evaluation I've had to go for a ct scan before 3 are 4 times because of gas but the person doing
Tommy62
in
British Liver Trust
5 months ago
Colonoscopy next week
Hello everyone, I am 40 years of age, living in Scotland, on waiting list for Hysterectomy (88 weeks so far) I have suspected endometriosis - symptoms of pain and heavy bleeding from womb. In past 6 months, have also been having issues with my bowel - extreme pain with toileting and anything vaguely
Hello everyone, I am 40 years of age, living in Scotland, on waiting list for Hysterectomy (88 weeks so far) I have suspected endometriosis - symptoms of pain and heavy bleeding from womb. In past 6 months, have also been having issues with my bowel - extreme pain with toileting and anything vaguely
Kittie5117
in
Endometriosis UK
5 months ago
Mum 86 treatment??
Hi my mum was diagnosed in August with lung cancer from fluid taken from around her lungs.She has had various scans/MRIs ane they have said all other areas are clear.She has had 3 biopsy the last under general aneasetic, where they also inserted a drainage tube for plural effusion to allow the fluid
Hi my mum was diagnosed in August with lung cancer from fluid taken from around her lungs.She has had various scans/MRIs ane they have said all other areas are clear.She has had 3 biopsy the last under general aneasetic, where they also inserted a drainage tube for plural effusion to allow the fluid
Hidden
in
The Roy Castle Lung Cancer Foundation
7 months ago
Post-prostatectomy cancer status + treatment
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
MakeItRainbows
in
Prostate Cancer Network
7 months ago
parp for hrd positive?
hi ladies, I hope you all are doing well and as always I would like to thank everyone in this group for their great continued support throughout the years. To recap - my mom was diagnosed in 2018 - debunking, chemo - second lot of chemo in 2021 and avastin up until 2022 - now she just had a successful
hi ladies, I hope you all are doing well and as always I would like to thank everyone in this group for their great continued support throughout the years. To recap - my mom was diagnosed in 2018 - debunking, chemo - second lot of chemo in 2021 and avastin up until 2022 - now she just had a successful
Lind58
in
My Ovacome
7 months ago
ADT- Low Total Cholesterol- Low Serotonin in the brain = cause of Anxiety and Depression?
I have been experiencing short bursts of anxiety about topics that seem very irrational to me . They come and go in a period of 12-18 hours. I have had about 6 episodes during the last year. In the beginning my "Scout" voice tried to over ride the negative thinking with rational thinking. During the
I have been experiencing short bursts of anxiety about topics that seem very irrational to me . They come and go in a period of 12-18 hours. I have had about 6 episodes during the last year. In the beginning my "Scout" voice tried to over ride the negative thinking with rational thinking. During the
Scout4answers
in
Advanced Prostate Cancer
7 months ago
So down today 🥺 Why does everything take so long and nothing helps
I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that I had 5 weeks ago. I am in crippling pain. My bowels are all over the place and everyday I have rectal bleeding. I can't tolerate stronger pain
I'm in my late 40s and have a provisional diagnosis of Adenomyosis I don't think I've ever felt so low, as today. I'm waiting for urgent mri scan results, that I had 5 weeks ago. I am in crippling pain. My bowels are all over the place and everyday I have rectal bleeding. I can't tolerate stronger pain
Mindfullness4791
in
Endometriosis UK
5 months ago
Abraxane
Hi ladies, I’m absolutely over the moon to hear that my oncologist has been able to get the Abraxane chemotherapy funding for me! I am due to start in January, I wonder if any of you ladies have had this chemotherapy in the past and if so what side effects you had, how you found it in general, did
Hi ladies, I’m absolutely over the moon to hear that my oncologist has been able to get the Abraxane chemotherapy funding for me! I am due to start in January, I wonder if any of you ladies have had this chemotherapy in the past and if so what side effects you had, how you found it in general, did
Willowsmum51
in
My Ovacome
6 months ago
Two recent FDA Approvals
Hi everyone, I just wanted to share about two recent approvals. Sorry for my delaying in posting this. On October 11th the FDA made an approval for those with stage IV NSCLC with a BRAF V600E mutation. Here is a link to read more: https://go2.org/blog/fda-approves-combination-braftovi-and-mektovi-for-metastatic-non-small-cell-lung-cancer-for-individuals-with-a-braf-v600e-mutation
Hi everyone, I just wanted to share about two recent approvals. Sorry for my delaying in posting this. On October 11th the FDA made an approval for those with stage IV NSCLC with a BRAF V600E mutation. Here is a link to read more: https://go2.org/blog/fda-approves-combination-braftovi-and-mektovi-for-metastatic-non-small-cell-lung-cancer-for-individuals-with-a-braf-v600e-mutation
Miranda_GO2
Partner
in
Lung Cancer Support
7 months ago
IBS Diarrhoea
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Buddybella
in
IBS Network
5 months ago
cancer marker 15-3
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
My moms marker went up from 163 to 332 . She started her second line treatment about 7 weeks ago after being on Ibrance and Femara for around 2 and half years. She is now on faslodex and anfintor. Does this mean its not working ? And if it’s not will they change both meds or just one of them? Thank
Flower1513
in
SHARE Metastatic Breast Cancer
7 months ago
chronic rectal bleeding, colonoscopy normal
I have been dealing with chronic rectal bleeding for at least 8 months, if not more. Been blown off by doctors. My family doctor finally sent me to a general surgeon who ordered a colonoscopy. Was instantly not a fan of him. My consultation was literally a minute long. He was very arrogant, and didn’
I have been dealing with chronic rectal bleeding for at least 8 months, if not more. Been blown off by doctors. My family doctor finally sent me to a general surgeon who ordered a colonoscopy. Was instantly not a fan of him. My consultation was literally a minute long. He was very arrogant, and didn’
Bulldogmomma73
in
Colon Cancer Connected
5 months ago
Update 7.7.5 = Benign
Thanks to all who responded to my last post. The news on the growth removed from my face was good news. It was benign, a Seborrheic Keratosis that suddenly had become inflamed. Due to the coloration, it looked a possible malignant growth, which is why I had it checked out. I would encourage everyone
Thanks to all who responded to my last post. The news on the growth removed from my face was good news. It was benign, a Seborrheic Keratosis that suddenly had become inflamed. Due to the coloration, it looked a possible malignant growth, which is why I had it checked out. I would encourage everyone
hunter5582
in
MPN Voice
6 months ago
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