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Trying to cope…
In October 2021, my dad was diagnosed with a terminal Glioblastoma. In the same week, we also found out my mum had bowel cancer. Both underwent a operation. Mum is now hopefully all clear and hasn’t needed any chemo. Dad hasn’t been as lucky and now lives in a care home, receiving palliative care. I’
In October 2021, my dad was diagnosed with a terminal Glioblastoma. In the same week, we also found out my mum had bowel cancer. Both underwent a operation. Mum is now hopefully all clear and hasn’t needed any chemo. Dad hasn’t been as lucky and now lives in a care home, receiving palliative care. I’
Shanice1997
in
Glioblastoma Support
3 years ago
GP versus Eye Casualty
Hello. I woke up this morning and my eyes were red and puffy, sore, itchy, swollen and discharging. Contacted my GP (by econsult, as phone lines engaged for first 3 hours at least). Then my instinct told me to ring eye casualty. They called me in, and did a thorough job, diagnosing allergic conjunctivitis
Hello. I woke up this morning and my eyes were red and puffy, sore, itchy, swollen and discharging. Contacted my GP (by econsult, as phone lines engaged for first 3 hours at least). Then my instinct told me to ring eye casualty. They called me in, and did a thorough job, diagnosing allergic conjunctivitis
Efabear
in
Glaucoma UK
2 years ago
Anyone with experience of Lamotrigine as a preventative?
My consultant has prescribed Lamotrigine as a preventative. I’m wary as I had terrible side effects with topimirate. Beta blockers do not have any effect. So I have to try a third preventative in order to be eligible for cgrp injections. I don’t want to go backwards in my daily life with the mood swings
My consultant has prescribed Lamotrigine as a preventative. I’m wary as I had terrible side effects with topimirate. Beta blockers do not have any effect. So I have to try a third preventative in order to be eligible for cgrp injections. I don’t want to go backwards in my daily life with the mood swings
Maryking
in
National Migraine Centre
2 years ago
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Sore eyelid
Hi all following on from a previous post ..I had a bad reaction to Lumigan drops and after a call to the hospital they put me back on Monopost which i had taken previously for 5 years with no issues. I've also been on Cosopt pf for a year. My eyelids were very sore and itchy when I stopped the Lumigan
Hi all following on from a previous post ..I had a bad reaction to Lumigan drops and after a call to the hospital they put me back on Monopost which i had taken previously for 5 years with no issues. I've also been on Cosopt pf for a year. My eyelids were very sore and itchy when I stopped the Lumigan
EthelPledge94
in
Glaucoma UK
2 years ago
Update; pred taper and back injecitons
First of all, the back injections work because now I'm back to pain and stints of short-term standing and then the walker. So, that is good news. Now, my back feels almost as bad as before but I am due for the second round of diagnostic injecitons on March 15th, analyze the pain diary and then hopefully
First of all, the back injections work because now I'm back to pain and stints of short-term standing and then the walker. So, that is good news. Now, my back feels almost as bad as before but I am due for the second round of diagnostic injecitons on March 15th, analyze the pain diary and then hopefully
Grammy80
in
PMRGCAuk
2 years ago
Practical Suggestions for PWP. Myopia
As the lucky chosen few to get pd it should be noted that a lot of us will suffer from vision issues as the rods and cones of the eye and other associated muscles succumb to dopamine depletion. One thing you can do is that as we become increasingly debilitated and spend alot of times indoors dont forget
As the lucky chosen few to get pd it should be noted that a lot of us will suffer from vision issues as the rods and cones of the eye and other associated muscles succumb to dopamine depletion. One thing you can do is that as we become increasingly debilitated and spend alot of times indoors dont forget
beehive23
in
Cure Parkinson's
2 years ago
Could I be in remission
Hi everyone I have been on here now a few years winging about my RA and getting great advice but good news this time. I did get a steroid shot in December on my left shoulder as the doc thinks I have tendon damage although my RA consultant thinks this pain is due to my RA' anyway I did also start
Hi everyone I have been on here now a few years winging about my RA and getting great advice but good news this time. I did get a steroid shot in December on my left shoulder as the doc thinks I have tendon damage although my RA consultant thinks this pain is due to my RA' anyway I did also start
Frankiefocus
in
NRAS
2 years ago
thanks to all....and curious about palliative care?
