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Experiences with
Hypomyelination and congenital cataract
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Enlarged pelvic lymph node
Hello everyone. I’m in need of some advice please.. Has anyone received surgery/radiotherapy for an enlarged pelvic lymph node and still been receiving Olaparib along side this? Sending best wishes Lisa
Hello everyone. I’m in need of some advice please.. Has anyone received surgery/radiotherapy for an enlarged pelvic lymph node and still been receiving Olaparib along side this? Sending best wishes Lisa
Alfiepop
in
My Ovacome
8 months ago
Advice moving forward?
So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,
So I recently had blood tests that showed low b12, iron and vit D. Was prescribed tablets for the iron and vit D. And put on a course of B12 loading doses. 6 injections over 2 weeks. it's now been 2 weeks after the last b12 injection and none of my symptoms have improved. When I talked to the gp,
Dan444
in
Pernicious Anaemia Society
5 months ago
fiddle mum- adrenals???
hi- diagnosed 12/21. Currently 2mg pred. Struggled through winter 2 lots antibiotics for chest infections. Finally think chest stuff is resolving. Stopped the 10mg maintenance dose of paroxetine (ssri) 6 weeks ago. Started well but now struggling a bit with anxiety and terrible nervous stomach- leading
hi- diagnosed 12/21. Currently 2mg pred. Struggled through winter 2 lots antibiotics for chest infections. Finally think chest stuff is resolving. Stopped the 10mg maintenance dose of paroxetine (ssri) 6 weeks ago. Started well but now struggling a bit with anxiety and terrible nervous stomach- leading
Fiddlemum
in
PMRGCAuk
5 months ago
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B12 deficiency v. Ferritin deficiency
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered
Hi everyone. Some of you may have come across one of my posts this week and may have interacted, but if not, hi 😊 I’ve been going through a lot of the posts on here looking for answers to my query before I post this, but haven’t seen anything that covers it. Is there anybody here that has suffered
MLJ2024
in
Pernicious Anaemia Society
5 months ago
ADT therapy and breast enlargement
Hello, any feedback on outlook for breast enlargement with ADT therapy ..currently taking Lupron and Bicalutmide? Diagnosed in Japan this June , 56, Gleason 7 , 4+3, PSA18, most likely no metastasis..was fairly fit…165, 5’10 but gaining weight and some man boobs. I generally was working out 4 days a
Hello, any feedback on outlook for breast enlargement with ADT therapy ..currently taking Lupron and Bicalutmide? Diagnosed in Japan this June , 56, Gleason 7 , 4+3, PSA18, most likely no metastasis..was fairly fit…165, 5’10 but gaining weight and some man boobs. I generally was working out 4 days a
Yokohama2023
in
Advanced Prostate Cancer
8 months ago
Polyps and Abdominal Pain
Background Dec 2023, I started to experience pain when poo’ing, and some significant constipation, that was only relieved with laxatives , once every five days; January 2024 I saw blood on the toilet tissue and started to suffer from abdominal pains. I contacted my GP and after she realised I had
Background Dec 2023, I started to experience pain when poo’ing, and some significant constipation, that was only relieved with laxatives , once every five days; January 2024 I saw blood on the toilet tissue and started to suffer from abdominal pains. I contacted my GP and after she realised I had
Justdoit2015
in
Colon Cancer Connected
5 months ago
irritable bowel diarreah
struggling with ibs d for over 10 years, have tried everything, food allergies and stress sets it off quite badly. Please anyone got any other good advice. Feel like I don’t have a life
struggling with ibs d for over 10 years, have tried everything, food allergies and stress sets it off quite badly. Please anyone got any other good advice. Feel like I don’t have a life
Eileen_wai
in
Cholesterol Support
5 months ago
Watermelon for skin problems
I just wanted to share my discovery that after eating watermelon every day my contact dermatitis disappeared
I just wanted to share my discovery that after eating watermelon every day my contact dermatitis disappeared
Lizzo30
in
MY SKIN
8 months ago
Oral B12
So i am fully aware that those of us with PA don't absorb b12 through our diets, and that we ideally require treatment through IM injections. But i have also seen articles that suggest that it is at least 'possible' to get 'some' b12 from oral supplements. What do we think about this? I have copied in
So i am fully aware that those of us with PA don't absorb b12 through our diets, and that we ideally require treatment through IM injections. But i have also seen articles that suggest that it is at least 'possible' to get 'some' b12 from oral supplements. What do we think about this? I have copied in
FatThumbs
in
Pernicious Anaemia Society
5 months ago
nausea and tmi (diarrhea) 4dp5dt FET
is it a positive sign? Or is it too early and I have a stomach bug ? Does diarrhea affects implantation 😭
is it a positive sign? Or is it too early and I have a stomach bug ? Does diarrhea affects implantation 😭
amalhope
in
Fertility Network UK
5 months ago
laxido liquid
hello, for the past 6 months I’ve been suffering from bad constipation, my gp suspected diverticulitis and I have been referred to a specialist, I’ve now had my first appointment and waiting on a date for a colonoscopy. The doctor prescribed laxido liquid and I took my first dose on Monday, by Tuesday
hello, for the past 6 months I’ve been suffering from bad constipation, my gp suspected diverticulitis and I have been referred to a specialist, I’ve now had my first appointment and waiting on a date for a colonoscopy. The doctor prescribed laxido liquid and I took my first dose on Monday, by Tuesday
Chazz30xx
in
IBS Network
5 months ago
I am urging more members to respond. 🙏
I am reposting the link put on by
Sleepybunny 5 days ago........
