Search
Search
About
Log in
Join
Experiences with
Hypomyelination and congenital cataract
Posts
Communities
37,776 public posts
Filter results
Dense adhesions after 15 surgeries, + 2 rare medical conditions
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
Eegmetem
in
Pelvic Pain Support Network
2 months ago
Advice regarding alcohol and IBS!
I’m only 3 months into my possible IBS journey and am 6 days into a flare up. I did Dry February and was IBS free!! However we went on holiday and I had wine. Got back on Thursday and on Friday it started…has anyone noticed that alcohol exacerbates IBS? The doctor has given me mebeverine which might
I’m only 3 months into my possible IBS journey and am 6 days into a flare up. I did Dry February and was IBS free!! However we went on holiday and I had wine. Got back on Thursday and on Friday it started…has anyone noticed that alcohol exacerbates IBS? The doctor has given me mebeverine which might
Martini1
in
IBS Network
2 months ago
Vitamin B12 deficiency diagnosis and management - New NICE guidance
https://www.nice.org.uk/guidance/ng239/chapter/recommendations#recognising-vitamin-b12-deficiency
https://www.nice.org.uk/guidance/ng239/chapter/recommendations#recognising-vitamin-b12-deficiency
Pasionaria
in
Thyroid UK
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Vitamins D and K7
I was diagnosed with hypothyroidism nine months ago, and prescribed 50mcg levothyroxine per day. No mention was made of Vitamin D results or any related issues like ferritin,or B12. I take Vitamin D 2200iu throughout Winter, and, as of October 23, after some online research, added Vitamin K2, 100 ug.
I was diagnosed with hypothyroidism nine months ago, and prescribed 50mcg levothyroxine per day. No mention was made of Vitamin D results or any related issues like ferritin,or B12. I take Vitamin D 2200iu throughout Winter, and, as of October 23, after some online research, added Vitamin K2, 100 ug.
lalage1979
in
Thyroid UK
2 months ago
STAGE 1C1 Grade 2
Hello again everyone Hope you’re all keeping well 😊 I did a reply to my original post a while back but thought I’d give another update I have decided for the one agent only Carboplatin had my first dose yesterday and touch wood feeling ok so far. Thanks for all your replies. The only reason I
Hello again everyone Hope you’re all keeping well 😊 I did a reply to my original post a while back but thought I’d give another update I have decided for the one agent only Carboplatin had my first dose yesterday and touch wood feeling ok so far. Thanks for all your replies. The only reason I
Kscott10
in
My Ovacome
6 months ago
super high gastrin level
hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, and Barrett’s esophagus 3 months ago. My gastrin in sept was 200, in Dec it was 1000, and now in March it is 2500. It’s escalated so quickly and my doctor just ordered a scan for neuroendocrine tumors. I’m freaking out —
hi there - I just got diagnosed with pernicious anemia, autoimmune gastritis, and Barrett’s esophagus 3 months ago. My gastrin in sept was 200, in Dec it was 1000, and now in March it is 2500. It’s escalated so quickly and my doctor just ordered a scan for neuroendocrine tumors. I’m freaking out —
Lhood08
in
Pernicious Anaemia Society
2 months ago
Actinic Keratosis
Good morning from the US of A, Yesterday I received notification from a scalp biopsy I had done last week that the sore on the top of my head is Actinic Keratosis. In researching it I found it is due to ultra violet ray exposure and it is pre cancerous. I mentioned to the Dermatologist that I have been
Good morning from the US of A, Yesterday I received notification from a scalp biopsy I had done last week that the sore on the top of my head is Actinic Keratosis. In researching it I found it is due to ultra violet ray exposure and it is pre cancerous. I mentioned to the Dermatologist that I have been
mbr8076
in
MPN Voice
2 months ago
Detection of Small Cell Prostate Cancer
I understand Small Cell Prostate Cancer (SCPC) may produce less PSA. How do you detect SCPC? Is it detectable by PSMA PET/CT scan?
I understand Small Cell Prostate Cancer (SCPC) may produce less PSA. How do you detect SCPC? Is it detectable by PSMA PET/CT scan?
dac500
in
Advanced Prostate Cancer
6 months ago
Getting tested after taking any supplements...
Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological. How I felt was gradual at first and more like fatigue and gastic upsets, intermittent mild tingling, over the last few years, but last year my
Hi there, I found this information after worrying that I have lost my mind due to GP responses, on top of all of my very B12 like symptoms, Inc. Neurological. How I felt was gradual at first and more like fatigue and gastic upsets, intermittent mild tingling, over the last few years, but last year my
Suffering_sunny
in
Pernicious Anaemia Society
2 months ago
Prostate cancer treatment and IBS
Dear Friends and Sufferers! I've been diagnosed with prostate cancer and have the option of removing the prostate or radiotherapy with or without hormone treatment. Can anyone out there who has experience of these offer advise on their impact on IBS and bowel function? At the moment, I've got IBS looseness
Dear Friends and Sufferers! I've been diagnosed with prostate cancer and have the option of removing the prostate or radiotherapy with or without hormone treatment. Can anyone out there who has experience of these offer advise on their impact on IBS and bowel function? At the moment, I've got IBS looseness
merve1
in
IBS Network
6 months ago
Rapidly rising TPO Antibodies, should I be worried?
