Hey girls I hope yous all are well which is probably a silly thing too say when you are all living with a horrible disease. I've went down the terrible rabbit hole off googling non stop from last week and doing alot off research. Firstly if anyone suffers with recurrent UTIs are has IC then I highly recommend Waterfall D Manrose. I suffered with a UTI last week and the antibiotics were awful, they made me feel so sick and really blocked me up which lead to terrible constipation so I ordered the D Manrose as I used them years ago for recurrent UTIs and they were godsend as alternative to antibiotics with no side effects so they may help some off you woman out there and it could also be effective for IC which is Endos evil twin.
Lastly has anyone looked into Celiac disease as it can be very like Endo with symptoms etc and behave very like it. There is Endo quizzes and Celiac disease quizzes out there which is to help bring forward to your our Dr's and off course it says I'm high risk for both based on symptoms. I just thought I would write in about where I'm at with my situation and to spread more awareness incase anyone is in the same boat.
Xxx
Written by
KB1987
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Hello - if you think you might have coeliac disease, it is worth seeing your GP - as long as you are eating plenty of gluten currently, there is a blood test that they can do which gives a good indication. Some people might need biopsies but not all. (Certainly easier to diagnose than endometriosis!)
I was tested for coeliac disease but it was fine however, I am SO much better off grains. I read Grain Brain and Wheat Belly and realised it's so much more than gluten. Take it out of your diet and you'll see. Also there were news articles this weekend about lactin and endometriosis which is interesting.
I was diagnosed coeliac 20yrs ago and underactive Thyroid in 2016 and endometriosis on bladder and rectum since 2018, nothing been done since as their own words are 'fear of damaging other organs '. I'm only being given pain management and am on a year's long waiting list to see one of two specialists in Ireland. I know I have a very sensitive stomach as I accidentally glutened myself a while ago and my god it was awful. Even some food labelled gluten free can be a problem for me.
My coeliac symptoms were really bad diarrhoea, intense nausea constantly, neither of which were cyclical, weight loss, and upper abdominal pain.
Whereas my endo bowel symptoms were all more lower down with diarrhoea and nausea specifically around peak pain days around period, and ovulation and lead up to period constipation and pain opening bowels.
Thank you so much. I also get the bowel issues when I'm close to my period. I get extremely constipated and I get the worse stabbing pain while opening my bowels. Not sure where abouts. I think it's in my GI tract are intestines the stabbing pain. The thing that is making me think Celiac disease is because I get alot off pain under my ribs from ovulation up until my period. I actually got the worst pain today under my right rib that shot right down into my stomach. It was a horrible sharp burning pain that nearly brought me to my knees but only lasted for a minute. Still never experienced that sort off feeling before. Its always been sharp and stabbing round the area. Been so worried about it ever sense so phoning the Dr's first thing in the morning xx
I thought that my bladder pain was linked to endometriosis (I was diagnosed with endo by laparoscopy last year) but when I cut out gluten & made other diet changes it stopped completely.. I can finally exercise again after months of not being able to due to bladder pains flare-ups. I asked GP for a coeliac blood test & was negative but gluten was definitely a huge issue for me, so much better without it. Thanks for sharing your experience x
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