Hi, I've posted about Care Opinion before but look every now and then to see if any stories have been posted about B12 deficiency. They want people to share good and bad experiences of health care in UK. Sometimes the GP surgeries
I am reposting the link put on by
Sleepybunny 5 days ago........
Hi, I've posted about Care Opinion before but look every now and then to see if any stories have been posted about B12 deficiency. They want people to share good and bad experiences of health care in UK. Sometimes the GP surgeries
Jillymo
in
Pernicious Anaemia Society
5 months ago
Vitamin Results
Hi, I’ve just had some private test results following a low ferritin result from the GP: TIBC - 64umol/L - 45-81 Transferrin saturation - 18.3% - 25-45 Ferritin - 49ug/L - 44-150 Iron - 11.7umol/L - 10-30 Unsaturated iron binding capacity- 52.3umol/L Vitamin D - 43.6umol/L - normal 50-75, optimal
Hi, I’ve just had some private test results following a low ferritin result from the GP: TIBC - 64umol/L - 45-81 Transferrin saturation - 18.3% - 25-45 Ferritin - 49ug/L - 44-150 Iron - 11.7umol/L - 10-30 Unsaturated iron binding capacity- 52.3umol/L Vitamin D - 43.6umol/L - normal 50-75, optimal
Smartypants1
in
Thyroid UK
5 months ago
BP numbers 3 month post Ablation
Hi all,Hope everyone is as well as they could be and wish you all a Sinus beat. So I'm 3 months more or less without Amioderone. Last 24 hrs I had to pop over A&E as I didn't like my BP numbers. My average jumped and had a couple of concerning results Device is trustworthy Omron I did some gardening
Hi all,Hope everyone is as well as they could be and wish you all a Sinus beat. So I'm 3 months more or less without Amioderone. Last 24 hrs I had to pop over A&E as I didn't like my BP numbers. My average jumped and had a couple of concerning results Device is trustworthy Omron I did some gardening
Quest4NSR
in
Atrial Fibrillation Support
23 hours ago
hello I have realy severe anxiety, realy struggling
hello iam suffering with realy bad anxiety, I have a heart rythym problem, but strong heart , but been told it’s ok , had it for13 yrs but never realy had symptoms until medication became to make me feel unwell , been given diazepam was ok first day but now I’m worried it’s giving me palpitations , my
hello iam suffering with realy bad anxiety, I have a heart rythym problem, but strong heart , but been told it’s ok , had it for13 yrs but never realy had symptoms until medication became to make me feel unwell , been given diazepam was ok first day but now I’m worried it’s giving me palpitations , my
Prosecco1997
in
Anxiety Support
2 days ago
possible recurrence…
Hi ladies, I am stage 4 and have had 2 lines of carbo/taxol/avastin I am having an MRI scan today and have had a CT scan, my symptoms are a little bit of bloating and pain in my tummy and other areas since September last year when my ca-125 started increasing from 66, going up and up and now at 650
Hi ladies, I am stage 4 and have had 2 lines of carbo/taxol/avastin I am having an MRI scan today and have had a CT scan, my symptoms are a little bit of bloating and pain in my tummy and other areas since September last year when my ca-125 started increasing from 66, going up and up and now at 650
sarah040866
in
My Ovacome
7 months ago
First night on Buprenorphine
So today I took 0.2 mg of Buprenorphine, thinking it was better to start low. The effect was incredible. My legs didn't move at all. In fact, the effect was so effective that I even got scared. My body was so relaxed. I got a little anxious that I may not wake up if I felt sleep. I layed there amazed
So today I took 0.2 mg of Buprenorphine, thinking it was better to start low. The effect was incredible. My legs didn't move at all. In fact, the effect was so effective that I even got scared. My body was so relaxed. I got a little anxious that I may not wake up if I felt sleep. I layed there amazed
Anthas
in
Restless Legs Syndrome
4 days ago
COVID VACCINE.?
I had PMR from 2013-2018 when I had the all clear. Posting this new information because i have had all my covid vaccines, but since the last 2 boosters I have had aching shoulders and legs pain. My doctor after blood tests because my cp level is 13 I have PMR again and has put me on pred.again 15mgs
I had PMR from 2013-2018 when I had the all clear. Posting this new information because i have had all my covid vaccines, but since the last 2 boosters I have had aching shoulders and legs pain. My doctor after blood tests because my cp level is 13 I have PMR again and has put me on pred.again 15mgs
Zampalion
in
PMRGCAuk
5 days ago
Median PFS for FCR treated CLL patients with IGHV-M was 14.6 years vs 4.2 years for patients with IGHV-UM. V+O and I+R look to be superior
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
An update of the long-term follow-up results from the original 300-patient FCR (fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline FCR treatment with very-long-term follow-up,
reports ~47% of patients with mutated IGHV
AussieNeil
Partner
in
CLL Support
7 days ago
Colon Journey
I thought I’d share my journey leading up to this point and I hope to continue to update as things move along. I hate it when nobody updates. Timeline: 12 years ago: After my first daughter turned 1 I went to the bathroom with blood in stool. It was super bright red and a lot. Went to the doctor and
I thought I’d share my journey leading up to this point and I hope to continue to update as things move along. I hate it when nobody updates. Timeline: 12 years ago: After my first daughter turned 1 I went to the bathroom with blood in stool. It was super bright red and a lot. Went to the doctor and
Cleaneats
in
Colon Cancer Connected
5 months ago
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