Hi again everyone. Last Monday I did a home blood test with MMH, the full health + tpo. The results came back as 199 - range 0-35. I then had a GP appointment on Friday to discuss my concerns about my recent blood results, of course she completely dismissed them and told me to get some more bloods done
Hi again everyone. Last Monday I did a home blood test with MMH, the full health + tpo. The results came back as 199 - range 0-35. I then had a GP appointment on Friday to discuss my concerns about my recent blood results, of course she completely dismissed them and told me to get some more bloods done
Mummybear0213
in
Thyroid UK
6 months ago
cataract plus micro shunt
Has anybody had cataract surgery with micro surgery at same time My consultant says it only takes 2 mins longer and did it work ?
Has anybody had cataract surgery with micro surgery at same time My consultant says it only takes 2 mins longer and did it work ?
Eye2see
in
Glaucoma UK
1 year ago
5th Pluvicto tomorrow
My husband's lab work for tomorrow's treatment shows a new low on his PSA, 7.9. Again there are blood numbers that are in the "low" range but last time the Doctor Wasn't concerned and we were able to return to Mexico 3 days after treatment. His weight is down 10 lbs from last time but i be been sick
My husband's lab work for tomorrow's treatment shows a new low on his PSA, 7.9. Again there are blood numbers that are in the "low" range but last time the Doctor Wasn't concerned and we were able to return to Mexico 3 days after treatment. His weight is down 10 lbs from last time but i be been sick
Karirudy
in
Advanced Prostate Cancer
6 months ago
vitamin deficiencies
I had most of my sigmoid removed because of diverticulitis five years ago. My question is my surgeon said that it should not affect my vitamin or mineral intake because the sigmoid doesn’t involve that. Got on finding that it most certainly does I get a B12 injection because I’m a vegetarian so that
I had most of my sigmoid removed because of diverticulitis five years ago. My question is my surgeon said that it should not affect my vitamin or mineral intake because the sigmoid doesn’t involve that. Got on finding that it most certainly does I get a B12 injection because I’m a vegetarian so that
Gardeningbuff
in
Bowel Disease Support
2 months ago
Low B12 levels
it’s not an area I know much about with a B12 level of 433 (187-833) would I qualify for B12 injections?
it’s not an area I know much about with a B12 level of 433 (187-833) would I qualify for B12 injections?
Bollieforme
in
Thyroid UK
2 months ago
still confused about my iron results
I’ve now redone my iron panel with medichecks and have similar results to last time. I can’t work out why my ferritin continues to drop. And what I can do about it as I know I need higher ferritin levels for optimum thyroid hormone function. …………………………… Ferritin……….Iron……….. Trans. Sat………..TIBC……….
I’ve now redone my iron panel with medichecks and have similar results to last time. I can’t work out why my ferritin continues to drop. And what I can do about it as I know I need higher ferritin levels for optimum thyroid hormone function. …………………………… Ferritin……….Iron……….. Trans. Sat………..TIBC……….
Mazes
in
Thyroid UK
2 months ago
Newly discovered stem cell offers clues to a cancer mystery.
https://www.scientificamerican.com/article/newfound-stem-cell-might-explain-how-breast-cancer-spreads-to-the-spine/#:~:text=Scientists%20have%20discovered%20a%20new,the%20reasons%20have%20been%20unknown When breast, lung and prostate cancers metastasize to multiple bones in the body, three to five
https://www.scientificamerican.com/article/newfound-stem-cell-might-explain-how-breast-cancer-spreads-to-the-spine/#:~:text=Scientists%20have%20discovered%20a%20new,the%20reasons%20have%20been%20unknown When breast, lung and prostate cancers metastasize to multiple bones in the body, three to five
anonymoose2
in
Advanced Prostate Cancer
6 months ago
Results for fatty kidney
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Hi I have just received my results for my CT scan with contrast for a fatty lump on my Kidney. It’s AML …Angiomyolipoma. It has a 13mm in size and not Cancer phew I’ve been so worried. They want me to have it checked every year for growth . Has any f my CLL folk been diagnosed with this condition?
Pekingese
in
CLL Support
6 months ago
Scared and Frustrated
The beginning of February i thought i had the beginnings of maybe a stomach bug. Bloating, gas, sudden urge and need to use the bathroom.... only nothing would come, just mucus and very very small amounts if unformed fluff. This continued till I noticed i hadn't had a real movement for nearly two weeks
The beginning of February i thought i had the beginnings of maybe a stomach bug. Bloating, gas, sudden urge and need to use the bathroom.... only nothing would come, just mucus and very very small amounts if unformed fluff. This continued till I noticed i hadn't had a real movement for nearly two weeks
Tummytroubles1
in
Colon Cancer Connected
2 months ago
Hi there.
Still awaiting cancer checks. Still scared about that and the finger deformations since everything I have read seems to indicate that the vast majority of the time clubbing seems to be a harbinger of death. Does anyone know where I can access emotional support relatively quickly? GP said waiting times
Still awaiting cancer checks. Still scared about that and the finger deformations since everything I have read seems to indicate that the vast majority of the time clubbing seems to be a harbinger of death. Does anyone know where I can access emotional support relatively quickly? GP said waiting times
JHutton1994
in
Lung Conditions Community Forum
6 months ago
1
...
48
49
50
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3278 results
My Ovacome
2898 results
Thyroid UK
2793 results
View top 10 communities
Sort by
Most Relevant
Newest