thanks so much to all of you for your thoughtful and caring replies. you are an amazing group of women, but i already knew that! yesterday i gave an overview...a lengthy one at that...lol. today i will be more specific.... the deterioration of my spine is progressing rapidly the past couple months.
thanks so much to all of you for your thoughtful and caring replies. you are an amazing group of women, but i already knew that! yesterday i gave an overview...a lengthy one at that...lol. today i will be more specific.... the deterioration of my spine is progressing rapidly the past couple months.
kokopelli2017
in
SHARE Metastatic Breast Cancer
3 years ago
Petition to grant visas to Ukrainian refugees
Please sign and share if you agree https://petition.parliament.uk/petitions/609530 I’m so ashamed of the Home Office’s inhumanity towards these exhausted and traumatised people Ps: a report from Mark Easton, the BBC’s Home Editor in Calais: “On Monday, one family followed by the BBC was sent from building
Please sign and share if you agree https://petition.parliament.uk/petitions/609530 I’m so ashamed of the Home Office’s inhumanity towards these exhausted and traumatised people Ps: a report from Mark Easton, the BBC’s Home Editor in Calais: “On Monday, one family followed by the BBC was sent from building
Hidden
in
Lung Conditions Community Forum
2 years ago
Et + Cutaneous Mastocytosis
Blessed Day to everyone! Does anyone here having ET and cutaneous Mastocytosis or systemic Mastocytosis? Can I know what symptoms currently you facing ? Did you have headaches almost everyday 😞.
Blessed Day to everyone! Does anyone here having ET and cutaneous Mastocytosis or systemic Mastocytosis? Can I know what symptoms currently you facing ? Did you have headaches almost everyday 😞.
Ryna-Ally
in
MPN Voice
2 years ago
Rock on Cabazitaxel!!
Dx 18 months ago, becoming mCRPC after only 6 months on ADT, failing abiraterone , failing docetaxel and failing Lu 177 my husband was running out of options. He was in a lot of pain with a soaring PSA - things were looking grim. We had our first visit from the palliative care team two weeks ago. We
Dx 18 months ago, becoming mCRPC after only 6 months on ADT, failing abiraterone , failing docetaxel and failing Lu 177 my husband was running out of options. He was in a lot of pain with a soaring PSA - things were looking grim. We had our first visit from the palliative care team two weeks ago. We
Crummy64
in
Advanced Prostate Cancer
3 years ago
Practical suggestions for PWP. Drooling. Runny nose.
For drooling you can use a few eyedrops that contain atropine, put 3-4 drops in a cup of water and swish it in your mouth then spit it out especially before bed if nighttime drooling is a problem. For runny nose put a couple drops of atropine eye drops on a q-tip and swab your nose. Hang tough...cheers
For drooling you can use a few eyedrops that contain atropine, put 3-4 drops in a cup of water and swish it in your mouth then spit it out especially before bed if nighttime drooling is a problem. For runny nose put a couple drops of atropine eye drops on a q-tip and swab your nose. Hang tough...cheers
beehive23
in
Cure Parkinson's
2 years ago
Brain metastases
My hubby who had surgery for lung cancer now has brain metastases 2 to be precise I'm so upset as hes not been kept an eye on apart from lung xray every 3 months , he started to be weak on the right side and had some seizures mri picked them up now referred to radiotherapy and started on steroids anyone
My hubby who had surgery for lung cancer now has brain metastases 2 to be precise I'm so upset as hes not been kept an eye on apart from lung xray every 3 months , he started to be weak on the right side and had some seizures mri picked them up now referred to radiotherapy and started on steroids anyone
Canabeans
in
Lung Conditions Community Forum
2 years ago
Do these Fibro symptoms- improve?
I've started to have lots of visual disturbance, apart from the usual spaced out and feeling woozy. This last couple of weeks I've had difficulty eating as my jaw aches when I eat ... it's not tooth pain, but I can't even eat the soft crust on sliced bread, even having to overcook my veg, which I hate
I've started to have lots of visual disturbance, apart from the usual spaced out and feeling woozy. This last couple of weeks I've had difficulty eating as my jaw aches when I eat ... it's not tooth pain, but I can't even eat the soft crust on sliced bread, even having to overcook my veg, which I hate
saj01
in
Fibromyalgia Action UK
2 years ago
Dry eyes
Following my trab 4 days ago I find the eye drop medication really drying for my eyes, has anyone had the same reaction and if so is there anything that you found helpful. I have hylo forte moisterising drops but they haven’t made much of a difference and I’m not sure if they are suitable just at the
Following my trab 4 days ago I find the eye drop medication really drying for my eyes, has anyone had the same reaction and if so is there anything that you found helpful. I have hylo forte moisterising drops but they haven’t made much of a difference and I’m not sure if they are suitable just at the
Hidden
in
Glaucoma UK
3 years ago
Aquagenic pruritus/Polycythemia
Hello, I have recently started having severe itching (like prickling/burning) after showering. Initially I thought there was something in the water but after eliminating this possibility, I did some research and came across aquagenic pruritus. I am really scared since I read it is a specific symptom
Hello, I have recently started having severe itching (like prickling/burning) after showering. Initially I thought there was something in the water but after eliminating this possibility, I did some research and came across aquagenic pruritus. I am really scared since I read it is a specific symptom
Gotroot
in
MPN Voice
2 years ago
Day 5 scan 🍀
Hello lovely ladies I hope you are all well. I had my day 5 scan and there are already some follicles over 16 mm, quite a few at 10-11-12-13-14 mm too. Doc was happy with everything. I'm starting Cetrotide today as well. Triggering Saturday night with Ovitrelle 250 and I have two other injections with
Hello lovely ladies I hope you are all well. I had my day 5 scan and there are already some follicles over 16 mm, quite a few at 10-11-12-13-14 mm too. Doc was happy with everything. I'm starting Cetrotide today as well. Triggering Saturday night with Ovitrelle 250 and I have two other injections with
Klndmr
in
Fertility Network UK
2 years ago
Clinical trials for Richter's transformation
Hello. I would like to ask if you know of any current clinical trials for patients with Richter's Transformation who have already reached the Car-T and it did not work for them. We have in our group a very young 22-year-old boy whose Car-Ts didn't work for him in the UK. They have told him that they
Hello. I would like to ask if you know of any current clinical trials for patients with Richter's Transformation who have already reached the Car-T and it did not work for them. We have in our group a very young 22-year-old boy whose Car-Ts didn't work for him in the UK. They have told him that they
Priss69
in
CLL Support
3 years ago
IBS and diverticulosis
I have been diagnosed with IBS and diverticulosis! My doctor prescribed dicyclomine, which does not help. I’m in pain every day! I’ve tried different diets and nothing helps! I’m at my wits end and dont know what to do. I’m either constipated or diaherra and sometimes it’s both. It’s ruining my
I have been diagnosed with IBS and diverticulosis! My doctor prescribed dicyclomine, which does not help. I’m in pain every day! I’ve tried different diets and nothing helps! I’m at my wits end and dont know what to do. I’m either constipated or diaherra and sometimes it’s both. It’s ruining my
Nancy2022
in
IBS Network
2 years ago
worrying
I have recently come to live in a Care Home and since then my skin has become unbearably dry & itchy. Dry eyes are particularly sore . I had to come off my MXT for 3 weeks recently because of a hospital procedure,and wonder whether that has exacerbated the position. I read about a condition ( begins
I have recently come to live in a Care Home and since then my skin has become unbearably dry & itchy. Dry eyes are particularly sore . I had to come off my MXT for 3 weeks recently because of a hospital procedure,and wonder whether that has exacerbated the position. I read about a condition ( begins
QAGS
in
NRAS
2 years ago
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